Re: Tort/Plagio and Cord Around the Neck - Studies?

[Guest guest]

Amy,

Cece's cord was wrapped around her neck twice too. Her PT who is

known to many as " The Tort Goddess " said this is how she probably got

her tort.

Dane's cord wasn't around his neck, but he didn't develop tort

inutero. We were told to only lay and hold him on his right side. So

we messed with his head and his neck.

Mom to Dane (4 yo) and Cece (13 mo) DOC Grads

[Guest guest]

Amy,

Cece's cord was wrapped around her neck twice too. Her PT who is

known to many as " The Tort Goddess " said this is how she probably got

her tort.

Dane's cord wasn't around his neck, but he didn't develop tort

inutero. We were told to only lay and hold him on his right side. So

we messed with his head and his neck.

Mom to Dane (4 yo) and Cece (13 mo) DOC Grads

[Guest guest]

Very interesting thought. My son had the cord around the neck as

well, quite tight, combined with 2 other factors he spent his first

3 days in the NICU. We just confirmed with our pedi that I had

mentioned the flat spot at his two week visit, again at the 1 month,

again at the 2 month and finally we pushed for the consult...

>

> On the other plagio board there is some discussion about have the

cord

> wrapped around the babies neck during delivery and resulting neck

> injury (tort maybe). Ben did not have torticollis, but there were

> some questions regarding range of motion when he was diagnosied

with

> plagio/brachy. The umbilical cord was wrapped around his next

> (twice). Has anyone seen any studies that compares the incident

rate

> of tort in babies born with the cord around the neck? If there is

a

> good correlation, then this would be a great opportunity for the

OB to

> communicate this.

>

> On a side note, when Ben was born, the hospital's ped evaluated

Ben. I

> wasn't really thinking to clearly at the time, but would the OB

have

> put that information in Ben's chart? When we went to see Ben's

ped,

> she did a complete physical and did not request a copy of Ben's

> hospital chart.

>

> Amy Posner

> Mom to Ben, DOC grad 11/16 (will be 1 year old on Sunday!)

>

[Guest guest]

Very interesting thought. My son had the cord around the neck as

well, quite tight, combined with 2 other factors he spent his first

3 days in the NICU. We just confirmed with our pedi that I had

mentioned the flat spot at his two week visit, again at the 1 month,

again at the 2 month and finally we pushed for the consult...

>

> On the other plagio board there is some discussion about have the

cord

> wrapped around the babies neck during delivery and resulting neck

> injury (tort maybe). Ben did not have torticollis, but there were

> some questions regarding range of motion when he was diagnosied

with

> plagio/brachy. The umbilical cord was wrapped around his next

> (twice). Has anyone seen any studies that compares the incident

rate

> of tort in babies born with the cord around the neck? If there is

a

> good correlation, then this would be a great opportunity for the

OB to

> communicate this.

>

> On a side note, when Ben was born, the hospital's ped evaluated

Ben. I

> wasn't really thinking to clearly at the time, but would the OB

have

> put that information in Ben's chart? When we went to see Ben's

ped,

> she did a complete physical and did not request a copy of Ben's

> hospital chart.

>

> Amy Posner

> Mom to Ben, DOC grad 11/16 (will be 1 year old on Sunday!)

>

[Guest guest]

Well now.  Carson had a nuchal cord (cord around the neck), too.  I wonder if there really is a correlation with tort?Andy in MiamiOn Feb 6, 2006, at 10:38 PM, Rick wrote: Very interesting thought.  My son had the cord around the neck as well, quite tight, combined with 2 other factors he spent his first 3 days in the NICU.  We just confirmed with our pedi that I had mentioned the flat spot at his two week visit, again at the 1 month, again at the 2 month and finally we pushed for the consult... > > On the other plagio board there is some discussion about have the cord > wrapped around the babies neck during delivery and resulting neck > injury (tort maybe).  Ben did not have torticollis, but there were > some questions regarding range of motion when he was diagnosied with > plagio/brachy. The umbilical cord was wrapped around his next > (twice).  Has anyone seen any studies that compares the incident rate > of tort in babies born with the cord around the neck?  If there is a > good correlation, then this would be a great opportunity for the OB to > communicate this. > > On a side note, when Ben was born, the hospital's ped evaluated Ben. I > wasn't really thinking to clearly at the time, but would the OB have > put that information in Ben's chart?  When we went to see Ben's ped, > she did a complete physical and did not request a copy of Ben's > hospital chart. > > Amy Posner > Mom to Ben, DOC grad 11/16 (will be 1 year old on Sunday!) > For more plagio info

[Guest guest]

Well now.  Carson had a nuchal cord (cord around the neck), too.  I wonder if there really is a correlation with tort?Andy in MiamiOn Feb 6, 2006, at 10:38 PM, Rick wrote: Very interesting thought.  My son had the cord around the neck as well, quite tight, combined with 2 other factors he spent his first 3 days in the NICU.  We just confirmed with our pedi that I had mentioned the flat spot at his two week visit, again at the 1 month, again at the 2 month and finally we pushed for the consult... > > On the other plagio board there is some discussion about have the cord > wrapped around the babies neck during delivery and resulting neck > injury (tort maybe).  Ben did not have torticollis, but there were > some questions regarding range of motion when he was diagnosied with > plagio/brachy. The umbilical cord was wrapped around his next > (twice).  Has anyone seen any studies that compares the incident rate > of tort in babies born with the cord around the neck?  If there is a > good correlation, then this would be a great opportunity for the OB to > communicate this. > > On a side note, when Ben was born, the hospital's ped evaluated Ben. I > wasn't really thinking to clearly at the time, but would the OB have > put that information in Ben's chart?  When we went to see Ben's ped, > she did a complete physical and did not request a copy of Ben's > hospital chart. > > Amy Posner > Mom to Ben, DOC grad 11/16 (will be 1 year old on Sunday!) > For more plagio info

[Guest guest]

I think it really stinks that we all have to " speculate " about alot

of this and our doctors etc. don't tell us or don't know. It would

be so nice to have a medical professional that knows all these

answers. One day!

Sherry

Chase (6 months)

tort

DOCbanding 2/17

> >

> > On the other plagio board there is some discussion about have the

> cord

> > wrapped around the babies neck during delivery and resulting neck

> > injury (tort maybe). Ben did not have torticollis, but there

were

> > some questions regarding range of motion when he was diagnosied

> with

> > plagio/brachy. The umbilical cord was wrapped around his next

> > (twice). Has anyone seen any studies that compares the incident

> rate

> > of tort in babies born with the cord around the neck? If there

is

> a

> > good correlation, then this would be a great opportunity for the

> OB to

> > communicate this.

> >

> > On a side note, when Ben was born, the hospital's ped evaluated

> Ben. I

> > wasn't really thinking to clearly at the time, but would the OB

> have

> > put that information in Ben's chart? When we went to see Ben's

> ped,

> > she did a complete physical and did not request a copy of Ben's

> > hospital chart.

> >

> > Amy Posner

> > Mom to Ben, DOC grad 11/16 (will be 1 year old on Sunday!)

> >

>

[Guest guest]

I think it really stinks that we all have to " speculate " about alot

of this and our doctors etc. don't tell us or don't know. It would

be so nice to have a medical professional that knows all these

answers. One day!

Sherry

Chase (6 months)

tort

DOCbanding 2/17

> >

> > On the other plagio board there is some discussion about have the

> cord

> > wrapped around the babies neck during delivery and resulting neck

> > injury (tort maybe). Ben did not have torticollis, but there

were

> > some questions regarding range of motion when he was diagnosied

> with

> > plagio/brachy. The umbilical cord was wrapped around his next

> > (twice). Has anyone seen any studies that compares the incident

> rate

> > of tort in babies born with the cord around the neck? If there

is

> a

> > good correlation, then this would be a great opportunity for the

> OB to

> > communicate this.

> >

> > On a side note, when Ben was born, the hospital's ped evaluated

> Ben. I

> > wasn't really thinking to clearly at the time, but would the OB

> have

> > put that information in Ben's chart? When we went to see Ben's

> ped,

> > she did a complete physical and did not request a copy of Ben's

> > hospital chart.

> >

> > Amy Posner

> > Mom to Ben, DOC grad 11/16 (will be 1 year old on Sunday!)

> >

>

[Guest guest]

My son was born with tort. His cord was wrapped around his neck

twice. His tort was pretty bad. He is 6 months now. Therapy since he

was 2 months. He now has almost full range of motion and is holding

his head up almost straight. He does still tilt if he is tired or

sitting in something like a highchair or carseat. His plagio was

moderate and I have been waiting for his helmet. Aggressively repo-

ing the whole time. He is rarely on his head anymore, so it is

shaping quite a bit on it's own. I hear that the bands only reshape

where there is brain growth and that it will not help with facial

assymetry. But then so many moms say that the face is so much better

after the helmet. I am concerned about the face and jaw. His upper

gum line is even noticably higher on one side. What type of

correction have you all seen in the face?

[Guest guest]

My son was born with tort. His cord was wrapped around his neck

twice. His tort was pretty bad. He is 6 months now. Therapy since he

was 2 months. He now has almost full range of motion and is holding

his head up almost straight. He does still tilt if he is tired or

sitting in something like a highchair or carseat. His plagio was

moderate and I have been waiting for his helmet. Aggressively repo-

ing the whole time. He is rarely on his head anymore, so it is

shaping quite a bit on it's own. I hear that the bands only reshape

where there is brain growth and that it will not help with facial

assymetry. But then so many moms say that the face is so much better

after the helmet. I am concerned about the face and jaw. His upper

gum line is even noticably higher on one side. What type of

correction have you all seen in the face?

[Guest guest]

's cord was also around her neck and she was born with tort.

Although my 4 year old also had the cord around her neck and was

perfectly fine.

When I was in labor with (my Hanger Grad) she was coming down

the birth canal sideways.. Her nose was towards my left hip). The Dr

had to slowly turn her by her head as she was coming out. I think

THIS may have been some cause of the tort... though I think that she

may have had tort anyway because she was always tangled up in me like

a pretzel. LOL

Jen

(18 mo), tort resolved, Hanger Band Grad

( 4 years)

--- In Plagiocephaly , " Amy Posner " <amy.l.posner@...>

wrote:

>

> On the other plagio board there is some discussion about have the

cord

> wrapped around the babies neck during delivery and resulting neck

> injury (tort maybe). Ben did not have torticollis, but there were

> some questions regarding range of motion when he was diagnosied

with

> plagio/brachy. The umbilical cord was wrapped around his next

> (twice). Has anyone seen any studies that compares the incident

rate

> of tort in babies born with the cord around the neck? If there is

a

> good correlation, then this would be a great opportunity for the OB

to

> communicate this.

>

> On a side note, when Ben was born, the hospital's ped evaluated

Ben. I

> wasn't really thinking to clearly at the time, but would the OB

have

> put that information in Ben's chart? When we went to see Ben's

ped,

> she did a complete physical and did not request a copy of Ben's

> hospital chart.

>

> Amy Posner

> Mom to Ben, DOC grad 11/16 (will be 1 year old on Sunday!)

>

[Guest guest]

's cord was also around her neck and she was born with tort.

Although my 4 year old also had the cord around her neck and was

perfectly fine.

When I was in labor with (my Hanger Grad) she was coming down

the birth canal sideways.. Her nose was towards my left hip). The Dr

had to slowly turn her by her head as she was coming out. I think

THIS may have been some cause of the tort... though I think that she

may have had tort anyway because she was always tangled up in me like

a pretzel. LOL

Jen

(18 mo), tort resolved, Hanger Band Grad

( 4 years)

--- In Plagiocephaly , " Amy Posner " <amy.l.posner@...>

wrote:

>

> On the other plagio board there is some discussion about have the

cord

> wrapped around the babies neck during delivery and resulting neck

> injury (tort maybe). Ben did not have torticollis, but there were

> some questions regarding range of motion when he was diagnosied

with

> plagio/brachy. The umbilical cord was wrapped around his next

> (twice). Has anyone seen any studies that compares the incident

rate

> of tort in babies born with the cord around the neck? If there is

a

> good correlation, then this would be a great opportunity for the OB

to

> communicate this.

>

> On a side note, when Ben was born, the hospital's ped evaluated

Ben. I

> wasn't really thinking to clearly at the time, but would the OB

have

> put that information in Ben's chart? When we went to see Ben's

ped,

> she did a complete physical and did not request a copy of Ben's

> hospital chart.

>

> Amy Posner

> Mom to Ben, DOC grad 11/16 (will be 1 year old on Sunday!)

>

[Guest guest]

All I can say to this is that Dr. (cranio facial plastic

surgen, childrens, boston) said that the helmet will help round out

the head but will not affect/effect the assymitries, facial or

ears... That those should recalibrate themselves by the time our

son is 2 or so. His comment is that the only time you see older

children with facial assyimitries is when there are significant

other issues...

Best of luck!

>

> My son was born with tort. His cord was wrapped around his neck

> twice. His tort was pretty bad. He is 6 months now. Therapy

since he

> was 2 months. He now has almost full range of motion and is

holding

> his head up almost straight. He does still tilt if he is tired or

> sitting in something like a highchair or carseat. His plagio was

> moderate and I have been waiting for his helmet. Aggressively

repo-

> ing the whole time. He is rarely on his head anymore, so it is

> shaping quite a bit on it's own. I hear that the bands only

reshape

> where there is brain growth and that it will not help with facial

> assymetry. But then so many moms say that the face is so much

better

> after the helmet. I am concerned about the face and jaw. His

upper

> gum line is even noticably higher on one side. What type of

> correction have you all seen in the face?

>

[Guest guest]

All I can say to this is that Dr. (cranio facial plastic

surgen, childrens, boston) said that the helmet will help round out

the head but will not affect/effect the assymitries, facial or

ears... That those should recalibrate themselves by the time our

son is 2 or so. His comment is that the only time you see older

children with facial assyimitries is when there are significant

other issues...

Best of luck!

>

> My son was born with tort. His cord was wrapped around his neck

> twice. His tort was pretty bad. He is 6 months now. Therapy

since he

> was 2 months. He now has almost full range of motion and is

holding

> his head up almost straight. He does still tilt if he is tired or

> sitting in something like a highchair or carseat. His plagio was

> moderate and I have been waiting for his helmet. Aggressively

repo-

> ing the whole time. He is rarely on his head anymore, so it is

> shaping quite a bit on it's own. I hear that the bands only

reshape

> where there is brain growth and that it will not help with facial

> assymetry. But then so many moms say that the face is so much

better

> after the helmet. I am concerned about the face and jaw. His

upper

> gum line is even noticably higher on one side. What type of

> correction have you all seen in the face?

>

[Guest guest]

--- In Plagiocephaly , " twirpette03 " <twirpette03@...>

wrote:

>. I hear that the bands only reshape

> where there is brain growth and that it will not help with facial

> assymetry. But then so many moms say that the face is so much

better

> after the helmet. I am concerned about the face and jaw. His upper

> gum line is even noticably higher on one side. What type of

> correction have you all seen in the face?

Both of my children got complete correction to their facial

asymmetry. Their ears are now in the normal range if not perfectly

aligned. An active band should correct the asymmetries.

Mom to Dane (4 yo) and Cece (13 mo) DOC Grads

[Guest guest]

--- In Plagiocephaly , " twirpette03 " <twirpette03@...>

wrote:

>. I hear that the bands only reshape

> where there is brain growth and that it will not help with facial

> assymetry. But then so many moms say that the face is so much

better

> after the helmet. I am concerned about the face and jaw. His upper

> gum line is even noticably higher on one side. What type of

> correction have you all seen in the face?

Both of my children got complete correction to their facial

asymmetry. Their ears are now in the normal range if not perfectly

aligned. An active band should correct the asymmetries.

Mom to Dane (4 yo) and Cece (13 mo) DOC Grads

[Guest guest]

The Cranial-Facial Neurosurgeons at Children's in Denver maintain

the same position. However, my pediatrician in Denver was extremely

supportive of us pursuing treatment for our daughter.

I have a close friend (coincidentally) with an 18 month old boy who

has severe plagiocepahly and facial asymmetry. They took the

advice, and did not pursue treatment. His plagiocephaly and facial

asymmetry is still obvious, and has shown no improvement. His

torticollis is long since resolved (by age of 7 months). He has no

other medical issues of any sort.

My daughter, who had severe measurements in all categories,

including facial asymmetry, has seen tremendous correction. Her

eyes are virtually symmetrical, and her ears have moved

dramatically. One cheek is still a little fuller than the other,

but as she loses her " baby fat " I do believe that will become a

little less apparent. Improvements in her torticollis definitely

assisted the improvement in facial asymmetry, but her DOC band made

a just as, if not more significant contribution.

She is 3 weeks into her second band, though we would have been happy

to stop at the finish of the first band. We pursued band treatment

primarily because of her severe facial asymmetry, and couldn't be

happier with the results. And we have at least 5 more weeks of

improvement to go!

I have seen it numerous times on this board, and I wholeheartedly

agree: if you are not happy with your child's current head shape and

facial asymmetry, you should consider pursuing treatment. You

cannot bank on the " it will improve on it's own " theory.

Best of luck with your decision!

Tammy

Teagan, DOC #2 Jan. 17

> >

> > My son was born with tort. His cord was wrapped around his neck

> > twice. His tort was pretty bad. He is 6 months now. Therapy

> since he

> > was 2 months. He now has almost full range of motion and is

> holding

> > his head up almost straight. He does still tilt if he is tired

or

> > sitting in something like a highchair or carseat. His plagio

was

> > moderate and I have been waiting for his helmet. Aggressively

> repo-

> > ing the whole time. He is rarely on his head anymore, so it is

> > shaping quite a bit on it's own. I hear that the bands only

> reshape

> > where there is brain growth and that it will not help with

facial

> > assymetry. But then so many moms say that the face is so much

> better

> > after the helmet. I am concerned about the face and jaw. His

> upper

> > gum line is even noticably higher on one side. What type of

> > correction have you all seen in the face?

> >

>

[Guest guest]

The Cranial-Facial Neurosurgeons at Children's in Denver maintain

the same position. However, my pediatrician in Denver was extremely

supportive of us pursuing treatment for our daughter.

I have a close friend (coincidentally) with an 18 month old boy who

has severe plagiocepahly and facial asymmetry. They took the

advice, and did not pursue treatment. His plagiocephaly and facial

asymmetry is still obvious, and has shown no improvement. His

torticollis is long since resolved (by age of 7 months). He has no

other medical issues of any sort.

My daughter, who had severe measurements in all categories,

including facial asymmetry, has seen tremendous correction. Her

eyes are virtually symmetrical, and her ears have moved

dramatically. One cheek is still a little fuller than the other,

but as she loses her " baby fat " I do believe that will become a

little less apparent. Improvements in her torticollis definitely

assisted the improvement in facial asymmetry, but her DOC band made

a just as, if not more significant contribution.

She is 3 weeks into her second band, though we would have been happy

to stop at the finish of the first band. We pursued band treatment

primarily because of her severe facial asymmetry, and couldn't be

happier with the results. And we have at least 5 more weeks of

improvement to go!

I have seen it numerous times on this board, and I wholeheartedly

agree: if you are not happy with your child's current head shape and

facial asymmetry, you should consider pursuing treatment. You

cannot bank on the " it will improve on it's own " theory.

Best of luck with your decision!

Tammy

Teagan, DOC #2 Jan. 17

> >

> > My son was born with tort. His cord was wrapped around his neck

> > twice. His tort was pretty bad. He is 6 months now. Therapy

> since he

> > was 2 months. He now has almost full range of motion and is

> holding

> > his head up almost straight. He does still tilt if he is tired

or

> > sitting in something like a highchair or carseat. His plagio

was

> > moderate and I have been waiting for his helmet. Aggressively

> repo-

> > ing the whole time. He is rarely on his head anymore, so it is

> > shaping quite a bit on it's own. I hear that the bands only

> reshape

> > where there is brain growth and that it will not help with

facial

> > assymetry. But then so many moms say that the face is so much

> better

> > after the helmet. I am concerned about the face and jaw. His

> upper

> > gum line is even noticably higher on one side. What type of

> > correction have you all seen in the face?

> >

>

[Guest guest]

> >

> > My son was born with tort. His cord was wrapped around his neck

> > twice. His tort was pretty bad. He is 6 months now. Therapy

> since he

> > was 2 months. He now has almost full range of motion and is

> holding

> > his head up almost straight. He does still tilt if he is tired

or

> > sitting in something like a highchair or carseat. His plagio

was

> > moderate and I have been waiting for his helmet. Aggressively

> repo-

> > ing the whole time. He is rarely on his head anymore, so it is

> > shaping quite a bit on it's own. I hear that the bands only

> reshape

> > where there is brain growth and that it will not help with

facial

> > assymetry. But then so many moms say that the face is so much

> better

> > after the helmet. I am concerned about the face and jaw. His

> upper

> > gum line is even noticably higher on one side. What type of

> > correction have you all seen in the face?

> >

>

[Guest guest]

> >

> > My son was born with tort. His cord was wrapped around his neck

> > twice. His tort was pretty bad. He is 6 months now. Therapy

> since he

> > was 2 months. He now has almost full range of motion and is

> holding

> > his head up almost straight. He does still tilt if he is tired

or

> > sitting in something like a highchair or carseat. His plagio

was

> > moderate and I have been waiting for his helmet. Aggressively

> repo-

> > ing the whole time. He is rarely on his head anymore, so it is

> > shaping quite a bit on it's own. I hear that the bands only

> reshape

> > where there is brain growth and that it will not help with

facial

> > assymetry. But then so many moms say that the face is so much

> better

> > after the helmet. I am concerned about the face and jaw. His

> upper

> > gum line is even noticably higher on one side. What type of

> > correction have you all seen in the face?

> >

>

[Guest guest]

Hi,

With all due respect to your doctor, I'm just a plagio parent. But I

have to ask this. Why would a doctor prescribe a helmet when he knows

it's not going to address any asymmetries? Active bands DO correct

facial and ear asymmetries.

I really wish these doctors would check out the olderplag group.

It's a group of about 900 parents whose babies plagio went untreated.

I wish these doctors would talk to these parents who are dealing with

2, 3, 4, 5, 6 and so on year olds about facial and ear asymmetry. For

most babies it DOESN'T miraculously resolve.

I'm really not trying to be a jerk, I seriously don't understand why

some doctors prescribe helmets they know aren't going to address all

the problems. It baffles me.

-- In Plagiocephaly , " Rick " <richard.clemon@...> wrote:

>

> All I can say to this is that Dr. (cranio facial plastic

> surgen, childrens, boston) said that the helmet will help round out

> the head but will not affect/effect the assymitries, facial or

> ears... That those should recalibrate themselves by the time our

> son is 2 or so. His comment is that the only time you see older

> children with facial assyimitries is when there are significant

> other issues...

>

> Best of luck!

>

>

> >

> > My son was born with tort. His cord was wrapped around his neck

> > twice. His tort was pretty bad. He is 6 months now. Therapy

> since he

> > was 2 months. He now has almost full range of motion and is

> holding

> > his head up almost straight. He does still tilt if he is tired or

> > sitting in something like a highchair or carseat. His plagio was

> > moderate and I have been waiting for his helmet. Aggressively

> repo-

> > ing the whole time. He is rarely on his head anymore, so it is

> > shaping quite a bit on it's own. I hear that the bands only

> reshape

> > where there is brain growth and that it will not help with facial

> > assymetry. But then so many moms say that the face is so much

> better

> > after the helmet. I am concerned about the face and jaw. His

> upper

> > gum line is even noticably higher on one side. What type of

> > correction have you all seen in the face?

> >

>

[Guest guest]

Hi,

With all due respect to your doctor, I'm just a plagio parent. But I

have to ask this. Why would a doctor prescribe a helmet when he knows

it's not going to address any asymmetries? Active bands DO correct

facial and ear asymmetries.

I really wish these doctors would check out the olderplag group.

It's a group of about 900 parents whose babies plagio went untreated.

I wish these doctors would talk to these parents who are dealing with

2, 3, 4, 5, 6 and so on year olds about facial and ear asymmetry. For

most babies it DOESN'T miraculously resolve.

I'm really not trying to be a jerk, I seriously don't understand why

some doctors prescribe helmets they know aren't going to address all

the problems. It baffles me.

-- In Plagiocephaly , " Rick " <richard.clemon@...> wrote:

>

> All I can say to this is that Dr. (cranio facial plastic

> surgen, childrens, boston) said that the helmet will help round out

> the head but will not affect/effect the assymitries, facial or

> ears... That those should recalibrate themselves by the time our

> son is 2 or so. His comment is that the only time you see older

> children with facial assyimitries is when there are significant

> other issues...

>

> Best of luck!

>

>

> >

> > My son was born with tort. His cord was wrapped around his neck

> > twice. His tort was pretty bad. He is 6 months now. Therapy

> since he

> > was 2 months. He now has almost full range of motion and is

> holding

> > his head up almost straight. He does still tilt if he is tired or

> > sitting in something like a highchair or carseat. His plagio was

> > moderate and I have been waiting for his helmet. Aggressively

> repo-

> > ing the whole time. He is rarely on his head anymore, so it is

> > shaping quite a bit on it's own. I hear that the bands only

> reshape

> > where there is brain growth and that it will not help with facial

> > assymetry. But then so many moms say that the face is so much

> better

> > after the helmet. I am concerned about the face and jaw. His

> upper

> > gum line is even noticably higher on one side. What type of

> > correction have you all seen in the face?

> >

>

[Guest guest]

I appreciate the feedback, I was only relating what we were told.

IT is my hope that the helmet will not only round out his head but

also correct the ear, cheek and other issues we have noticed.

Can anyone confirm for me the exact type of helmet that NOPCO puts

on the children and how it compares to the other bands available? I

know there is a lot of favor for the CT Technologies, Inc. on this

board and it seems substantiated. I would like to hear from more

parents of NOPCO patients to hear their experiances. As we have

most seen there was just a great success story about them on this

board...

> > >

> > > My son was born with tort. His cord was wrapped around his

neck

> > > twice. His tort was pretty bad. He is 6 months now. Therapy

> > since he

> > > was 2 months. He now has almost full range of motion and is

> > holding

> > > his head up almost straight. He does still tilt if he is

tired or

> > > sitting in something like a highchair or carseat. His plagio

was

> > > moderate and I have been waiting for his helmet. Aggressively

> > repo-

> > > ing the whole time. He is rarely on his head anymore, so it

is

> > > shaping quite a bit on it's own. I hear that the bands only

> > reshape

> > > where there is brain growth and that it will not help with

facial

> > > assymetry. But then so many moms say that the face is so much

> > better

> > > after the helmet. I am concerned about the face and jaw. His

> > upper

> > > gum line is even noticably higher on one side. What type of

> > > correction have you all seen in the face?

> > >

> >

>

[Guest guest]

I appreciate the feedback, I was only relating what we were told.

IT is my hope that the helmet will not only round out his head but

also correct the ear, cheek and other issues we have noticed.

Can anyone confirm for me the exact type of helmet that NOPCO puts

on the children and how it compares to the other bands available? I

know there is a lot of favor for the CT Technologies, Inc. on this

board and it seems substantiated. I would like to hear from more

parents of NOPCO patients to hear their experiances. As we have

most seen there was just a great success story about them on this

board...

> > >

> > > My son was born with tort. His cord was wrapped around his

neck

> > > twice. His tort was pretty bad. He is 6 months now. Therapy

> > since he

> > > was 2 months. He now has almost full range of motion and is

> > holding

> > > his head up almost straight. He does still tilt if he is

tired or

> > > sitting in something like a highchair or carseat. His plagio

was

> > > moderate and I have been waiting for his helmet. Aggressively

> > repo-

> > > ing the whole time. He is rarely on his head anymore, so it

is

> > > shaping quite a bit on it's own. I hear that the bands only

> > reshape

> > > where there is brain growth and that it will not help with

facial

> > > assymetry. But then so many moms say that the face is so much

> > better

> > > after the helmet. I am concerned about the face and jaw. His

> > upper

> > > gum line is even noticably higher on one side. What type of

> > > correction have you all seen in the face?

> > >

> >

>