Guest guest Posted December 24, 2005 Report Share Posted December 24, 2005 Dear Kim, NO! Don't WAIT for a diagnosis! You do NOT need it; it's hereditary. Her daddy has it; she has it. She has some of the major symptoms -- bloating and gastric distress! Start her on the GF diet IMMEDIATELY. LOTS of doctors are just catching up on this thing. We know more than many of them at this point. Trust your instincts. You don't want her to suffer any more! Gail in Houston -- Any advice?? I had my 6 year old to the ER for all of last night. She had intense stomach pain, diarrhea, vomiting. My husband is celiac. They did an x-ray and her colon was taking up the entire left side of her abdomen. Thinking a blockage they did a cat scan, which showed no blockage, just an enormous amount of gas. Doctor brought in 5 other doctors to consult as he thought he was missing something, cause he had never seen an xray like hers with no blockage. I had mentioned my hubby has CD to him, he mentioned following up with my ped and starting her on a GF diet. Arent you suppose to wait for diagnose to go GF? Also he said CD symptoms have to be brought on by eating GF and she wouldnt tolerate bread, etc. My hubby was diagnosed after coming up anemic in routine blood work, in hindsight we saw some signs but nothing severe. Looking back over the past year my daughter has had GI problems frequently and says she is tired alot, but I never thought CD because she Doesn't "look" the part. Should I start her on the CD, or wait? Since my hubby is biopsy diagnosed, would a blood test be sufficent to make a diagnosis in her?? Anyone who has advice I would love to hear it. Sorry I seem to ramble. KIm Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 24, 2005 Report Share Posted December 24, 2005 Dear Kim, NO! Don't WAIT for a diagnosis! You do NOT need it; it's hereditary. Her daddy has it; she has it. She has some of the major symptoms -- bloating and gastric distress! Start her on the GF diet IMMEDIATELY. LOTS of doctors are just catching up on this thing. We know more than many of them at this point. Trust your instincts. You don't want her to suffer any more! Gail in Houston -- Any advice?? I had my 6 year old to the ER for all of last night. She had intense stomach pain, diarrhea, vomiting. My husband is celiac. They did an x-ray and her colon was taking up the entire left side of her abdomen. Thinking a blockage they did a cat scan, which showed no blockage, just an enormous amount of gas. Doctor brought in 5 other doctors to consult as he thought he was missing something, cause he had never seen an xray like hers with no blockage. I had mentioned my hubby has CD to him, he mentioned following up with my ped and starting her on a GF diet. Arent you suppose to wait for diagnose to go GF? Also he said CD symptoms have to be brought on by eating GF and she wouldnt tolerate bread, etc. My hubby was diagnosed after coming up anemic in routine blood work, in hindsight we saw some signs but nothing severe. Looking back over the past year my daughter has had GI problems frequently and says she is tired alot, but I never thought CD because she Doesn't "look" the part. Should I start her on the CD, or wait? Since my hubby is biopsy diagnosed, would a blood test be sufficent to make a diagnosis in her?? Anyone who has advice I would love to hear it. Sorry I seem to ramble. KIm Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 24, 2005 Report Share Posted December 24, 2005 Dear Kim, NO! Don't WAIT for a diagnosis! You do NOT need it; it's hereditary. Her daddy has it; she has it. She has some of the major symptoms -- bloating and gastric distress! Start her on the GF diet IMMEDIATELY. LOTS of doctors are just catching up on this thing. We know more than many of them at this point. Trust your instincts. You don't want her to suffer any more! Gail in Houston -- Any advice?? I had my 6 year old to the ER for all of last night. She had intense stomach pain, diarrhea, vomiting. My husband is celiac. They did an x-ray and her colon was taking up the entire left side of her abdomen. Thinking a blockage they did a cat scan, which showed no blockage, just an enormous amount of gas. Doctor brought in 5 other doctors to consult as he thought he was missing something, cause he had never seen an xray like hers with no blockage. I had mentioned my hubby has CD to him, he mentioned following up with my ped and starting her on a GF diet. Arent you suppose to wait for diagnose to go GF? Also he said CD symptoms have to be brought on by eating GF and she wouldnt tolerate bread, etc. My hubby was diagnosed after coming up anemic in routine blood work, in hindsight we saw some signs but nothing severe. Looking back over the past year my daughter has had GI problems frequently and says she is tired alot, but I never thought CD because she Doesn't "look" the part. Should I start her on the CD, or wait? Since my hubby is biopsy diagnosed, would a blood test be sufficent to make a diagnosis in her?? Anyone who has advice I would love to hear it. Sorry I seem to ramble. KIm Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 24, 2005 Report Share Posted December 24, 2005 Hi Kim - Your DD sounds just like mine. She started having severe cramping and we did the ER route several times. Never got very far on " why's " with that approach. She also had severe fatigue. We didn't feel the need for a full celiac diagnosis but did test thru enterolab for gluten sensitivity. She tested positive. GF resulted in a huge improvement for her. No more GI issues. Her mood is much more upbeat. She rarely feels the need to sleep past 9 am on the weekends (I used to have to drag her out of bed by 11am). The best part is she loves how she feels when off gluten. I can certainly see the reasons for a definitive diagnosis in certain cases. It would certainly seem to me that a blood test would be sufficient for your DD since your hubby is diagnosed. It's really a personal decision in the end. If you think it will help her stay on the diet, or if a diagnosis would help you in dealing with her school or something, then hang in a little longer and do some testing. Good luck Sue in Denver > > I had my 6 year old to the ER for all of last night. She had intense > stomach pain, diarrhea, vomiting. My husband is celiac. They did an x- > ray and her colon was taking up the entire left side of her abdomen. > Thinking a blockage they did a cat scan, which showed no blockage, just > an enormous amount of gas. Doctor brought in 5 other doctors to consult > as he thought he was missing something, cause he had never seen an xray > like hers with no blockage. I had mentioned my hubby has CD to him, he > mentioned following up with my ped and starting her on a GF diet. > Arent you suppose to wait for diagnose to go GF? Also he said CD > symptoms have to be brought on by eating GF and she wouldnt tolerate > bread, etc. My hubby was diagnosed after coming up anemic in routine > blood work, in hindsight we saw some signs but nothing severe. Looking > back over the past year my daughter has had GI problems frequently and > says she is tired alot, but I never thought CD because she > doesnt " look " the part. Should I start her on the CD, or wait? Since > my hubby is biopsy diagnosed, would a blood test be sufficent to make a > diagnosis in her?? Anyone who has advice I would love to hear it. > Sorry I seem to ramble. KIm > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 24, 2005 Report Share Posted December 24, 2005 Hi Kim - Your DD sounds just like mine. She started having severe cramping and we did the ER route several times. Never got very far on " why's " with that approach. She also had severe fatigue. We didn't feel the need for a full celiac diagnosis but did test thru enterolab for gluten sensitivity. She tested positive. GF resulted in a huge improvement for her. No more GI issues. Her mood is much more upbeat. She rarely feels the need to sleep past 9 am on the weekends (I used to have to drag her out of bed by 11am). The best part is she loves how she feels when off gluten. I can certainly see the reasons for a definitive diagnosis in certain cases. It would certainly seem to me that a blood test would be sufficient for your DD since your hubby is diagnosed. It's really a personal decision in the end. If you think it will help her stay on the diet, or if a diagnosis would help you in dealing with her school or something, then hang in a little longer and do some testing. Good luck Sue in Denver > > I had my 6 year old to the ER for all of last night. She had intense > stomach pain, diarrhea, vomiting. My husband is celiac. They did an x- > ray and her colon was taking up the entire left side of her abdomen. > Thinking a blockage they did a cat scan, which showed no blockage, just > an enormous amount of gas. Doctor brought in 5 other doctors to consult > as he thought he was missing something, cause he had never seen an xray > like hers with no blockage. I had mentioned my hubby has CD to him, he > mentioned following up with my ped and starting her on a GF diet. > Arent you suppose to wait for diagnose to go GF? Also he said CD > symptoms have to be brought on by eating GF and she wouldnt tolerate > bread, etc. My hubby was diagnosed after coming up anemic in routine > blood work, in hindsight we saw some signs but nothing severe. Looking > back over the past year my daughter has had GI problems frequently and > says she is tired alot, but I never thought CD because she > doesnt " look " the part. Should I start her on the CD, or wait? Since > my hubby is biopsy diagnosed, would a blood test be sufficent to make a > diagnosis in her?? Anyone who has advice I would love to hear it. > Sorry I seem to ramble. KIm > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 24, 2005 Report Share Posted December 24, 2005 Hi Kim - Your DD sounds just like mine. She started having severe cramping and we did the ER route several times. Never got very far on " why's " with that approach. She also had severe fatigue. We didn't feel the need for a full celiac diagnosis but did test thru enterolab for gluten sensitivity. She tested positive. GF resulted in a huge improvement for her. No more GI issues. Her mood is much more upbeat. She rarely feels the need to sleep past 9 am on the weekends (I used to have to drag her out of bed by 11am). The best part is she loves how she feels when off gluten. I can certainly see the reasons for a definitive diagnosis in certain cases. It would certainly seem to me that a blood test would be sufficient for your DD since your hubby is diagnosed. It's really a personal decision in the end. If you think it will help her stay on the diet, or if a diagnosis would help you in dealing with her school or something, then hang in a little longer and do some testing. Good luck Sue in Denver > > I had my 6 year old to the ER for all of last night. She had intense > stomach pain, diarrhea, vomiting. My husband is celiac. They did an x- > ray and her colon was taking up the entire left side of her abdomen. > Thinking a blockage they did a cat scan, which showed no blockage, just > an enormous amount of gas. Doctor brought in 5 other doctors to consult > as he thought he was missing something, cause he had never seen an xray > like hers with no blockage. I had mentioned my hubby has CD to him, he > mentioned following up with my ped and starting her on a GF diet. > Arent you suppose to wait for diagnose to go GF? Also he said CD > symptoms have to be brought on by eating GF and she wouldnt tolerate > bread, etc. My hubby was diagnosed after coming up anemic in routine > blood work, in hindsight we saw some signs but nothing severe. Looking > back over the past year my daughter has had GI problems frequently and > says she is tired alot, but I never thought CD because she > doesnt " look " the part. Should I start her on the CD, or wait? Since > my hubby is biopsy diagnosed, would a blood test be sufficent to make a > diagnosis in her?? Anyone who has advice I would love to hear it. > Sorry I seem to ramble. KIm > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 25, 2005 Report Share Posted December 25, 2005 She needs to stay on gluten until diagnosis - but call the ped's office and tell them you need a blood draw for the blood test immediately (a visit isn't needed for this, tell the nurse the ER doc referred you back to them). Ask for a referral to a pediatric GI at the same time -- this can take some time to get, but once you have any date, call that office to get on the standby/cancellation list. It is possible to get hthis all done in a week or two -- or to let them put you off with thinking it isn't urgent and spend several months on it, even when you know what tests need to be run. With kids - if any test is positive and any symptoms present, a biopsy should be done if a parent is diagnosed (antibody tests have too many false negatives to use them alone). However, if the test is a very high positive (TTG over 100), some new research shows that this corresponds almost 100% to a positive biopsy. The problem is that if she needs a positive biopsy to keep her gf 5,10,15 or 40 years from now -- this is your one shot at doing so. > -----Original Message----- > > > I had my 6 year old to the ER for all of last night. She had intense > stomach pain, diarrhea, vomiting. My husband is celiac. They did an x- > ray and her colon was taking up the entire left side of her abdomen. > Thinking a blockage they did a cat scan, which showed no blockage, just > an enormous amount of gas. Doctor brought in 5 other doctors to consult > as he thought he was missing something, cause he had never seen an xray > like hers with no blockage. I had mentioned my hubby has CD to him, he > mentioned following up with my ped and starting her on a GF diet. > Arent you suppose to wait for diagnose to go GF? Also he said CD > symptoms have to be brought on by eating GF and she wouldnt tolerate > bread, etc. My hubby was diagnosed after coming up anemic in routine > blood work, in hindsight we saw some signs but nothing severe. Looking > back over the past year my daughter has had GI problems frequently and > says she is tired alot, but I never thought CD because she > doesnt " look " the part. Should I start her on the CD, or wait? --- [This E-mail scanned for viruses by Declude Virus] Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 25, 2005 Report Share Posted December 25, 2005 She needs to stay on gluten until diagnosis - but call the ped's office and tell them you need a blood draw for the blood test immediately (a visit isn't needed for this, tell the nurse the ER doc referred you back to them). Ask for a referral to a pediatric GI at the same time -- this can take some time to get, but once you have any date, call that office to get on the standby/cancellation list. It is possible to get hthis all done in a week or two -- or to let them put you off with thinking it isn't urgent and spend several months on it, even when you know what tests need to be run. With kids - if any test is positive and any symptoms present, a biopsy should be done if a parent is diagnosed (antibody tests have too many false negatives to use them alone). However, if the test is a very high positive (TTG over 100), some new research shows that this corresponds almost 100% to a positive biopsy. The problem is that if she needs a positive biopsy to keep her gf 5,10,15 or 40 years from now -- this is your one shot at doing so. > -----Original Message----- > > > I had my 6 year old to the ER for all of last night. She had intense > stomach pain, diarrhea, vomiting. My husband is celiac. They did an x- > ray and her colon was taking up the entire left side of her abdomen. > Thinking a blockage they did a cat scan, which showed no blockage, just > an enormous amount of gas. Doctor brought in 5 other doctors to consult > as he thought he was missing something, cause he had never seen an xray > like hers with no blockage. I had mentioned my hubby has CD to him, he > mentioned following up with my ped and starting her on a GF diet. > Arent you suppose to wait for diagnose to go GF? Also he said CD > symptoms have to be brought on by eating GF and she wouldnt tolerate > bread, etc. My hubby was diagnosed after coming up anemic in routine > blood work, in hindsight we saw some signs but nothing severe. Looking > back over the past year my daughter has had GI problems frequently and > says she is tired alot, but I never thought CD because she > doesnt " look " the part. Should I start her on the CD, or wait? --- [This E-mail scanned for viruses by Declude Virus] Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 25, 2005 Report Share Posted December 25, 2005 She needs to stay on gluten until diagnosis - but call the ped's office and tell them you need a blood draw for the blood test immediately (a visit isn't needed for this, tell the nurse the ER doc referred you back to them). Ask for a referral to a pediatric GI at the same time -- this can take some time to get, but once you have any date, call that office to get on the standby/cancellation list. It is possible to get hthis all done in a week or two -- or to let them put you off with thinking it isn't urgent and spend several months on it, even when you know what tests need to be run. With kids - if any test is positive and any symptoms present, a biopsy should be done if a parent is diagnosed (antibody tests have too many false negatives to use them alone). However, if the test is a very high positive (TTG over 100), some new research shows that this corresponds almost 100% to a positive biopsy. The problem is that if she needs a positive biopsy to keep her gf 5,10,15 or 40 years from now -- this is your one shot at doing so. > -----Original Message----- > > > I had my 6 year old to the ER for all of last night. She had intense > stomach pain, diarrhea, vomiting. My husband is celiac. They did an x- > ray and her colon was taking up the entire left side of her abdomen. > Thinking a blockage they did a cat scan, which showed no blockage, just > an enormous amount of gas. Doctor brought in 5 other doctors to consult > as he thought he was missing something, cause he had never seen an xray > like hers with no blockage. I had mentioned my hubby has CD to him, he > mentioned following up with my ped and starting her on a GF diet. > Arent you suppose to wait for diagnose to go GF? Also he said CD > symptoms have to be brought on by eating GF and she wouldnt tolerate > bread, etc. My hubby was diagnosed after coming up anemic in routine > blood work, in hindsight we saw some signs but nothing severe. Looking > back over the past year my daughter has had GI problems frequently and > says she is tired alot, but I never thought CD because she > doesnt " look " the part. Should I start her on the CD, or wait? --- [This E-mail scanned for viruses by Declude Virus] Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 26, 2005 Report Share Posted December 26, 2005 Even if the tests are negative, you know its in the family, and if a gf diets solves some of the problems, the tests are irrelevant. > >Reply-To: SillyYaks >To: <SillyYaks > >Subject: Re: Any advice?? >Date: Sat, 24 Dec 2005 20:30:40 -0600 (Central Standard Time) > >Dear Kim, > NO! Don't WAIT for a diagnosis! You do NOT need it; it's hereditary. Her >daddy has it; she has it. She has some of the major symptoms -- bloating >and >gastric distress! Start her on the GF diet IMMEDIATELY. > > LOTS of doctors are just catching up on this thing. We know more than >many >of them at this point. Trust your instincts. You don't want her to suffer >any more! > >Gail in Houston > > > >-- Any advice?? > >I had my 6 year old to the ER for all of last night. She had intense >stomach pain, diarrhea, vomiting. My husband is celiac. They did an x- >ray and her colon was taking up the entire left side of her abdomen. >Thinking a blockage they did a cat scan, which showed no blockage, just >an enormous amount of gas. Doctor brought in 5 other doctors to consult >as he thought he was missing something, cause he had never seen an xray >like hers with no blockage. I had mentioned my hubby has CD to him, he >mentioned following up with my ped and starting her on a GF diet. >Arent you suppose to wait for diagnose to go GF? Also he said CD >symptoms have to be brought on by eating GF and she wouldnt tolerate >bread, etc. My hubby was diagnosed after coming up anemic in routine >blood work, in hindsight we saw some signs but nothing severe. Looking >back over the past year my daughter has had GI problems frequently and >says she is tired alot, but I never thought CD because she >Doesn't " look " the part. Should I start her on the CD, or wait? Since >my hubby is biopsy diagnosed, would a blood test be sufficent to make a >diagnosis in her?? Anyone who has advice I would love to hear it. >Sorry I seem to ramble. KIm > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 26, 2005 Report Share Posted December 26, 2005 Even if the tests are negative, you know its in the family, and if a gf diets solves some of the problems, the tests are irrelevant. > >Reply-To: SillyYaks >To: <SillyYaks > >Subject: Re: Any advice?? >Date: Sat, 24 Dec 2005 20:30:40 -0600 (Central Standard Time) > >Dear Kim, > NO! Don't WAIT for a diagnosis! You do NOT need it; it's hereditary. Her >daddy has it; she has it. She has some of the major symptoms -- bloating >and >gastric distress! Start her on the GF diet IMMEDIATELY. > > LOTS of doctors are just catching up on this thing. We know more than >many >of them at this point. Trust your instincts. You don't want her to suffer >any more! > >Gail in Houston > > > >-- Any advice?? > >I had my 6 year old to the ER for all of last night. She had intense >stomach pain, diarrhea, vomiting. My husband is celiac. They did an x- >ray and her colon was taking up the entire left side of her abdomen. >Thinking a blockage they did a cat scan, which showed no blockage, just >an enormous amount of gas. Doctor brought in 5 other doctors to consult >as he thought he was missing something, cause he had never seen an xray >like hers with no blockage. I had mentioned my hubby has CD to him, he >mentioned following up with my ped and starting her on a GF diet. >Arent you suppose to wait for diagnose to go GF? Also he said CD >symptoms have to be brought on by eating GF and she wouldnt tolerate >bread, etc. My hubby was diagnosed after coming up anemic in routine >blood work, in hindsight we saw some signs but nothing severe. Looking >back over the past year my daughter has had GI problems frequently and >says she is tired alot, but I never thought CD because she >Doesn't " look " the part. Should I start her on the CD, or wait? Since >my hubby is biopsy diagnosed, would a blood test be sufficent to make a >diagnosis in her?? Anyone who has advice I would love to hear it. >Sorry I seem to ramble. KIm > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 26, 2005 Report Share Posted December 26, 2005 Even if the tests are negative, you know its in the family, and if a gf diets solves some of the problems, the tests are irrelevant. > >Reply-To: SillyYaks >To: <SillyYaks > >Subject: Re: Any advice?? >Date: Sat, 24 Dec 2005 20:30:40 -0600 (Central Standard Time) > >Dear Kim, > NO! Don't WAIT for a diagnosis! You do NOT need it; it's hereditary. Her >daddy has it; she has it. She has some of the major symptoms -- bloating >and >gastric distress! Start her on the GF diet IMMEDIATELY. > > LOTS of doctors are just catching up on this thing. We know more than >many >of them at this point. Trust your instincts. You don't want her to suffer >any more! > >Gail in Houston > > > >-- Any advice?? > >I had my 6 year old to the ER for all of last night. She had intense >stomach pain, diarrhea, vomiting. My husband is celiac. They did an x- >ray and her colon was taking up the entire left side of her abdomen. >Thinking a blockage they did a cat scan, which showed no blockage, just >an enormous amount of gas. Doctor brought in 5 other doctors to consult >as he thought he was missing something, cause he had never seen an xray >like hers with no blockage. I had mentioned my hubby has CD to him, he >mentioned following up with my ped and starting her on a GF diet. >Arent you suppose to wait for diagnose to go GF? Also he said CD >symptoms have to be brought on by eating GF and she wouldnt tolerate >bread, etc. My hubby was diagnosed after coming up anemic in routine >blood work, in hindsight we saw some signs but nothing severe. Looking >back over the past year my daughter has had GI problems frequently and >says she is tired alot, but I never thought CD because she >Doesn't " look " the part. Should I start her on the CD, or wait? Since >my hubby is biopsy diagnosed, would a blood test be sufficent to make a >diagnosis in her?? Anyone who has advice I would love to hear it. >Sorry I seem to ramble. KIm > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 27, 2005 Report Share Posted December 27, 2005 DO NOT WAIT! I had those exact same problems as a child. My Pediatricians kept saying it was IBS and I just had to wait it out. But I remember sitting in the bathroom curled up in a ball because the gas was building up and was extremely painful. My poor parents had no idea what to do. Had I known I was a celiac, I would have gotten on the diet IMMEDIATELY! Unfortunately I did not find out until I was 19 and went through A LOT of pain. Putting her on the diet can never hurt even though she has not been properly diagnosed. It is heriditary and its a good possibility that she has it if your husband does. My best wishes!KIM wrote: I had my 6 year old to the ER for all of last night. She had intense stomach pain, diarrhea, vomiting. My husband is celiac. They did an x-ray and her colon was taking up the entire left side of her abdomen. Thinking a blockage they did a cat scan, which showed no blockage, just an enormous amount of gas. Doctor brought in 5 other doctors to consult as he thought he was missing something, cause he had never seen an xray like hers with no blockage. I had mentioned my hubby has CD to him, he mentioned following up with my ped and starting her on a GF diet. Arent you suppose to wait for diagnose to go GF? Also he said CD symptoms have to be brought on by eating GF and she wouldnt tolerate bread, etc. My hubby was diagnosed after coming up anemic in routine blood work, in hindsight we saw some signs but nothing severe. Looking back over the past year my daughter has had GI problems frequently and says she is tired alot, but I never thought CD because she doesnt "look" the part. Should I start her on the CD, or wait? Since my hubby is biopsy diagnosed, would a blood test be sufficent to make a diagnosis in her?? Anyone who has advice I would love to hear it. Sorry I seem to ramble. KIm Yahoo! Shopping Find Great Deals on Holiday Gifts at Yahoo! Shopping Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 27, 2005 Report Share Posted December 27, 2005 DO NOT WAIT! I had those exact same problems as a child. My Pediatricians kept saying it was IBS and I just had to wait it out. But I remember sitting in the bathroom curled up in a ball because the gas was building up and was extremely painful. My poor parents had no idea what to do. Had I known I was a celiac, I would have gotten on the diet IMMEDIATELY! Unfortunately I did not find out until I was 19 and went through A LOT of pain. Putting her on the diet can never hurt even though she has not been properly diagnosed. It is heriditary and its a good possibility that she has it if your husband does. My best wishes!KIM wrote: I had my 6 year old to the ER for all of last night. She had intense stomach pain, diarrhea, vomiting. My husband is celiac. They did an x-ray and her colon was taking up the entire left side of her abdomen. Thinking a blockage they did a cat scan, which showed no blockage, just an enormous amount of gas. Doctor brought in 5 other doctors to consult as he thought he was missing something, cause he had never seen an xray like hers with no blockage. I had mentioned my hubby has CD to him, he mentioned following up with my ped and starting her on a GF diet. Arent you suppose to wait for diagnose to go GF? Also he said CD symptoms have to be brought on by eating GF and she wouldnt tolerate bread, etc. My hubby was diagnosed after coming up anemic in routine blood work, in hindsight we saw some signs but nothing severe. Looking back over the past year my daughter has had GI problems frequently and says she is tired alot, but I never thought CD because she doesnt "look" the part. Should I start her on the CD, or wait? Since my hubby is biopsy diagnosed, would a blood test be sufficent to make a diagnosis in her?? Anyone who has advice I would love to hear it. Sorry I seem to ramble. KIm Yahoo! Shopping Find Great Deals on Holiday Gifts at Yahoo! Shopping Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 27, 2005 Report Share Posted December 27, 2005 I totally agree!! I had the same exact problems as a child as did. I too was told that I just had to wait it out...I was just high strung and needed to relax. As I got older it continued and I started having sever diarrhea issues. Again went to the Dr. and was told the same old story. He wanted to put me on anti anxiety medication because he said that he thought I just worried too much. ????? I didn't listen, thank goodness. I was finally diagnosed earlier this year and I am now 28. So, I wouldn't wait I guess because of my situation. That's just my opinion. Good luck! Rhiannon I had my 6 year old to the ER for all of last night. She had intense > stomach pain, diarrhea, vomiting. My husband is celiac. They did an x- > ray and her colon was taking up the entire left side of her abdomen. > Thinking a blockage they did a cat scan, which showed no blockage, just > an enormous amount of gas. Doctor brought in 5 other doctors to consult > as he thought he was missing something, cause he had never seen an xray > like hers with no blockage. I had mentioned my hubby has CD to him, he > mentioned following up with my ped and starting her on a GF diet. > Arent you suppose to wait for diagnose to go GF? Also he said CD > symptoms have to be brought on by eating GF and she wouldnt tolerate > bread, etc. My hubby was diagnosed after coming up anemic in routine > blood work, in hindsight we saw some signs but nothing severe. Looking > back over the past year my daughter has had GI problems frequently and > says she is tired alot, but I never thought CD because she > doesnt " look " the part. Should I start her on the CD, or wait? Since > my hubby is biopsy diagnosed, would a blood test be sufficent to make a > diagnosis in her?? Anyone who has advice I would love to hear it. > Sorry I seem to ramble. KIm > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 27, 2005 Report Share Posted December 27, 2005 I totally agree!! I had the same exact problems as a child as did. I too was told that I just had to wait it out...I was just high strung and needed to relax. As I got older it continued and I started having sever diarrhea issues. Again went to the Dr. and was told the same old story. He wanted to put me on anti anxiety medication because he said that he thought I just worried too much. ????? I didn't listen, thank goodness. I was finally diagnosed earlier this year and I am now 28. So, I wouldn't wait I guess because of my situation. That's just my opinion. Good luck! Rhiannon I had my 6 year old to the ER for all of last night. She had intense > stomach pain, diarrhea, vomiting. My husband is celiac. They did an x- > ray and her colon was taking up the entire left side of her abdomen. > Thinking a blockage they did a cat scan, which showed no blockage, just > an enormous amount of gas. Doctor brought in 5 other doctors to consult > as he thought he was missing something, cause he had never seen an xray > like hers with no blockage. I had mentioned my hubby has CD to him, he > mentioned following up with my ped and starting her on a GF diet. > Arent you suppose to wait for diagnose to go GF? Also he said CD > symptoms have to be brought on by eating GF and she wouldnt tolerate > bread, etc. My hubby was diagnosed after coming up anemic in routine > blood work, in hindsight we saw some signs but nothing severe. Looking > back over the past year my daughter has had GI problems frequently and > says she is tired alot, but I never thought CD because she > doesnt " look " the part. Should I start her on the CD, or wait? Since > my hubby is biopsy diagnosed, would a blood test be sufficent to make a > diagnosis in her?? Anyone who has advice I would love to hear it. > Sorry I seem to ramble. KIm > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 27, 2005 Report Share Posted December 27, 2005 Several posters have recommended that a person go on a gf diet with no diagnosis due to CD being hereditary. Although it is true that the two identified genes can be passed down, not all the genes involved have even been identified. The main gene is one that 30% of the population has, while only 1% has CD - so 29 of 30 with the gene don't have CD (and never will). There are a number of other causes that should also be ruled out for CD like symptoms (and it's possible that she has a bad case of the flue - some of these last several weeks). Going gf without testing means it will be practically impossible to get a diagnosis and if the child decides to go off the diet as an adult (due to uncertainty of having CD), the risks of complication before diagnosis as an adult are much higher (24% have other autoimmune diseases if diagnosed as an adult, vs. 2% as children). Lifelong consequences, such as osteoporosis, are also much more common in adults diagnosed with CD. -----Original Message----- Putting her on the diet can never hurt even though she has not been properly diagnosed. It is heriditary and its a good possibility that she has it if your husband does. --- [This E-mail scanned for viruses by Declude Virus] Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 27, 2005 Report Share Posted December 27, 2005 Several posters have recommended that a person go on a gf diet with no diagnosis due to CD being hereditary. Although it is true that the two identified genes can be passed down, not all the genes involved have even been identified. The main gene is one that 30% of the population has, while only 1% has CD - so 29 of 30 with the gene don't have CD (and never will). There are a number of other causes that should also be ruled out for CD like symptoms (and it's possible that she has a bad case of the flue - some of these last several weeks). Going gf without testing means it will be practically impossible to get a diagnosis and if the child decides to go off the diet as an adult (due to uncertainty of having CD), the risks of complication before diagnosis as an adult are much higher (24% have other autoimmune diseases if diagnosed as an adult, vs. 2% as children). Lifelong consequences, such as osteoporosis, are also much more common in adults diagnosed with CD. -----Original Message----- Putting her on the diet can never hurt even though she has not been properly diagnosed. It is heriditary and its a good possibility that she has it if your husband does. --- [This E-mail scanned for viruses by Declude Virus] Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 27, 2005 Report Share Posted December 27, 2005 Several posters have recommended that a person go on a gf diet with no diagnosis due to CD being hereditary. Although it is true that the two identified genes can be passed down, not all the genes involved have even been identified. The main gene is one that 30% of the population has, while only 1% has CD - so 29 of 30 with the gene don't have CD (and never will). There are a number of other causes that should also be ruled out for CD like symptoms (and it's possible that she has a bad case of the flue - some of these last several weeks). Going gf without testing means it will be practically impossible to get a diagnosis and if the child decides to go off the diet as an adult (due to uncertainty of having CD), the risks of complication before diagnosis as an adult are much higher (24% have other autoimmune diseases if diagnosed as an adult, vs. 2% as children). Lifelong consequences, such as osteoporosis, are also much more common in adults diagnosed with CD. -----Original Message----- Putting her on the diet can never hurt even though she has not been properly diagnosed. It is heriditary and its a good possibility that she has it if your husband does. --- [This E-mail scanned for viruses by Declude Virus] Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 27, 2005 Report Share Posted December 27, 2005 ....I was finally > diagnosed earlier this year and I am now 28. So, I wouldn't wait I > guess because of my situation. That's just my opinion. Good luck! > > Rhiannon Knowing nothing about you except your name, I would have guessed you to be just about that age! It's amazing how many Rhiannons there are that are probably your age as well.... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 27, 2005 Report Share Posted December 27, 2005 Was that about the time Fleetwood Mac's song was popular? ) --Trudy San , CA "People who believe in absurdities will eventually commit atrocities." ~Voltaire -------------- Original message -------------- ...I was finally > diagnosed earlier this year and I am now 28. So, I wouldn't wait I > guess because of my situation. That's just my opinion. Good luck!> > RhiannonKnowing nothing about you except your name, I would have guessed youto be just about that age! It's amazing how many Rhiannons there arethat are probably your age as well.... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 27, 2005 Report Share Posted December 27, 2005 Was that about the time Fleetwood Mac's song was popular? ) --Trudy San , CA "People who believe in absurdities will eventually commit atrocities." ~Voltaire -------------- Original message -------------- ...I was finally > diagnosed earlier this year and I am now 28. So, I wouldn't wait I > guess because of my situation. That's just my opinion. Good luck!> > RhiannonKnowing nothing about you except your name, I would have guessed youto be just about that age! It's amazing how many Rhiannons there arethat are probably your age as well.... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 27, 2005 Report Share Posted December 27, 2005 Was that about the time Fleetwood Mac's song was popular? ) --Trudy San , CA "People who believe in absurdities will eventually commit atrocities." ~Voltaire -------------- Original message -------------- ...I was finally > diagnosed earlier this year and I am now 28. So, I wouldn't wait I > guess because of my situation. That's just my opinion. Good luck!> > RhiannonKnowing nothing about you except your name, I would have guessed youto be just about that age! It's amazing how many Rhiannons there arethat are probably your age as well.... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 28, 2005 Report Share Posted December 28, 2005 All of whom now have that evil song stuck in their heads for the day!!! > -----Original Message----- > > You mustn't be asking people in the right age group. > > Sue in Denver > > > > > > > > Was that about the time Fleetwood Mac's song was popular? ) > > > --- [This E-mail scanned for viruses by Declude Virus] Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 28, 2005 Report Share Posted December 28, 2005 All of whom now have that evil song stuck in their heads for the day!!! > -----Original Message----- > > You mustn't be asking people in the right age group. > > Sue in Denver > > > > > > > > Was that about the time Fleetwood Mac's song was popular? ) > > > --- [This E-mail scanned for viruses by Declude Virus] Quote Link to comment Share on other sites More sharing options...
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