Re: Seattle Childrens Hospital

[Guest guest]

Bobbi,

I believe they use a passive Clarren helmet there. At your child's age, he/she would be best be served with an active band that would redirect the growth. The passive helmets rely totally on growth.

Click here to check out some other providers in WA. If there are email addys listed please email those parents for referrals and you will also need to interview the ortho.

We have had other members use Angel Flight to get free plane rights to CA for DOC Bands too.

Good luck!

Mom to Dane (4 yo) and Cece (13 yo) DOC Grads

>> Hello, we have just been to Childrens Hosp., and our almost eight > month old has been diagnosed with torticollis and plagiocephaly. We > are oing to start PT and get a helmet next month. I was wondering if > anybody else has gone to Childrens in Seattle for PT, or downtown for > the helmet. Thanks.> Bobbi> Edmonds WA>

[Guest guest]

Bobbi,

I believe they use a passive Clarren helmet there. At your child's age, he/she would be best be served with an active band that would redirect the growth. The passive helmets rely totally on growth.

Click here to check out some other providers in WA. If there are email addys listed please email those parents for referrals and you will also need to interview the ortho.

We have had other members use Angel Flight to get free plane rights to CA for DOC Bands too.

Good luck!

Mom to Dane (4 yo) and Cece (13 yo) DOC Grads

>> Hello, we have just been to Childrens Hosp., and our almost eight > month old has been diagnosed with torticollis and plagiocephaly. We > are oing to start PT and get a helmet next month. I was wondering if > anybody else has gone to Childrens in Seattle for PT, or downtown for > the helmet. Thanks.> Bobbi> Edmonds WA>

[Guest guest]

Bobbi,

Hello!

My son is 8 months with tort. and plagio. and we've had our helmet from

Children's in Seattle for about 3 weeks. It is doing an awesome job! I

know it's different than what most people have but it is working great

for us. I'm very pleased with it. If you have any questions about it

please e-mail me!

Take Care,

)

Ps. I live in Olympia )

--- In Plagiocephaly , " Bobbi son " <bajblj@...>

wrote:

>

> Hello, we have just been to Childrens Hosp., and our almost eight

> month old has been diagnosed with torticollis and plagiocephaly. We

> are oing to start PT and get a helmet next month. I was wondering if

> anybody else has gone to Childrens in Seattle for PT, or downtown for

> the helmet. Thanks.

> Bobbi

> Edmonds WA

>

[Guest guest]

Bobbi,

Hello!

My son is 8 months with tort. and plagio. and we've had our helmet from

Children's in Seattle for about 3 weeks. It is doing an awesome job! I

know it's different than what most people have but it is working great

for us. I'm very pleased with it. If you have any questions about it

please e-mail me!

Take Care,

)

Ps. I live in Olympia )

--- In Plagiocephaly , " Bobbi son " <bajblj@...>

wrote:

>

> Hello, we have just been to Childrens Hosp., and our almost eight

> month old has been diagnosed with torticollis and plagiocephaly. We

> are oing to start PT and get a helmet next month. I was wondering if

> anybody else has gone to Childrens in Seattle for PT, or downtown for

> the helmet. Thanks.

> Bobbi

> Edmonds WA

>

[Guest guest]

,

My friend in Olympia also used Children's for her son's helmet

> >

> > Hello, we have just been to Childrens Hosp., and our almost

eight

> > month old has been diagnosed with torticollis and plagiocephaly.

We

> > are oing to start PT and get a helmet next month. I was

wondering if

> > anybody else has gone to Childrens in Seattle for PT, or

downtown for

> > the helmet. Thanks.

> > Bobbi

> > Edmonds WA

> >

>

[Guest guest]

,

My friend in Olympia also used Children's for her son's helmet

> >

> > Hello, we have just been to Childrens Hosp., and our almost

eight

> > month old has been diagnosed with torticollis and plagiocephaly.

We

> > are oing to start PT and get a helmet next month. I was

wondering if

> > anybody else has gone to Childrens in Seattle for PT, or

downtown for

> > the helmet. Thanks.

> > Bobbi

> > Edmonds WA

> >

>

[Guest guest]

,

Hi! I've had such a hard time finging anyone around here with the

helmet. I asked the Dr. if we were the only ones ) and he said

there were at least 100 of us out there. Just not in Oly. I guess. I

wish Children's would keep a list of e-mail or phone #'s of people

who want to be contacted by others going through the same thing.

Probably too much to keep track of. Oh well! Does your friend's son

still have his helmet?

Have a good night!

)

> > >

> > > Hello, we have just been to Childrens Hosp., and our almost

> eight

> > > month old has been diagnosed with torticollis and

plagiocephaly.

> We

> > > are oing to start PT and get a helmet next month. I was

> wondering if

> > > anybody else has gone to Childrens in Seattle for PT, or

> downtown for

> > > the helmet. Thanks.

> > > Bobbi

> > > Edmonds WA

> > >

> >

>

[Guest guest]

,

Hi! I've had such a hard time finging anyone around here with the

helmet. I asked the Dr. if we were the only ones ) and he said

there were at least 100 of us out there. Just not in Oly. I guess. I

wish Children's would keep a list of e-mail or phone #'s of people

who want to be contacted by others going through the same thing.

Probably too much to keep track of. Oh well! Does your friend's son

still have his helmet?

Have a good night!

)

> > >

> > > Hello, we have just been to Childrens Hosp., and our almost

> eight

> > > month old has been diagnosed with torticollis and

plagiocephaly.

> We

> > > are oing to start PT and get a helmet next month. I was

> wondering if

> > > anybody else has gone to Childrens in Seattle for PT, or

> downtown for

> > > the helmet. Thanks.

> > > Bobbi

> > > Edmonds WA

> > >

> >

>

[Guest guest]

,

Hi! I've had such a hard time finging anyone around here with the

helmet. I asked the Dr. if we were the only ones ) and he said

there were at least 100 of us out there. Just not in Oly. I guess. I

wish Children's would keep a list of e-mail or phone #'s of people

who want to be contacted by others going through the same thing.

Probably too much to keep track of. Oh well! Does your friend's son

still have his helmet?

Have a good night!

)

> > >

> > > Hello, we have just been to Childrens Hosp., and our almost

> eight

> > > month old has been diagnosed with torticollis and

plagiocephaly.

> We

> > > are oing to start PT and get a helmet next month. I was

> wondering if

> > > anybody else has gone to Childrens in Seattle for PT, or

> downtown for

> > > the helmet. Thanks.

> > > Bobbi

> > > Edmonds WA

> > >

> >

>

[Guest guest]

,

Hi! I've had such a hard time finging anyone around here with the

helmet. I asked the Dr. if we were the only ones ) and he said

there were at least 100 of us out there. Just not in Oly. I guess. I

wish Children's would keep a list of e-mail or phone #'s of people

who want to be contacted by others going through the same thing.

Probably too much to keep track of. Oh well! Does your friend's son

still have his helmet?

Have a good night!

)

> > >

> > > Hello, we have just been to Childrens Hosp., and our almost

> eight

> > > month old has been diagnosed with torticollis and

plagiocephaly.

> We

> > > are oing to start PT and get a helmet next month. I was

> wondering if

> > > anybody else has gone to Childrens in Seattle for PT, or

> downtown for

> > > the helmet. Thanks.

> > > Bobbi

> > > Edmonds WA

> > >

> >

>

[Guest guest]

,

Her son is in preschool now so he obviously doesn't wear the helmet

anymore. Since he was 11 mo when he got it and it's passive he

didn't get any correction

> > > >

> > > > Hello, we have just been to Childrens Hosp., and our almost

> > eight

> > > > month old has been diagnosed with torticollis and

> plagiocephaly.

> > We

> > > > are oing to start PT and get a helmet next month. I was

> > wondering if

> > > > anybody else has gone to Childrens in Seattle for PT, or

> > downtown for

> > > > the helmet. Thanks.

> > > > Bobbi

> > > > Edmonds WA

> > > >

> > >

> >

>

[Guest guest]

,

Her son is in preschool now so he obviously doesn't wear the helmet

anymore. Since he was 11 mo when he got it and it's passive he

didn't get any correction

> > > >

> > > > Hello, we have just been to Childrens Hosp., and our almost

> > eight

> > > > month old has been diagnosed with torticollis and

> plagiocephaly.

> > We

> > > > are oing to start PT and get a helmet next month. I was

> > wondering if

> > > > anybody else has gone to Childrens in Seattle for PT, or

> > downtown for

> > > > the helmet. Thanks.

> > > > Bobbi

> > > > Edmonds WA

> > > >

> > >

> >

>

[Guest guest]

,

Sorry to hear the helmet didn't work for your friend. ( Sucks to

go through that for nothing. How is his head now? The Dr. told us

that roughly 75% of the kids self correct or improve greatly as they

get older. Just wondering if his did or not.

Take Care,

)

> > > > >

> > > > > Hello, we have just been to Childrens Hosp., and our

almost

> > > eight

> > > > > month old has been diagnosed with torticollis and

> > plagiocephaly.

> > > We

> > > > > are oing to start PT and get a helmet next month. I was

> > > wondering if

> > > > > anybody else has gone to Childrens in Seattle for PT, or

> > > downtown for

> > > > > the helmet. Thanks.

> > > > > Bobbi

> > > > > Edmonds WA

> > > > >

> > > >

> > >

> >

>

[Guest guest]

,

Sorry to hear the helmet didn't work for your friend. ( Sucks to

go through that for nothing. How is his head now? The Dr. told us

that roughly 75% of the kids self correct or improve greatly as they

get older. Just wondering if his did or not.

Take Care,

)

> > > > >

> > > > > Hello, we have just been to Childrens Hosp., and our

almost

> > > eight

> > > > > month old has been diagnosed with torticollis and

> > plagiocephaly.

> > > We

> > > > > are oing to start PT and get a helmet next month. I was

> > > wondering if

> > > > > anybody else has gone to Childrens in Seattle for PT, or

> > > downtown for

> > > > > the helmet. Thanks.

> > > > > Bobbi

> > > > > Edmonds WA

> > > > >

> > > >

> > >

> >

>

[Guest guest]

She said it softened a bit. The angles aren't as sharply defined,

but he is still flat. She doesn't obsess about it anymore. There

weren't any active band options available in WA then.

My nephews, 3 and 5, have brachy. Their's didn't self correct!

> > > > > >

> > > > > > Hello, we have just been to Childrens Hosp., and our

> almost

> > > > eight

> > > > > > month old has been diagnosed with torticollis and

> > > plagiocephaly.

> > > > We

> > > > > > are oing to start PT and get a helmet next month. I was

> > > > wondering if

> > > > > > anybody else has gone to Childrens in Seattle for PT, or

> > > > downtown for

> > > > > > the helmet. Thanks.

> > > > > > Bobbi

> > > > > > Edmonds WA

> > > > > >

> > > > >

> > > >

> > >

> >

>

[Guest guest]

She said it softened a bit. The angles aren't as sharply defined,

but he is still flat. She doesn't obsess about it anymore. There

weren't any active band options available in WA then.

My nephews, 3 and 5, have brachy. Their's didn't self correct!

> > > > > >

> > > > > > Hello, we have just been to Childrens Hosp., and our

> almost

> > > > eight

> > > > > > month old has been diagnosed with torticollis and

> > > plagiocephaly.

> > > > We

> > > > > > are oing to start PT and get a helmet next month. I was

> > > > wondering if

> > > > > > anybody else has gone to Childrens in Seattle for PT, or

> > > > downtown for

> > > > > > the helmet. Thanks.

> > > > > > Bobbi

> > > > > > Edmonds WA

> > > > > >

> > > > >

> > > >

> > >

> >

>

[Guest guest]

Hi -

I have just joined the group and our 6.5 month old little girl is

going in to get measured for her helmut in a few weeks. I am wondering

how your experience is going? I am curious to know if I should be

persuing a 'band' instead of a helmut? I did not think that there were

any band provider in the Seattle area. If anyone has any advice I'd

appreciate it.

Thanks,

>

> Hello, we have just been to Childrens Hosp., and our almost eight

> month old has been diagnosed with torticollis and plagiocephaly. We

> are oing to start PT and get a helmet next month. I was wondering if

> anybody else has gone to Childrens in Seattle for PT, or downtown

for

> the helmet. Thanks.

> Bobbi

> Edmonds WA

>

[Guest guest]

Hanger is located in Lakewood and they do the band and other types of

helmet therapy. They will be moving to seattle in 3 months but I

wouldn't put it off. Childrens orthotics does the Clarion system. My

son is being scanned this week for it. I decided to stick with

Children's becuase it is closer. The Band requires weekly visits and

thus you will spend countless trips driving to Lakewood.

> >

> > Hello, we have just been to Childrens Hosp., and our almost eight

> > month old has been diagnosed with torticollis and plagiocephaly. We

> > are oing to start PT and get a helmet next month. I was wondering if

> > anybody else has gone to Childrens in Seattle for PT, or downtown

> for

> > the helmet. Thanks.

> > Bobbi

> > Edmonds WA

> >

>

[Guest guest]

Hello,

I am new to this board. My son was diagnosed with torticollis at 3

weeks old. We have doing PT at Seattle Childrens since about 5 weeks

old. He is now 4 months old and is improving slowly, although he is

still delayed in his motor skills. (He is in the 10th percentile) We

just took him in last week to see if he is going to have to wear a

helmet. He does have plagio and it seems to be getting worse. We

have a hard time keeping him off that side. I did just learn of a

new technique from my PT. We roll up a towel or blanket and put part

of it underneath him to keep it from slipping and then lay his

shoulder and hip on the roll of the side he usually turns to and it

makes his head go the other way during naps. I have not felt to

secure doing it at night, but every little bit helps. We go and see

Theresa in the Physical Therapy and she is really good with him.

Even at 5 weeks when we started, she was great. She specializes in

infants and in torticollis. Anyways, they wanted us to reposition

for 6 weeks before looking into the helmet. ALthough we have been

doing it for a few months already and it is not getting much better.

They only do the clarren helmet there...not the band. I wonder if

anyone else has had the clarren helmet and what was their experience

with it? I guess they said if they do not see improvement with the

repos. that they would do a sedated MRI or Cat Scan....? Any ideas

if this is the correct route? I have been doing a lot of research,

but have not really found much on the helmet. Only the DOCband and

STARband. Any info would be great to me also.

> >

> > Hello, we have just been to Childrens Hosp., and our almost

eight

> > month old has been diagnosed with torticollis and plagiocephaly.

We

> > are oing to start PT and get a helmet next month. I was

wondering if

> > anybody else has gone to Childrens in Seattle for PT, or

downtown

> for

> > the helmet. Thanks.

> > Bobbi

> > Edmonds WA

> >

>