Re: Just wanted to introduce myself

[Guest guest]

Hello Kay! Glad to meet you. My name is Beckie, I live in Texas also. Lubbock Texas in fact. Where do you live?

Beckie

headbreadman <kloyed@...> wrote:

HelloMy name is Kay Lynn Loyed.I have been living with pulminary biliary cirrhosis for 11yrs. I got my liver problems from having my gall bladder removal. I was turned down for a liver transplant in 1997. Finally February of this year I was accepted for a liver transplant. Where I should be jumping up and down for joy my doctor also told me that it could be a long wait because it could be 2 or 3 years before I would be getting one. I also live with cologitis. Which use to bother me just every few months but it seems to be getting worse. Here in Texas they go off your meld scores on who gets a new liver mine in June was a 12 you need to have a 40 to get a new liver so I am far off from seeing my new liver.I wanted to join this group because I wanted to come on to the computer to talk to people who are going through the

same problems I am going through. Even though I have been living with this problem for eleven years I feel like this is the first time I have really been going through this disease. It just seems like now all of a sudden I can't seem to control the pain anymore like I used too. I would like to be able to other people. My friend that I met in Dallas when I was going through my week at Baylor to see if I would receive my new liver she found out that she would not be receiving her new liver, I ws so upset for her. Anyway I just wanted a place to talk to other people.Kay Lynn Loyed

[Guest guest]

Lubbock also in Courtyard by the lakes apartmentsbgrant ham <grandma417_2000@...> wrote:

Hello Kay! Glad to meet you. My name is Beckie, I live in Texas also. Lubbock Texas in fact. Where do you live?

Beckie

headbreadman <kloyed@...> wrote:

HelloMy name is Kay Lynn Loyed.I have been living with pulminary biliary cirrhosis for 11yrs. I got my liver problems from having my gall bladder removal. I was turned down for a liver transplant in 1997. Finally February of this year I was accepted for a liver transplant. Where I should be jumping up and down for joy my doctor also told me that it could be a long wait because it could be 2 or 3 years before I would be getting one. I also live with cologitis. Which use to bother me just every few months but it seems to be getting worse. Here in Texas they go off your meld scores on who gets a new liver mine in June was a 12 you need to have a 40 to get a new liver so I am far off from seeing my new liver.I wanted to join this group because I wanted to come on to the computer to talk to people who are going through the

same problems I am going through. Even though I have been living with this problem for eleven years I feel like this is the first time I have really been going through this disease. It just seems like now all of a sudden I can't seem to control the pain anymore like I used too. I would like to be able to other people. My friend that I met in Dallas when I was going through my week at Baylor to see if I would receive my new liver she found out that she would not be receiving her new liver, I ws so upset for her. Anyway I just wanted a place to talk to other people.Kay Lynn Loyed

[Guest guest]

Cool.....how much of a coincidence can that be? lol We just moved here in March; so I am not familiar with the things yet. Maybe someday we can meet. I live out past 1585 off of ford.

GLAD TO MEET YOU!!

Beckie

P.S. My darn hasnt let me into my mail for a week or two until today. I didnt know if it was or a virus. O well......just glad to back online. ;o)Kay Lynn <kloyed@...> wrote:

Lubbock also in Courtyard by the lakes apartmentsbgrant ham <grandma417_2000@...> wrote:

Hello Kay! Glad to meet you. My name is Beckie, I live in Texas also. Lubbock Texas in fact. Where do you live?

Beckie

headbreadman <kloyed@...> wrote:

HelloMy name is Kay Lynn Loyed.I have been living with pulminary biliary cirrhosis for 11yrs. I got my liver problems from having my gall bladder removal. I was turned down for a liver transplant in 1997. Finally February of this year I was accepted for a liver transplant. Where I should be jumping up and down for joy my doctor also told me that it could be a long wait because it could be 2 or 3 years before I would be getting one. I also live with cologitis. Which use to bother me just every few months but it seems to be getting worse. Here in Texas they go off your meld scores on who gets a new liver mine in June was a 12 you need to have a 40 to get a new liver so I am far off from seeing my new liver.I wanted to join this group because I wanted to come on to the computer to talk to people who are going through the

same problems I am going through. Even though I have been living with this problem for eleven years I feel like this is the first time I have really been going through this disease. It just seems like now all of a sudden I can't seem to control the pain anymore like I used too. I would like to be able to other people. My friend that I met in Dallas when I was going through my week at Baylor to see if I would receive my new liver she found out that she would not be receiving her new liver, I ws so upset for her. Anyway I just wanted a place to talk to other people.Kay Lynn Loyed

[Guest guest]

Hi! Glad to hear things are going well. I think we do have members in

your area. Good luck!

Sue

Colin F., 19 mos.

STARband grad

brachy

--- In Plagiocephaly , " markellenme " <mar31me@c...>

wrote:

>

> Hi. My son Kellen, who will be 9 months old at the end of the

month,

> received his DOC Band two weeks ago. We are going to the ndale,

> VA CT office and live in Herndon, VA. Today, he had his first

> adjustment and all appears to be going well. He has Brachycephaly

and

> neck tightness. The problem only appears to be in the back and his

> face appears to be within a normal range. Over all, I have been

> satisfied with the treatment he has been receiving. At this point,

I

> am just waiting to see how little my insurance company will pay.

>

> I guess I consider myself lucky in that the CT office is not that

far

> from my house and I can afford to pay for the band, even if the

> insurance will not pay for it.

>

> I was wondering if anyone in this area is interested in getting

> together for a play date. I would be nice to meet other people with

> this common interest.

>

> ellen Meymarian

> mar31me@c...

[Guest guest]

Hi! Glad to hear things are going well. I think we do have members in

your area. Good luck!

Sue

Colin F., 19 mos.

STARband grad

brachy

--- In Plagiocephaly , " markellenme " <mar31me@c...>

wrote:

>

> Hi. My son Kellen, who will be 9 months old at the end of the

month,

> received his DOC Band two weeks ago. We are going to the ndale,

> VA CT office and live in Herndon, VA. Today, he had his first

> adjustment and all appears to be going well. He has Brachycephaly

and

> neck tightness. The problem only appears to be in the back and his

> face appears to be within a normal range. Over all, I have been

> satisfied with the treatment he has been receiving. At this point,

I

> am just waiting to see how little my insurance company will pay.

>

> I guess I consider myself lucky in that the CT office is not that

far

> from my house and I can afford to pay for the band, even if the

> insurance will not pay for it.

>

> I was wondering if anyone in this area is interested in getting

> together for a play date. I would be nice to meet other people with

> this common interest.

>

> ellen Meymarian

> mar31me@c...