Guest guest Posted December 1, 2001 Report Share Posted December 1, 2001 HI amy, I was monitored monthly to 6 weeks for levels during my two pregnancies with Grave's. I was flagged immediately by my OB has high risk and referred to a perinatologist. It is ludicrous to think your insurance won't allow this. They are putting your health and the baby at risk. I would fight them! Thanks to careful following by my docs all is well with my babies. Keep us posted... I. Re: Re: GD and pregnancy > Hi Amy, > Your HBO should have a representative whom you can contact about your > concerns. If you exaggerate your symptoms and express your worries and ask to > see an endocrinologist as well as an OB GYN they should listen to you. If > not, ask to speak to the manager of whomever you talk to. They do make > exceptions but only after you complain. > In early pregnancy, thyroid levels are increased due to an increase in your > beta HCG levels. In the 2nd and 3rd trimesters, levels begin falling. You do > need to be tested every month, or more often if you have symptoms, because of > the effects both hyperthyroidism and hypothyroidism on your baby. Your TSI > levels need to be checked in the 3rd trimester to see if they're still high > since they can cross the fetal barrier. > Let us know what you find out, Elaine > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 1, 2001 Report Share Posted December 1, 2001 HI amy, I was monitored monthly to 6 weeks for levels during my two pregnancies with Grave's. I was flagged immediately by my OB has high risk and referred to a perinatologist. It is ludicrous to think your insurance won't allow this. They are putting your health and the baby at risk. I would fight them! Thanks to careful following by my docs all is well with my babies. Keep us posted... I. Re: Re: GD and pregnancy > Hi Amy, > Your HBO should have a representative whom you can contact about your > concerns. If you exaggerate your symptoms and express your worries and ask to > see an endocrinologist as well as an OB GYN they should listen to you. If > not, ask to speak to the manager of whomever you talk to. They do make > exceptions but only after you complain. > In early pregnancy, thyroid levels are increased due to an increase in your > beta HCG levels. In the 2nd and 3rd trimesters, levels begin falling. You do > need to be tested every month, or more often if you have symptoms, because of > the effects both hyperthyroidism and hypothyroidism on your baby. Your TSI > levels need to be checked in the 3rd trimester to see if they're still high > since they can cross the fetal barrier. > Let us know what you find out, Elaine > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 1, 2001 Report Share Posted December 1, 2001 HI amy, I was monitored monthly to 6 weeks for levels during my two pregnancies with Grave's. I was flagged immediately by my OB has high risk and referred to a perinatologist. It is ludicrous to think your insurance won't allow this. They are putting your health and the baby at risk. I would fight them! Thanks to careful following by my docs all is well with my babies. Keep us posted... I. Re: Re: GD and pregnancy > Hi Amy, > Your HBO should have a representative whom you can contact about your > concerns. If you exaggerate your symptoms and express your worries and ask to > see an endocrinologist as well as an OB GYN they should listen to you. If > not, ask to speak to the manager of whomever you talk to. They do make > exceptions but only after you complain. > In early pregnancy, thyroid levels are increased due to an increase in your > beta HCG levels. In the 2nd and 3rd trimesters, levels begin falling. You do > need to be tested every month, or more often if you have symptoms, because of > the effects both hyperthyroidism and hypothyroidism on your baby. Your TSI > levels need to be checked in the 3rd trimester to see if they're still high > since they can cross the fetal barrier. > Let us know what you find out, Elaine > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 1, 2001 Report Share Posted December 1, 2001 Hi I. How is the newest addition doing? I can't believe he is coming up on 3 months old already! Hope all is well with you and yours and that the Graves is still under control. Take care, Jody _________________________________________________________________ Get your FREE download of MSN Explorer at http://explorer.msn.com/intl.asp Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 1, 2001 Report Share Posted December 1, 2001 Hi I. How is the newest addition doing? I can't believe he is coming up on 3 months old already! Hope all is well with you and yours and that the Graves is still under control. Take care, Jody _________________________________________________________________ Get your FREE download of MSN Explorer at http://explorer.msn.com/intl.asp Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 1, 2001 Report Share Posted December 1, 2001 Hi I. How is the newest addition doing? I can't believe he is coming up on 3 months old already! Hope all is well with you and yours and that the Graves is still under control. Take care, Jody _________________________________________________________________ Get your FREE download of MSN Explorer at http://explorer.msn.com/intl.asp Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 1, 2001 Report Share Posted December 1, 2001 Hiya I have Graves' and am 35 and have never had a child but would still like to. A friend of mine in the UK was hyperthyroid believes her pregnancy helped make her better. (She was hyper but she doesn't know why, she says her TSH was high rather than low so it doesn't sound like GD, but she isn't interested in finding out more) - she went on ATDs for 18 months and got pregnant soon after stopping them and has been good ever since (her son's now 3). I'm not suggesting this as a cure (!) it's obviously no reason to have a baby - but I was wondering if there are any documents about this, or if other people have experienced pregnancy as a " cure " or a healing thing for their GD or hyperthyroidism? I'm interested to know if Graves' eye problems subside when we are pregnant due to the calming down of the immune system? (I must admit to having skipped a few of the previous posts on GD and pregnancy; sorry if I am repeating any questions with my hypothetical interest!!) DAWN ROSE > >Reply-To: graves_support >To: <graves_support > >Subject: Re: Re: GD and pregnancy >Date: Sat, 1 Dec 2001 11:27:08 -0500 > >HI amy, I was monitored monthly to 6 weeks for levels during my two >pregnancies with Grave's. I was flagged immediately by my OB has high risk >and referred to a perinatologist. It is ludicrous to think your insurance >won't allow this. They are putting your health and the baby at risk. I >would fight them! Thanks to careful following by my docs all is well with >my babies. Keep us posted... I. > Re: Re: GD and pregnancy > > > > Hi Amy, > > Your HBO should have a representative whom you can contact about your > > concerns. If you exaggerate your symptoms and express your worries and >ask >to > > see an endocrinologist as well as an OB GYN they should listen to you. >If > > not, ask to speak to the manager of whomever you talk to. They do make > > exceptions but only after you complain. > > In early pregnancy, thyroid levels are increased due to an increase in >your > > beta HCG levels. In the 2nd and 3rd trimesters, levels begin falling. >You >do > > need to be tested every month, or more often if you have symptoms, >because >of > > the effects both hyperthyroidism and hypothyroidism on your baby. Your >TSI > > levels need to be checked in the 3rd trimester to see if they're still >high > > since they can cross the fetal barrier. > > Let us know what you find out, Elaine > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 1, 2001 Report Share Posted December 1, 2001 > I'm interested to know if Graves' eye problems subside when we are pregnant > due to the calming down of the immune system? > Dawn Rose, I don't know the answers to your other questions (other than the fact htat many women with autoimmune diseases do experience a remission of symptoms during pregnancy, and then are at increased risk again during hte post-partum period), but can comment on teh eyes. When I saw an opth. at the Mayo Clinic, I had just stopped taping my eyes shut. I taped them shut for several months, as my main problem was severe lid retraction with high pressure in the highs and mild bulging. The opth. who saw me said that there isn't much clincial research on eye disease and pregnancy. In his experience, however, he said that everyone single woman he has ever personally seen with eye disease as advanced as mine (I was mildly severe in his book) went on to develop significantly worse eye disease post-partum, if they had a baby within the three to five year period that normally characterizes active graves eye disease. His informal assessment was that if I had another baby within three years, I would have to anticipate that my chances of significantly increased eye problems were high. I must say that this dampened my enthusiasm for a third pregnancy considerably, and unquestionably made me wait three years before even DREAMING of having a third baby. I'm just at the end of the third year of the onset of Graves' eye disease and am only now seriously contemplating if I am prepared to take these risks. I really have a lot of faith in this particular doctor and remember all too well the pain and fear and disfigurement that the eye changes brought into my life. B Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 1, 2001 Report Share Posted December 1, 2001 > I'm interested to know if Graves' eye problems subside when we are pregnant > due to the calming down of the immune system? > Dawn Rose, I don't know the answers to your other questions (other than the fact htat many women with autoimmune diseases do experience a remission of symptoms during pregnancy, and then are at increased risk again during hte post-partum period), but can comment on teh eyes. When I saw an opth. at the Mayo Clinic, I had just stopped taping my eyes shut. I taped them shut for several months, as my main problem was severe lid retraction with high pressure in the highs and mild bulging. The opth. who saw me said that there isn't much clincial research on eye disease and pregnancy. In his experience, however, he said that everyone single woman he has ever personally seen with eye disease as advanced as mine (I was mildly severe in his book) went on to develop significantly worse eye disease post-partum, if they had a baby within the three to five year period that normally characterizes active graves eye disease. His informal assessment was that if I had another baby within three years, I would have to anticipate that my chances of significantly increased eye problems were high. I must say that this dampened my enthusiasm for a third pregnancy considerably, and unquestionably made me wait three years before even DREAMING of having a third baby. I'm just at the end of the third year of the onset of Graves' eye disease and am only now seriously contemplating if I am prepared to take these risks. I really have a lot of faith in this particular doctor and remember all too well the pain and fear and disfigurement that the eye changes brought into my life. B Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 1, 2001 Report Share Posted December 1, 2001 I wonder if doctors ever prescribe ATDs for the post partum period as a preventative rather than waiting for the hyper symptoms to kick in. It seems to me that a maintainance or minimal dose of ATDs following pregnancy might prevent the antibodies that go for the thyroid and the eyes from multiplying in this danger period. On a similar note, I never understand why doctors want to " wait and see " so much with subclinical hyperthyroidism - with me, we had to wait until I was officially hyper before I could get anything. Maybe there is some evidence that allowing the disease to get serious before treatment, helps, but I havent' seen anything. I guess it might effect breast feeding options though? Just thinking out loud. DAWN ROSE > >Reply-To: graves_support >To: <graves_support > >Subject: Re: Re: GD and pregnancy >Date: Sat, 1 Dec 2001 18:45:17 -0600 > > > I'm interested to know if Graves' eye problems subside when we are >pregnant > > due to the calming down of the immune system? > > > Dawn Rose, > >I don't know the answers to your other questions (other than the fact htat >many women with autoimmune diseases do experience a remission of symptoms >during pregnancy, and then are at increased risk again during hte >post-partum period), but can comment on teh eyes. > >When I saw an opth. at the Mayo Clinic, I had just stopped taping my eyes >shut. I taped them shut for several months, as my main problem was severe >lid retraction with high pressure in the highs and mild bulging. The opth. >who saw me said that there isn't much clincial research on eye disease and >pregnancy. In his experience, however, he said that everyone single woman >he has ever personally seen with eye disease as advanced as mine (I was >mildly severe in his book) went on to develop significantly worse eye >disease post-partum, if they had a baby within the three to five year >period >that normally characterizes active graves eye disease. His informal >assessment was that if I had another baby within three years, I would have >to anticipate that my chances of significantly increased eye problems were >high. > >I must say that this dampened my enthusiasm for a third pregnancy >considerably, and unquestionably made me wait three years before even >DREAMING of having a third baby. I'm just at the end of the third year of >the onset of Graves' eye disease and am only now seriously contemplating if >I am prepared to take these risks. I really have a lot of faith in this >particular doctor and remember all too well the pain and fear and >disfigurement that the eye changes brought into my life. > > B > > > > > >------------------------------------- >The Graves' list is intended for informational purposes only and is not >intended to replace expert medical care. >Please consult your doctor before changing or trying new treatments. >---------------------------------------- > DISCLAIMER > >Advertisments placed on this yahoo groups list does not have the >endorsement of >the listowner. I have no input as to what ads are attached to emails. >-------------------------------------------------------------------------------\ ------- > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 1, 2001 Report Share Posted December 1, 2001 I wonder if doctors ever prescribe ATDs for the post partum period as a preventative rather than waiting for the hyper symptoms to kick in. It seems to me that a maintainance or minimal dose of ATDs following pregnancy might prevent the antibodies that go for the thyroid and the eyes from multiplying in this danger period. On a similar note, I never understand why doctors want to " wait and see " so much with subclinical hyperthyroidism - with me, we had to wait until I was officially hyper before I could get anything. Maybe there is some evidence that allowing the disease to get serious before treatment, helps, but I havent' seen anything. I guess it might effect breast feeding options though? Just thinking out loud. DAWN ROSE > >Reply-To: graves_support >To: <graves_support > >Subject: Re: Re: GD and pregnancy >Date: Sat, 1 Dec 2001 18:45:17 -0600 > > > I'm interested to know if Graves' eye problems subside when we are >pregnant > > due to the calming down of the immune system? > > > Dawn Rose, > >I don't know the answers to your other questions (other than the fact htat >many women with autoimmune diseases do experience a remission of symptoms >during pregnancy, and then are at increased risk again during hte >post-partum period), but can comment on teh eyes. > >When I saw an opth. at the Mayo Clinic, I had just stopped taping my eyes >shut. I taped them shut for several months, as my main problem was severe >lid retraction with high pressure in the highs and mild bulging. The opth. >who saw me said that there isn't much clincial research on eye disease and >pregnancy. In his experience, however, he said that everyone single woman >he has ever personally seen with eye disease as advanced as mine (I was >mildly severe in his book) went on to develop significantly worse eye >disease post-partum, if they had a baby within the three to five year >period >that normally characterizes active graves eye disease. His informal >assessment was that if I had another baby within three years, I would have >to anticipate that my chances of significantly increased eye problems were >high. > >I must say that this dampened my enthusiasm for a third pregnancy >considerably, and unquestionably made me wait three years before even >DREAMING of having a third baby. I'm just at the end of the third year of >the onset of Graves' eye disease and am only now seriously contemplating if >I am prepared to take these risks. I really have a lot of faith in this >particular doctor and remember all too well the pain and fear and >disfigurement that the eye changes brought into my life. > > B > > > > > >------------------------------------- >The Graves' list is intended for informational purposes only and is not >intended to replace expert medical care. >Please consult your doctor before changing or trying new treatments. >---------------------------------------- > DISCLAIMER > >Advertisments placed on this yahoo groups list does not have the >endorsement of >the listowner. I have no input as to what ads are attached to emails. >-------------------------------------------------------------------------------\ ------- > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 1, 2001 Report Share Posted December 1, 2001 Perhaps Graves goes into remission during pregnacy because of the lack of estrogen. Or there may be some other factor that reduces the immune system. The baby has only 1/2 the mother's DNA. That in itself should cause the immune system to react. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 1, 2001 Report Share Posted December 1, 2001 Perhaps Graves goes into remission during pregnacy because of the lack of estrogen. Or there may be some other factor that reduces the immune system. The baby has only 1/2 the mother's DNA. That in itself should cause the immune system to react. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 1, 2001 Report Share Posted December 1, 2001 Perhaps Graves goes into remission during pregnacy because of the lack of estrogen. Or there may be some other factor that reduces the immune system. The baby has only 1/2 the mother's DNA. That in itself should cause the immune system to react. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 1, 2001 Report Share Posted December 1, 2001 Hi , Do you know what your TSI ab's are? Jody _________________________________________________________________ Get your FREE download of MSN Explorer at http://explorer.msn.com/intl.asp Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 1, 2001 Report Share Posted December 1, 2001 Hi , Do you know what your TSI ab's are? Jody _________________________________________________________________ Get your FREE download of MSN Explorer at http://explorer.msn.com/intl.asp Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 1, 2001 Report Share Posted December 1, 2001 Hi Dawn Rose, >>>>On a similar note, I never understand why doctors want to " wait and see " >>>>so much with subclinical hyperthyroidism - with me, we had to wait until >>>>I was officially hyper before I could get anything. Maybe there is some >>>>evidence that allowing the disease to get serious before treatment, >>>>helps, but I havent' seen anything.<<<< Maybe as more and more doctors start seeing the importances of the antibodies testing and monitoring with them, treatment will start sooner. Right now, I think to many docs see them as unimportant. Jody _________________________________________________________________ Get your FREE download of MSN Explorer at http://explorer.msn.com/intl.asp Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 1, 2001 Report Share Posted December 1, 2001 Maybe it's not up to the doctors. Maybe the insurance companies want to save by not treating you for years. Just wait till it's bad and they can do RAI and save lots of money again. -Pam- have I become more cynical ? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 1, 2001 Report Share Posted December 1, 2001 Maybe it's not up to the doctors. Maybe the insurance companies want to save by not treating you for years. Just wait till it's bad and they can do RAI and save lots of money again. -Pam- have I become more cynical ? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 2, 2001 Report Share Posted December 2, 2001 Hi Jody -- You know, I don't. If I do try to have another baby, I think I'd find that out beforehand. B Re: Re: GD and pregnancy > Hi , > Do you know what your TSI ab's are? > Jody > > _________________________________________________________________ > Get your FREE download of MSN Explorer at http://explorer.msn.com/intl.asp > > > > ------------------------------------- > The Graves' list is intended for informational purposes only and is not intended to replace expert medical care. > Please consult your doctor before changing or trying new treatments. > ---------------------------------------- > DISCLAIMER > > Advertisments placed on this yahoo groups list does not have the endorsement of > the listowner. I have no input as to what ads are attached to emails. > -------------------------------------------------------------------------- ------------ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 3, 2001 Report Share Posted December 3, 2001 Dear Dawn This is a really interesting. It's a shame she doesn't know what caused her hyper originally. I can understand why she now wants to leave sleeping dogs lie. Unfortunately I was permanently treated (thyroidectomy) before I feel pregnant so can't claim a pregnancy cure. I do know that before the thyroidectomy I had great difficulty getting pregnant (2.5 years trying & 2 miscarriages). I haven't come across anything that researches this in detail. Cheers Caroline Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 3, 2001 Report Share Posted December 3, 2001 Dear Dawn This is a really interesting. It's a shame she doesn't know what caused her hyper originally. I can understand why she now wants to leave sleeping dogs lie. Unfortunately I was permanently treated (thyroidectomy) before I feel pregnant so can't claim a pregnancy cure. I do know that before the thyroidectomy I had great difficulty getting pregnant (2.5 years trying & 2 miscarriages). I haven't come across anything that researches this in detail. Cheers Caroline Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.