Guest guest Posted June 2, 2004 Report Share Posted June 2, 2004 Hi Kristy, Let me take a shot at these questions: > - What kind of symptoms have been experienced in the earlier stages > of IGAN? In the earlier stages, most people are primarily asymptomatic. It is not uncommon for someone to not even be diagnosed until the IgAN is more advanced due to the lack of physical symptoms. Some things you may experience are fatigue, possible flank pain, and maybe an elevated BP, but that is not likely until you are more advanced. In the early stages, the flags are normally protein or blood in the urine found on a routine check rather than physical symptoms driving someone to go to the doctor. You can read more on symptoms at www.igan.ca > > - How should the blood work/urinalysis be in the earlier stages? In my early years, I was checked once a year, or maybe twice a year. I did not even get followed at all from the mid 70s when I first had protein and blood in my urine until 1987 when I had my first biopsy. Now I get my labs done once a month or more, but that is due to being at 20% and also the monitoring requirements of being on Procrit for anemia. > > - If someone in your family was diagnosed with IgAN, is it possible > that your outcome will be somewhat like theirs? Not necessarily. I have a sister with IgAN but she has a very very mild case with only slightly elevated creatinine and elevated BP, but no other symptoms or problems at all whereas I will definitely end up needing dialysis or a transplant. I have passed the point of no return so to speak. Hope that helps. > > I think that is all for now. Thanks for any help/info. that you send > to me. > > Kristy > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 2, 2004 Report Share Posted June 2, 2004 Hi Kristy, Let me take a shot at these questions: > - What kind of symptoms have been experienced in the earlier stages > of IGAN? In the earlier stages, most people are primarily asymptomatic. It is not uncommon for someone to not even be diagnosed until the IgAN is more advanced due to the lack of physical symptoms. Some things you may experience are fatigue, possible flank pain, and maybe an elevated BP, but that is not likely until you are more advanced. In the early stages, the flags are normally protein or blood in the urine found on a routine check rather than physical symptoms driving someone to go to the doctor. You can read more on symptoms at www.igan.ca > > - How should the blood work/urinalysis be in the earlier stages? In my early years, I was checked once a year, or maybe twice a year. I did not even get followed at all from the mid 70s when I first had protein and blood in my urine until 1987 when I had my first biopsy. Now I get my labs done once a month or more, but that is due to being at 20% and also the monitoring requirements of being on Procrit for anemia. > > - If someone in your family was diagnosed with IgAN, is it possible > that your outcome will be somewhat like theirs? Not necessarily. I have a sister with IgAN but she has a very very mild case with only slightly elevated creatinine and elevated BP, but no other symptoms or problems at all whereas I will definitely end up needing dialysis or a transplant. I have passed the point of no return so to speak. Hope that helps. > > I think that is all for now. Thanks for any help/info. that you send > to me. > > Kristy > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 2, 2004 Report Share Posted June 2, 2004 Hi Kristy, Let me take a shot at these questions: > - What kind of symptoms have been experienced in the earlier stages > of IGAN? In the earlier stages, most people are primarily asymptomatic. It is not uncommon for someone to not even be diagnosed until the IgAN is more advanced due to the lack of physical symptoms. Some things you may experience are fatigue, possible flank pain, and maybe an elevated BP, but that is not likely until you are more advanced. In the early stages, the flags are normally protein or blood in the urine found on a routine check rather than physical symptoms driving someone to go to the doctor. You can read more on symptoms at www.igan.ca > > - How should the blood work/urinalysis be in the earlier stages? In my early years, I was checked once a year, or maybe twice a year. I did not even get followed at all from the mid 70s when I first had protein and blood in my urine until 1987 when I had my first biopsy. Now I get my labs done once a month or more, but that is due to being at 20% and also the monitoring requirements of being on Procrit for anemia. > > - If someone in your family was diagnosed with IgAN, is it possible > that your outcome will be somewhat like theirs? Not necessarily. I have a sister with IgAN but she has a very very mild case with only slightly elevated creatinine and elevated BP, but no other symptoms or problems at all whereas I will definitely end up needing dialysis or a transplant. I have passed the point of no return so to speak. Hope that helps. > > I think that is all for now. Thanks for any help/info. that you send > to me. > > Kristy > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 2, 2004 Report Share Posted June 2, 2004 Oh , My eyes welled up when I read your last sentences. You will never pass the point of no return in my book! Cy Re: various questions > Hi Kristy, > > Let me take a shot at these questions: > > > - What kind of symptoms have been experienced in the earlier stages > > of IGAN? > > > In the earlier stages, most people are primarily asymptomatic. It is not > uncommon for someone to not even be diagnosed until the IgAN is more advanced due > to the lack of physical symptoms. Some things you may experience are > fatigue, possible flank pain, and maybe an elevated BP, but that is not likely until > you are more advanced. In the early stages, the flags are normally protein or > blood in the urine found on a routine check rather than physical symptoms > driving someone to go to the doctor. You can read more on symptoms at > www.igan.ca > > > > > > - How should the blood work/urinalysis be in the earlier stages? > > In my early years, I was checked once a year, or maybe twice a year. I did > not even get followed at all from the mid 70s when I first had protein and blood > in my urine until 1987 when I had my first biopsy. Now I get my labs done > once a month or more, but that is due to being at 20% and also the monitoring > requirements of being on Procrit for anemia. > > > > > > - If someone in your family was diagnosed with IgAN, is it possible > > that your outcome will be somewhat like theirs? > > > Not necessarily. I have a sister with IgAN but she has a very very mild case > with only slightly elevated creatinine and elevated BP, but no other symptoms > or problems at all whereas I will definitely end up needing dialysis or a > transplant. I have passed the point of no return so to speak. > > Hope that helps. > > > > > > > I think that is all for now. Thanks for any help/info. that you send > > to me. > > > > Kristy > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 2, 2004 Report Share Posted June 2, 2004 Oh , My eyes welled up when I read your last sentences. You will never pass the point of no return in my book! Cy Re: various questions > Hi Kristy, > > Let me take a shot at these questions: > > > - What kind of symptoms have been experienced in the earlier stages > > of IGAN? > > > In the earlier stages, most people are primarily asymptomatic. It is not > uncommon for someone to not even be diagnosed until the IgAN is more advanced due > to the lack of physical symptoms. Some things you may experience are > fatigue, possible flank pain, and maybe an elevated BP, but that is not likely until > you are more advanced. In the early stages, the flags are normally protein or > blood in the urine found on a routine check rather than physical symptoms > driving someone to go to the doctor. You can read more on symptoms at > www.igan.ca > > > > > > - How should the blood work/urinalysis be in the earlier stages? > > In my early years, I was checked once a year, or maybe twice a year. I did > not even get followed at all from the mid 70s when I first had protein and blood > in my urine until 1987 when I had my first biopsy. Now I get my labs done > once a month or more, but that is due to being at 20% and also the monitoring > requirements of being on Procrit for anemia. > > > > > > - If someone in your family was diagnosed with IgAN, is it possible > > that your outcome will be somewhat like theirs? > > > Not necessarily. I have a sister with IgAN but she has a very very mild case > with only slightly elevated creatinine and elevated BP, but no other symptoms > or problems at all whereas I will definitely end up needing dialysis or a > transplant. I have passed the point of no return so to speak. > > Hope that helps. > > > > > > > I think that is all for now. Thanks for any help/info. that you send > > to me. > > > > Kristy > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 2, 2004 Report Share Posted June 2, 2004 Oh , My eyes welled up when I read your last sentences. You will never pass the point of no return in my book! Cy Re: various questions > Hi Kristy, > > Let me take a shot at these questions: > > > - What kind of symptoms have been experienced in the earlier stages > > of IGAN? > > > In the earlier stages, most people are primarily asymptomatic. It is not > uncommon for someone to not even be diagnosed until the IgAN is more advanced due > to the lack of physical symptoms. Some things you may experience are > fatigue, possible flank pain, and maybe an elevated BP, but that is not likely until > you are more advanced. In the early stages, the flags are normally protein or > blood in the urine found on a routine check rather than physical symptoms > driving someone to go to the doctor. You can read more on symptoms at > www.igan.ca > > > > > > - How should the blood work/urinalysis be in the earlier stages? > > In my early years, I was checked once a year, or maybe twice a year. I did > not even get followed at all from the mid 70s when I first had protein and blood > in my urine until 1987 when I had my first biopsy. Now I get my labs done > once a month or more, but that is due to being at 20% and also the monitoring > requirements of being on Procrit for anemia. > > > > > > - If someone in your family was diagnosed with IgAN, is it possible > > that your outcome will be somewhat like theirs? > > > Not necessarily. I have a sister with IgAN but she has a very very mild case > with only slightly elevated creatinine and elevated BP, but no other symptoms > or problems at all whereas I will definitely end up needing dialysis or a > transplant. I have passed the point of no return so to speak. > > Hope that helps. > > > > > > > I think that is all for now. Thanks for any help/info. that you send > > to me. > > > > Kristy > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 3, 2004 Report Share Posted June 3, 2004 Cy and Rita, Thank you both so much. My doctor has had two very stern talks with me about the importance of not being in denial about the fact that my poor little kidneys have very little longevity left in them. I tend to be very optimistic, but my Neph is concerned that is spilling over into not accepting how close I am to ESRD. The good news is that I am still counting my blessings every day, and I am filled with the peace that passes understanding and I truly fully trust God for the timing. I must say though I sure do feel loved by this group :-) n a message dated 6/3/2004 7:18:59 PM Pacific Daylight Time, jrzyrita@... writes: > : > > I'm looking at the same book as Cy! > > Cy Webb wrote: > Oh , > My eyes welled up when I read your last sentences. You will never pass the > point of no return in my book! > Cy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 3, 2004 Report Share Posted June 3, 2004 Cy and Rita, Thank you both so much. My doctor has had two very stern talks with me about the importance of not being in denial about the fact that my poor little kidneys have very little longevity left in them. I tend to be very optimistic, but my Neph is concerned that is spilling over into not accepting how close I am to ESRD. The good news is that I am still counting my blessings every day, and I am filled with the peace that passes understanding and I truly fully trust God for the timing. I must say though I sure do feel loved by this group :-) n a message dated 6/3/2004 7:18:59 PM Pacific Daylight Time, jrzyrita@... writes: > : > > I'm looking at the same book as Cy! > > Cy Webb wrote: > Oh , > My eyes welled up when I read your last sentences. You will never pass the > point of no return in my book! > Cy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 3, 2004 Report Share Posted June 3, 2004 Cy and Rita, Thank you both so much. My doctor has had two very stern talks with me about the importance of not being in denial about the fact that my poor little kidneys have very little longevity left in them. I tend to be very optimistic, but my Neph is concerned that is spilling over into not accepting how close I am to ESRD. The good news is that I am still counting my blessings every day, and I am filled with the peace that passes understanding and I truly fully trust God for the timing. I must say though I sure do feel loved by this group :-) n a message dated 6/3/2004 7:18:59 PM Pacific Daylight Time, jrzyrita@... writes: > : > > I'm looking at the same book as Cy! > > Cy Webb wrote: > Oh , > My eyes welled up when I read your last sentences. You will never pass the > point of no return in my book! > Cy Quote Link to comment Share on other sites More sharing options...
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