Guest guest Posted February 28, 2002 Report Share Posted February 28, 2002 I am not sure. The past 2 weeks I have been very tired. I have been stressed for a couple of days but mostly tired. Could be. Thinking of taking " health day " next week. Thanks for the feedback. - Cheryl -- ======================================== Cheryl Email: cmwkiddo@... __________________________________________________________________ Your favorite stores, helpful shopping tools and great gift ideas. Experience the convenience of buying online with Shop@Netscape! http://shopnow.netscape.com/ Get your own FREE, personal Netscape Mail account today at http://webmail.netscape.com/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 28, 2002 Report Share Posted February 28, 2002 I am not sure. The past 2 weeks I have been very tired. I have been stressed for a couple of days but mostly tired. Could be. Thinking of taking " health day " next week. Thanks for the feedback. - Cheryl -- ======================================== Cheryl Email: cmwkiddo@... __________________________________________________________________ Your favorite stores, helpful shopping tools and great gift ideas. Experience the convenience of buying online with Shop@Netscape! http://shopnow.netscape.com/ Get your own FREE, personal Netscape Mail account today at http://webmail.netscape.com/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 28, 2002 Report Share Posted February 28, 2002 Hi Cheryl, Ask your doc to run a TSI antibody on you, if they are elevated, the chance is much greater that you will be having problems with the graves eye disease. I am on PTU to lower them now, and most of my eye symptoms have been alleviated. Jody _________________________________________________________________ MSN Photos is the easiest way to share and print your photos: http://photos.msn.com/support/worldwide.aspx Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 28, 2002 Report Share Posted February 28, 2002 Jody...my fiance' Jeff just started taking PTU last weekend and is having a hard time with his balance. We asked his Dr. and he said that was from the Graves not the PTU but it didn't start until he was on the PTU. The same thing with leg cramps. Could the medicine be causing this or do you think it could just be a delayed symptom of Graves. I'm asking you because I saw below that you are on PTU and hopefully your experience could help. Thanks...Shani > >Reply-To: graves_support >To: graves_support >Subject: Re: Re: Eyes twitching >Date: Thu, 28 Feb 2002 12:03:19 -0500 > >Hi Cheryl, >Ask your doc to run a TSI antibody on you, if they are elevated, the chance >is much greater that you will be having problems with the graves eye >disease. I am on PTU to lower them now, and most of my eye symptoms have >been alleviated. >Jody > > > >_________________________________________________________________ >MSN Photos is the easiest way to share and print your photos: >http://photos.msn.com/support/worldwide.aspx > _________________________________________________________________ MSN Photos is the easiest way to share and print your photos: http://photos.msn.com/support/worldwide.aspx Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 28, 2002 Report Share Posted February 28, 2002 Jody...my fiance' Jeff just started taking PTU last weekend and is having a hard time with his balance. We asked his Dr. and he said that was from the Graves not the PTU but it didn't start until he was on the PTU. The same thing with leg cramps. Could the medicine be causing this or do you think it could just be a delayed symptom of Graves. I'm asking you because I saw below that you are on PTU and hopefully your experience could help. Thanks...Shani > >Reply-To: graves_support >To: graves_support >Subject: Re: Re: Eyes twitching >Date: Thu, 28 Feb 2002 12:03:19 -0500 > >Hi Cheryl, >Ask your doc to run a TSI antibody on you, if they are elevated, the chance >is much greater that you will be having problems with the graves eye >disease. I am on PTU to lower them now, and most of my eye symptoms have >been alleviated. >Jody > > > >_________________________________________________________________ >MSN Photos is the easiest way to share and print your photos: >http://photos.msn.com/support/worldwide.aspx > _________________________________________________________________ MSN Photos is the easiest way to share and print your photos: http://photos.msn.com/support/worldwide.aspx Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 28, 2002 Report Share Posted February 28, 2002 Hi Shani, I am on such a low dose of PTU for my eyes, that I really don't have an answer for you. From all that I have learned the last two years, my best guess would be that it is from graves and not the PTU. Remember, even though he has been on a beta blocker since Jan. his thyroid has not been treated until now, so from Jan. until now, things probably got worse. If memory serves me right, Jeff was hospitalized because of his heart rate just before diagnosis wasn't he? That makes me think he was either in or very close to thyroid storm, which would mean his graves was pretty severe at that time, and his doctor not putting him on ATD's right away to bring his thyroid numbers down, did Jeff a huge disservice, because he let the graves continue on unchecked. The beta blockers do not do anything for our thyroid numbers. Tell Jeff to hang on, keep taking his PTU and do NOT miss a dose...it will take a few weeks before he sees a big difference in things, and I do believe there is a small chance the first week or two that things may actually get a bit worse until the PTU kicks in. He IS on the right track now, Shani...he just has to be patient and gentle with himself, and know that things will begin to improve soon. One of the good effects he will have with the PTU is that if he is also having eye problems, he should also see a lot of them clear up! The PTU has made a huge difference in my vision and eye problems since starting PTU in October. You both hang tough, it will get better soon, I promise! Jody _________________________________________________________________ Chat with friends online, try MSN Messenger: http://messenger.msn.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 28, 2002 Report Share Posted February 28, 2002 Hi Shani, I am on such a low dose of PTU for my eyes, that I really don't have an answer for you. From all that I have learned the last two years, my best guess would be that it is from graves and not the PTU. Remember, even though he has been on a beta blocker since Jan. his thyroid has not been treated until now, so from Jan. until now, things probably got worse. If memory serves me right, Jeff was hospitalized because of his heart rate just before diagnosis wasn't he? That makes me think he was either in or very close to thyroid storm, which would mean his graves was pretty severe at that time, and his doctor not putting him on ATD's right away to bring his thyroid numbers down, did Jeff a huge disservice, because he let the graves continue on unchecked. The beta blockers do not do anything for our thyroid numbers. Tell Jeff to hang on, keep taking his PTU and do NOT miss a dose...it will take a few weeks before he sees a big difference in things, and I do believe there is a small chance the first week or two that things may actually get a bit worse until the PTU kicks in. He IS on the right track now, Shani...he just has to be patient and gentle with himself, and know that things will begin to improve soon. One of the good effects he will have with the PTU is that if he is also having eye problems, he should also see a lot of them clear up! The PTU has made a huge difference in my vision and eye problems since starting PTU in October. You both hang tough, it will get better soon, I promise! Jody _________________________________________________________________ Chat with friends online, try MSN Messenger: http://messenger.msn.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 28, 2002 Report Share Posted February 28, 2002 Hi Shani, I am on such a low dose of PTU for my eyes, that I really don't have an answer for you. From all that I have learned the last two years, my best guess would be that it is from graves and not the PTU. Remember, even though he has been on a beta blocker since Jan. his thyroid has not been treated until now, so from Jan. until now, things probably got worse. If memory serves me right, Jeff was hospitalized because of his heart rate just before diagnosis wasn't he? That makes me think he was either in or very close to thyroid storm, which would mean his graves was pretty severe at that time, and his doctor not putting him on ATD's right away to bring his thyroid numbers down, did Jeff a huge disservice, because he let the graves continue on unchecked. The beta blockers do not do anything for our thyroid numbers. Tell Jeff to hang on, keep taking his PTU and do NOT miss a dose...it will take a few weeks before he sees a big difference in things, and I do believe there is a small chance the first week or two that things may actually get a bit worse until the PTU kicks in. He IS on the right track now, Shani...he just has to be patient and gentle with himself, and know that things will begin to improve soon. One of the good effects he will have with the PTU is that if he is also having eye problems, he should also see a lot of them clear up! The PTU has made a huge difference in my vision and eye problems since starting PTU in October. You both hang tough, it will get better soon, I promise! Jody _________________________________________________________________ Chat with friends online, try MSN Messenger: http://messenger.msn.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 28, 2002 Report Share Posted February 28, 2002 > > Jody...my fiance' Jeff just started taking PTU last weekend and is having a > hard time with his balance. We asked his Dr. and he said that was from the > Graves not the PTU but it didn't start until he was on the PTU. The same > thing with leg cramps. Could the medicine be causing this or do you think > it could just be a delayed symptom of Graves. I'm asking you because I saw > below that you are on PTU and hopefully your experience could help. > Thanks...Shani Shani, If you don't mind me chiming in here....I was on PTU for over a year and I think the first thing to check is the dosage. A lot of docs start with a much higher dose than necessary, then they scale down after some suppression is achieved. Also it can take up 3 weeks for PTU to start working, so it may be the GD and it may also be the heightened awareness of his illness. I would say his symptoms are from the GD unless he's on a giant dose, but it seems unlikely that he would be feeling hypo effects this soon. I could be wrong, but that's my experience. Val Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 28, 2002 Report Share Posted February 28, 2002 > > Jody...my fiance' Jeff just started taking PTU last weekend and is having a > hard time with his balance. We asked his Dr. and he said that was from the > Graves not the PTU but it didn't start until he was on the PTU. The same > thing with leg cramps. Could the medicine be causing this or do you think > it could just be a delayed symptom of Graves. I'm asking you because I saw > below that you are on PTU and hopefully your experience could help. > Thanks...Shani Shani, If you don't mind me chiming in here....I was on PTU for over a year and I think the first thing to check is the dosage. A lot of docs start with a much higher dose than necessary, then they scale down after some suppression is achieved. Also it can take up 3 weeks for PTU to start working, so it may be the GD and it may also be the heightened awareness of his illness. I would say his symptoms are from the GD unless he's on a giant dose, but it seems unlikely that he would be feeling hypo effects this soon. I could be wrong, but that's my experience. Val Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 28, 2002 Report Share Posted February 28, 2002 Val...I don't mind at all. The Dr. started him on 100 mg 3x's a day. Is that a lot? When you say it takes about 3 wks to start working, what does that mean? Does it do something that will be noticeable? Thanks, Shani > >Reply-To: graves_support >To: graves_support >Subject: Re: Re: Eyes twitching >Date: Thu, 28 Feb 2002 11:56:38 -0800 > > > > > > Jody...my fiance' Jeff just started taking PTU last weekend and is >having a > > hard time with his balance. We asked his Dr. and he said that was from >the > > Graves not the PTU but it didn't start until he was on the PTU. The same > > thing with leg cramps. Could the medicine be causing this or do you >think > > it could just be a delayed symptom of Graves. I'm asking you because I >saw > > below that you are on PTU and hopefully your experience could help. > > Thanks...Shani > >Shani, > >If you don't mind me chiming in here....I was on PTU for over a year >and I think the first thing to check is the dosage. A lot of docs >start with a much higher dose than necessary, then they scale down >after some suppression is achieved. Also it can take up 3 weeks for PTU to >start working, so it may be the GD and it may also be the heightened >awareness of his illness. I would say his symptoms are from the GD >unless he's on a giant dose, but it seems unlikely that he would be >feeling hypo effects this soon. I could be wrong, but that's my >experience. > >Val > > > > _________________________________________________________________ Join the world’s largest e-mail service with MSN Hotmail. http://www.hotmail.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 28, 2002 Report Share Posted February 28, 2002 Jody, Your memory serves you excellent. I was wondering about only being on the Beta Blockers. It makes such perfect sense now. I guess Jeff has been doing sooo well it's hard to imagine it getting much better but from what everyone is saying it will. He still has ups and downs where he feels tired, achey and such but for the most part feels pretty good. His tremors have all but stopped. Is the PTU what will bring the goiters down in size? I have to tell you that last night was the most wonderful night we have had in 4 yrs. We were a family again. There was such peace and contentment that I was overwhelmed with the feeling " oh yeah..this is what it's supposed to be like " . enough mushy stuff though. ) He is doing really well taking the medicine. Every 3 days I am puting his medicine in envelopes. He takes the meds 5 times a day so I split it up by what time and day he takes each one which makes it easier for him to remember rather than having him figure out what to take when. (Last night I even wrote little sayings on each i.e. the 11 o'clock one I wrote..not much longer to lunch and the 3 o'clock one I asked him if he enjoyed his lunch.) I'm hoping that will help to keep him on track. We are going to make it through this and this last month already showed me that. I hope though that he doesn't get really sick while the PTU is kicking in. I think it would break his heart if he has a set back. As for the vision, he actually just picked up his glasses today. If his vision might improve, he may have to go back later for another appointment. That would be a good thing though. Thanks for everything, Shani > >Reply-To: graves_support >To: graves_support >Subject: Re: Re: Eyes twitching >Date: Thu, 28 Feb 2002 14:53:32 -0500 > >Hi Shani, >I am on such a low dose of PTU for my eyes, that I really don't have an >answer for you. From all that I have learned the last two years, my best >guess would be that it is from graves and not the PTU. Remember, even >though he has been on a beta blocker since Jan. his thyroid has not been >treated until now, so from Jan. until now, things probably got worse. > >If memory serves me right, Jeff was hospitalized because of his heart rate >just before diagnosis wasn't he? That makes me think he was either in or >very close to thyroid storm, which would mean his graves was pretty severe >at that time, and his doctor not putting him on ATD's right away to bring >his thyroid numbers down, did Jeff a huge disservice, because he let the >graves continue on unchecked. The beta blockers do not do anything for our >thyroid numbers. Tell Jeff to hang on, keep taking his PTU and do NOT miss >a dose...it will take a few weeks before he sees a big difference in >things, >and I do believe there is a small chance the first week or two that things >may actually get a bit worse until the PTU kicks in. He IS on the right >track now, Shani...he just has to be patient and gentle with himself, and >know that things will begin to improve soon. > >One of the good effects he will have with the PTU is that if he is also >having eye problems, he should also see a lot of them clear up! The PTU has >made a huge difference in my vision and eye problems since starting PTU in >October. > >You both hang tough, it will get better soon, I promise! >Jody > > > > > >_________________________________________________________________ >Chat with friends online, try MSN Messenger: http://messenger.msn.com > _________________________________________________________________ Chat with friends online, try MSN Messenger: http://messenger.msn.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 28, 2002 Report Share Posted February 28, 2002 Jody, Your memory serves you excellent. I was wondering about only being on the Beta Blockers. It makes such perfect sense now. I guess Jeff has been doing sooo well it's hard to imagine it getting much better but from what everyone is saying it will. He still has ups and downs where he feels tired, achey and such but for the most part feels pretty good. His tremors have all but stopped. Is the PTU what will bring the goiters down in size? I have to tell you that last night was the most wonderful night we have had in 4 yrs. We were a family again. There was such peace and contentment that I was overwhelmed with the feeling " oh yeah..this is what it's supposed to be like " . enough mushy stuff though. ) He is doing really well taking the medicine. Every 3 days I am puting his medicine in envelopes. He takes the meds 5 times a day so I split it up by what time and day he takes each one which makes it easier for him to remember rather than having him figure out what to take when. (Last night I even wrote little sayings on each i.e. the 11 o'clock one I wrote..not much longer to lunch and the 3 o'clock one I asked him if he enjoyed his lunch.) I'm hoping that will help to keep him on track. We are going to make it through this and this last month already showed me that. I hope though that he doesn't get really sick while the PTU is kicking in. I think it would break his heart if he has a set back. As for the vision, he actually just picked up his glasses today. If his vision might improve, he may have to go back later for another appointment. That would be a good thing though. Thanks for everything, Shani > >Reply-To: graves_support >To: graves_support >Subject: Re: Re: Eyes twitching >Date: Thu, 28 Feb 2002 14:53:32 -0500 > >Hi Shani, >I am on such a low dose of PTU for my eyes, that I really don't have an >answer for you. From all that I have learned the last two years, my best >guess would be that it is from graves and not the PTU. Remember, even >though he has been on a beta blocker since Jan. his thyroid has not been >treated until now, so from Jan. until now, things probably got worse. > >If memory serves me right, Jeff was hospitalized because of his heart rate >just before diagnosis wasn't he? That makes me think he was either in or >very close to thyroid storm, which would mean his graves was pretty severe >at that time, and his doctor not putting him on ATD's right away to bring >his thyroid numbers down, did Jeff a huge disservice, because he let the >graves continue on unchecked. The beta blockers do not do anything for our >thyroid numbers. Tell Jeff to hang on, keep taking his PTU and do NOT miss >a dose...it will take a few weeks before he sees a big difference in >things, >and I do believe there is a small chance the first week or two that things >may actually get a bit worse until the PTU kicks in. He IS on the right >track now, Shani...he just has to be patient and gentle with himself, and >know that things will begin to improve soon. > >One of the good effects he will have with the PTU is that if he is also >having eye problems, he should also see a lot of them clear up! The PTU has >made a huge difference in my vision and eye problems since starting PTU in >October. > >You both hang tough, it will get better soon, I promise! >Jody > > > > > >_________________________________________________________________ >Chat with friends online, try MSN Messenger: http://messenger.msn.com > _________________________________________________________________ Chat with friends online, try MSN Messenger: http://messenger.msn.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 28, 2002 Report Share Posted February 28, 2002 Jody, Your memory serves you excellent. I was wondering about only being on the Beta Blockers. It makes such perfect sense now. I guess Jeff has been doing sooo well it's hard to imagine it getting much better but from what everyone is saying it will. He still has ups and downs where he feels tired, achey and such but for the most part feels pretty good. His tremors have all but stopped. Is the PTU what will bring the goiters down in size? I have to tell you that last night was the most wonderful night we have had in 4 yrs. We were a family again. There was such peace and contentment that I was overwhelmed with the feeling " oh yeah..this is what it's supposed to be like " . enough mushy stuff though. ) He is doing really well taking the medicine. Every 3 days I am puting his medicine in envelopes. He takes the meds 5 times a day so I split it up by what time and day he takes each one which makes it easier for him to remember rather than having him figure out what to take when. (Last night I even wrote little sayings on each i.e. the 11 o'clock one I wrote..not much longer to lunch and the 3 o'clock one I asked him if he enjoyed his lunch.) I'm hoping that will help to keep him on track. We are going to make it through this and this last month already showed me that. I hope though that he doesn't get really sick while the PTU is kicking in. I think it would break his heart if he has a set back. As for the vision, he actually just picked up his glasses today. If his vision might improve, he may have to go back later for another appointment. That would be a good thing though. Thanks for everything, Shani > >Reply-To: graves_support >To: graves_support >Subject: Re: Re: Eyes twitching >Date: Thu, 28 Feb 2002 14:53:32 -0500 > >Hi Shani, >I am on such a low dose of PTU for my eyes, that I really don't have an >answer for you. From all that I have learned the last two years, my best >guess would be that it is from graves and not the PTU. Remember, even >though he has been on a beta blocker since Jan. his thyroid has not been >treated until now, so from Jan. until now, things probably got worse. > >If memory serves me right, Jeff was hospitalized because of his heart rate >just before diagnosis wasn't he? That makes me think he was either in or >very close to thyroid storm, which would mean his graves was pretty severe >at that time, and his doctor not putting him on ATD's right away to bring >his thyroid numbers down, did Jeff a huge disservice, because he let the >graves continue on unchecked. The beta blockers do not do anything for our >thyroid numbers. Tell Jeff to hang on, keep taking his PTU and do NOT miss >a dose...it will take a few weeks before he sees a big difference in >things, >and I do believe there is a small chance the first week or two that things >may actually get a bit worse until the PTU kicks in. He IS on the right >track now, Shani...he just has to be patient and gentle with himself, and >know that things will begin to improve soon. > >One of the good effects he will have with the PTU is that if he is also >having eye problems, he should also see a lot of them clear up! The PTU has >made a huge difference in my vision and eye problems since starting PTU in >October. > >You both hang tough, it will get better soon, I promise! >Jody > > > > > >_________________________________________________________________ >Chat with friends online, try MSN Messenger: http://messenger.msn.com > _________________________________________________________________ Chat with friends online, try MSN Messenger: http://messenger.msn.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 28, 2002 Report Share Posted February 28, 2002 > Val...I don't mind at all. The Dr. started him on 100 mg 3x's a day. Is > that a lot? When you say it takes about 3 wks to start working, what does > that mean? Does it do something that will be noticeable? > Thanks, > Shani Shani, Let's see..I think 300 mg's a day is pretty high. I started on 200 a day, but I may not have had symptoms as severe as Jeff. After about 3 months it was very obvious to me that I was on too much, when the tests confirmed it, I was scaled back to 150, then to 75, then to 50 and then now...to nothing. It was quite noticable to me when the PTU bagan to take affect. The first thing I noticed was my heart settling down, then I started actually sleeping and finally perhaps the best of all, I stopped having rages, cleaning my house like an obsessed person, and I was able to sit still for long periods and appear quite normal. I kept a journal because often times I would know several weeks before I could get blood tests whether or not I needed my meds scaled back. Too much PTU and you will have Hypo symptoms. A lot of stuff changes in life (I feel) when the meds take effect, depending I guess on the severity of the symptoms and how long a person has been hyper. I noticed after about 3-4 weeks on the PTU that I was a " different " person. I think my hubby was amazed, grateful and thrilled with the changes. Anyhow, Jeff will proabaly need to keep an eye on himself, monitor how each day goes and I am still guessing that it's the GD at this point and not the PTU. Hope that's helpful Val Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 28, 2002 Report Share Posted February 28, 2002 > Val...I don't mind at all. The Dr. started him on 100 mg 3x's a day. Is > that a lot? When you say it takes about 3 wks to start working, what does > that mean? Does it do something that will be noticeable? > Thanks, > Shani Shani, Let's see..I think 300 mg's a day is pretty high. I started on 200 a day, but I may not have had symptoms as severe as Jeff. After about 3 months it was very obvious to me that I was on too much, when the tests confirmed it, I was scaled back to 150, then to 75, then to 50 and then now...to nothing. It was quite noticable to me when the PTU bagan to take affect. The first thing I noticed was my heart settling down, then I started actually sleeping and finally perhaps the best of all, I stopped having rages, cleaning my house like an obsessed person, and I was able to sit still for long periods and appear quite normal. I kept a journal because often times I would know several weeks before I could get blood tests whether or not I needed my meds scaled back. Too much PTU and you will have Hypo symptoms. A lot of stuff changes in life (I feel) when the meds take effect, depending I guess on the severity of the symptoms and how long a person has been hyper. I noticed after about 3-4 weeks on the PTU that I was a " different " person. I think my hubby was amazed, grateful and thrilled with the changes. Anyhow, Jeff will proabaly need to keep an eye on himself, monitor how each day goes and I am still guessing that it's the GD at this point and not the PTU. Hope that's helpful Val Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 28, 2002 Report Share Posted February 28, 2002 > Val...I don't mind at all. The Dr. started him on 100 mg 3x's a day. Is > that a lot? When you say it takes about 3 wks to start working, what does > that mean? Does it do something that will be noticeable? > Thanks, > Shani Shani, Let's see..I think 300 mg's a day is pretty high. I started on 200 a day, but I may not have had symptoms as severe as Jeff. After about 3 months it was very obvious to me that I was on too much, when the tests confirmed it, I was scaled back to 150, then to 75, then to 50 and then now...to nothing. It was quite noticable to me when the PTU bagan to take affect. The first thing I noticed was my heart settling down, then I started actually sleeping and finally perhaps the best of all, I stopped having rages, cleaning my house like an obsessed person, and I was able to sit still for long periods and appear quite normal. I kept a journal because often times I would know several weeks before I could get blood tests whether or not I needed my meds scaled back. Too much PTU and you will have Hypo symptoms. A lot of stuff changes in life (I feel) when the meds take effect, depending I guess on the severity of the symptoms and how long a person has been hyper. I noticed after about 3-4 weeks on the PTU that I was a " different " person. I think my hubby was amazed, grateful and thrilled with the changes. Anyhow, Jeff will proabaly need to keep an eye on himself, monitor how each day goes and I am still guessing that it's the GD at this point and not the PTU. Hope that's helpful Val Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 28, 2002 Report Share Posted February 28, 2002 > Let's see..I think 300 mg's a day is pretty high. I started on 200 a > day, but I may not have had symptoms as severe as Jeff. After about 3 Holy cow -- I was on 400mg / day. I'm off it completely now, but wow. That really was a lot, I guess. --patti *~*~*~*~* Patti Spicer patti@... " The silence is as important as the noise. What gets left out is as important as what gets included " --Sara Lawrence-Lightfoot, author of " I've Known Rivers " http://www.cyphergirl.com - My photography, cookbooks, thyroid info, and more! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 28, 2002 Report Share Posted February 28, 2002 > Let's see..I think 300 mg's a day is pretty high. I started on 200 a > day, but I may not have had symptoms as severe as Jeff. After about 3 Holy cow -- I was on 400mg / day. I'm off it completely now, but wow. That really was a lot, I guess. --patti *~*~*~*~* Patti Spicer patti@... " The silence is as important as the noise. What gets left out is as important as what gets included " --Sara Lawrence-Lightfoot, author of " I've Known Rivers " http://www.cyphergirl.com - My photography, cookbooks, thyroid info, and more! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 28, 2002 Report Share Posted February 28, 2002 > Let's see..I think 300 mg's a day is pretty high. I started on 200 a > day, but I may not have had symptoms as severe as Jeff. After about 3 Holy cow -- I was on 400mg / day. I'm off it completely now, but wow. That really was a lot, I guess. --patti *~*~*~*~* Patti Spicer patti@... " The silence is as important as the noise. What gets left out is as important as what gets included " --Sara Lawrence-Lightfoot, author of " I've Known Rivers " http://www.cyphergirl.com - My photography, cookbooks, thyroid info, and more! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 28, 2002 Report Share Posted February 28, 2002 I have seen many who have started out on 600 mg. a day. I know for pregnant and/or nursing moms they are to take no more than 300 mg. a day. I think the 300mg a day in the beginning is pretty average, and Jeff was so very sick for a long time. Don't worry about the dose for right now, just keep the hypo symptoms list around, at the first sign of any of them, call and request labs then, don't wait until labs or a doctor appointment scheduled down the road. Hypo will bring it's own problems so you want to avoid that is possible. Jody _________________________________________________________________ Send and receive Hotmail on your mobile device: http://mobile.msn.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 28, 2002 Report Share Posted February 28, 2002 I have seen many who have started out on 600 mg. a day. I know for pregnant and/or nursing moms they are to take no more than 300 mg. a day. I think the 300mg a day in the beginning is pretty average, and Jeff was so very sick for a long time. Don't worry about the dose for right now, just keep the hypo symptoms list around, at the first sign of any of them, call and request labs then, don't wait until labs or a doctor appointment scheduled down the road. Hypo will bring it's own problems so you want to avoid that is possible. Jody _________________________________________________________________ Send and receive Hotmail on your mobile device: http://mobile.msn.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 28, 2002 Report Share Posted February 28, 2002 I have seen many who have started out on 600 mg. a day. I know for pregnant and/or nursing moms they are to take no more than 300 mg. a day. I think the 300mg a day in the beginning is pretty average, and Jeff was so very sick for a long time. Don't worry about the dose for right now, just keep the hypo symptoms list around, at the first sign of any of them, call and request labs then, don't wait until labs or a doctor appointment scheduled down the road. Hypo will bring it's own problems so you want to avoid that is possible. Jody _________________________________________________________________ Send and receive Hotmail on your mobile device: http://mobile.msn.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 28, 2002 Report Share Posted February 28, 2002 Hi Shani, I am so glad you and Jeff had a wonderful night last night! I hope Jeff realizes how lucky he is to have you in his life with all the work you have done on this and sharing with him that you have done. Your right, you two will make it through this! Your both doing the things you need to do, and keep on learning, it will pay off for the long haul. Have you been able to get Elaine's book on Graves Disease yet? It is something that will really help you both, an excellent investment...graves is for life, but you can stay one step up on it through knowledge. I'm betting Jeff really appreciated the little notes you took the time to write on his envelopes! So...when is the wedding back on eh? Seems like you two have made it through the *worse* stuff, you may as well start thinking about it again With his eyes, the PTU will only help if he has graves eye disease involvement, not for his normal vision stuff...Jeff probably should get an appointment with an ophthalmologists who is skilled in treating graves eye disease so that the doc can get a baseline read of things now and have that record, should he need it down the road. Just make sure when you call for an appointment they do know how to treat this specific problem. Don't leave an optomitrist to do this, my optomitrist missed my eye disease for 3 years, and he knew it was a concern of mine. Keep on doing what your both doing! Jody _________________________________________________________________ Send and receive Hotmail on your mobile device: http://mobile.msn.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 28, 2002 Report Share Posted February 28, 2002 Hi Shani, I am so glad you and Jeff had a wonderful night last night! I hope Jeff realizes how lucky he is to have you in his life with all the work you have done on this and sharing with him that you have done. Your right, you two will make it through this! Your both doing the things you need to do, and keep on learning, it will pay off for the long haul. Have you been able to get Elaine's book on Graves Disease yet? It is something that will really help you both, an excellent investment...graves is for life, but you can stay one step up on it through knowledge. I'm betting Jeff really appreciated the little notes you took the time to write on his envelopes! So...when is the wedding back on eh? Seems like you two have made it through the *worse* stuff, you may as well start thinking about it again With his eyes, the PTU will only help if he has graves eye disease involvement, not for his normal vision stuff...Jeff probably should get an appointment with an ophthalmologists who is skilled in treating graves eye disease so that the doc can get a baseline read of things now and have that record, should he need it down the road. Just make sure when you call for an appointment they do know how to treat this specific problem. Don't leave an optomitrist to do this, my optomitrist missed my eye disease for 3 years, and he knew it was a concern of mine. Keep on doing what your both doing! Jody _________________________________________________________________ Send and receive Hotmail on your mobile device: http://mobile.msn.com Quote Link to comment Share on other sites More sharing options...
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