& - Re: Collar & Helmet simultaneously? Help in Europe?

[Guest guest]

Hi,

thank you for answering, it is great to get support from here!

Especially when you feel you can't count on the experience of the

doctors treating your child...

I suppose Emil got the collar because his torticollis was diagnosed

quite late as it is mild and it was thought just the PT was not

enough. I have also heard it depends on the practices of the

orthopedist whether they prescribe it or not. Anyway we are now

trying to deal with that, luckily Emil does not seem to mind wearing

it! But the collar is not one of those TOTs but an " old-fashioned "

one in one piece made of this white rigid material, I don´t know how

it´s called. He is supposed to wear it around 7-10 hours a day, only

when he's awake. I guess it is not effective to wear a band/helmet

only during the night when he does not have the collar?

About travelling to get him treated, at this point it seems like the

only possiblity but we still hope we can find some specialist here

in Italy. We live in Bologna so this is not exactly an air-transport

hub from where you could conveniently (and inexpensively!) fly

around.

Thanks for your comments and if anyone knows about the situation in

Italy I would be very grateful!

Mari

Mum of Emil 5 months (torticollis & plagio just diagnosed)

Bologna, Italy

>

> Mari,

> I assume Emil is wearing a TOT collar.

> Is this what it looks like? http://symmetric-designs.com/tot-

collar-

> .html

> Our daughter wore one for a while. She couldn't get banded while

> she was using it. The band would be competing for the same spot

as

> the collar in the back of the neck.

> Hopefully someone will respond to you with an Italian referral.

> Where in Italy are you?

>

> Mom to Dane 4 yo (DOC Grad) and Cecelia 9 mo (DOC Band 9/05)

>

> --- In Plagiocephaly , " edina58 " <edina58@y...>

wrote:

> >

> > Hi everybody,

> >

> > my name is Mari, I am Finnish but currently living in Italy. My

> son

> > Emil, almost 5 months, was diagnosed with torticollis (mild) and

> > plagiocefaly (moderate) a couple of weeks ago. The orthopedist

> said he

> > has to use a collar for 5-6 months and go to PT but he was not

> much of

> > a help with the plagio since his hospital does not treat that.

In

> > Italy the awareness of tort & plagio seems to be very limited

and

> we

> > are now in search of a specialist to help us with his head,

> without

> > success so far.

> >

> > Does any of you mums have experience of collars? Emil's collar

is

> one

> > of those also used for adults but in small scale, higher on the

> side

> > of the tilt. Is it possible to start helmet treatment before

he's

> > released from the collar?

> >

> > And the big question, is anybody aware of any specialists in

Italy

> or

> > even close by? Any other mums here? I´d really appreciate your

> help

> > and comments!

> >

> > Thanks!!!

> >

> > Mari & Emil

> >

>

[Guest guest]

Hi,

thank you for answering, it is great to get support from here!

Especially when you feel you can't count on the experience of the

doctors treating your child...

I suppose Emil got the collar because his torticollis was diagnosed

quite late as it is mild and it was thought just the PT was not

enough. I have also heard it depends on the practices of the

orthopedist whether they prescribe it or not. Anyway we are now

trying to deal with that, luckily Emil does not seem to mind wearing

it! But the collar is not one of those TOTs but an " old-fashioned "

one in one piece made of this white rigid material, I don´t know how

it´s called. He is supposed to wear it around 7-10 hours a day, only

when he's awake. I guess it is not effective to wear a band/helmet

only during the night when he does not have the collar?

About travelling to get him treated, at this point it seems like the

only possiblity but we still hope we can find some specialist here

in Italy. We live in Bologna so this is not exactly an air-transport

hub from where you could conveniently (and inexpensively!) fly

around.

Thanks for your comments and if anyone knows about the situation in

Italy I would be very grateful!

Mari

Mum of Emil 5 months (torticollis & plagio just diagnosed)

Bologna, Italy

>

> Mari,

> I assume Emil is wearing a TOT collar.

> Is this what it looks like? http://symmetric-designs.com/tot-

collar-

> .html

> Our daughter wore one for a while. She couldn't get banded while

> she was using it. The band would be competing for the same spot

as

> the collar in the back of the neck.

> Hopefully someone will respond to you with an Italian referral.

> Where in Italy are you?

>

> Mom to Dane 4 yo (DOC Grad) and Cecelia 9 mo (DOC Band 9/05)

>

> --- In Plagiocephaly , " edina58 " <edina58@y...>

wrote:

> >

> > Hi everybody,

> >

> > my name is Mari, I am Finnish but currently living in Italy. My

> son

> > Emil, almost 5 months, was diagnosed with torticollis (mild) and

> > plagiocefaly (moderate) a couple of weeks ago. The orthopedist

> said he

> > has to use a collar for 5-6 months and go to PT but he was not

> much of

> > a help with the plagio since his hospital does not treat that.

In

> > Italy the awareness of tort & plagio seems to be very limited

and

> we

> > are now in search of a specialist to help us with his head,

> without

> > success so far.

> >

> > Does any of you mums have experience of collars? Emil's collar

is

> one

> > of those also used for adults but in small scale, higher on the

> side

> > of the tilt. Is it possible to start helmet treatment before

he's

> > released from the collar?

> >

> > And the big question, is anybody aware of any specialists in

Italy

> or

> > even close by? Any other mums here? I´d really appreciate your

> help

> > and comments!

> >

> > Thanks!!!

> >

> > Mari & Emil

> >

>