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Posted
Posted

Tony,

Good to hear from you and to find out your transplant was a great

success, in spite of the anesthesia/pain problem. My son had a

somewhat similar but not as dramatic experience with his transplant. He

apparently got more anesthesia than he needed and did not start

breathing again on his own. Normally the stopping of the anesthesia is

timed so that when surgery is all done and the breathing tube is

removed, you will start breathing again on your own. However, my son

didn't, and so the standard protocol is to inject Narcan, which blocks

all effects of narcotics and anesthesia by binding to the narcotics

receptors in the brain. So you go very rapidly from being overly

anesthetized, as in not breathing, to having no anesthesia at all in

your system. My son described it as suddenly being " screamingly " awake,

although he couldn't actually scream because his throat was so dry and

irritated from the breathing tube which had just been removed. All that

came out was " eeeee " over and over. The nurses noticed that and said

" oh good, you're awake " but that's all. He was frantic to let them know

how much pain he was in, so he thought of pantomiming pressing the

button for the morphine pump, which had been explained to us before the

surgeries. So he held up his fist and pumped his thumb up and down. One

of the nurses laughed and said, " oh, you want your morphine pump, " and

they started it for him (probably set for lower than usual doses). I

was just out of recovery as the donor and was told he had had breathing

problems during surgery but that's all, so I was pretty frantic for a

while until we got more information on what was going on. He had to

stay in recovery several hours longer than usual to see how he was

reacting to the morphine. Later on, he was told that he should mention

this if he has to have surgery again so they use a lower dose of

anesthesia during the surgery. Ironically my other son had a

tonsillectomy six months later and stopped breathing in the recovery

room, due apparently to oversensitivity to morphine, and they had to

" bag " him to get him breathing again. I was sitting with him at the

time, and it was quite horrifying to observe. So they both have to be

careful about this in the future.

Take care -

Betsy

> Hi everyone.

>      I know its been some time since I left to go have my transplant

> surgery. The surgery didnt go as well as expected. But not because of

> the  kidney  or the surgeons involved. The difficulty stemmed from an

> unknown X-factor in my metabolic system. Unbeknowst to anyone I have

> a very  low tolerance for narcotic, that and an exceedingly high pain

> threshold. This tolerance inbalance cause me to code during surgery.

>      Now before anyone of you freak, Yes< I was dead for a complete 4

> minutes, and its not all they crack it up to be. There was no light,

> no floating over my  body, damn  there werent even any relatives

> waiting for me. Maybe they just forgot to pay the electric bill in

> heaven, and the tram car from  hell was out of gas; either way... I'm

> back. 

>      The doctors weren't too concerned with losing me, they never 

> even told my family. I found out the next day when the dotors

> explained to me why they wouldnt give me anything for the pain. This

> also  bought to light all the  events I recalled after waking up.

>

>      Now this part may scare some, but its just an individula account

> due to my sensitivity to the anesthesia and the  need to  wake me up.

> I awoke in what seemed the  most intense pain of my life. Never

> having had any real surgery there's not alot to compare it to. I was

> tied to the bed, as it turns out i became violent and tried my cath

> out and hit a nurse. I had tubes in my  nose, my throat, my arm, my 

> privates, and a burning sensation from the last  tube mentioned. I

> recall begging the doctors to take them out, and if they would they 

> wouldnt have to  tie me to the bed anymore. I was unaware at this

> time that  the  doctors had been smacking me in the face trying to

> get a reaction from me, and this was 12 hours after my  surgery.

>      In my mind I felt fine and didnt need any of these things

> anymore. I was wrong of course and once I  calmed down and caught up

> with my senses I  relaized what had  happened. I felt so  bad for the

> nurse who was the brunt of my outbreak. So for the next 48 hours I

> laid in sweat from the pain, the doctors feared for my health based

> on the  reaction to the medication admisitered during surgery, so I

> was denied any pain meds until late day 2. At that time small doses

> of morphine was injected .025mg. ( anyone who has never had morphine,

> it's like a  warm blanket being wrapped around you on a cold winter

> morning)

>     Thankfully that was the worst part of it. My creatinine had

> dropped from 6.7 the morning of the surgery  to  1.4 the following

> morning. I was release on Friday follwoing the surgery and have 

> made  multiple return trips to have bloodwoek and monitor my 

> medication.

>     I am approaching my 2 month anniversary  with Schmeagle (my

> precious) and my creatinine is at 1.1, the doses have been 

> gradually  decreased and I feel like a new person. My energy levels

> have increased and I look great. There has been very few side effects

> from the drugs which  they warned me of prior, but so far all i have

> noticed is a mild case of acne on my  shoulders and back  and a

> little weight gain. I'm at a Healthy looking 170 lbs. Initially I was

> between 155 and 165.  Oh Yeah, and my hair started growing in. I've

> been  somewhat bald for the past 10 years So  YIPPEEE!

>     I know many of yo may have questions, either regarding the 

> surgery, or the aftercare, the meds or whatever. I'm happy to answer

> them. Just ask.

>

> TonyC and Schmeagle (my precious)

>

>

>

> To edit your settings for the group, go to our Yahoo Group

> home page:

> http://groups.yahoo.com/group/iga-nephropathy/

>

> To unsubcribe via email,

> iga-nephropathy-unsubscribe

> Visit our companion website at www.igan.ca. The site is entirely

> supported by donations. If you would like to help, go to:

> http://www.igan.ca/id62.htm

>

> Thank you

>

>

>

>

>

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Guest guest

Guest guest

Posted
Posted

Tony,

Good to hear from you and to find out your transplant was a great

success, in spite of the anesthesia/pain problem. My son had a

somewhat similar but not as dramatic experience with his transplant. He

apparently got more anesthesia than he needed and did not start

breathing again on his own. Normally the stopping of the anesthesia is

timed so that when surgery is all done and the breathing tube is

removed, you will start breathing again on your own. However, my son

didn't, and so the standard protocol is to inject Narcan, which blocks

all effects of narcotics and anesthesia by binding to the narcotics

receptors in the brain. So you go very rapidly from being overly

anesthetized, as in not breathing, to having no anesthesia at all in

your system. My son described it as suddenly being " screamingly " awake,

although he couldn't actually scream because his throat was so dry and

irritated from the breathing tube which had just been removed. All that

came out was " eeeee " over and over. The nurses noticed that and said

" oh good, you're awake " but that's all. He was frantic to let them know

how much pain he was in, so he thought of pantomiming pressing the

button for the morphine pump, which had been explained to us before the

surgeries. So he held up his fist and pumped his thumb up and down. One

of the nurses laughed and said, " oh, you want your morphine pump, " and

they started it for him (probably set for lower than usual doses). I

was just out of recovery as the donor and was told he had had breathing

problems during surgery but that's all, so I was pretty frantic for a

while until we got more information on what was going on. He had to

stay in recovery several hours longer than usual to see how he was

reacting to the morphine. Later on, he was told that he should mention

this if he has to have surgery again so they use a lower dose of

anesthesia during the surgery. Ironically my other son had a

tonsillectomy six months later and stopped breathing in the recovery

room, due apparently to oversensitivity to morphine, and they had to

" bag " him to get him breathing again. I was sitting with him at the

time, and it was quite horrifying to observe. So they both have to be

careful about this in the future.

Take care -

Betsy

> Hi everyone.

>      I know its been some time since I left to go have my transplant

> surgery. The surgery didnt go as well as expected. But not because of

> the  kidney  or the surgeons involved. The difficulty stemmed from an

> unknown X-factor in my metabolic system. Unbeknowst to anyone I have

> a very  low tolerance for narcotic, that and an exceedingly high pain

> threshold. This tolerance inbalance cause me to code during surgery.

>      Now before anyone of you freak, Yes< I was dead for a complete 4

> minutes, and its not all they crack it up to be. There was no light,

> no floating over my  body, damn  there werent even any relatives

> waiting for me. Maybe they just forgot to pay the electric bill in

> heaven, and the tram car from  hell was out of gas; either way... I'm

> back. 

>      The doctors weren't too concerned with losing me, they never 

> even told my family. I found out the next day when the dotors

> explained to me why they wouldnt give me anything for the pain. This

> also  bought to light all the  events I recalled after waking up.

>

>      Now this part may scare some, but its just an individula account

> due to my sensitivity to the anesthesia and the  need to  wake me up.

> I awoke in what seemed the  most intense pain of my life. Never

> having had any real surgery there's not alot to compare it to. I was

> tied to the bed, as it turns out i became violent and tried my cath

> out and hit a nurse. I had tubes in my  nose, my throat, my arm, my 

> privates, and a burning sensation from the last  tube mentioned. I

> recall begging the doctors to take them out, and if they would they 

> wouldnt have to  tie me to the bed anymore. I was unaware at this

> time that  the  doctors had been smacking me in the face trying to

> get a reaction from me, and this was 12 hours after my  surgery.

>      In my mind I felt fine and didnt need any of these things

> anymore. I was wrong of course and once I  calmed down and caught up

> with my senses I  relaized what had  happened. I felt so  bad for the

> nurse who was the brunt of my outbreak. So for the next 48 hours I

> laid in sweat from the pain, the doctors feared for my health based

> on the  reaction to the medication admisitered during surgery, so I

> was denied any pain meds until late day 2. At that time small doses

> of morphine was injected .025mg. ( anyone who has never had morphine,

> it's like a  warm blanket being wrapped around you on a cold winter

> morning)

>     Thankfully that was the worst part of it. My creatinine had

> dropped from 6.7 the morning of the surgery  to  1.4 the following

> morning. I was release on Friday follwoing the surgery and have 

> made  multiple return trips to have bloodwoek and monitor my 

> medication.

>     I am approaching my 2 month anniversary  with Schmeagle (my

> precious) and my creatinine is at 1.1, the doses have been 

> gradually  decreased and I feel like a new person. My energy levels

> have increased and I look great. There has been very few side effects

> from the drugs which  they warned me of prior, but so far all i have

> noticed is a mild case of acne on my  shoulders and back  and a

> little weight gain. I'm at a Healthy looking 170 lbs. Initially I was

> between 155 and 165.  Oh Yeah, and my hair started growing in. I've

> been  somewhat bald for the past 10 years So  YIPPEEE!

>     I know many of yo may have questions, either regarding the 

> surgery, or the aftercare, the meds or whatever. I'm happy to answer

> them. Just ask.

>

> TonyC and Schmeagle (my precious)

>

>

>

> To edit your settings for the group, go to our Yahoo Group

> home page:

> http://groups.yahoo.com/group/iga-nephropathy/

>

> To unsubcribe via email,

> iga-nephropathy-unsubscribe

> Visit our companion website at www.igan.ca. The site is entirely

> supported by donations. If you would like to help, go to:

> http://www.igan.ca/id62.htm

>

> Thank you

>

>

>

>

>

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Guest guest

Guest guest

Posted
Posted

Betsy,

I can sympathize with the screaming awake. I dont know what they

used to counter the anesthesia, but I did stop breathing and my

blood pressure was nil.What you desribed is pretty much what i

experienced except no morphine for me. They kept the breathing tube

in for most of the first day, and had oxygen administered for the

first three days. They kept me in ICU that long. Once I went into a

regular room I didnt need the oxygen anymore.

I explained to friends who asked what it was like being dead. I

told them Dying is cake, coming back is what hurts most.

Definately an experience I do not wish to go through again.

A sign the doctors should have taken not of during my surgery was the

fact i went out during pre-op.

At which time they were putting in the triple luminater cath (sp),

thats the tube they put in you neck. I dont know if your son had it

or not. It was kinda nice cause thats how they admisistered most of

my meds, and drew blood as well. I remember the doctor asking for

ladicaine ( a local anesthesia) , feeling a small pinch in my neck

then falling asleep. One of my research nurses came down to see me

and said I was already out. I never even saw the Operating room.

After the surgery I had to have chest xrays everyday, and was put on

additional breathing med until I was released. Havent needed anything

since for breathing thankfully.

Your son is doubly lucky to have a mom like you.

God bless both of you.

Thanks for sharing your experience with me.

Tony C and Schmeagle

>

> > Hi everyone.

> >      I know its been some time since I left to go have my

transplant

> > surgery. The surgery didnt go as well as expected. But not

because of

> > the  kidney  or the surgeons involved. The difficulty stemmed

from an

> > unknown X-factor in my metabolic system. Unbeknowst to anyone I

have

> > a very  low tolerance for narcotic, that and an exceedingly high

pain

> > threshold. This tolerance inbalance cause me to code during

surgery.

> >      Now before anyone of you freak, Yes< I was dead for a

complete 4

> > minutes, and its not all they crack it up to be. There was no

light,

> > no floating over my  body, damn  there werent even any relatives

> > waiting for me. Maybe they just forgot to pay the electric bill

in

> > heaven, and the tram car from  hell was out of gas; either

way... I'm

> > back. 

> >      The doctors weren't too concerned with losing me, they

never 

> > even told my family. I found out the next day when the dotors

> > explained to me why they wouldnt give me anything for the pain.

This

> > also  bought to light all the  events I recalled after waking up.

> >

> >      Now this part may scare some, but its just an individula

account

> > due to my sensitivity to the anesthesia and the  need to  wake

me up.

> > I awoke in what seemed the  most intense pain of my life. Never

> > having had any real surgery there's not alot to compare it to. I

was

> > tied to the bed, as it turns out i became violent and tried my

cath

> > out and hit a nurse. I had tubes in my  nose, my throat, my arm,

my 

> > privates, and a burning sensation from the last  tube mentioned.

I

> > recall begging the doctors to take them out, and if they would

they 

> > wouldnt have to  tie me to the bed anymore. I was unaware at this

> > time that  the  doctors had been smacking me in the face trying

to

> > get a reaction from me, and this was 12 hours after my  surgery.

> >      In my mind I felt fine and didnt need any of these things

> > anymore. I was wrong of course and once I  calmed down and

caught up

> > with my senses I  relaized what had  happened. I felt so  bad

for the

> > nurse who was the brunt of my outbreak. So for the next 48 hours

I

> > laid in sweat from the pain, the doctors feared for my health

based

> > on the  reaction to the medication admisitered during surgery,

so I

> > was denied any pain meds until late day 2. At that time small

doses

> > of morphine was injected .025mg. ( anyone who has never had

morphine,

> > it's like a  warm blanket being wrapped around you on a cold

winter

> > morning)

> >     Thankfully that was the worst part of it. My creatinine had

> > dropped from 6.7 the morning of the surgery  to  1.4 the

following

> > morning. I was release on Friday follwoing the surgery and have 

> > made  multiple return trips to have bloodwoek and monitor my 

> > medication.

> >     I am approaching my 2 month anniversary  with Schmeagle (my

> > precious) and my creatinine is at 1.1, the doses have been 

> > gradually  decreased and I feel like a new person. My energy

levels

> > have increased and I look great. There has been very few side

effects

> > from the drugs which  they warned me of prior, but so far all i

have

> > noticed is a mild case of acne on my  shoulders and back  and a

> > little weight gain. I'm at a Healthy looking 170 lbs. Initially

I was

> > between 155 and 165.  Oh Yeah, and my hair started growing in.

I've

> > been  somewhat bald for the past 10 years So  YIPPEEE!

> >     I know many of yo may have questions, either regarding the 

> > surgery, or the aftercare, the meds or whatever. I'm happy to

answer

> > them. Just ask.

> >

> > TonyC and Schmeagle (my precious)

> >

> >

> >

> > To edit your settings for the group, go to our Yahoo Group

> > home page:

> > http://groups.yahoo.com/group/iga-nephropathy/

> >

> > To unsubcribe via email,

> > iga-nephropathy-unsubscribe

> > Visit our companion website at www.igan.ca. The site is entirely

> > supported by donations. If you would like to help, go to:

> > http://www.igan.ca/id62.htm

> >

> > Thank you

> >

> >

> >

> >

> >

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Guest guest

Guest guest

Posted
Posted

Betsy,

I can sympathize with the screaming awake. I dont know what they

used to counter the anesthesia, but I did stop breathing and my

blood pressure was nil.What you desribed is pretty much what i

experienced except no morphine for me. They kept the breathing tube

in for most of the first day, and had oxygen administered for the

first three days. They kept me in ICU that long. Once I went into a

regular room I didnt need the oxygen anymore.

I explained to friends who asked what it was like being dead. I

told them Dying is cake, coming back is what hurts most.

Definately an experience I do not wish to go through again.

A sign the doctors should have taken not of during my surgery was the

fact i went out during pre-op.

At which time they were putting in the triple luminater cath (sp),

thats the tube they put in you neck. I dont know if your son had it

or not. It was kinda nice cause thats how they admisistered most of

my meds, and drew blood as well. I remember the doctor asking for

ladicaine ( a local anesthesia) , feeling a small pinch in my neck

then falling asleep. One of my research nurses came down to see me

and said I was already out. I never even saw the Operating room.

After the surgery I had to have chest xrays everyday, and was put on

additional breathing med until I was released. Havent needed anything

since for breathing thankfully.

Your son is doubly lucky to have a mom like you.

God bless both of you.

Thanks for sharing your experience with me.

Tony C and Schmeagle

>

> > Hi everyone.

> >      I know its been some time since I left to go have my

transplant

> > surgery. The surgery didnt go as well as expected. But not

because of

> > the  kidney  or the surgeons involved. The difficulty stemmed

from an

> > unknown X-factor in my metabolic system. Unbeknowst to anyone I

have

> > a very  low tolerance for narcotic, that and an exceedingly high

pain

> > threshold. This tolerance inbalance cause me to code during

surgery.

> >      Now before anyone of you freak, Yes< I was dead for a

complete 4

> > minutes, and its not all they crack it up to be. There was no

light,

> > no floating over my  body, damn  there werent even any relatives

> > waiting for me. Maybe they just forgot to pay the electric bill

in

> > heaven, and the tram car from  hell was out of gas; either

way... I'm

> > back. 

> >      The doctors weren't too concerned with losing me, they

never 

> > even told my family. I found out the next day when the dotors

> > explained to me why they wouldnt give me anything for the pain.

This

> > also  bought to light all the  events I recalled after waking up.

> >

> >      Now this part may scare some, but its just an individula

account

> > due to my sensitivity to the anesthesia and the  need to  wake

me up.

> > I awoke in what seemed the  most intense pain of my life. Never

> > having had any real surgery there's not alot to compare it to. I

was

> > tied to the bed, as it turns out i became violent and tried my

cath

> > out and hit a nurse. I had tubes in my  nose, my throat, my arm,

my 

> > privates, and a burning sensation from the last  tube mentioned.

I

> > recall begging the doctors to take them out, and if they would

they 

> > wouldnt have to  tie me to the bed anymore. I was unaware at this

> > time that  the  doctors had been smacking me in the face trying

to

> > get a reaction from me, and this was 12 hours after my  surgery.

> >      In my mind I felt fine and didnt need any of these things

> > anymore. I was wrong of course and once I  calmed down and

caught up

> > with my senses I  relaized what had  happened. I felt so  bad

for the

> > nurse who was the brunt of my outbreak. So for the next 48 hours

I

> > laid in sweat from the pain, the doctors feared for my health

based

> > on the  reaction to the medication admisitered during surgery,

so I

> > was denied any pain meds until late day 2. At that time small

doses

> > of morphine was injected .025mg. ( anyone who has never had

morphine,

> > it's like a  warm blanket being wrapped around you on a cold

winter

> > morning)

> >     Thankfully that was the worst part of it. My creatinine had

> > dropped from 6.7 the morning of the surgery  to  1.4 the

following

> > morning. I was release on Friday follwoing the surgery and have 

> > made  multiple return trips to have bloodwoek and monitor my 

> > medication.

> >     I am approaching my 2 month anniversary  with Schmeagle (my

> > precious) and my creatinine is at 1.1, the doses have been 

> > gradually  decreased and I feel like a new person. My energy

levels

> > have increased and I look great. There has been very few side

effects

> > from the drugs which  they warned me of prior, but so far all i

have

> > noticed is a mild case of acne on my  shoulders and back  and a

> > little weight gain. I'm at a Healthy looking 170 lbs. Initially

I was

> > between 155 and 165.  Oh Yeah, and my hair started growing in.

I've

> > been  somewhat bald for the past 10 years So  YIPPEEE!

> >     I know many of yo may have questions, either regarding the 

> > surgery, or the aftercare, the meds or whatever. I'm happy to

answer

> > them. Just ask.

> >

> > TonyC and Schmeagle (my precious)

> >

> >

> >

> > To edit your settings for the group, go to our Yahoo Group

> > home page:

> > http://groups.yahoo.com/group/iga-nephropathy/

> >

> > To unsubcribe via email,

> > iga-nephropathy-unsubscribe

> > Visit our companion website at www.igan.ca. The site is entirely

> > supported by donations. If you would like to help, go to:

> > http://www.igan.ca/id62.htm

> >

> > Thank you

> >

> >

> >

> >

> >

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Guest guest

Guest guest

Posted
Posted

Dear Tony and Schmeagle,

My son had the central venous lines in his neck (we called it the mark

of the transplant vampire because that was how we could tell recipients

from donors in the hospital), but he had no recollection of them being

put in and assumed it was done after he was put under. He was awake

when he went into the OR and could remember what that looked like.

Let's just hope neither one of you has to go through something like

this again.

Betsy

> Betsy,

>

> I can sympathize with the screaming awake. I dont know what  they 

> used to  counter the anesthesia, but I did stop breathing and my 

> blood pressure was nil.What you desribed is pretty much what i

> experienced except no morphine for me. They kept the breathing tube

> in  for most of the first day, and had oxygen administered for the 

> first three days. They kept me in ICU that long. Once I went into a

> regular room I didnt need the oxygen anymore.

>

> I explained to  friends who asked what it was like being  dead. I

> told them Dying is cake, coming back is what  hurts  most.

>

> Definately an experience I do not wish to  go through again.

>

> A sign the doctors should have taken not of during my surgery was the

> fact i went out during pre-op.

> At which time they were putting in the triple luminater cath (sp),

> thats the tube they put in you neck. I dont know if your son had it

> or not. It was kinda nice cause thats how they  admisistered most of

> my meds, and drew blood as well. I remember the doctor asking for 

> ladicaine ( a local anesthesia) , feeling a small pinch in my  neck

> then falling asleep. One of my  research nurses came down to see me

> and said I was already out. I never even saw the Operating room.

>

> After the  surgery I had to have chest xrays everyday, and was put on

> additional breathing med until I was released. Havent needed anything

> since for breathing thankfully.

>

> Your son is doubly lucky to have a mom like you.

> God bless both of you.

> Thanks for sharing your experience with me.

> Tony C and Schmeagle

>

>

>

>

> >

> > > Hi everyone.

> > >       I know its been some time since I left to go have my

> transplant

> > >  surgery. The surgery didnt go as well as expected. But not

> because of

> > >  the  kidney  or the surgeons involved. The difficulty stemmed

> from an

> > >  unknown X-factor in my metabolic system. Unbeknowst to anyone I

> have

> > >  a very  low tolerance for narcotic, that and an exceedingly high

> pain

> > >  threshold. This tolerance inbalance cause me to code during

> surgery.

> > >       Now before anyone of you freak, Yes< I was dead for a

> complete 4

> > >  minutes, and its not all they crack it up to be. There was no

> light,

> > >  no floating over my  body, damn  there werent even any relatives

> > >  waiting for me. Maybe they just forgot to pay the electric bill

> in

> > >  heaven, and the tram car from  hell was out of gas; either

> way... I'm

> > >  back. 

> > >       The doctors weren't too concerned with losing me, they

> never 

> > >  even told my family. I found out the next day when the dotors

> > >  explained to me why they wouldnt give me anything for the pain.

> This

> > >  also  bought to light all the  events I recalled after waking up.

> > >

> > >       Now this part may scare some, but its just an individula

> account

> > >  due to my sensitivity to the anesthesia and the  need to  wake

> me up.

> > >  I awoke in what seemed the  most intense pain of my life. Never

> > >  having had any real surgery there's not alot to compare it to. I

> was

> > >  tied to the bed, as it turns out i became violent and tried my

> cath

> > >  out and hit a nurse. I had tubes in my  nose, my throat, my arm,

> my 

> > >  privates, and a burning sensation from the last  tube mentioned.

> I

> > >  recall begging the doctors to take them out, and if they would

> they 

> > >  wouldnt have to  tie me to the bed anymore. I was unaware at this

> > >  time that  the  doctors had been smacking me in the face trying

> to

> > >  get a reaction from me, and this was 12 hours after my  surgery.

> > >       In my mind I felt fine and didnt need any of these things

> > >  anymore. I was wrong of course and once I  calmed down and

> caught up

> > >  with my senses I  relaized what had  happened. I felt so  bad

> for the

> > >  nurse who was the brunt of my outbreak. So for the next 48 hours

> I

> > >  laid in sweat from the pain, the doctors feared for my health

> based

> > >  on the  reaction to the medication admisitered during surgery,

> so I

> > >  was denied any pain meds until late day 2. At that time small

> doses

> > >  of morphine was injected .025mg. ( anyone who has never had

> morphine,

> > >  it's like a  warm blanket being wrapped around you on a cold

> winter

> > >  morning)

> > >      Thankfully that was the worst part of it. My creatinine had

> > >  dropped from 6.7 the morning of the surgery  to  1.4 the

> following

> > >  morning. I was release on Friday follwoing the surgery and have 

> > >  made  multiple return trips to have bloodwoek and monitor my 

> > >  medication.

> > >      I am approaching my 2 month anniversary  with Schmeagle (my

> > >  precious) and my creatinine is at 1.1, the doses have been 

> > >  gradually  decreased and I feel like a new person. My energy

> levels

> > >  have increased and I look great. There has been very few side

> effects

> > >  from the drugs which  they warned me of prior, but so far all i

> have

> > >  noticed is a mild case of acne on my  shoulders and back  and a

> > >  little weight gain. I'm at a Healthy looking 170 lbs. Initially

> I was

> > >  between 155 and 165.  Oh Yeah, and my hair started growing in.

> I've

> > >  been  somewhat bald for the past 10 years So  YIPPEEE!

> > >      I know many of yo may have questions, either regarding the 

> > >  surgery, or the aftercare, the meds or whatever. I'm happy to

> answer

> > >  them. Just ask.

> > >

> > >  TonyC and Schmeagle (my precious)

> > >

> > >

> > >

> > > To edit your settings for the group, go to our Yahoo Group

> > >  home page:

> > > http://groups.yahoo.com/group/iga-nephropathy/

> > >

> > >  To unsubcribe via email,

> > >  iga-nephropathy-unsubscribe

> > >  Visit our companion website at www.igan.ca. The site is entirely

> > > supported by donations. If you would like to help, go to:

> > > http://www.igan.ca/id62.htm

> > >

> > >  Thank you

> > >

> > >

> > >

> > >

> > >

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Posted
Posted

Dear Tony and Schmeagle,

My son had the central venous lines in his neck (we called it the mark

of the transplant vampire because that was how we could tell recipients

from donors in the hospital), but he had no recollection of them being

put in and assumed it was done after he was put under. He was awake

when he went into the OR and could remember what that looked like.

Let's just hope neither one of you has to go through something like

this again.

Betsy

> Betsy,

>

> I can sympathize with the screaming awake. I dont know what  they 

> used to  counter the anesthesia, but I did stop breathing and my 

> blood pressure was nil.What you desribed is pretty much what i

> experienced except no morphine for me. They kept the breathing tube

> in  for most of the first day, and had oxygen administered for the 

> first three days. They kept me in ICU that long. Once I went into a

> regular room I didnt need the oxygen anymore.

>

> I explained to  friends who asked what it was like being  dead. I

> told them Dying is cake, coming back is what  hurts  most.

>

> Definately an experience I do not wish to  go through again.

>

> A sign the doctors should have taken not of during my surgery was the

> fact i went out during pre-op.

> At which time they were putting in the triple luminater cath (sp),

> thats the tube they put in you neck. I dont know if your son had it

> or not. It was kinda nice cause thats how they  admisistered most of

> my meds, and drew blood as well. I remember the doctor asking for 

> ladicaine ( a local anesthesia) , feeling a small pinch in my  neck

> then falling asleep. One of my  research nurses came down to see me

> and said I was already out. I never even saw the Operating room.

>

> After the  surgery I had to have chest xrays everyday, and was put on

> additional breathing med until I was released. Havent needed anything

> since for breathing thankfully.

>

> Your son is doubly lucky to have a mom like you.

> God bless both of you.

> Thanks for sharing your experience with me.

> Tony C and Schmeagle

>

>

>

>

> >

> > > Hi everyone.

> > >       I know its been some time since I left to go have my

> transplant

> > >  surgery. The surgery didnt go as well as expected. But not

> because of

> > >  the  kidney  or the surgeons involved. The difficulty stemmed

> from an

> > >  unknown X-factor in my metabolic system. Unbeknowst to anyone I

> have

> > >  a very  low tolerance for narcotic, that and an exceedingly high

> pain

> > >  threshold. This tolerance inbalance cause me to code during

> surgery.

> > >       Now before anyone of you freak, Yes< I was dead for a

> complete 4

> > >  minutes, and its not all they crack it up to be. There was no

> light,

> > >  no floating over my  body, damn  there werent even any relatives

> > >  waiting for me. Maybe they just forgot to pay the electric bill

> in

> > >  heaven, and the tram car from  hell was out of gas; either

> way... I'm

> > >  back. 

> > >       The doctors weren't too concerned with losing me, they

> never 

> > >  even told my family. I found out the next day when the dotors

> > >  explained to me why they wouldnt give me anything for the pain.

> This

> > >  also  bought to light all the  events I recalled after waking up.

> > >

> > >       Now this part may scare some, but its just an individula

> account

> > >  due to my sensitivity to the anesthesia and the  need to  wake

> me up.

> > >  I awoke in what seemed the  most intense pain of my life. Never

> > >  having had any real surgery there's not alot to compare it to. I

> was

> > >  tied to the bed, as it turns out i became violent and tried my

> cath

> > >  out and hit a nurse. I had tubes in my  nose, my throat, my arm,

> my 

> > >  privates, and a burning sensation from the last  tube mentioned.

> I

> > >  recall begging the doctors to take them out, and if they would

> they 

> > >  wouldnt have to  tie me to the bed anymore. I was unaware at this

> > >  time that  the  doctors had been smacking me in the face trying

> to

> > >  get a reaction from me, and this was 12 hours after my  surgery.

> > >       In my mind I felt fine and didnt need any of these things

> > >  anymore. I was wrong of course and once I  calmed down and

> caught up

> > >  with my senses I  relaized what had  happened. I felt so  bad

> for the

> > >  nurse who was the brunt of my outbreak. So for the next 48 hours

> I

> > >  laid in sweat from the pain, the doctors feared for my health

> based

> > >  on the  reaction to the medication admisitered during surgery,

> so I

> > >  was denied any pain meds until late day 2. At that time small

> doses

> > >  of morphine was injected .025mg. ( anyone who has never had

> morphine,

> > >  it's like a  warm blanket being wrapped around you on a cold

> winter

> > >  morning)

> > >      Thankfully that was the worst part of it. My creatinine had

> > >  dropped from 6.7 the morning of the surgery  to  1.4 the

> following

> > >  morning. I was release on Friday follwoing the surgery and have 

> > >  made  multiple return trips to have bloodwoek and monitor my 

> > >  medication.

> > >      I am approaching my 2 month anniversary  with Schmeagle (my

> > >  precious) and my creatinine is at 1.1, the doses have been 

> > >  gradually  decreased and I feel like a new person. My energy

> levels

> > >  have increased and I look great. There has been very few side

> effects

> > >  from the drugs which  they warned me of prior, but so far all i

> have

> > >  noticed is a mild case of acne on my  shoulders and back  and a

> > >  little weight gain. I'm at a Healthy looking 170 lbs. Initially

> I was

> > >  between 155 and 165.  Oh Yeah, and my hair started growing in.

> I've

> > >  been  somewhat bald for the past 10 years So  YIPPEEE!

> > >      I know many of yo may have questions, either regarding the 

> > >  surgery, or the aftercare, the meds or whatever. I'm happy to

> answer

> > >  them. Just ask.

> > >

> > >  TonyC and Schmeagle (my precious)

> > >

> > >

> > >

> > > To edit your settings for the group, go to our Yahoo Group

> > >  home page:

> > > http://groups.yahoo.com/group/iga-nephropathy/

> > >

> > >  To unsubcribe via email,

> > >  iga-nephropathy-unsubscribe

> > >  Visit our companion website at www.igan.ca. The site is entirely

> > > supported by donations. If you would like to help, go to:

> > > http://www.igan.ca/id62.htm

> > >

> > >  Thank you

> > >

> > >

> > >

> > >

> > >

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Posted
Posted

Dear Tony and Schmeagle,

My son had the central venous lines in his neck (we called it the mark

of the transplant vampire because that was how we could tell recipients

from donors in the hospital), but he had no recollection of them being

put in and assumed it was done after he was put under. He was awake

when he went into the OR and could remember what that looked like.

Let's just hope neither one of you has to go through something like

this again.

Betsy

> Betsy,

>

> I can sympathize with the screaming awake. I dont know what  they 

> used to  counter the anesthesia, but I did stop breathing and my 

> blood pressure was nil.What you desribed is pretty much what i

> experienced except no morphine for me. They kept the breathing tube

> in  for most of the first day, and had oxygen administered for the 

> first three days. They kept me in ICU that long. Once I went into a

> regular room I didnt need the oxygen anymore.

>

> I explained to  friends who asked what it was like being  dead. I

> told them Dying is cake, coming back is what  hurts  most.

>

> Definately an experience I do not wish to  go through again.

>

> A sign the doctors should have taken not of during my surgery was the

> fact i went out during pre-op.

> At which time they were putting in the triple luminater cath (sp),

> thats the tube they put in you neck. I dont know if your son had it

> or not. It was kinda nice cause thats how they  admisistered most of

> my meds, and drew blood as well. I remember the doctor asking for 

> ladicaine ( a local anesthesia) , feeling a small pinch in my  neck

> then falling asleep. One of my  research nurses came down to see me

> and said I was already out. I never even saw the Operating room.

>

> After the  surgery I had to have chest xrays everyday, and was put on

> additional breathing med until I was released. Havent needed anything

> since for breathing thankfully.

>

> Your son is doubly lucky to have a mom like you.

> God bless both of you.

> Thanks for sharing your experience with me.

> Tony C and Schmeagle

>

>

>

>

> >

> > > Hi everyone.

> > >       I know its been some time since I left to go have my

> transplant

> > >  surgery. The surgery didnt go as well as expected. But not

> because of

> > >  the  kidney  or the surgeons involved. The difficulty stemmed

> from an

> > >  unknown X-factor in my metabolic system. Unbeknowst to anyone I

> have

> > >  a very  low tolerance for narcotic, that and an exceedingly high

> pain

> > >  threshold. This tolerance inbalance cause me to code during

> surgery.

> > >       Now before anyone of you freak, Yes< I was dead for a

> complete 4

> > >  minutes, and its not all they crack it up to be. There was no

> light,

> > >  no floating over my  body, damn  there werent even any relatives

> > >  waiting for me. Maybe they just forgot to pay the electric bill

> in

> > >  heaven, and the tram car from  hell was out of gas; either

> way... I'm

> > >  back. 

> > >       The doctors weren't too concerned with losing me, they

> never 

> > >  even told my family. I found out the next day when the dotors

> > >  explained to me why they wouldnt give me anything for the pain.

> This

> > >  also  bought to light all the  events I recalled after waking up.

> > >

> > >       Now this part may scare some, but its just an individula

> account

> > >  due to my sensitivity to the anesthesia and the  need to  wake

> me up.

> > >  I awoke in what seemed the  most intense pain of my life. Never

> > >  having had any real surgery there's not alot to compare it to. I

> was

> > >  tied to the bed, as it turns out i became violent and tried my

> cath

> > >  out and hit a nurse. I had tubes in my  nose, my throat, my arm,

> my 

> > >  privates, and a burning sensation from the last  tube mentioned.

> I

> > >  recall begging the doctors to take them out, and if they would

> they 

> > >  wouldnt have to  tie me to the bed anymore. I was unaware at this

> > >  time that  the  doctors had been smacking me in the face trying

> to

> > >  get a reaction from me, and this was 12 hours after my  surgery.

> > >       In my mind I felt fine and didnt need any of these things

> > >  anymore. I was wrong of course and once I  calmed down and

> caught up

> > >  with my senses I  relaized what had  happened. I felt so  bad

> for the

> > >  nurse who was the brunt of my outbreak. So for the next 48 hours

> I

> > >  laid in sweat from the pain, the doctors feared for my health

> based

> > >  on the  reaction to the medication admisitered during surgery,

> so I

> > >  was denied any pain meds until late day 2. At that time small

> doses

> > >  of morphine was injected .025mg. ( anyone who has never had

> morphine,

> > >  it's like a  warm blanket being wrapped around you on a cold

> winter

> > >  morning)

> > >      Thankfully that was the worst part of it. My creatinine had

> > >  dropped from 6.7 the morning of the surgery  to  1.4 the

> following

> > >  morning. I was release on Friday follwoing the surgery and have 

> > >  made  multiple return trips to have bloodwoek and monitor my 

> > >  medication.

> > >      I am approaching my 2 month anniversary  with Schmeagle (my

> > >  precious) and my creatinine is at 1.1, the doses have been 

> > >  gradually  decreased and I feel like a new person. My energy

> levels

> > >  have increased and I look great. There has been very few side

> effects

> > >  from the drugs which  they warned me of prior, but so far all i

> have

> > >  noticed is a mild case of acne on my  shoulders and back  and a

> > >  little weight gain. I'm at a Healthy looking 170 lbs. Initially

> I was

> > >  between 155 and 165.  Oh Yeah, and my hair started growing in.

> I've

> > >  been  somewhat bald for the past 10 years So  YIPPEEE!

> > >      I know many of yo may have questions, either regarding the 

> > >  surgery, or the aftercare, the meds or whatever. I'm happy to

> answer

> > >  them. Just ask.

> > >

> > >  TonyC and Schmeagle (my precious)

> > >

> > >

> > >

> > > To edit your settings for the group, go to our Yahoo Group

> > >  home page:

> > > http://groups.yahoo.com/group/iga-nephropathy/

> > >

> > >  To unsubcribe via email,

> > >  iga-nephropathy-unsubscribe

> > >  Visit our companion website at www.igan.ca. The site is entirely

> > > supported by donations. If you would like to help, go to:

> > > http://www.igan.ca/id62.htm

> > >

> > >  Thank you

> > >

> > >

> > >

> > >

> > >

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Posted
Posted

Tony I'm very happy to hear things are going well and you were only dead for

a mere 4 minutes....and have kept your sanity about it. *shudder* I'm sure

it's an experience you never want to go thru again, I'm glad you made it

thru it. It's also good to hear that you are doing well now and getting

your hair back on top of it all....that's like a bonus!

Thanks for the update and slightly scary yet truthful account of your

surgery.

Amy

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Posted
Posted

Tony I'm very happy to hear things are going well and you were only dead for

a mere 4 minutes....and have kept your sanity about it. *shudder* I'm sure

it's an experience you never want to go thru again, I'm glad you made it

thru it. It's also good to hear that you are doing well now and getting

your hair back on top of it all....that's like a bonus!

Thanks for the update and slightly scary yet truthful account of your

surgery.

Amy

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Posted
Posted

Tony I'm very happy to hear things are going well and you were only dead for

a mere 4 minutes....and have kept your sanity about it. *shudder* I'm sure

it's an experience you never want to go thru again, I'm glad you made it

thru it. It's also good to hear that you are doing well now and getting

your hair back on top of it all....that's like a bonus!

Thanks for the update and slightly scary yet truthful account of your

surgery.

Amy

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Posted
Posted

Betsy,

Yep thats them.

I also referred to it as something as obscure.

It was black and blue for 2 weeks after it was removed and I told

people I had been attacked by an inexperienced vampire. One of the

amizing things about this piece of equipment is I was told when they

removed it it also had a microchip which monitored the amount of

oxygen in my blood.

The nurse offered to let me keep it but of course I was like Ewwww

what do I need with that. The offer to let me keep the stint that

connected my urethra to Schmeagle as well. Whats up with Doctors

offer medical waste as soveigners.... Yuck

Tony C and Schmeagle

> > >

> > > > Hi everyone.

> > > >       I know its been some time since I left to go have my

> > transplant

> > > >  surgery. The surgery didnt go as well as expected. But not

> > because of

> > > >  the  kidney  or the surgeons involved. The difficulty

stemmed

> > from an

> > > >  unknown X-factor in my metabolic system. Unbeknowst to

anyone I

> > have

> > > >  a very  low tolerance for narcotic, that and an exceedingly

high

> > pain

> > > >  threshold. This tolerance inbalance cause me to code during

> > surgery.

> > > >       Now before anyone of you freak, Yes< I was dead for a

> > complete 4

> > > >  minutes, and its not all they crack it up to be. There was

no

> > light,

> > > >  no floating over my  body, damn  there werent even any

relatives

> > > >  waiting for me. Maybe they just forgot to pay the electric

bill

> > in

> > > >  heaven, and the tram car from  hell was out of gas; either

> > way... I'm

> > > >  back. 

> > > >       The doctors weren't too concerned with losing me, they

> > never 

> > > >  even told my family. I found out the next day when the

dotors

> > > >  explained to me why they wouldnt give me anything for the

pain.

> > This

> > > >  also  bought to light all the  events I recalled after

waking up.

> > > >

> > > >       Now this part may scare some, but its just an

individula

> > account

> > > >  due to my sensitivity to the anesthesia and the  need to 

wake

> > me up.

> > > >  I awoke in what seemed the  most intense pain of my life.

Never

> > > >  having had any real surgery there's not alot to compare it

to. I

> > was

> > > >  tied to the bed, as it turns out i became violent and tried

my

> > cath

> > > >  out and hit a nurse. I had tubes in my  nose, my throat, my

arm,

> > my 

> > > >  privates, and a burning sensation from the last  tube

mentioned.

> > I

> > > >  recall begging the doctors to take them out, and if they

would

> > they 

> > > >  wouldnt have to  tie me to the bed anymore. I was unaware

at this

> > > >  time that  the  doctors had been smacking me in the face

trying

> > to

> > > >  get a reaction from me, and this was 12 hours after my 

surgery.

> > > >       In my mind I felt fine and didnt need any of these

things

> > > >  anymore. I was wrong of course and once I  calmed down and

> > caught up

> > > >  with my senses I  relaized what had  happened. I felt so 

bad

> > for the

> > > >  nurse who was the brunt of my outbreak. So for the next 48

hours

> > I

> > > >  laid in sweat from the pain, the doctors feared for my

health

> > based

> > > >  on the  reaction to the medication admisitered during

surgery,

> > so I

> > > >  was denied any pain meds until late day 2. At that time

small

> > doses

> > > >  of morphine was injected .025mg. ( anyone who has never had

> > morphine,

> > > >  it's like a  warm blanket being wrapped around you on a cold

> > winter

> > > >  morning)

> > > >      Thankfully that was the worst part of it. My creatinine

had

> > > >  dropped from 6.7 the morning of the surgery  to  1.4 the

> > following

> > > >  morning. I was release on Friday follwoing the surgery and

have 

> > > >  made  multiple return trips to have bloodwoek and monitor

my 

> > > >  medication.

> > > >      I am approaching my 2 month anniversary  with Schmeagle

(my

> > > >  precious) and my creatinine is at 1.1, the doses have been 

> > > >  gradually  decreased and I feel like a new person. My energy

> > levels

> > > >  have increased and I look great. There has been very few

side

> > effects

> > > >  from the drugs which  they warned me of prior, but so far

all i

> > have

> > > >  noticed is a mild case of acne on my  shoulders and back 

and a

> > > >  little weight gain. I'm at a Healthy looking 170 lbs.

Initially

> > I was

> > > >  between 155 and 165.  Oh Yeah, and my hair started growing

in.

> > I've

> > > >  been  somewhat bald for the past 10 years So  YIPPEEE!

> > > >      I know many of yo may have questions, either regarding

the 

> > > >  surgery, or the aftercare, the meds or whatever. I'm happy

to

> > answer

> > > >  them. Just ask.

> > > >

> > > >  TonyC and Schmeagle (my precious)

> > > >

> > > >

> > > >

> > > > To edit your settings for the group, go to our Yahoo Group

> > > >  home page:

> > > > http://groups.yahoo.com/group/iga-nephropathy/

> > > >

> > > >  To unsubcribe via email,

> > > >  iga-nephropathy-unsubscribe

> > > >  Visit our companion website at www.igan.ca. The site is

entirely

> > > > supported by donations. If you would like to help, go to:

> > > > http://www.igan.ca/id62.htm

> > > >

> > > >  Thank you

> > > >

> > > >

> > > >

> > > >

> > > >

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Posted
Posted

Dear Tony

Thanks God you transplantation suceeded. Of course, we have to calculate that

unavoidable difficulties. You are also lucky that your mom takes care of you

after the transplantation as it is easier for you to move as somebody is

assisting you.

Managing myself makes me feel scare and considering other problems. I have only

my 11 year old daughter with me and the rest of the family is millions of miles

far away from me. I know that they will take care of me when they are just

living nearby (nice to think). Hope you and smeagle (did I wrote it correctly)

do very well.

Peach

---------------------------------

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Posted
Posted

Dear Tony

Thanks God you transplantation suceeded. Of course, we have to calculate that

unavoidable difficulties. You are also lucky that your mom takes care of you

after the transplantation as it is easier for you to move as somebody is

assisting you.

Managing myself makes me feel scare and considering other problems. I have only

my 11 year old daughter with me and the rest of the family is millions of miles

far away from me. I know that they will take care of me when they are just

living nearby (nice to think). Hope you and smeagle (did I wrote it correctly)

do very well.

Peach

---------------------------------

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Posted
Posted

Boy, that's some story! Nice that you can tell it with humour as you did.

You know, at one of the local support group meetings I attended last year at

the kidney centre, the fact that some people start growing hair again after

a transplant was a hot subject. There was one man there who had experienced

it himself. I could use a little more hair up there too :)

The phone company just sent me a new pager. They provide them free of charge

to people on the transplant waiting list. Up until now, I had just been

relying on my cellphone for that, but it's a pain trying to always make sure

it's got a good charge. I hope it buzzes soon!

Pierre

Tony C ( a scary success story)

> Hi everyone.

> I know its been some time since I left to go have my transplant

> surgery. The surgery didnt go as well as expected. But not because of

> the kidney or the surgeons involved. The difficulty stemmed from an

> unknown X-factor in my metabolic system. Unbeknowst to anyone I have

> a very low tolerance for narcotic, that and an exceedingly high pain

> threshold. This tolerance inbalance cause me to code during surgery.

> Now before anyone of you freak, Yes< I was dead for a complete 4

> minutes, and its not all they crack it up to be. There was no light,

> no floating over my body, damn there werent even any relatives

> waiting for me. Maybe they just forgot to pay the electric bill in

> heaven, and the tram car from hell was out of gas; either way... I'm

> back.

> The doctors weren't too concerned with losing me, they never

> even told my family. I found out the next day when the dotors

> explained to me why they wouldnt give me anything for the pain. This

> also bought to light all the events I recalled after waking up.

>

> Now this part may scare some, but its just an individula account

> due to my sensitivity to the anesthesia and the need to wake me up.

> I awoke in what seemed the most intense pain of my life. Never

> having had any real surgery there's not alot to compare it to. I was

> tied to the bed, as it turns out i became violent and tried my cath

> out and hit a nurse. I had tubes in my nose, my throat, my arm, my

> privates, and a burning sensation from the last tube mentioned. I

> recall begging the doctors to take them out, and if they would they

> wouldnt have to tie me to the bed anymore. I was unaware at this

> time that the doctors had been smacking me in the face trying to

> get a reaction from me, and this was 12 hours after my surgery.

> In my mind I felt fine and didnt need any of these things

> anymore. I was wrong of course and once I calmed down and caught up

> with my senses I relaized what had happened. I felt so bad for the

> nurse who was the brunt of my outbreak. So for the next 48 hours I

> laid in sweat from the pain, the doctors feared for my health based

> on the reaction to the medication admisitered during surgery, so I

> was denied any pain meds until late day 2. At that time small doses

> of morphine was injected .025mg. ( anyone who has never had morphine,

> it's like a warm blanket being wrapped around you on a cold winter

> morning)

> Thankfully that was the worst part of it. My creatinine had

> dropped from 6.7 the morning of the surgery to 1.4 the following

> morning. I was release on Friday follwoing the surgery and have

> made multiple return trips to have bloodwoek and monitor my

> medication.

> I am approaching my 2 month anniversary with Schmeagle (my

> precious) and my creatinine is at 1.1, the doses have been

> gradually decreased and I feel like a new person. My energy levels

> have increased and I look great. There has been very few side effects

> from the drugs which they warned me of prior, but so far all i have

> noticed is a mild case of acne on my shoulders and back and a

> little weight gain. I'm at a Healthy looking 170 lbs. Initially I was

> between 155 and 165. Oh Yeah, and my hair started growing in. I've

> been somewhat bald for the past 10 years So YIPPEEE!

> I know many of yo may have questions, either regarding the

> surgery, or the aftercare, the meds or whatever. I'm happy to answer

> them. Just ask.

>

> TonyC and Schmeagle (my precious)

>

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Posted
Posted

I agree with you on the unwanted medical waste! I sure would not want to bring

any of those items home.

I hope your brother can really take some responsibility for his health and get

back into the swing of things.

In a message dated 5/5/2004 11:02:17 AM Eastern Daylight Time,

tony713c@... writes:

> Whats up with Doctors

> offer medical waste as soveigners.... Yuck

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Posted
Posted

Hi Pierre,

We're not going to go into all that they say about bald men. I'm not going

to go there....:)

It's funny all the services that the phone company provides for free. When

my husband had his vocal cords removed, they also provided his electrolarnyx

(or what we used to call his talkman) for free. We explored buying a new

one.... but the free one was much better than any of the very expensive

alternatives.

Here's hoping that pager goes off SOON.

Cy

Tony C ( a scary success story)

>

>

> > Hi everyone.

> > I know its been some time since I left to go have my transplant

> > surgery. The surgery didnt go as well as expected. But not because of

> > the kidney or the surgeons involved. The difficulty stemmed from an

> > unknown X-factor in my metabolic system. Unbeknowst to anyone I have

> > a very low tolerance for narcotic, that and an exceedingly high pain

> > threshold. This tolerance inbalance cause me to code during surgery.

> > Now before anyone of you freak, Yes< I was dead for a complete 4

> > minutes, and its not all they crack it up to be. There was no light,

> > no floating over my body, damn there werent even any relatives

> > waiting for me. Maybe they just forgot to pay the electric bill in

> > heaven, and the tram car from hell was out of gas; either way... I'm

> > back.

> > The doctors weren't too concerned with losing me, they never

> > even told my family. I found out the next day when the dotors

> > explained to me why they wouldnt give me anything for the pain. This

> > also bought to light all the events I recalled after waking up.

> >

> > Now this part may scare some, but its just an individula account

> > due to my sensitivity to the anesthesia and the need to wake me up.

> > I awoke in what seemed the most intense pain of my life. Never

> > having had any real surgery there's not alot to compare it to. I was

> > tied to the bed, as it turns out i became violent and tried my cath

> > out and hit a nurse. I had tubes in my nose, my throat, my arm, my

> > privates, and a burning sensation from the last tube mentioned. I

> > recall begging the doctors to take them out, and if they would they

> > wouldnt have to tie me to the bed anymore. I was unaware at this

> > time that the doctors had been smacking me in the face trying to

> > get a reaction from me, and this was 12 hours after my surgery.

> > In my mind I felt fine and didnt need any of these things

> > anymore. I was wrong of course and once I calmed down and caught up

> > with my senses I relaized what had happened. I felt so bad for the

> > nurse who was the brunt of my outbreak. So for the next 48 hours I

> > laid in sweat from the pain, the doctors feared for my health based

> > on the reaction to the medication admisitered during surgery, so I

> > was denied any pain meds until late day 2. At that time small doses

> > of morphine was injected .025mg. ( anyone who has never had morphine,

> > it's like a warm blanket being wrapped around you on a cold winter

> > morning)

> > Thankfully that was the worst part of it. My creatinine had

> > dropped from 6.7 the morning of the surgery to 1.4 the following

> > morning. I was release on Friday follwoing the surgery and have

> > made multiple return trips to have bloodwoek and monitor my

> > medication.

> > I am approaching my 2 month anniversary with Schmeagle (my

> > precious) and my creatinine is at 1.1, the doses have been

> > gradually decreased and I feel like a new person. My energy levels

> > have increased and I look great. There has been very few side effects

> > from the drugs which they warned me of prior, but so far all i have

> > noticed is a mild case of acne on my shoulders and back and a

> > little weight gain. I'm at a Healthy looking 170 lbs. Initially I was

> > between 155 and 165. Oh Yeah, and my hair started growing in. I've

> > been somewhat bald for the past 10 years So YIPPEEE!

> > I know many of yo may have questions, either regarding the

> > surgery, or the aftercare, the meds or whatever. I'm happy to answer

> > them. Just ask.

> >

> > TonyC and Schmeagle (my precious)

> >

>

>

>

>

> To edit your settings for the group, go to our Yahoo Group

> home page:

> http://groups.yahoo.com/group/iga-nephropathy/

>

> To unsubcribe via email,

> iga-nephropathy-unsubscribe

> Visit our companion website at www.igan.ca. The site is entirely supported

by donations. If you would like to help, go to:

> http://www.igan.ca/id62.htm

>

> Thank you

>

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Posted
Posted

Hi Pierre,

We're not going to go into all that they say about bald men. I'm not going

to go there....:)

It's funny all the services that the phone company provides for free. When

my husband had his vocal cords removed, they also provided his electrolarnyx

(or what we used to call his talkman) for free. We explored buying a new

one.... but the free one was much better than any of the very expensive

alternatives.

Here's hoping that pager goes off SOON.

Cy

Tony C ( a scary success story)

>

>

> > Hi everyone.

> > I know its been some time since I left to go have my transplant

> > surgery. The surgery didnt go as well as expected. But not because of

> > the kidney or the surgeons involved. The difficulty stemmed from an

> > unknown X-factor in my metabolic system. Unbeknowst to anyone I have

> > a very low tolerance for narcotic, that and an exceedingly high pain

> > threshold. This tolerance inbalance cause me to code during surgery.

> > Now before anyone of you freak, Yes< I was dead for a complete 4

> > minutes, and its not all they crack it up to be. There was no light,

> > no floating over my body, damn there werent even any relatives

> > waiting for me. Maybe they just forgot to pay the electric bill in

> > heaven, and the tram car from hell was out of gas; either way... I'm

> > back.

> > The doctors weren't too concerned with losing me, they never

> > even told my family. I found out the next day when the dotors

> > explained to me why they wouldnt give me anything for the pain. This

> > also bought to light all the events I recalled after waking up.

> >

> > Now this part may scare some, but its just an individula account

> > due to my sensitivity to the anesthesia and the need to wake me up.

> > I awoke in what seemed the most intense pain of my life. Never

> > having had any real surgery there's not alot to compare it to. I was

> > tied to the bed, as it turns out i became violent and tried my cath

> > out and hit a nurse. I had tubes in my nose, my throat, my arm, my

> > privates, and a burning sensation from the last tube mentioned. I

> > recall begging the doctors to take them out, and if they would they

> > wouldnt have to tie me to the bed anymore. I was unaware at this

> > time that the doctors had been smacking me in the face trying to

> > get a reaction from me, and this was 12 hours after my surgery.

> > In my mind I felt fine and didnt need any of these things

> > anymore. I was wrong of course and once I calmed down and caught up

> > with my senses I relaized what had happened. I felt so bad for the

> > nurse who was the brunt of my outbreak. So for the next 48 hours I

> > laid in sweat from the pain, the doctors feared for my health based

> > on the reaction to the medication admisitered during surgery, so I

> > was denied any pain meds until late day 2. At that time small doses

> > of morphine was injected .025mg. ( anyone who has never had morphine,

> > it's like a warm blanket being wrapped around you on a cold winter

> > morning)

> > Thankfully that was the worst part of it. My creatinine had

> > dropped from 6.7 the morning of the surgery to 1.4 the following

> > morning. I was release on Friday follwoing the surgery and have

> > made multiple return trips to have bloodwoek and monitor my

> > medication.

> > I am approaching my 2 month anniversary with Schmeagle (my

> > precious) and my creatinine is at 1.1, the doses have been

> > gradually decreased and I feel like a new person. My energy levels

> > have increased and I look great. There has been very few side effects

> > from the drugs which they warned me of prior, but so far all i have

> > noticed is a mild case of acne on my shoulders and back and a

> > little weight gain. I'm at a Healthy looking 170 lbs. Initially I was

> > between 155 and 165. Oh Yeah, and my hair started growing in. I've

> > been somewhat bald for the past 10 years So YIPPEEE!

> > I know many of yo may have questions, either regarding the

> > surgery, or the aftercare, the meds or whatever. I'm happy to answer

> > them. Just ask.

> >

> > TonyC and Schmeagle (my precious)

> >

>

>

>

>

> To edit your settings for the group, go to our Yahoo Group

> home page:

> http://groups.yahoo.com/group/iga-nephropathy/

>

> To unsubcribe via email,

> iga-nephropathy-unsubscribe

> Visit our companion website at www.igan.ca. The site is entirely supported

by donations. If you would like to help, go to:

> http://www.igan.ca/id62.htm

>

> Thank you

>

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Posted
Posted

Peach,

I did appreciate my moms helpfulness buring the time I stayed there.

It was odd though since I havent lived there in almost 20 years.

Being catered to was a little awkward as well. Lving alone you tend

to be a little more self reliant.

I didnt feel as if i needed to be cared for in the manner my mom

was providing. But thats part of my independant nature. As you have a

daughter you may feel the same way when the time comes. Especially

right after going home. I was full of energy. With the exception

of lifting I was pretty much able to do everything I had before.

Once my mother let me leave the house to begin my walking. I walked

to my apartment, which is only several blocks away. I had to drop

in and visit my pets who have been cared fro by a neighboor. Being

around people who care is another type of medice which helps you

get through any endeavour. I'm sure you have a network that will

help you get through everything as well even if your family is far

away.

Good Luck Peach

Tony C and Schmeagle

>

> Dear Tony

>

> Thanks God you transplantation suceeded. Of course, we have to

calculate that unavoidable difficulties. You are also lucky that your

mom takes care of you after the transplantation as it is easier for

you to move as somebody is assisting you.

>

> Managing myself makes me feel scare and considering other problems.

I have only my 11 year old daughter with me and the rest of the

family is millions of miles far away from me. I know that they will

take care of me when they are just living nearby (nice to think).

Hope you and smeagle (did I wrote it correctly) do very well.

>

> Peach

>

>

> ---------------------------------

> Yahoo! Messenger - Communicate instantly... " Ping " your friends

today! Download Messenger Now

>

>

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Posted
Posted

Peach,

I did appreciate my moms helpfulness buring the time I stayed there.

It was odd though since I havent lived there in almost 20 years.

Being catered to was a little awkward as well. Lving alone you tend

to be a little more self reliant.

I didnt feel as if i needed to be cared for in the manner my mom

was providing. But thats part of my independant nature. As you have a

daughter you may feel the same way when the time comes. Especially

right after going home. I was full of energy. With the exception

of lifting I was pretty much able to do everything I had before.

Once my mother let me leave the house to begin my walking. I walked

to my apartment, which is only several blocks away. I had to drop

in and visit my pets who have been cared fro by a neighboor. Being

around people who care is another type of medice which helps you

get through any endeavour. I'm sure you have a network that will

help you get through everything as well even if your family is far

away.

Good Luck Peach

Tony C and Schmeagle

>

> Dear Tony

>

> Thanks God you transplantation suceeded. Of course, we have to

calculate that unavoidable difficulties. You are also lucky that your

mom takes care of you after the transplantation as it is easier for

you to move as somebody is assisting you.

>

> Managing myself makes me feel scare and considering other problems.

I have only my 11 year old daughter with me and the rest of the

family is millions of miles far away from me. I know that they will

take care of me when they are just living nearby (nice to think).

Hope you and smeagle (did I wrote it correctly) do very well.

>

> Peach

>

>

> ---------------------------------

> Yahoo! Messenger - Communicate instantly... " Ping " your friends

today! Download Messenger Now

>

>

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Posted
Posted

Peach,

I did appreciate my moms helpfulness buring the time I stayed there.

It was odd though since I havent lived there in almost 20 years.

Being catered to was a little awkward as well. Lving alone you tend

to be a little more self reliant.

I didnt feel as if i needed to be cared for in the manner my mom

was providing. But thats part of my independant nature. As you have a

daughter you may feel the same way when the time comes. Especially

right after going home. I was full of energy. With the exception

of lifting I was pretty much able to do everything I had before.

Once my mother let me leave the house to begin my walking. I walked

to my apartment, which is only several blocks away. I had to drop

in and visit my pets who have been cared fro by a neighboor. Being

around people who care is another type of medice which helps you

get through any endeavour. I'm sure you have a network that will

help you get through everything as well even if your family is far

away.

Good Luck Peach

Tony C and Schmeagle

>

> Dear Tony

>

> Thanks God you transplantation suceeded. Of course, we have to

calculate that unavoidable difficulties. You are also lucky that your

mom takes care of you after the transplantation as it is easier for

you to move as somebody is assisting you.

>

> Managing myself makes me feel scare and considering other problems.

I have only my 11 year old daughter with me and the rest of the

family is millions of miles far away from me. I know that they will

take care of me when they are just living nearby (nice to think).

Hope you and smeagle (did I wrote it correctly) do very well.

>

> Peach

>

>

> ---------------------------------

> Yahoo! Messenger - Communicate instantly... " Ping " your friends

today! Download Messenger Now

>

>

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Posted
Posted

Well Pierre,

I will pray for a donor and some hair for you.

The hair growth is one of the side effect (in my eyes a bonus

effect) from the Cyclosporine (neoral). Honestly when I first

started the Neoral I got sick. This awful grey pill smells like a

horse shit on a skunk. In the hospital I did everyhting possible to

avoid this medication. It caused me to gag, and the smell alone

seemed to linger. I would hold my nose wear gloves and have to

take another medication to settle my nausea.

But now its fine. One hint is to let this pill air out before taking

it. I fill my weekly pill case every Thursday night now so the

Neoral sits in the plastic case rather than the foil packing it is

shpped in. This helps.

You have been on the list for some time if I recall, so you should

be hearing soon, God willing.

As you already know I look for the humor in everything.

Laughter is the most pleasant medicine, and its FREE. :)

Tony C and Schmeagle

> Boy, that's some story! Nice that you can tell it with humour as

you did.

> You know, at one of the local support group meetings I attended

last year at

> the kidney centre, the fact that some people start growing hair

again after

> a transplant was a hot subject. There was one man there who had

experienced

> it himself. I could use a little more hair up there too :)

>

> The phone company just sent me a new pager. They provide them free

of charge

> to people on the transplant waiting list. Up until now, I had just

been

> relying on my cellphone for that, but it's a pain trying to always

make sure

> it's got a good charge. I hope it buzzes soon!

>

> Pierre

>

>

>

>

>

>

> Tony C ( a scary success story)

>

>

> > Hi everyone.

> > I know its been some time since I left to go have my

transplant

> > surgery. The surgery didnt go as well as expected. But not

because of

> > the kidney or the surgeons involved. The difficulty stemmed

from an

> > unknown X-factor in my metabolic system. Unbeknowst to anyone I

have

> > a very low tolerance for narcotic, that and an exceedingly high

pain

> > threshold. This tolerance inbalance cause me to code during

surgery.

> > Now before anyone of you freak, Yes< I was dead for a

complete 4

> > minutes, and its not all they crack it up to be. There was no

light,

> > no floating over my body, damn there werent even any relatives

> > waiting for me. Maybe they just forgot to pay the electric bill in

> > heaven, and the tram car from hell was out of gas; either way...

I'm

> > back.

> > The doctors weren't too concerned with losing me, they never

> > even told my family. I found out the next day when the dotors

> > explained to me why they wouldnt give me anything for the pain.

This

> > also bought to light all the events I recalled after waking up.

> >

> > Now this part may scare some, but its just an individula

account

> > due to my sensitivity to the anesthesia and the need to wake me

up.

> > I awoke in what seemed the most intense pain of my life. Never

> > having had any real surgery there's not alot to compare it to. I

was

> > tied to the bed, as it turns out i became violent and tried my

cath

> > out and hit a nurse. I had tubes in my nose, my throat, my arm,

my

> > privates, and a burning sensation from the last tube mentioned. I

> > recall begging the doctors to take them out, and if they would

they

> > wouldnt have to tie me to the bed anymore. I was unaware at this

> > time that the doctors had been smacking me in the face trying to

> > get a reaction from me, and this was 12 hours after my surgery.

> > In my mind I felt fine and didnt need any of these things

> > anymore. I was wrong of course and once I calmed down and caught

up

> > with my senses I relaized what had happened. I felt so bad for

the

> > nurse who was the brunt of my outbreak. So for the next 48 hours I

> > laid in sweat from the pain, the doctors feared for my health

based

> > on the reaction to the medication admisitered during surgery, so

I

> > was denied any pain meds until late day 2. At that time small

doses

> > of morphine was injected .025mg. ( anyone who has never had

morphine,

> > it's like a warm blanket being wrapped around you on a cold

winter

> > morning)

> > Thankfully that was the worst part of it. My creatinine had

> > dropped from 6.7 the morning of the surgery to 1.4 the following

> > morning. I was release on Friday follwoing the surgery and have

> > made multiple return trips to have bloodwoek and monitor my

> > medication.

> > I am approaching my 2 month anniversary with Schmeagle (my

> > precious) and my creatinine is at 1.1, the doses have been

> > gradually decreased and I feel like a new person. My energy

levels

> > have increased and I look great. There has been very few side

effects

> > from the drugs which they warned me of prior, but so far all i

have

> > noticed is a mild case of acne on my shoulders and back and a

> > little weight gain. I'm at a Healthy looking 170 lbs. Initially I

was

> > between 155 and 165. Oh Yeah, and my hair started growing in.

I've

> > been somewhat bald for the past 10 years So YIPPEEE!

> > I know many of yo may have questions, either regarding the

> > surgery, or the aftercare, the meds or whatever. I'm happy to

answer

> > them. Just ask.

> >

> > TonyC and Schmeagle (my precious)

> >

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Posted
Posted

Well Pierre,

I will pray for a donor and some hair for you.

The hair growth is one of the side effect (in my eyes a bonus

effect) from the Cyclosporine (neoral). Honestly when I first

started the Neoral I got sick. This awful grey pill smells like a

horse shit on a skunk. In the hospital I did everyhting possible to

avoid this medication. It caused me to gag, and the smell alone

seemed to linger. I would hold my nose wear gloves and have to

take another medication to settle my nausea.

But now its fine. One hint is to let this pill air out before taking

it. I fill my weekly pill case every Thursday night now so the

Neoral sits in the plastic case rather than the foil packing it is

shpped in. This helps.

You have been on the list for some time if I recall, so you should

be hearing soon, God willing.

As you already know I look for the humor in everything.

Laughter is the most pleasant medicine, and its FREE. :)

Tony C and Schmeagle

> Boy, that's some story! Nice that you can tell it with humour as

you did.

> You know, at one of the local support group meetings I attended

last year at

> the kidney centre, the fact that some people start growing hair

again after

> a transplant was a hot subject. There was one man there who had

experienced

> it himself. I could use a little more hair up there too :)

>

> The phone company just sent me a new pager. They provide them free

of charge

> to people on the transplant waiting list. Up until now, I had just

been

> relying on my cellphone for that, but it's a pain trying to always

make sure

> it's got a good charge. I hope it buzzes soon!

>

> Pierre

>

>

>

>

>

>

> Tony C ( a scary success story)

>

>

> > Hi everyone.

> > I know its been some time since I left to go have my

transplant

> > surgery. The surgery didnt go as well as expected. But not

because of

> > the kidney or the surgeons involved. The difficulty stemmed

from an

> > unknown X-factor in my metabolic system. Unbeknowst to anyone I

have

> > a very low tolerance for narcotic, that and an exceedingly high

pain

> > threshold. This tolerance inbalance cause me to code during

surgery.

> > Now before anyone of you freak, Yes< I was dead for a

complete 4

> > minutes, and its not all they crack it up to be. There was no

light,

> > no floating over my body, damn there werent even any relatives

> > waiting for me. Maybe they just forgot to pay the electric bill in

> > heaven, and the tram car from hell was out of gas; either way...

I'm

> > back.

> > The doctors weren't too concerned with losing me, they never

> > even told my family. I found out the next day when the dotors

> > explained to me why they wouldnt give me anything for the pain.

This

> > also bought to light all the events I recalled after waking up.

> >

> > Now this part may scare some, but its just an individula

account

> > due to my sensitivity to the anesthesia and the need to wake me

up.

> > I awoke in what seemed the most intense pain of my life. Never

> > having had any real surgery there's not alot to compare it to. I

was

> > tied to the bed, as it turns out i became violent and tried my

cath

> > out and hit a nurse. I had tubes in my nose, my throat, my arm,

my

> > privates, and a burning sensation from the last tube mentioned. I

> > recall begging the doctors to take them out, and if they would

they

> > wouldnt have to tie me to the bed anymore. I was unaware at this

> > time that the doctors had been smacking me in the face trying to

> > get a reaction from me, and this was 12 hours after my surgery.

> > In my mind I felt fine and didnt need any of these things

> > anymore. I was wrong of course and once I calmed down and caught

up

> > with my senses I relaized what had happened. I felt so bad for

the

> > nurse who was the brunt of my outbreak. So for the next 48 hours I

> > laid in sweat from the pain, the doctors feared for my health

based

> > on the reaction to the medication admisitered during surgery, so

I

> > was denied any pain meds until late day 2. At that time small

doses

> > of morphine was injected .025mg. ( anyone who has never had

morphine,

> > it's like a warm blanket being wrapped around you on a cold

winter

> > morning)

> > Thankfully that was the worst part of it. My creatinine had

> > dropped from 6.7 the morning of the surgery to 1.4 the following

> > morning. I was release on Friday follwoing the surgery and have

> > made multiple return trips to have bloodwoek and monitor my

> > medication.

> > I am approaching my 2 month anniversary with Schmeagle (my

> > precious) and my creatinine is at 1.1, the doses have been

> > gradually decreased and I feel like a new person. My energy

levels

> > have increased and I look great. There has been very few side

effects

> > from the drugs which they warned me of prior, but so far all i

have

> > noticed is a mild case of acne on my shoulders and back and a

> > little weight gain. I'm at a Healthy looking 170 lbs. Initially I

was

> > between 155 and 165. Oh Yeah, and my hair started growing in.

I've

> > been somewhat bald for the past 10 years So YIPPEEE!

> > I know many of yo may have questions, either regarding the

> > surgery, or the aftercare, the meds or whatever. I'm happy to

answer

> > them. Just ask.

> >

> > TonyC and Schmeagle (my precious)

> >

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Posted
Posted

Cy

I know I should have gotten back here sooner. My bad. I was just

so wrapped up in feeling good, and looking good. Then I dealth

with the semi superstar syndrome.

After major surgery everyone tends to look at you differently. Every

wehre I go, if someone knows I had the surgery they tell me how

great I look and how. Others can not believe I even went through it.

I've been told I look from healthy to Vibrant, thats the term the

guy at the video stare used.

when I finally went home I stopped and picked up a movie. The owner

asked where I had been, If i went on vacation or something. I told

him I was in the hospiatl and had a tranplant. I thought he was going

to pass out. He could not believe it. HE didnt know I was sick

before, but did indeed notice a change in me after.

My mom calls me everytime a relative comes to town, just so I can

go over and say Hi. Then my mom showcases my new hair growth.

Sometimes I think she is more happy about it than I am.

.....

NYAH.... I'm reaping all those rewards. :)

Vibrant and happy

Tony C and Schmeagle

> What a story! What an attitude! I was so blown away when I read

your post

> yesterday I felt entirely incompetent to respond. It was so

wonderful to

> hear from you. I know many of us were very worried. I hope your

bro makes

> it to the doctor.

>

> Cy

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Posted
Posted

Cy

I know I should have gotten back here sooner. My bad. I was just

so wrapped up in feeling good, and looking good. Then I dealth

with the semi superstar syndrome.

After major surgery everyone tends to look at you differently. Every

wehre I go, if someone knows I had the surgery they tell me how

great I look and how. Others can not believe I even went through it.

I've been told I look from healthy to Vibrant, thats the term the

guy at the video stare used.

when I finally went home I stopped and picked up a movie. The owner

asked where I had been, If i went on vacation or something. I told

him I was in the hospiatl and had a tranplant. I thought he was going

to pass out. He could not believe it. HE didnt know I was sick

before, but did indeed notice a change in me after.

My mom calls me everytime a relative comes to town, just so I can

go over and say Hi. Then my mom showcases my new hair growth.

Sometimes I think she is more happy about it than I am.

.....

NYAH.... I'm reaping all those rewards. :)

Vibrant and happy

Tony C and Schmeagle

> What a story! What an attitude! I was so blown away when I read

your post

> yesterday I felt entirely incompetent to respond. It was so

wonderful to

> hear from you. I know many of us were very worried. I hope your

bro makes

> it to the doctor.

>

> Cy

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Posted
Posted

Cy

I know I should have gotten back here sooner. My bad. I was just

so wrapped up in feeling good, and looking good. Then I dealth

with the semi superstar syndrome.

After major surgery everyone tends to look at you differently. Every

wehre I go, if someone knows I had the surgery they tell me how

great I look and how. Others can not believe I even went through it.

I've been told I look from healthy to Vibrant, thats the term the

guy at the video stare used.

when I finally went home I stopped and picked up a movie. The owner

asked where I had been, If i went on vacation or something. I told

him I was in the hospiatl and had a tranplant. I thought he was going

to pass out. He could not believe it. HE didnt know I was sick

before, but did indeed notice a change in me after.

My mom calls me everytime a relative comes to town, just so I can

go over and say Hi. Then my mom showcases my new hair growth.

Sometimes I think she is more happy about it than I am.

.....

NYAH.... I'm reaping all those rewards. :)

Vibrant and happy

Tony C and Schmeagle

> What a story! What an attitude! I was so blown away when I read

your post

> yesterday I felt entirely incompetent to respond. It was so

wonderful to

> hear from you. I know many of us were very worried. I hope your

bro makes

> it to the doctor.

>

> Cy

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