RE: GF 2 years, and having joint pain

[Guest guest]

Have you ever read anything about candidiasis. It is a

possibility. You should do some research on it and see if her

symptoms match.

>

> Hi everyone and Happy Holidays to all! My 12 year old daughter has

> been GF for 2 years but is experiencing devestating joint pain, and

> also mouth sores again. We are religiously GF so I know she's not

> getting any gluten. I spoke with her gastro today, and he said she

> may still have active Celiac even though she's been GF for so

long.

> She is also terribly lactose intolerant, and being as the receptors

> for lactose are on the tips of the villi that CD destroys, it may

be

> that hers haven't grown back. She is having blood work and another

> scope to check things out. Has anyone ever heard of symptoms

existing

> after being GF for a long time? At first they thought she had

lupus

> or rheumatoid arthritis, but thank God the DNA tests came back

> negative! So we are biding our time until the scope and hoping for

> some answers. Does anyone know what can be done if this turns out

to

> be the case?

> What more can you do but keep GF? I would appreciate any info you

> guys may have. This Christmas, I am especially grateful for Silly

> Yaks, because I feel like I have a bunch of friends who know

exactly

> how I feel!

> Dana, Gloriously GF

>

[Guest guest]

Have you ever read anything about candidiasis. It is a

possibility. You should do some research on it and see if her

symptoms match.

>

> Hi everyone and Happy Holidays to all! My 12 year old daughter has

> been GF for 2 years but is experiencing devestating joint pain, and

> also mouth sores again. We are religiously GF so I know she's not

> getting any gluten. I spoke with her gastro today, and he said she

> may still have active Celiac even though she's been GF for so

long.

> She is also terribly lactose intolerant, and being as the receptors

> for lactose are on the tips of the villi that CD destroys, it may

be

> that hers haven't grown back. She is having blood work and another

> scope to check things out. Has anyone ever heard of symptoms

existing

> after being GF for a long time? At first they thought she had

lupus

> or rheumatoid arthritis, but thank God the DNA tests came back

> negative! So we are biding our time until the scope and hoping for

> some answers. Does anyone know what can be done if this turns out

to

> be the case?

> What more can you do but keep GF? I would appreciate any info you

> guys may have. This Christmas, I am especially grateful for Silly

> Yaks, because I feel like I have a bunch of friends who know

exactly

> how I feel!

> Dana, Gloriously GF

>

[Guest guest]

Have you ever read anything about candidiasis. It is a

possibility. You should do some research on it and see if her

symptoms match.

>

> Hi everyone and Happy Holidays to all! My 12 year old daughter has

> been GF for 2 years but is experiencing devestating joint pain, and

> also mouth sores again. We are religiously GF so I know she's not

> getting any gluten. I spoke with her gastro today, and he said she

> may still have active Celiac even though she's been GF for so

long.

> She is also terribly lactose intolerant, and being as the receptors

> for lactose are on the tips of the villi that CD destroys, it may

be

> that hers haven't grown back. She is having blood work and another

> scope to check things out. Has anyone ever heard of symptoms

existing

> after being GF for a long time? At first they thought she had

lupus

> or rheumatoid arthritis, but thank God the DNA tests came back

> negative! So we are biding our time until the scope and hoping for

> some answers. Does anyone know what can be done if this turns out

to

> be the case?

> What more can you do but keep GF? I would appreciate any info you

> guys may have. This Christmas, I am especially grateful for Silly

> Yaks, because I feel like I have a bunch of friends who know

exactly

> how I feel!

> Dana, Gloriously GF

>

[Guest guest]

> Hi everyone and Happy Holidays to all! My 12 year old daughter has

> been GF for 2 years but is experiencing devestating joint pain, and

> also mouth sores again. We are religiously GF so I know she's not

> getting any gluten.

Don't take this the wrong way, but does that include avoiding the low gluten

host and any wine that a wheat has has been dipped in?

> I spoke with her gastro today, and he said she

> may still have active Celiac even though she's been GF for so long.

Perhaps he's trying to be nice - active CD is only there in response to

gluten ingestion.

> Has anyone ever heard of symptoms existing

> after being GF for a long time?

Most newer studies are showing that symptoms remaining are always due to

ingestion of gluten (not always intentional). True refractory sprue may, in

fact, not exist (esp in teens and kids, who heal so much faster than the

elderly, which is where RS is normally diagnosed).

> At first they thought she had lupus

> or rheumatoid arthritis, but thank God the DNA tests came back

> negative!

At least there was some good news.

> What more can you do but keep GF?

You can look at ways she is getting contaminated: eating out, cleaning

practices at school (often found to be a problem by those who haver their

kids at home in summer and control the environment more), bath and beauty

products (esp lip products and lotions and face products - but nearly any

product has at least one person on this list who got better after stopping

one particular gluten containing grooming product), eating oatmeal (caused

CD damage in a high percentage of those with CD when lab purified product

and small amounts over a short time were used -- since you can't get wheat

free at all, any oats are just asking for damage) or commercial cereals (all

but about two contain malt from barley and many previously " safe " brands are

now made with wheat starch (malt-o-meal and many store brands they were sold

under), overreliance on " probably safe " ingredients or ignoring " flavorings "

for companies that are not on the (very small) list that guarantee clear

labeling of all gluten ingredients. Baking with wheat flour in the home and

sharing wooden utensils or teflon/cast iron pans between gf and non-gf

foods, sharing a toaster, not cleaning the microwave often (gross! not just

a gluten source), sharing a colander for draining pasta (or worse - using

the same pot; the wheat starch that cooks out of pasta coats the pan and is

very, very difficult to remove, but come out easily when heating some other

food in it later). If you have a mixed kitchen, crumbs end up eveywhere and

gluten gets stuck to frig handles, drawers, crumbs get into the silverware

and any condiments (even those with spouts - I've watched people bounce them

on their wheat bread to move the condiment to the bottom of the jar).

And at her age - trying to fit in by eating the meat from the burger or the

ice cream off the cone (which she hopefully isn't doing at school). Are they

doing cooking classes at school (or is she attempting to eat food prepared

in the cafeteria -- both are pretty much guaranteed to contaminate her

regularly). You may even want to cut out products where the company won't

say the ingredients are gf, but the end result tests gf (nearly all tylenol

is this way, about 1/2 the coke products are, etc). It may be just one tiny

item she is getting on a fairly regular basis that is causing all the grief.

The lactose intolerance is just another in the list of indicators that she

is still getting gluten somewhere.

---

[This E-mail scanned for viruses by Declude Virus]

[Guest guest]

> Hi everyone and Happy Holidays to all! My 12 year old daughter has

> been GF for 2 years but is experiencing devestating joint pain, and

> also mouth sores again. We are religiously GF so I know she's not

> getting any gluten.

Don't take this the wrong way, but does that include avoiding the low gluten

host and any wine that a wheat has has been dipped in?

> I spoke with her gastro today, and he said she

> may still have active Celiac even though she's been GF for so long.

Perhaps he's trying to be nice - active CD is only there in response to

gluten ingestion.

> Has anyone ever heard of symptoms existing

> after being GF for a long time?

Most newer studies are showing that symptoms remaining are always due to

ingestion of gluten (not always intentional). True refractory sprue may, in

fact, not exist (esp in teens and kids, who heal so much faster than the

elderly, which is where RS is normally diagnosed).

> At first they thought she had lupus

> or rheumatoid arthritis, but thank God the DNA tests came back

> negative!

At least there was some good news.

> What more can you do but keep GF?

You can look at ways she is getting contaminated: eating out, cleaning

practices at school (often found to be a problem by those who haver their

kids at home in summer and control the environment more), bath and beauty

products (esp lip products and lotions and face products - but nearly any

product has at least one person on this list who got better after stopping

one particular gluten containing grooming product), eating oatmeal (caused

CD damage in a high percentage of those with CD when lab purified product

and small amounts over a short time were used -- since you can't get wheat

free at all, any oats are just asking for damage) or commercial cereals (all

but about two contain malt from barley and many previously " safe " brands are

now made with wheat starch (malt-o-meal and many store brands they were sold

under), overreliance on " probably safe " ingredients or ignoring " flavorings "

for companies that are not on the (very small) list that guarantee clear

labeling of all gluten ingredients. Baking with wheat flour in the home and

sharing wooden utensils or teflon/cast iron pans between gf and non-gf

foods, sharing a toaster, not cleaning the microwave often (gross! not just

a gluten source), sharing a colander for draining pasta (or worse - using

the same pot; the wheat starch that cooks out of pasta coats the pan and is

very, very difficult to remove, but come out easily when heating some other

food in it later). If you have a mixed kitchen, crumbs end up eveywhere and

gluten gets stuck to frig handles, drawers, crumbs get into the silverware

and any condiments (even those with spouts - I've watched people bounce them

on their wheat bread to move the condiment to the bottom of the jar).

And at her age - trying to fit in by eating the meat from the burger or the

ice cream off the cone (which she hopefully isn't doing at school). Are they

doing cooking classes at school (or is she attempting to eat food prepared

in the cafeteria -- both are pretty much guaranteed to contaminate her

regularly). You may even want to cut out products where the company won't

say the ingredients are gf, but the end result tests gf (nearly all tylenol

is this way, about 1/2 the coke products are, etc). It may be just one tiny

item she is getting on a fairly regular basis that is causing all the grief.

The lactose intolerance is just another in the list of indicators that she

is still getting gluten somewhere.

---

[This E-mail scanned for viruses by Declude Virus]

[Guest guest]

> Hi everyone and Happy Holidays to all! My 12 year old daughter has

> been GF for 2 years but is experiencing devestating joint pain, and

> also mouth sores again. We are religiously GF so I know she's not

> getting any gluten.

Don't take this the wrong way, but does that include avoiding the low gluten

host and any wine that a wheat has has been dipped in?

> I spoke with her gastro today, and he said she

> may still have active Celiac even though she's been GF for so long.

Perhaps he's trying to be nice - active CD is only there in response to

gluten ingestion.

> Has anyone ever heard of symptoms existing

> after being GF for a long time?

Most newer studies are showing that symptoms remaining are always due to

ingestion of gluten (not always intentional). True refractory sprue may, in

fact, not exist (esp in teens and kids, who heal so much faster than the

elderly, which is where RS is normally diagnosed).

> At first they thought she had lupus

> or rheumatoid arthritis, but thank God the DNA tests came back

> negative!

At least there was some good news.

> What more can you do but keep GF?

You can look at ways she is getting contaminated: eating out, cleaning

practices at school (often found to be a problem by those who haver their

kids at home in summer and control the environment more), bath and beauty

products (esp lip products and lotions and face products - but nearly any

product has at least one person on this list who got better after stopping

one particular gluten containing grooming product), eating oatmeal (caused

CD damage in a high percentage of those with CD when lab purified product

and small amounts over a short time were used -- since you can't get wheat

free at all, any oats are just asking for damage) or commercial cereals (all

but about two contain malt from barley and many previously " safe " brands are

now made with wheat starch (malt-o-meal and many store brands they were sold

under), overreliance on " probably safe " ingredients or ignoring " flavorings "

for companies that are not on the (very small) list that guarantee clear

labeling of all gluten ingredients. Baking with wheat flour in the home and

sharing wooden utensils or teflon/cast iron pans between gf and non-gf

foods, sharing a toaster, not cleaning the microwave often (gross! not just

a gluten source), sharing a colander for draining pasta (or worse - using

the same pot; the wheat starch that cooks out of pasta coats the pan and is

very, very difficult to remove, but come out easily when heating some other

food in it later). If you have a mixed kitchen, crumbs end up eveywhere and

gluten gets stuck to frig handles, drawers, crumbs get into the silverware

and any condiments (even those with spouts - I've watched people bounce them

on their wheat bread to move the condiment to the bottom of the jar).

And at her age - trying to fit in by eating the meat from the burger or the

ice cream off the cone (which she hopefully isn't doing at school). Are they

doing cooking classes at school (or is she attempting to eat food prepared

in the cafeteria -- both are pretty much guaranteed to contaminate her

regularly). You may even want to cut out products where the company won't

say the ingredients are gf, but the end result tests gf (nearly all tylenol

is this way, about 1/2 the coke products are, etc). It may be just one tiny

item she is getting on a fairly regular basis that is causing all the grief.

The lactose intolerance is just another in the list of indicators that she

is still getting gluten somewhere.

---

[This E-mail scanned for viruses by Declude Virus]

[Guest guest]

She does not take communion, is homeschooled and our house is completely GF. And her doctor said she may not be healing properly. He isn't the type of person who would humor me, and I hope that hasn't been your experience. I am well educated about the GF lifestyle, which would have saved you quite a lot of typing. Not every case is the same, and she could have mitigating circumstances that are affecting her healing. And by the way, Irish Oats are GF. Dana, Gloriously GF"K. Oland" wrote: > Hi everyone and Happy Holidays to all! My 12 year old daughter has > been GF for 2 years but is experiencing devestating joint pain, and > also mouth sores again. We are religiously GF so I know she's not > getting any

gluten. Don't take this the wrong way, but does that include avoiding the low gluten host and any wine that a wheat has has been dipped in? > I spoke with her gastro today, and he said she > may still have active Celiac even though she's been GF for so long. Perhaps he's trying to be nice - active CD is only there in response to gluten ingestion. > Has anyone ever heard of symptoms existing > after being GF for a long time? Most newer studies are showing that symptoms remaining are always due to ingestion of gluten (not always intentional). True refractory sprue may, in fact, not exist (esp in teens and kids, who heal so much faster than the elderly, which is where RS is normally diagnosed). > At first they thought she had lupus > or rheumatoid arthritis, but thank God the DNA tests came back > negative! At least there was some good news.

> What more can you do but keep GF? You can look at ways she is getting contaminated: eating out, cleaning practices at school (often found to be a problem by those who haver their kids at home in summer and control the environment more), bath and beauty products (esp lip products and lotions and face products - but nearly any product has at least one person on this list who got better after stopping one particular gluten containing grooming product), eating oatmeal (caused CD damage in a high percentage of those with CD when lab purified product and small amounts over a short time were used -- since you can't get wheat free at all, any oats are just asking for damage) or commercial cereals (all but about two contain malt from barley and many previously "safe" brands are now made with wheat starch (malt-o-meal and many store brands they were sold under), overreliance on "probably safe" ingredients or

ignoring "flavorings" for companies that are not on the (very small) list that guarantee clear labeling of all gluten ingredients. Baking with wheat flour in the home and sharing wooden utensils or teflon/cast iron pans between gf and non-gf foods, sharing a toaster, not cleaning the microwave often (gross! not just a gluten source), sharing a colander for draining pasta (or worse - using the same pot; the wheat starch that cooks out of pasta coats the pan and is very, very difficult to remove, but come out easily when heating some other food in it later). If you have a mixed kitchen, crumbs end up eveywhere and gluten gets stuck to frig handles, drawers, crumbs get into the silverware and any condiments (even those with spouts - I've watched people bounce them on their wheat bread to move the condiment to the bottom of the jar). And at her age - trying to fit in by eating the meat from the burger or the ice cream off the cone (which she hopefully isn't doing at school). Are they doing cooking classes at school (or is she attempting to eat food prepared in the cafeteria -- both are pretty much guaranteed to contaminate her regularly). You may even want to cut out products where the company won't say the ingredients are gf, but the end result tests gf (nearly all tylenol is this way, about 1/2 the coke products are, etc). It may be just one tiny item she is getting on a fairly regular basis that is causing all the grief. The lactose intolerance is just another in the list of indicators that she is still getting gluten somewhere. --- [This E-mail scanned for viruses by Declude Virus] __________________________________________________

[Guest guest]

She does not take communion, is homeschooled and our house is completely GF. And her doctor said she may not be healing properly. He isn't the type of person who would humor me, and I hope that hasn't been your experience. I am well educated about the GF lifestyle, which would have saved you quite a lot of typing. Not every case is the same, and she could have mitigating circumstances that are affecting her healing. And by the way, Irish Oats are GF. Dana, Gloriously GF"K. Oland" wrote: > Hi everyone and Happy Holidays to all! My 12 year old daughter has > been GF for 2 years but is experiencing devestating joint pain, and > also mouth sores again. We are religiously GF so I know she's not > getting any

gluten. Don't take this the wrong way, but does that include avoiding the low gluten host and any wine that a wheat has has been dipped in? > I spoke with her gastro today, and he said she > may still have active Celiac even though she's been GF for so long. Perhaps he's trying to be nice - active CD is only there in response to gluten ingestion. > Has anyone ever heard of symptoms existing > after being GF for a long time? Most newer studies are showing that symptoms remaining are always due to ingestion of gluten (not always intentional). True refractory sprue may, in fact, not exist (esp in teens and kids, who heal so much faster than the elderly, which is where RS is normally diagnosed). > At first they thought she had lupus > or rheumatoid arthritis, but thank God the DNA tests came back > negative! At least there was some good news.

> What more can you do but keep GF? You can look at ways she is getting contaminated: eating out, cleaning practices at school (often found to be a problem by those who haver their kids at home in summer and control the environment more), bath and beauty products (esp lip products and lotions and face products - but nearly any product has at least one person on this list who got better after stopping one particular gluten containing grooming product), eating oatmeal (caused CD damage in a high percentage of those with CD when lab purified product and small amounts over a short time were used -- since you can't get wheat free at all, any oats are just asking for damage) or commercial cereals (all but about two contain malt from barley and many previously "safe" brands are now made with wheat starch (malt-o-meal and many store brands they were sold under), overreliance on "probably safe" ingredients or

ignoring "flavorings" for companies that are not on the (very small) list that guarantee clear labeling of all gluten ingredients. Baking with wheat flour in the home and sharing wooden utensils or teflon/cast iron pans between gf and non-gf foods, sharing a toaster, not cleaning the microwave often (gross! not just a gluten source), sharing a colander for draining pasta (or worse - using the same pot; the wheat starch that cooks out of pasta coats the pan and is very, very difficult to remove, but come out easily when heating some other food in it later). If you have a mixed kitchen, crumbs end up eveywhere and gluten gets stuck to frig handles, drawers, crumbs get into the silverware and any condiments (even those with spouts - I've watched people bounce them on their wheat bread to move the condiment to the bottom of the jar). And at her age - trying to fit in by eating the meat from the burger or the ice cream off the cone (which she hopefully isn't doing at school). Are they doing cooking classes at school (or is she attempting to eat food prepared in the cafeteria -- both are pretty much guaranteed to contaminate her regularly). You may even want to cut out products where the company won't say the ingredients are gf, but the end result tests gf (nearly all tylenol is this way, about 1/2 the coke products are, etc). It may be just one tiny item she is getting on a fairly regular basis that is causing all the grief. The lactose intolerance is just another in the list of indicators that she is still getting gluten somewhere. --- [This E-mail scanned for viruses by Declude Virus] __________________________________________________

[Guest guest]

She does not take communion, is homeschooled and our house is completely GF. And her doctor said she may not be healing properly. He isn't the type of person who would humor me, and I hope that hasn't been your experience. I am well educated about the GF lifestyle, which would have saved you quite a lot of typing. Not every case is the same, and she could have mitigating circumstances that are affecting her healing. And by the way, Irish Oats are GF. Dana, Gloriously GF"K. Oland" wrote: > Hi everyone and Happy Holidays to all! My 12 year old daughter has > been GF for 2 years but is experiencing devestating joint pain, and > also mouth sores again. We are religiously GF so I know she's not > getting any

gluten. Don't take this the wrong way, but does that include avoiding the low gluten host and any wine that a wheat has has been dipped in? > I spoke with her gastro today, and he said she > may still have active Celiac even though she's been GF for so long. Perhaps he's trying to be nice - active CD is only there in response to gluten ingestion. > Has anyone ever heard of symptoms existing > after being GF for a long time? Most newer studies are showing that symptoms remaining are always due to ingestion of gluten (not always intentional). True refractory sprue may, in fact, not exist (esp in teens and kids, who heal so much faster than the elderly, which is where RS is normally diagnosed). > At first they thought she had lupus > or rheumatoid arthritis, but thank God the DNA tests came back > negative! At least there was some good news.

> What more can you do but keep GF? You can look at ways she is getting contaminated: eating out, cleaning practices at school (often found to be a problem by those who haver their kids at home in summer and control the environment more), bath and beauty products (esp lip products and lotions and face products - but nearly any product has at least one person on this list who got better after stopping one particular gluten containing grooming product), eating oatmeal (caused CD damage in a high percentage of those with CD when lab purified product and small amounts over a short time were used -- since you can't get wheat free at all, any oats are just asking for damage) or commercial cereals (all but about two contain malt from barley and many previously "safe" brands are now made with wheat starch (malt-o-meal and many store brands they were sold under), overreliance on "probably safe" ingredients or

ignoring "flavorings" for companies that are not on the (very small) list that guarantee clear labeling of all gluten ingredients. Baking with wheat flour in the home and sharing wooden utensils or teflon/cast iron pans between gf and non-gf foods, sharing a toaster, not cleaning the microwave often (gross! not just a gluten source), sharing a colander for draining pasta (or worse - using the same pot; the wheat starch that cooks out of pasta coats the pan and is very, very difficult to remove, but come out easily when heating some other food in it later). If you have a mixed kitchen, crumbs end up eveywhere and gluten gets stuck to frig handles, drawers, crumbs get into the silverware and any condiments (even those with spouts - I've watched people bounce them on their wheat bread to move the condiment to the bottom of the jar). And at her age - trying to fit in by eating the meat from the burger or the ice cream off the cone (which she hopefully isn't doing at school). Are they doing cooking classes at school (or is she attempting to eat food prepared in the cafeteria -- both are pretty much guaranteed to contaminate her regularly). You may even want to cut out products where the company won't say the ingredients are gf, but the end result tests gf (nearly all tylenol is this way, about 1/2 the coke products are, etc). It may be just one tiny item she is getting on a fairly regular basis that is causing all the grief. The lactose intolerance is just another in the list of indicators that she is still getting gluten somewhere. --- [This E-mail scanned for viruses by Declude Virus] __________________________________________________

[Guest guest]

We haven't looked into it, but I would imagine the scope would show evidence of it if it was there. Thanks for the info! Dana, Gloriously GFRhiannon wrote: Have you ever read anything about candidiasis. It is a possibility. You should do some research on it and see if her symptoms match. > > Hi everyone and Happy Holidays to all! My 12 year old daughter has > been GF for 2 years but is experiencing devestating joint pain, and > also mouth sores again. We are religiously GF so I know she's not > getting any gluten. I spoke with her gastro today, and he said she > may

still have active Celiac even though she's been GF for so long. > She is also terribly lactose intolerant, and being as the receptors > for lactose are on the tips of the villi that CD destroys, it may be > that hers haven't grown back. She is having blood work and another > scope to check things out. Has anyone ever heard of symptoms existing > after being GF for a long time? At first they thought she had lupus > or rheumatoid arthritis, but thank God the DNA tests came back > negative! So we are biding our time until the scope and hoping for > some answers. Does anyone know what can be done if this turns out to > be the case? > What more can you do but keep GF? I would appreciate any info you > guys may have. This Christmas, I am especially grateful for Silly > Yaks, because I feel like I have a bunch of

friends who know exactly > how I feel! > Dana, Gloriously GF > __________________________________________________

[Guest guest]

> She does not take communion, is homeschooled and our house is

> completely GF. And her doctor said she may not be healing

> properly. He isn't the type of person who would humor me, and I

> hope that hasn't been your experience. I am well educated about

> the GF lifestyle, which would have saved you quite a lot of

> typing. Not every case is the same, and she could have mitigating

> circumstances that are affecting her healing. And by the way,

> Irish Oats are GF.

I take it he's looking for refractory sprue?

The oats you find may be completely free of wheat, barley, and rye

contamination, but many folks with CD appear to react to avenin (oat

protein) just as surely as they react to gliadin, hordein, and secalin.

Good luck!

ygg

[Guest guest]

> She does not take communion, is homeschooled and our house is

> completely GF. And her doctor said she may not be healing

> properly. He isn't the type of person who would humor me, and I

> hope that hasn't been your experience. I am well educated about

> the GF lifestyle, which would have saved you quite a lot of

> typing. Not every case is the same, and she could have mitigating

> circumstances that are affecting her healing. And by the way,

> Irish Oats are GF.

I take it he's looking for refractory sprue?

The oats you find may be completely free of wheat, barley, and rye

contamination, but many folks with CD appear to react to avenin (oat

protein) just as surely as they react to gliadin, hordein, and secalin.

Good luck!

ygg

[Guest guest]

Wow, I didn't know that! She has only had Irish oats once in the last two years, so that's probably not it, but it's really good to know! Thanks! Dana, Gloriously GFeye of newt wrote: > She does not take communion, is homeschooled and our house is > completely GF. And her doctor said she may not be healing > properly. He isn't the type of person who would humor me, and I > hope that hasn't been your experience. I am well educated about > the GF lifestyle, which would have saved you quite a lot of > typing. Not every case is the same, and she could have mitigating > circumstances that

are affecting her healing. And by the way, > Irish Oats are GF. I take it he's looking for refractory sprue? The oats you find may be completely free of wheat, barley, and rye contamination, but many folks with CD appear to react to avenin (oat protein) just as surely as they react to gliadin, hordein, and secalin. Good luck! ygg __________________________________________________

[Guest guest]

Wow, I didn't know that! She has only had Irish oats once in the last two years, so that's probably not it, but it's really good to know! Thanks! Dana, Gloriously GFeye of newt wrote: > She does not take communion, is homeschooled and our house is > completely GF. And her doctor said she may not be healing > properly. He isn't the type of person who would humor me, and I > hope that hasn't been your experience. I am well educated about > the GF lifestyle, which would have saved you quite a lot of > typing. Not every case is the same, and she could have mitigating > circumstances that

are affecting her healing. And by the way, > Irish Oats are GF. I take it he's looking for refractory sprue? The oats you find may be completely free of wheat, barley, and rye contamination, but many folks with CD appear to react to avenin (oat protein) just as surely as they react to gliadin, hordein, and secalin. Good luck! ygg __________________________________________________

[Guest guest]

--- dana gault wrote:

> She does not take communion, is homeschooled and

> our house is completely GF. And her doctor said she

> may not be healing properly. He isn't the type of

> person who would humor me, and I hope that hasn't

> been your experience. I am well educated about the

> GF lifestyle, which would have saved you quite a lot

> of typing. Not every case is the same, and she

> could have mitigating circumstances that are

> affecting her healing. And by the way, Irish Oats

> are GF.

> Dana, Gloriously GF

>

Hi Dana,

What brand of oats are you using? I haven't heard of a

brand that guarentees that theirs are GF? (I thought

McCanns said they cannot make that claim). Also, if

your daughter is eating oats, why not take her off

awhile and see how she does? From what I have read in

the past some celiacs still have problems with oats.

Good luck,

Molly

__________________________________________________

[Guest guest]

--- dana gault wrote:

> She does not take communion, is homeschooled and

> our house is completely GF. And her doctor said she

> may not be healing properly. He isn't the type of

> person who would humor me, and I hope that hasn't

> been your experience. I am well educated about the

> GF lifestyle, which would have saved you quite a lot

> of typing. Not every case is the same, and she

> could have mitigating circumstances that are

> affecting her healing. And by the way, Irish Oats

> are GF.

> Dana, Gloriously GF

>

Hi Dana,

What brand of oats are you using? I haven't heard of a

brand that guarentees that theirs are GF? (I thought

McCanns said they cannot make that claim). Also, if

your daughter is eating oats, why not take her off

awhile and see how she does? From what I have read in

the past some celiacs still have problems with oats.

Good luck,

Molly

__________________________________________________

[Guest guest]

She's eaten them once in the last two years, so I don't think that's it, but it is interesting that some celiacs can't tolerate even non-contaminated oats. That's what I love about this site--you learn something new every day! Dana, Gloriously GF the Fox in the Snow wrote: --- dana gault wrote: > She does not take communion, is homeschooled and > our house is completely GF. And her doctor said she > may not be healing properly. He isn't the type of > person who would humor me, and I hope that hasn't > been your experience. I am well educated about the > GF lifestyle, which would have saved you quite a lot > of typing.

Not every case is the same, and she > could have mitigating circumstances that are > affecting her healing. And by the way, Irish Oats > are GF. > Dana, Gloriously GF > Hi Dana, What brand of oats are you using? I haven't heard of a brand that guarentees that theirs are GF? (I thought McCanns said they cannot make that claim). Also, if your daughter is eating oats, why not take her off awhile and see how she does? From what I have read in the past some celiacs still have problems with oats. Good luck, Molly __________________________________________________

[Guest guest]

She's eaten them once in the last two years, so I don't think that's it, but it is interesting that some celiacs can't tolerate even non-contaminated oats. That's what I love about this site--you learn something new every day! Dana, Gloriously GF the Fox in the Snow wrote: --- dana gault wrote: > She does not take communion, is homeschooled and > our house is completely GF. And her doctor said she > may not be healing properly. He isn't the type of > person who would humor me, and I hope that hasn't > been your experience. I am well educated about the > GF lifestyle, which would have saved you quite a lot > of typing.

Not every case is the same, and she > could have mitigating circumstances that are > affecting her healing. And by the way, Irish Oats > are GF. > Dana, Gloriously GF > Hi Dana, What brand of oats are you using? I haven't heard of a brand that guarentees that theirs are GF? (I thought McCanns said they cannot make that claim). Also, if your daughter is eating oats, why not take her off awhile and see how she does? From what I have read in the past some celiacs still have problems with oats. Good luck, Molly __________________________________________________

[Guest guest]

Something just occured to me-- has been eating A LOT more rice in the last couple of months! Rice pasta. lots of rice cakes..I wonder if that is causing the problem? Starting right now, she's off the rice for a while--keep your collective fingers crossed that we find such an easy solution! Also, on celiac.com it said lactose intolerance can impede the healing process in a celiac, and she's lactose intolerant. You really need a detective's license when you get diagnosed! Dana, Gloriously gfdana gault wrote: She's eaten them once in the last two years, so I don't think that's it, but it is interesting that some celiacs can't tolerate even non-contaminated oats. That's what I love about this site--you learn something new

every day! Dana, Gloriously GF the Fox in the Snow wrote: --- dana gault wrote: > She does not take communion, is homeschooled and > our house is completely GF. And her doctor said she > may not be healing properly. He isn't the type of > person who would humor me, and I hope that hasn't > been your experience. I am well educated about the > GF lifestyle, which would have saved you quite a lot > of typing. Not every case is the same, and she > could have mitigating circumstances that are > affecting her healing. And by the way, Irish Oats > are GF. > Dana, Gloriously GF > Hi Dana, What brand of oats are you using? I haven't heard of a brand that guarentees that theirs are GF? (I thought McCanns said they cannot make that claim). Also, if your daughter is eating oats, why not take her off awhile and see how she does? From what I have read in the past some celiacs still have problems with oats. Good luck, Molly __________________________________________________

[Guest guest]

Something just occured to me-- has been eating A LOT more rice in the last couple of months! Rice pasta. lots of rice cakes..I wonder if that is causing the problem? Starting right now, she's off the rice for a while--keep your collective fingers crossed that we find such an easy solution! Also, on celiac.com it said lactose intolerance can impede the healing process in a celiac, and she's lactose intolerant. You really need a detective's license when you get diagnosed! Dana, Gloriously gfdana gault wrote: She's eaten them once in the last two years, so I don't think that's it, but it is interesting that some celiacs can't tolerate even non-contaminated oats. That's what I love about this site--you learn something new

every day! Dana, Gloriously GF the Fox in the Snow wrote: --- dana gault wrote: > She does not take communion, is homeschooled and > our house is completely GF. And her doctor said she > may not be healing properly. He isn't the type of > person who would humor me, and I hope that hasn't > been your experience. I am well educated about the > GF lifestyle, which would have saved you quite a lot > of typing. Not every case is the same, and she > could have mitigating circumstances that are > affecting her healing. And by the way, Irish Oats > are GF. > Dana, Gloriously GF > Hi Dana, What brand of oats are you using? I haven't heard of a brand that guarentees that theirs are GF? (I thought McCanns said they cannot make that claim). Also, if your daughter is eating oats, why not take her off awhile and see how she does? From what I have read in the past some celiacs still have problems with oats. Good luck, Molly __________________________________________________

[Guest guest]

When I was first on the diet, my mom did a weekly rotation diet so I

was not relying exclusively on any one grain, vegetable, or meat. I

think it helped her plan meals and also a way not only to avoid me

becoming intolerant to something through excessive consumption, but

also made it easier to notice if I was reacting to something in my diet

(corn, potato, rice, etc.) This might be something to try, if you have

not tried it already.

[Guest guest]

When I was first on the diet, my mom did a weekly rotation diet so I

was not relying exclusively on any one grain, vegetable, or meat. I

think it helped her plan meals and also a way not only to avoid me

becoming intolerant to something through excessive consumption, but

also made it easier to notice if I was reacting to something in my diet

(corn, potato, rice, etc.) This might be something to try, if you have

not tried it already.

[Guest guest]

When I was first on the diet, my mom did a weekly rotation diet so I

was not relying exclusively on any one grain, vegetable, or meat. I

think it helped her plan meals and also a way not only to avoid me

becoming intolerant to something through excessive consumption, but

also made it easier to notice if I was reacting to something in my diet

(corn, potato, rice, etc.) This might be something to try, if you have

not tried it already.

[Guest guest]

I am definately going to try that, thanks so much! Dana, Gloriously GFseamaiden399 wrote: When I was first on the diet, my mom did a weekly rotation diet so I was not relying exclusively on any one grain, vegetable, or meat. I think it helped her plan meals and also a way not only to avoid me becoming intolerant to something through excessive consumption, but also made it easier to notice if I was reacting to something in my diet (corn, potato, rice, etc.) This might be something to try, if you have not tried it already. __________________________________________________

[Guest guest]

I am definately going to try that, thanks so much! Dana, Gloriously GFseamaiden399 wrote: When I was first on the diet, my mom did a weekly rotation diet so I was not relying exclusively on any one grain, vegetable, or meat. I think it helped her plan meals and also a way not only to avoid me becoming intolerant to something through excessive consumption, but also made it easier to notice if I was reacting to something in my diet (corn, potato, rice, etc.) This might be something to try, if you have not tried it already. __________________________________________________