Re: help me prep for doc visit?

[Guest guest]

>

> I'm headed to the doc this week (who I *think I've convinced to

> consult with Andy) and I need some advice from you guys about adrenal

> support. I know what I want him to precribe (Cortef), but is there

> anything I should refuse? He agreed my adrenals looked bad, and I've

> since gotten Canary Club test results that confirmed it, so I assume

> he's going to want to treat them somehow.

>

> I feel like I'm rambling. My question is, are there adrenal treatments

> that are bad that we Hg-poisoed peeps should avoid?

>

The worst one is no treatment

Cortef is nice because it is the closest to natural. By taking it

several times a day it gives a daily rhythm that is close to natural.

Some doctors want to prescribe the synthetics (prednisone,

dexamethasone, and I forget what the others are). They are not as

good because the body has to do some conversion, and I think some

poisoned people might have trouble converting them to cortisol. They

are more potent, so it is more difficult to divide the dose and take

smaller amounts. They are longer lasting and (I think) are usually

taken once per day.

J

> Nell

>

[Guest guest]

>

> I'm headed to the doc this week (who I *think I've convinced to

> consult with Andy) and I need some advice from you guys about adrenal

> support. I know what I want him to precribe (Cortef), but is there

> anything I should refuse? He agreed my adrenals looked bad, and I've

> since gotten Canary Club test results that confirmed it, so I assume

> he's going to want to treat them somehow.

>

> I feel like I'm rambling. My question is, are there adrenal treatments

> that are bad that we Hg-poisoed peeps should avoid?

>

The worst one is no treatment

Cortef is nice because it is the closest to natural. By taking it

several times a day it gives a daily rhythm that is close to natural.

Some doctors want to prescribe the synthetics (prednisone,

dexamethasone, and I forget what the others are). They are not as

good because the body has to do some conversion, and I think some

poisoned people might have trouble converting them to cortisol. They

are more potent, so it is more difficult to divide the dose and take

smaller amounts. They are longer lasting and (I think) are usually

taken once per day.

J

> Nell

>

[Guest guest]

>

> I'm headed to the doc this week (who I *think I've convinced to

> consult with Andy) and I need some advice from you guys about adrenal

> support. I know what I want him to precribe (Cortef), but is there

> anything I should refuse? He agreed my adrenals looked bad, and I've

> since gotten Canary Club test results that confirmed it, so I assume

> he's going to want to treat them somehow.

>

> I feel like I'm rambling. My question is, are there adrenal treatments

> that are bad that we Hg-poisoed peeps should avoid?

>

The worst one is no treatment

Cortef is nice because it is the closest to natural. By taking it

several times a day it gives a daily rhythm that is close to natural.

Some doctors want to prescribe the synthetics (prednisone,

dexamethasone, and I forget what the others are). They are not as

good because the body has to do some conversion, and I think some

poisoned people might have trouble converting them to cortisol. They

are more potent, so it is more difficult to divide the dose and take

smaller amounts. They are longer lasting and (I think) are usually

taken once per day.

J

> Nell

>

[Guest guest]

>My question is, are there adrenal treatments

>that are bad that we Hg-poisoed peeps should avoid?

One issue is that Hg-poisoned people often have fungal/yeast issues.

Depending on how bad these are steroids will be contraindicated. My

fungal issues are bad enough that I can't take steroids. However most

people here can and do tolerate them (in one form or other).

.

[Guest guest]

>My question is, are there adrenal treatments

>that are bad that we Hg-poisoed peeps should avoid?

One issue is that Hg-poisoned people often have fungal/yeast issues.

Depending on how bad these are steroids will be contraindicated. My

fungal issues are bad enough that I can't take steroids. However most

people here can and do tolerate them (in one form or other).

.

[Guest guest]

> Cortef is nice because it is the closest to natural. By taking it

> several times a day it gives a daily rhythm that is close to natural.

>

> Some doctors want to prescribe the synthetics (prednisone,

> dexamethasone, and I forget what the others are).

Thanks . I've been resistant to the idea of taking steroids

mostly because my son had such a violently bad reaction to them, way

back before I figured out his Hg poisoning and started biomed. Do you

know if people have reported bad reactions to Cortef? I've seen some

posts where it wasn't working, but so far none that described anything

really bad.

If he sends me off with only licorice I'm going to be so bummed.

Nell

[Guest guest]

> Cortef is nice because it is the closest to natural. By taking it

> several times a day it gives a daily rhythm that is close to natural.

>

> Some doctors want to prescribe the synthetics (prednisone,

> dexamethasone, and I forget what the others are).

Thanks . I've been resistant to the idea of taking steroids

mostly because my son had such a violently bad reaction to them, way

back before I figured out his Hg poisoning and started biomed. Do you

know if people have reported bad reactions to Cortef? I've seen some

posts where it wasn't working, but so far none that described anything

really bad.

If he sends me off with only licorice I'm going to be so bummed.

Nell

[Guest guest]

>

> >My question is, are there adrenal treatments

> >that are bad that we Hg-poisoed peeps should avoid?

>

> One issue is that Hg-poisoned people often have fungal/yeast issues.

> Depending on how bad these are steroids will be contraindicated.

This idea comes from the use of pharmacological doses of steroids.

Too little or too much cortisol impairs immunity. Just the right

amount (physiological dose) helps the immune system.

My

> fungal issues are bad enough that I can't take steroids.

Have you ever been prescribed steroids, what kind, at what dose, and

what happened.

J

However most

> people here can and do tolerate them (in one form or other).

>

> .

>

[Guest guest]

>

> >My question is, are there adrenal treatments

> >that are bad that we Hg-poisoed peeps should avoid?

>

> One issue is that Hg-poisoned people often have fungal/yeast issues.

> Depending on how bad these are steroids will be contraindicated.

This idea comes from the use of pharmacological doses of steroids.

Too little or too much cortisol impairs immunity. Just the right

amount (physiological dose) helps the immune system.

My

> fungal issues are bad enough that I can't take steroids.

Have you ever been prescribed steroids, what kind, at what dose, and

what happened.

J

However most

> people here can and do tolerate them (in one form or other).

>

> .

>

[Guest guest]

>

> > Cortef is nice because it is the closest to natural. By taking it

> > several times a day it gives a daily rhythm that is close to natural.

> >

> > Some doctors want to prescribe the synthetics (prednisone,

> > dexamethasone, and I forget what the others are).

>

> Thanks . I've been resistant to the idea of taking steroids

> mostly because my son had such a violently bad reaction to them,

What happened? Do you remember what the steroid was and the dose?

way

> back before I figured out his Hg poisoning and started biomed. Do you

> know if people have reported bad reactions to Cortef?

While I have been following the 's group no one has reported a

bad reaction while taking physiological doses of cortef. I don't see

why there would be any bad reactions because cortef is the

glucocorticoid made by the adrenals.

Some people have mild stomach irritation. That can be remedied by

taking it with food. I have never had any stomach irritation and I

never take the first morning dose with food.

The side effects that are associated with steroids are at

pharmacological doses. Those side effects don't happen at

physiological doses.

Some of the people in the 's group say that they feel better on

prednisone or dexamethasone (at physiological doses) presumably

because they are longer lasting (longer half life).

I've seen some

> posts where it wasn't working, but so far none that described anything

> really bad.

>

> If he sends me off with only licorice I'm going to be so bummed.

>

You could ask him if he is familiar with these two *medical doctors*

http://members.aol.com/jefferiesw/

https://www.endfatigue.com/home.nsf

Good luck!

J

> Nell

>

[Guest guest]

Thanks . I've been resistant to the idea of taking steroids

> > mostly because my son had such a violently bad reaction to them,

>

>

>

> What happened? Do you remember what the steroid was and the dose?

It was prednisone, I think, given for respiratory trouble when he was

maybe 2.5. He went into a violent meltdown that lasted for days --

screaming, hitting, an expression on his face you don't see on little

kids. He later told me he felt like " killing people with his shoe " .

But definitely pharmcological dosing. After that, whenever he saw any

kind of doc I would tell them NO STEROIDS and some would readily admit

that some people react badly to them and others would act shocked like

I was talking crazy.

>

> While I have been following the 's group no one has reported a

> bad reaction while taking physiological doses of cortef.

That sounds good. Have you gained weight, or is that also a problem

only with pharmacological dosing?

> You could ask him if he is familiar with these two *medical doctors*

>

> http://members.aol.com/jefferiesw/

Oh MY! Jeffries is from my hometown of Charlottesville! My doc has to

listen to his neighbor, right?

Thanks again .

Nell

[Guest guest]

Thanks . I've been resistant to the idea of taking steroids

> > mostly because my son had such a violently bad reaction to them,

>

>

>

> What happened? Do you remember what the steroid was and the dose?

It was prednisone, I think, given for respiratory trouble when he was

maybe 2.5. He went into a violent meltdown that lasted for days --

screaming, hitting, an expression on his face you don't see on little

kids. He later told me he felt like " killing people with his shoe " .

But definitely pharmcological dosing. After that, whenever he saw any

kind of doc I would tell them NO STEROIDS and some would readily admit

that some people react badly to them and others would act shocked like

I was talking crazy.

>

> While I have been following the 's group no one has reported a

> bad reaction while taking physiological doses of cortef.

That sounds good. Have you gained weight, or is that also a problem

only with pharmacological dosing?

> You could ask him if he is familiar with these two *medical doctors*

>

> http://members.aol.com/jefferiesw/

Oh MY! Jeffries is from my hometown of Charlottesville! My doc has to

listen to his neighbor, right?

Thanks again .

Nell

[Guest guest]

Thanks . I've been resistant to the idea of taking steroids

> > mostly because my son had such a violently bad reaction to them,

>

>

>

> What happened? Do you remember what the steroid was and the dose?

It was prednisone, I think, given for respiratory trouble when he was

maybe 2.5. He went into a violent meltdown that lasted for days --

screaming, hitting, an expression on his face you don't see on little

kids. He later told me he felt like " killing people with his shoe " .

But definitely pharmcological dosing. After that, whenever he saw any

kind of doc I would tell them NO STEROIDS and some would readily admit

that some people react badly to them and others would act shocked like

I was talking crazy.

>

> While I have been following the 's group no one has reported a

> bad reaction while taking physiological doses of cortef.

That sounds good. Have you gained weight, or is that also a problem

only with pharmacological dosing?

> You could ask him if he is familiar with these two *medical doctors*

>

> http://members.aol.com/jefferiesw/

Oh MY! Jeffries is from my hometown of Charlottesville! My doc has to

listen to his neighbor, right?

Thanks again .

Nell

[Guest guest]

> > While I have been following the 's group no one has reported a

> > bad reaction while taking physiological doses of cortef.

>

> That sounds good. Have you gained weight, or is that also a problem

> only with pharmacological dosing?

>

I didn't gain weight during the first two years when my maintenance

dose was 30 mg/day. I did gain weight during the third year when my

dose was higher and I had to stress dose on top of that frequently. I

am an extremely unusual case (as far as I can tell). Most people,

even in the 's group, keep their maintenance dose and 20 mg or

below. (When I was first started at 20 mg I was sleeping 18 h per day).

> > You could ask him if he is familiar with these two *medical doctors*

> >

> > http://members.aol.com/jefferiesw/

>

> Oh MY! Jeffries is from my hometown of Charlottesville! My doc has to

> listen to his neighbor, right?

>

Right. Maybe they could even go for coffee.

J

> Thanks again .

>

> Nell

>

[Guest guest]

> > While I have been following the 's group no one has reported a

> > bad reaction while taking physiological doses of cortef.

>

> That sounds good. Have you gained weight, or is that also a problem

> only with pharmacological dosing?

>

I didn't gain weight during the first two years when my maintenance

dose was 30 mg/day. I did gain weight during the third year when my

dose was higher and I had to stress dose on top of that frequently. I

am an extremely unusual case (as far as I can tell). Most people,

even in the 's group, keep their maintenance dose and 20 mg or

below. (When I was first started at 20 mg I was sleeping 18 h per day).

> > You could ask him if he is familiar with these two *medical doctors*

> >

> > http://members.aol.com/jefferiesw/

>

> Oh MY! Jeffries is from my hometown of Charlottesville! My doc has to

> listen to his neighbor, right?

>

Right. Maybe they could even go for coffee.

J

> Thanks again .

>

> Nell

>

[Guest guest]

I took Isocort and after 5 days my arthritis was soooo bad I thought I would

need a wheelchair, didn't make me irritable and/or angry. It took about

three days to wear off. After that I just took, ACE, B5 and C, every 3

hours and it worked much better without the side effects.

Re: help me prep for doc visit?

>

>

>> > While I have been following the 's group no one has reported a

>> > bad reaction while taking physiological doses of cortef.

>>

>> That sounds good. Have you gained weight, or is that also a problem

>> only with pharmacological dosing?

>>

>

>

>

>

> I didn't gain weight during the first two years when my maintenance

> dose was 30 mg/day. I did gain weight during the third year when my

> dose was higher and I had to stress dose on top of that frequently. I

> am an extremely unusual case (as far as I can tell). Most people,

> even in the 's group, keep their maintenance dose and 20 mg or

> below. (When I was first started at 20 mg I was sleeping 18 h per day).

>

>

>

>

>

>

>> > You could ask him if he is familiar with these two *medical doctors*

>> >

>> > http://members.aol.com/jefferiesw/

>>

>> Oh MY! Jeffries is from my hometown of Charlottesville! My doc has to

>> listen to his neighbor, right?

>>

>

>

>

> Right. Maybe they could even go for coffee.

>

> J

>

>

>

>

>

>

>> Thanks again .

>>

>> Nell

>>

>

>

>

>

>

>

>

>

[Guest guest]

I took Isocort and after 5 days my arthritis was soooo bad I thought I would

need a wheelchair, didn't make me irritable and/or angry. It took about

three days to wear off. After that I just took, ACE, B5 and C, every 3

hours and it worked much better without the side effects.

Re: help me prep for doc visit?

>

>

>> > While I have been following the 's group no one has reported a

>> > bad reaction while taking physiological doses of cortef.

>>

>> That sounds good. Have you gained weight, or is that also a problem

>> only with pharmacological dosing?

>>

>

>

>

>

> I didn't gain weight during the first two years when my maintenance

> dose was 30 mg/day. I did gain weight during the third year when my

> dose was higher and I had to stress dose on top of that frequently. I

> am an extremely unusual case (as far as I can tell). Most people,

> even in the 's group, keep their maintenance dose and 20 mg or

> below. (When I was first started at 20 mg I was sleeping 18 h per day).

>

>

>

>

>

>

>> > You could ask him if he is familiar with these two *medical doctors*

>> >

>> > http://members.aol.com/jefferiesw/

>>

>> Oh MY! Jeffries is from my hometown of Charlottesville! My doc has to

>> listen to his neighbor, right?

>>

>

>

>

> Right. Maybe they could even go for coffee.

>

> J

>

>

>

>

>

>

>> Thanks again .

>>

>> Nell

>>

>

>

>

>

>

>

>

>

[Guest guest]

I took Isocort and after 5 days my arthritis was soooo bad I thought I would

need a wheelchair, didn't make me irritable and/or angry. It took about

three days to wear off. After that I just took, ACE, B5 and C, every 3

hours and it worked much better without the side effects.

Re: help me prep for doc visit?

>

>

>> > While I have been following the 's group no one has reported a

>> > bad reaction while taking physiological doses of cortef.

>>

>> That sounds good. Have you gained weight, or is that also a problem

>> only with pharmacological dosing?

>>

>

>

>

>

> I didn't gain weight during the first two years when my maintenance

> dose was 30 mg/day. I did gain weight during the third year when my

> dose was higher and I had to stress dose on top of that frequently. I

> am an extremely unusual case (as far as I can tell). Most people,

> even in the 's group, keep their maintenance dose and 20 mg or

> below. (When I was first started at 20 mg I was sleeping 18 h per day).

>

>

>

>

>

>

>> > You could ask him if he is familiar with these two *medical doctors*

>> >

>> > http://members.aol.com/jefferiesw/

>>

>> Oh MY! Jeffries is from my hometown of Charlottesville! My doc has to

>> listen to his neighbor, right?

>>

>

>

>

> Right. Maybe they could even go for coffee.

>

> J

>

>

>

>

>

>

>> Thanks again .

>>

>> Nell

>>

>

>

>

>

>

>

>

>

[Guest guest]

> >

> >> > While I have been following the 's group no one has

reported a

> >> > bad reaction while taking physiological doses of cortef.

> >>

> >> That sounds good. Have you gained weight, or is that also a problem

> >> only with pharmacological dosing?

> >>

> >

> >

> >

> >

> > I didn't gain weight during the first two years when my maintenance

> > dose was 30 mg/day. I did gain weight during the third year when my

> > dose was higher and I had to stress dose on top of that frequently. I

> > am an extremely unusual case (as far as I can tell). Most people,

> > even in the 's group, keep their maintenance dose and 20 mg or

> > below. (When I was first started at 20 mg I was sleeping 18 h per

day).

> >

> >

> >

> >

> >

> >

> >> > You could ask him if he is familiar with these two *medical

doctors*

> >> >

> >> > http://members.aol.com/jefferiesw/

> >>

> >> Oh MY! Jeffries is from my hometown of Charlottesville! My doc has to

> >> listen to his neighbor, right?

> >>

> >

> >

> >

> > Right. Maybe they could even go for coffee.

> >

> > J

> >

> >

> >

> >

> >

> >

> >> Thanks again .

> >>

> >> Nell

> >>

> >

> >

> >

> >

> >

> >

> >

> >

[Guest guest]

> >

> >> > While I have been following the 's group no one has

reported a

> >> > bad reaction while taking physiological doses of cortef.

> >>

> >> That sounds good. Have you gained weight, or is that also a problem

> >> only with pharmacological dosing?

> >>

> >

> >

> >

> >

> > I didn't gain weight during the first two years when my maintenance

> > dose was 30 mg/day. I did gain weight during the third year when my

> > dose was higher and I had to stress dose on top of that frequently. I

> > am an extremely unusual case (as far as I can tell). Most people,

> > even in the 's group, keep their maintenance dose and 20 mg or

> > below. (When I was first started at 20 mg I was sleeping 18 h per

day).

> >

> >

> >

> >

> >

> >

> >> > You could ask him if he is familiar with these two *medical

doctors*

> >> >

> >> > http://members.aol.com/jefferiesw/

> >>

> >> Oh MY! Jeffries is from my hometown of Charlottesville! My doc has to

> >> listen to his neighbor, right?

> >>

> >

> >

> >

> > Right. Maybe they could even go for coffee.

> >

> > J

> >

> >

> >

> >

> >

> >

> >> Thanks again .

> >>

> >> Nell

> >>

> >

> >

> >

> >

> >

> >

> >

> >

[Guest guest]

>

> I take Echinacea regularly (when I am coming down with a cold) and it

> doesn't seem to cause any problems with arthritis. I think it was the

> cortisone? Don't know what it was, but won't be doing that again

anytime

> soon.

>

>

Maybe it was the cortisone. I just meant to say there are multiple

ingredients in Isocort, so it's hard to be certain.

Hopefully you won't ever need to take cortisone. I've managed

to avoid it, and my adrenals are much improved since last year.

--