Guest guest Posted October 22, 2000 Report Share Posted October 22, 2000 I agree wholeheartedly--my friends always say it is not as bad as I think it is!! GLORIA Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 22, 2000 Report Share Posted October 22, 2000 I agree wholeheartedly--my friends always say it is not as bad as I think it is!! GLORIA Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 22, 2000 Report Share Posted October 22, 2000 I agree wholeheartedly--my friends always say it is not as bad as I think it is!! GLORIA Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 22, 2000 Report Share Posted October 22, 2000 I have been fighting this awful disease for ten years now and am always looking for the cure.I would be interested if some of you are like me and find yourselves checking in mirrors to see how my face looks and it seems the more I look the worse it gets is it possible that we are our own worse enemys and according to my friends it doesnt look half as bad as I think. What do you guys think. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 23, 2000 Report Share Posted October 23, 2000 Yes, I think anytime someone has something different especially on your face we all tend to be very self conscience. No matter what we look like (common or very good looking) our face is important to us. It is the first thing you see when you meet someone. It is usually the last thing you remember about someone. In a way we are all vain when it comes to our looks. My husband used to tell me I didn't look bad but the mirror told me different. Of course I could feel the stinging, and flushes when he couldn't. There were times I didn't even want to look in the mirror either. Well, now I have calmed down and started not to worry about it as much. When I did it seems as if the rosacea calmed down to. It didn't go away but maybe I looked at myself a little differently. Bobbye Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 23, 2000 Report Share Posted October 23, 2000 Yes, I think anytime someone has something different especially on your face we all tend to be very self conscience. No matter what we look like (common or very good looking) our face is important to us. It is the first thing you see when you meet someone. It is usually the last thing you remember about someone. In a way we are all vain when it comes to our looks. My husband used to tell me I didn't look bad but the mirror told me different. Of course I could feel the stinging, and flushes when he couldn't. There were times I didn't even want to look in the mirror either. Well, now I have calmed down and started not to worry about it as much. When I did it seems as if the rosacea calmed down to. It didn't go away but maybe I looked at myself a little differently. Bobbye Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 23, 2000 Report Share Posted October 23, 2000 Yes, I think anytime someone has something different especially on your face we all tend to be very self conscience. No matter what we look like (common or very good looking) our face is important to us. It is the first thing you see when you meet someone. It is usually the last thing you remember about someone. In a way we are all vain when it comes to our looks. My husband used to tell me I didn't look bad but the mirror told me different. Of course I could feel the stinging, and flushes when he couldn't. There were times I didn't even want to look in the mirror either. Well, now I have calmed down and started not to worry about it as much. When I did it seems as if the rosacea calmed down to. It didn't go away but maybe I looked at myself a little differently. Bobbye Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 23, 2000 Report Share Posted October 23, 2000 I think you are absolutely right. Whenever I tell anyone I have rosacea they always say it doesn't look that bad. When I told friends I was contemplating laser treatment,they were shocked they felt it wasn't worth it given that my rosacea is quite mild. How we feel about how we look is I guess at the end of the day the most important thing. I know I got really obsessive at first, running every morning to check how my face looked and my whole day would be affected by any minor change in condition of my skin. Now that I am learning to deal with stress better and forcing myself to be less obsessive, I am feel much better regardless of how my skin looks. This is hard particularly when I have just started experiencing flares after a period of relative remission. I think for everyone with this condition dealing with issues of self esteem and confidence is as important as treating the condition itself. Especially with the weight our society attaches to how we look. Good luck with everything, > I have been fighting this awful disease for ten years now and am > always looking for the cure.I would be interested if some of you are > like me and find yourselves checking in mirrors to see how my face > looks and it seems the more I look the worse it gets is it possible > that we are our own worse enemys and according to my friends it > doesnt look half as bad as I think. What do you guys think. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 23, 2000 Report Share Posted October 23, 2000 I think you are absolutely right. Whenever I tell anyone I have rosacea they always say it doesn't look that bad. When I told friends I was contemplating laser treatment,they were shocked they felt it wasn't worth it given that my rosacea is quite mild. How we feel about how we look is I guess at the end of the day the most important thing. I know I got really obsessive at first, running every morning to check how my face looked and my whole day would be affected by any minor change in condition of my skin. Now that I am learning to deal with stress better and forcing myself to be less obsessive, I am feel much better regardless of how my skin looks. This is hard particularly when I have just started experiencing flares after a period of relative remission. I think for everyone with this condition dealing with issues of self esteem and confidence is as important as treating the condition itself. Especially with the weight our society attaches to how we look. Good luck with everything, > I have been fighting this awful disease for ten years now and am > always looking for the cure.I would be interested if some of you are > like me and find yourselves checking in mirrors to see how my face > looks and it seems the more I look the worse it gets is it possible > that we are our own worse enemys and according to my friends it > doesnt look half as bad as I think. What do you guys think. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 24, 2000 Report Share Posted October 24, 2000 For the first three or four years I was ALWAYS looking in the mirror. For the past two years I rarely bother. Only when my face feels extremely hot after doing something I shouldn't, like eating something spicy. My friends/family always tell me that it doesn't look anywhere near as bad as I seem to think it is. I'm not sure that's true because in photographs my face looks like a tomato. The real difference is I have managed to reach a place where most of the time I just don't care anymore. Sherry hastie@... wrote: > I have been fighting this awful disease for ten years now and am > always looking for the cure.I would be interested if some of you are > like me and find yourselves checking in mirrors to see how my face > looks and it seems the more I look the worse it gets is it possible > that we are our own worse enemys and according to my friends it > doesnt look half as bad as I think. What do you guys think. > > ----------------------------------------------------------------- > Please read the list highlights thoroughly before posting to the whole group. See http://rosacea.ii.net/toc.html > > When replying, please delete all text at the end of your email that isn't necessary for your message. > > To leave the list send an email to rosacea-support-unsubscribeegroups Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 24, 2000 Report Share Posted October 24, 2000 For the first three or four years I was ALWAYS looking in the mirror. For the past two years I rarely bother. Only when my face feels extremely hot after doing something I shouldn't, like eating something spicy. My friends/family always tell me that it doesn't look anywhere near as bad as I seem to think it is. I'm not sure that's true because in photographs my face looks like a tomato. The real difference is I have managed to reach a place where most of the time I just don't care anymore. Sherry hastie@... wrote: > I have been fighting this awful disease for ten years now and am > always looking for the cure.I would be interested if some of you are > like me and find yourselves checking in mirrors to see how my face > looks and it seems the more I look the worse it gets is it possible > that we are our own worse enemys and according to my friends it > doesnt look half as bad as I think. What do you guys think. > > ----------------------------------------------------------------- > Please read the list highlights thoroughly before posting to the whole group. See http://rosacea.ii.net/toc.html > > When replying, please delete all text at the end of your email that isn't necessary for your message. > > To leave the list send an email to rosacea-support-unsubscribeegroups Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 24, 2000 Report Share Posted October 24, 2000 In a message dated 10-24-00 1:27:40 PM Eastern Daylight Time, scowboy79@... writes: << Yet when I come home depressed after a long day, instead of getting a least a little bit support or understanding , I keep hearing " ohh your skin is OK. There is nothing to be depressed about " . So in a way my parents/relatives are denying me having any skin problem , this sucks. They dont want to accept the fact that I have a serious debilitationg condition I have to deal with daily. I came to conclusion my family is too busy with their own lives and problem and that they just dont care about my pain. >> I think parents/relatives says this with good intentions...they know they can't fix it for you...so they think that if they say this you will believe it and suddenly be happy again. Just doesn't work that way...vent and talk on the group as much as you need...getting the pain out really helps. Darlene Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 24, 2000 Report Share Posted October 24, 2000 In a message dated 10-24-00 1:27:40 PM Eastern Daylight Time, scowboy79@... writes: << Yet when I come home depressed after a long day, instead of getting a least a little bit support or understanding , I keep hearing " ohh your skin is OK. There is nothing to be depressed about " . So in a way my parents/relatives are denying me having any skin problem , this sucks. They dont want to accept the fact that I have a serious debilitationg condition I have to deal with daily. I came to conclusion my family is too busy with their own lives and problem and that they just dont care about my pain. >> I think parents/relatives says this with good intentions...they know they can't fix it for you...so they think that if they say this you will believe it and suddenly be happy again. Just doesn't work that way...vent and talk on the group as much as you need...getting the pain out really helps. Darlene Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 24, 2000 Report Share Posted October 24, 2000 In a message dated 10-24-00 1:27:40 PM Eastern Daylight Time, scowboy79@... writes: << Yet when I come home depressed after a long day, instead of getting a least a little bit support or understanding , I keep hearing " ohh your skin is OK. There is nothing to be depressed about " . So in a way my parents/relatives are denying me having any skin problem , this sucks. They dont want to accept the fact that I have a serious debilitationg condition I have to deal with daily. I came to conclusion my family is too busy with their own lives and problem and that they just dont care about my pain. >> I think parents/relatives says this with good intentions...they know they can't fix it for you...so they think that if they say this you will believe it and suddenly be happy again. Just doesn't work that way...vent and talk on the group as much as you need...getting the pain out really helps. Darlene Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 24, 2000 Report Share Posted October 24, 2000 I agree with Darlene. My family was the same way. But we all know when we look in the mirror what we see. The dont mean to ignore us but remember the saying " love is blind " Bobbye Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 24, 2000 Report Share Posted October 24, 2000 I agree with Darlene. My family was the same way. But we all know when we look in the mirror what we see. The dont mean to ignore us but remember the saying " love is blind " Bobbye Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 24, 2000 Report Share Posted October 24, 2000 I agree with Darlene. My family was the same way. But we all know when we look in the mirror what we see. The dont mean to ignore us but remember the saying " love is blind " Bobbye Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 24, 2000 Report Share Posted October 24, 2000 I think the redness is sometimes the hardest thing to deal with. Recently I went to a dance where I both clogged and square danced back to back and after a while someone mentioned that my face was as red as my skirt!! I knew it was because I could feel it ... but, oh well, I was having fun and there was no way to avoid it without sitting on the side and watching. I am pretty aware of this when I go to dances and usually look in the mirror and say - yup, red again. I don't let it stop me though and I don't do anything about it (like cooling scarves, fans, etc). The only thing is that I hope people don't think I'm totally out of shape because I get so red from any exertion. I don't like it but since there really isn't much I can do about it I just shrug and carry on. Judi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 24, 2000 Report Share Posted October 24, 2000 I think the redness is sometimes the hardest thing to deal with. Recently I went to a dance where I both clogged and square danced back to back and after a while someone mentioned that my face was as red as my skirt!! I knew it was because I could feel it ... but, oh well, I was having fun and there was no way to avoid it without sitting on the side and watching. I am pretty aware of this when I go to dances and usually look in the mirror and say - yup, red again. I don't let it stop me though and I don't do anything about it (like cooling scarves, fans, etc). The only thing is that I hope people don't think I'm totally out of shape because I get so red from any exertion. I don't like it but since there really isn't much I can do about it I just shrug and carry on. Judi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 24, 2000 Report Share Posted October 24, 2000 I think the redness is sometimes the hardest thing to deal with. Recently I went to a dance where I both clogged and square danced back to back and after a while someone mentioned that my face was as red as my skirt!! I knew it was because I could feel it ... but, oh well, I was having fun and there was no way to avoid it without sitting on the side and watching. I am pretty aware of this when I go to dances and usually look in the mirror and say - yup, red again. I don't let it stop me though and I don't do anything about it (like cooling scarves, fans, etc). The only thing is that I hope people don't think I'm totally out of shape because I get so red from any exertion. I don't like it but since there really isn't much I can do about it I just shrug and carry on. Judi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 24, 2000 Report Share Posted October 24, 2000 Well all I can say is that photos dont lie. Last time Ive seen a close up photo of my face I had a real proof right there how bad my skin really is. However, what really pisses me off is that my parents and relatives keep telling me that my face is not as red/bad as it looks. Having acne and rosacea at the same time causes a lot of emotional pain for me.Every single day I have to deal with situations when people would stare at me as if I've grown hideous horns on my head... you get the idea. Yet when I come home depressed after a long day, instead of getting a least a little bit support or understanding , I keep hearing " ohh your skin is OK. There is nothing to be depressed about " . So in a way my parents/relatives are denying me having any skin problem , this sucks. They dont want to accept the fact that I have a serious debilitationg condition I have to deal with daily. I came to conclusion my family is too busy with their own lives and problem and that they just dont care about my pain. Even cancer , HIV patients get support from their families and friends . IN my case, my rosacea/acne is non-existant for my family & relatives, which means I never get any support or understanding from them... Im just glad I found this group where people can relate to what Im goin through. SC, Tired... __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 24, 2000 Report Share Posted October 24, 2000 Well all I can say is that photos dont lie. Last time Ive seen a close up photo of my face I had a real proof right there how bad my skin really is. However, what really pisses me off is that my parents and relatives keep telling me that my face is not as red/bad as it looks. Having acne and rosacea at the same time causes a lot of emotional pain for me.Every single day I have to deal with situations when people would stare at me as if I've grown hideous horns on my head... you get the idea. Yet when I come home depressed after a long day, instead of getting a least a little bit support or understanding , I keep hearing " ohh your skin is OK. There is nothing to be depressed about " . So in a way my parents/relatives are denying me having any skin problem , this sucks. They dont want to accept the fact that I have a serious debilitationg condition I have to deal with daily. I came to conclusion my family is too busy with their own lives and problem and that they just dont care about my pain. Even cancer , HIV patients get support from their families and friends . IN my case, my rosacea/acne is non-existant for my family & relatives, which means I never get any support or understanding from them... Im just glad I found this group where people can relate to what Im goin through. SC, Tired... __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 24, 2000 Report Share Posted October 24, 2000 Well all I can say is that photos dont lie. Last time Ive seen a close up photo of my face I had a real proof right there how bad my skin really is. However, what really pisses me off is that my parents and relatives keep telling me that my face is not as red/bad as it looks. Having acne and rosacea at the same time causes a lot of emotional pain for me.Every single day I have to deal with situations when people would stare at me as if I've grown hideous horns on my head... you get the idea. Yet when I come home depressed after a long day, instead of getting a least a little bit support or understanding , I keep hearing " ohh your skin is OK. There is nothing to be depressed about " . So in a way my parents/relatives are denying me having any skin problem , this sucks. They dont want to accept the fact that I have a serious debilitationg condition I have to deal with daily. I came to conclusion my family is too busy with their own lives and problem and that they just dont care about my pain. Even cancer , HIV patients get support from their families and friends . IN my case, my rosacea/acne is non-existant for my family & relatives, which means I never get any support or understanding from them... Im just glad I found this group where people can relate to what Im goin through. SC, Tired... __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 24, 2000 Report Share Posted October 24, 2000 Way to go Judi! I dance too, International Folk Dance. And yes my face often gets really red. Some things I won't give up. I try to pace myself some to keep it below flaming red but the others in the group have gotten used to it. They comment sometimes " she's warm now " but are not making fun of me or making me feel bad, just letting me know they care. My extended family says the usual - it's not as bad as you think - and they may be right. My hair may look messy to me but may seem just fine to everyone else. We are often our own worse critic. Do the best you can and let those who don't like it, lump it! Jane Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 24, 2000 Report Share Posted October 24, 2000 Way to go Judi! I dance too, International Folk Dance. And yes my face often gets really red. Some things I won't give up. I try to pace myself some to keep it below flaming red but the others in the group have gotten used to it. They comment sometimes " she's warm now " but are not making fun of me or making me feel bad, just letting me know they care. My extended family says the usual - it's not as bad as you think - and they may be right. My hair may look messy to me but may seem just fine to everyone else. We are often our own worse critic. Do the best you can and let those who don't like it, lump it! Jane Quote Link to comment Share on other sites More sharing options...
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