Questions/stuff/

September 24, 2001

Good morning everybody.

I have read through all the post this morning, it's required a lot of

thought. I have been doing a lot of research on the web for FM & CFS I

need to come up with as much information as I can. I don't know if I

asked this yet or not (I hate my memory, well lack of memory) Would any

of you be interested in listing symptoms you have with FM & CFS. I know

everybody is different, but I'm really interested in learning all I can.

There has been a very serious threat made to my family because of my

blackouts. My driving with my medications was added on. And my slurred

speech at times. I have recently learned that CFS can effect your

speech. I do have that much at least to tell the " Umm person? "

If they knew the correct definition of a blackout none of this would of

every happened.

I don't know (but I doubt you have) if any of you have been reported for

being a neglectful (I guess is what she said) parent or bad person just

because of your illness. But that is what happened to me, I cant believe

I just told you all that. I'm so afraid of what people think of me

knowing this has happened. There are no words to describe how horrible I

feel. Iv been pounded down till I'm less than a inch tall over this. I

feel like the worst person. But geesh it's not my fault. No my children

are in no danger. I'd be the first one to get help if I thought I was a

danger to my children. plus the fact that they are 10 & 11 years old.

they are not stupid they know how to eat & go to the bathroom and care

for themselves that way, & all of that good stuff. The last thing she

brought up which was not part of the complaint was that I'm to dangerous

driving with the medications I take. Which is NOT true. My phys Dr.

wrote them a letter saying exactly that, I'm no danger to my children in

any way and there is no danger in my driving. I'm just like any other

person on medication I'm no different. He is very upset at them for

doing this to me.

If they knew the definition to blackouts this would have never happened.

I feel that I should push it AFTER the case is closed until I get a

written apology from the person that made the complaint and the case

worker. Because this all happened because they do not know what Blackout

means.

Not that you all will believe me, none of you know me but I really am a

good mother, honestly. I'm not a bad mother who neglects my children. My

children & husband are my life. If it wasn't for them I have no reason

to go, no reason to get out of bed in the morning.

Anyway that's why I'm trying to compile all of this information. I have

also been loosing weight, I saw that is one of the " symptoms " too. Iv

been learning that a lot of the " problems " that I have seem to be

related to FM & CFS which I didn't know.

There was talk here of getting a good Dr. I sure need one! my PCP thinks

I take too many medications. She has turned 100% against me. This is the

Dr. iv seen all my life. Well, since I was a pre teen I think, she

delivered both of my children and has been their Dr. from birth. She is

no help any more. Get this she refused to treat my ear infection last

week when I saw her for some of these problems because I'm on too many

medications in her eyes. What kind of DR does that!? I just don't know

what to do. I'm scared to leave there but I'm scared to stay. In 1998

they darn near killed me because once again they refused to believe me

when I told them I was sick (from the gastric bypass) I guess that

should have been my first clue to get out of there. I got the name of a

good PA right in town but she hasn't been taking any new patients for a

while now. I need a Dr. now. I do have a pain Dr. I wrote a letter I

need to fax to him today. I told him last time I went in that I have

been in lots more pain. and I needed help my pain patches just arnt

cutting it by themselves anymore. He gave me Zonegran 100mg at night. He

said this was a new med for FM it's only been out 6 months (at that

time). Well it's no help to me. It hasn't been ever but I figured maybe

I just needed to take it longer. I have been taking it long enough now.

I did take one of Hubby's pain killers, endocet and that with my patch

helped a little the endo isn't strong enough for me. In the last few

years iv had 7 operations. And iv been on so many pain killers I now

have to have a high dose for any relief. Nobody seems to understand

though. No matter how much I explain it nobody " gets it " no matter what

I'm talking about. Since many of you have good pain killers that do

help, what can you suggest that would be strong enough and that would

work?

With all of this extra stress going on here for the last few months I'm

at my breaking point. I have taken all the pain I can and I'm at the end

of my rope. I'm done, I cant do it any longer.

My life seems to be such a huge mess health wise and now concerning my

children, which are my life. I feel like iv fallen deeper into the hole,

I cant get out. Everything is pushing the dirt in on me. I cant get out.

Everything else in my life is great. My marriage is wonderful my hubby

is the best man on this earth, he's a true original. My kids are mostly

healthy. (one has ADHD the other bipolar) We are dealing with this the

best we can. Actually I diagnosed Kim w/ Bipolar myself by researching

on the web. I sent the DR a 6 page fax about the symptoms and how they

fit Kim and he called me that night and said thanks! And started to

treat her right over the phone. He trust me completely. I know he would

have caught it but we have so little time with him. He is closed to new

patients and he did take my daughter & I in anyway. He's wonderful. He's

been my son's ADHD Dr. for at least 6 years and he is so wonderful, He's

the only Dr. that actually believes in me, he knows I'm not stupid and

he treats me with respect and he shows that I do know what I am talking

about.

OK I guess I have talked long enough. I'm trying to explain the

situation I'm in so you can understand a little better. I hated to tell

you about me being reported to DHS because of my illness but maybe you

will understand. I feel like the lowest person on earth for it too.

If any of you wouldn't mind just listing (or however you like) any

symptoms you have or know of please send them to me, You can do it off

list cathyjo@...

I wont be putting any names with anything. All I need is the list of

symptoms, problems that come with FM & CFS.

Sorry to have taken up so much of your time......

~~ Jo, Miloe, Harley Ann, Teddy Bear, Maximillion, Max, Drako, &

, Fluff & 4 left of 's last litter

Join my mailing list for pet lovers

Just click here......

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other ways to contact me....

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e-mail= cathyjo@...

September 25, 2001

My symptoms vary. I am sensitive to lights, smells, vibrations and sounds.

I don't sleep well. Muscle tension which is where I think that most of the

pain comes from. Your muscles are tense. I also fall quite a bit and I have

to remember to pick up my feet when I walk or down I will go. I have to tell

myself to take hold of a bottle, cup, any object in my hand or that I try to

pick up. I drop things a lot.

I am depressed and any kind of stress get to me pronto and I am in a flare as

I am now with my husband in the hospital. I know that my immune system is

shot. My allegories have become worse and I seem to be allergic to

everything. Also Irritable Bowel Syndrome. Big time short memory disorder.

I don't know if this is common to FMS but I sweat a lot even when it is cold

especially at night but other times to. I bruise easily and I have very

jumpy muscles. I also have tingling and numbness, headaches. I think that I

could go on forever but I will stop.

>

> Would any

> of you be interested in listing symptoms you have with FM & CFS. I know

> everybody is different, but I'm really interested in learning all I can.

> ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

There has been a very serious threat made to my family because of my

> blackouts. My driving with my medications was added on. And my slurred

> speech at times. I have recently learned that CFS can effect your

> speech. I do have that much at least to tell the " Umm person? "

I have had blackouts but they com from mini strokes. As does slurred speech

and not remembering anything. Not even how to spell my name. But never with

fibro.

>

> Take care,

> Irene

>

September 25, 2001

My symptoms vary. I am sensitive to lights, smells, vibrations and sounds.

I don't sleep well. Muscle tension which is where I think that most of the

pain comes from. Your muscles are tense. I also fall quite a bit and I have

to remember to pick up my feet when I walk or down I will go. I have to tell

myself to take hold of a bottle, cup, any object in my hand or that I try to

pick up. I drop things a lot.

I am depressed and any kind of stress get to me pronto and I am in a flare as

I am now with my husband in the hospital. I know that my immune system is

shot. My allegories have become worse and I seem to be allergic to

everything. Also Irritable Bowel Syndrome. Big time short memory disorder.

I don't know if this is common to FMS but I sweat a lot even when it is cold

especially at night but other times to. I bruise easily and I have very

jumpy muscles. I also have tingling and numbness, headaches. I think that I

could go on forever but I will stop.

>

> Would any

> of you be interested in listing symptoms you have with FM & CFS. I know

> everybody is different, but I'm really interested in learning all I can.

> ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

There has been a very serious threat made to my family because of my

> blackouts. My driving with my medications was added on. And my slurred

> speech at times. I have recently learned that CFS can effect your

> speech. I do have that much at least to tell the " Umm person? "

I have had blackouts but they com from mini strokes. As does slurred speech

and not remembering anything. Not even how to spell my name. But never with

fibro.

>

> Take care,

> Irene

>

September 25, 2001

My symptoms vary. I am sensitive to lights, smells, vibrations and sounds.

I don't sleep well. Muscle tension which is where I think that most of the

pain comes from. Your muscles are tense. I also fall quite a bit and I have

to remember to pick up my feet when I walk or down I will go. I have to tell

myself to take hold of a bottle, cup, any object in my hand or that I try to

pick up. I drop things a lot.

I am depressed and any kind of stress get to me pronto and I am in a flare as

I am now with my husband in the hospital. I know that my immune system is

shot. My allegories have become worse and I seem to be allergic to

everything. Also Irritable Bowel Syndrome. Big time short memory disorder.

I don't know if this is common to FMS but I sweat a lot even when it is cold

especially at night but other times to. I bruise easily and I have very

jumpy muscles. I also have tingling and numbness, headaches. I think that I

could go on forever but I will stop.

>

> Would any

> of you be interested in listing symptoms you have with FM & CFS. I know

> everybody is different, but I'm really interested in learning all I can.

> ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

There has been a very serious threat made to my family because of my

> blackouts. My driving with my medications was added on. And my slurred

> speech at times. I have recently learned that CFS can effect your

> speech. I do have that much at least to tell the " Umm person? "

I have had blackouts but they com from mini strokes. As does slurred speech

and not remembering anything. Not even how to spell my name. But never with

fibro.

>

> Take care,

> Irene

>

September 26, 2001

" Buechler, Ken and " wrote:

>I don't know if I

> asked this yet or not (I hate my memory, well lack of memory) Would any

> of you be interested in listing symptoms you have with FM & CFS. I know

> everybody is different, but I'm really interested in learning all I can.

I'm still struggling with trying to figure out if I have other illnesses

besides the ones I know I have, but the symptoms that I think belong to

FM are, severe fatigue, problems with memory, problems with speaking,

balance problems, muscle pain, sensitivity to light and sound, body

stiffness and possibly joint pain. I'm sure there is more, but I can't

think of them right now.

Darcy

September 26, 2001