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Re: Cortef update

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>

> If I had only known! I finally got Cortef, and have been taking only 5

> mg/day for 3 days -- and I feel so much better I can't believe it. I

> even look different (face much more relaxed, tummy bloat going away).

Great. At this stage I can't imagine life without it.

> I tried getting Jeffries' book, " The Safe Uses of Cortisol " but my

> library doesn't have it and it's $157 at amazon. Yikes!

The publisher sells it for less:

http://www.ccthomas.com/details.cfm?P_ISBN=039807500X

W.

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>

> If I had only known! I finally got Cortef, and have been taking only 5

> mg/day for 3 days -- and I feel so much better I can't believe it.

If you feel that much better with 5 mg you will likely be able to get

away with a really low dose. Teitelbaum says to use the dose that

feels the best, not more than 20 mg per day. Some people use 5, 10,

or 15 mg/day and feel great.

The good news is that your adrenals aren't anywhere near as far gone

as mine..... 5 mg wouldn't even get my eyes to open.....

I

> even look different (face much more relaxed, tummy bloat going away).

>

> Thank you and others here for the info and support. I'm going to

> call the doc this week and ask for more frequent dosing -- I can

> definitely feel it wear off.

>

The schedule my specialist started me on was 7, 10 am, and 1, 4 pm

doses. That seems to work the best for me.

I find it real easy to break the 10 mg tabs in quarters for 2.5 mg doses.

Jefferies seems to prefer to tell his patients to take one dose with

each meal (and also one at bedtime only for the people who are so far

gone that they can't make it through the night - and even I'm not that

far gone yet). The problem with taking a dose with every meal is that

some people can't get to sleep if they take a dose beyond 4 pm, so it

would be best to keep the last dose about 4 pm.

> I tried getting Jeffries' book, " The Safe Uses of Cortisol " but my

> library doesn't have it and it's $157 at amazon. Yikes!

>

The medical library (at the University) has it here. I have 3 people

in the house who can fetch it for me. I have to send it back soon.....

J

> Nell

>

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>

> If I had only known! I finally got Cortef, and have been taking only 5

> mg/day for 3 days -- and I feel so much better I can't believe it.

If you feel that much better with 5 mg you will likely be able to get

away with a really low dose. Teitelbaum says to use the dose that

feels the best, not more than 20 mg per day. Some people use 5, 10,

or 15 mg/day and feel great.

The good news is that your adrenals aren't anywhere near as far gone

as mine..... 5 mg wouldn't even get my eyes to open.....

I

> even look different (face much more relaxed, tummy bloat going away).

>

> Thank you and others here for the info and support. I'm going to

> call the doc this week and ask for more frequent dosing -- I can

> definitely feel it wear off.

>

The schedule my specialist started me on was 7, 10 am, and 1, 4 pm

doses. That seems to work the best for me.

I find it real easy to break the 10 mg tabs in quarters for 2.5 mg doses.

Jefferies seems to prefer to tell his patients to take one dose with

each meal (and also one at bedtime only for the people who are so far

gone that they can't make it through the night - and even I'm not that

far gone yet). The problem with taking a dose with every meal is that

some people can't get to sleep if they take a dose beyond 4 pm, so it

would be best to keep the last dose about 4 pm.

> I tried getting Jeffries' book, " The Safe Uses of Cortisol " but my

> library doesn't have it and it's $157 at amazon. Yikes!

>

The medical library (at the University) has it here. I have 3 people

in the house who can fetch it for me. I have to send it back soon.....

J

> Nell

>

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> The good news is that your adrenals aren't anywhere near as far gone

> as mine..... 5 mg wouldn't even get my eyes to open.....

>

I think mine have been much worse and better since I was poisoned. I

don't know if chelation was finally doing enough to get them better or

what, but I was doing well last spring until a yoga class where I

stayed way too long in a pose that pressures the liver to release

toxins (found that out later). I felt ill after that and never got

back to the good place.

One thing that's now obvious to me: if I had a doctor looking out for

me who knew what s/he was doing, I wouldn't have wasted all those

months and months feeing like crap, being a marginal mother and

getting nothing done. I've been able to tinker with supps pretty well

and chelate on my own, but except for an experiment with adrenal

cortex extract that didn't work, I kept putting off dealing with adrenals.

Do people do a combination of Cortef and Isocort, and ACE, or do

people generally stick with one thing?

Nell

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> I'm a big yoga fan too. I'm just wondering what pose you did that puts

> pressure on the liver to release toxins? I know for me that yoga can

> be very powerful too - sometimes too powerful.

Yes, I have to be really careful not to overdo because it feels so

good during. The pose that got me into trouble was a supported

backbend, where you sit backwards in a metal folding chair, push your

feet against the wall, hold on to the legs of the chair, and bend your

head back towards the floor. If that makes any sense. So your middle

body is bending strongly backwards, and a lot of pressure is on the

liver.

It made me feel instantly sick -- dizzy, nauseated, and anxious -- and

I should have immediately sat up and not continued. But I kept trying

to work through it. Dumb. But other than that I really think yoga has

done so much to help my health, in all ways. Glad you're doing it too.

Nell

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> I'm a big yoga fan too. I'm just wondering what pose you did that puts

> pressure on the liver to release toxins? I know for me that yoga can

> be very powerful too - sometimes too powerful.

Yes, I have to be really careful not to overdo because it feels so

good during. The pose that got me into trouble was a supported

backbend, where you sit backwards in a metal folding chair, push your

feet against the wall, hold on to the legs of the chair, and bend your

head back towards the floor. If that makes any sense. So your middle

body is bending strongly backwards, and a lot of pressure is on the

liver.

It made me feel instantly sick -- dizzy, nauseated, and anxious -- and

I should have immediately sat up and not continued. But I kept trying

to work through it. Dumb. But other than that I really think yoga has

done so much to help my health, in all ways. Glad you're doing it too.

Nell

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> I'm a big yoga fan too. I'm just wondering what pose you did that puts

> pressure on the liver to release toxins? I know for me that yoga can

> be very powerful too - sometimes too powerful.

Yes, I have to be really careful not to overdo because it feels so

good during. The pose that got me into trouble was a supported

backbend, where you sit backwards in a metal folding chair, push your

feet against the wall, hold on to the legs of the chair, and bend your

head back towards the floor. If that makes any sense. So your middle

body is bending strongly backwards, and a lot of pressure is on the

liver.

It made me feel instantly sick -- dizzy, nauseated, and anxious -- and

I should have immediately sat up and not continued. But I kept trying

to work through it. Dumb. But other than that I really think yoga has

done so much to help my health, in all ways. Glad you're doing it too.

Nell

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>

> One thing that's now obvious to me: if I had a doctor looking out for

> me who knew what s/he was doing, I wouldn't have wasted all those

> months and months feeing like crap, being a marginal mother and

> getting nothing done.

I was in excruciating pain for my younger child's entire lifetime

(he's 15 now). It was years and years of feeling like crap. Finding

a doctor that knew what to do to treat me was a windfall - if I hadn't

stumbled upon him I would have spent the rest of my life in pain. It

is really unfortunate (for people like me) that the safe use of

cortisol is so poorly understood.

I've been able to tinker with supps pretty well

> and chelate on my own, but except for an experiment with adrenal

> cortex extract that didn't work, I kept putting off dealing with

adrenals.

>

> Do people do a combination of Cortef and Isocort, and ACE, or do

> people generally stick with one thing?

>

If a person has Cortef, I don't see a need for Isocort too (and I

haven't heard of anyone combining them). I have heard Andy suggest

combining adrenal cortex extract with cortef. I tried it once and it

seemed to make my adrenaline surges worse, but I really should try it

again. It is expensive and difficult to get where I live (and not

covered by insurance, my cortef is covered).

J

> Nell

>

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>

> One thing that's now obvious to me: if I had a doctor looking out for

> me who knew what s/he was doing, I wouldn't have wasted all those

> months and months feeing like crap, being a marginal mother and

> getting nothing done.

I was in excruciating pain for my younger child's entire lifetime

(he's 15 now). It was years and years of feeling like crap. Finding

a doctor that knew what to do to treat me was a windfall - if I hadn't

stumbled upon him I would have spent the rest of my life in pain. It

is really unfortunate (for people like me) that the safe use of

cortisol is so poorly understood.

I've been able to tinker with supps pretty well

> and chelate on my own, but except for an experiment with adrenal

> cortex extract that didn't work, I kept putting off dealing with

adrenals.

>

> Do people do a combination of Cortef and Isocort, and ACE, or do

> people generally stick with one thing?

>

If a person has Cortef, I don't see a need for Isocort too (and I

haven't heard of anyone combining them). I have heard Andy suggest

combining adrenal cortex extract with cortef. I tried it once and it

seemed to make my adrenaline surges worse, but I really should try it

again. It is expensive and difficult to get where I live (and not

covered by insurance, my cortef is covered).

J

> Nell

>

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I have been combining them for about a year for my own convenience. I take h/c

(cortef) with breakfast & evening meal and isocort (once or twice) between these

times. I do it this way because I have to take cortef with food (some people

can I believe manage it without but it gives me bad stomach pains if I try), but

I can take isocort sublingually & so can take it without having to eat at the

same time. I have to pay for them both - I live in the UK. I did at one time

try adrenal cortex capsules as well but noticed no difference at all when I

stoped them. I think as long as we stay within the max normal 20mg h/c it does

not matter how we mix these things.

Val

If a person has Cortef, I don't see a need for Isocort too (and I

haven't heard of anyone combining them). I have heard Andy suggest

combining adrenal cortex extract with cortef. I tried it once and it

seemed to make my adrenaline surges worse, but I really should try it

again. It is expensive and difficult to get where I live (and not

covered by insurance, my cortef is covered).

J

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>I keep telling my kids I wish they could know the " me " that I was

before I got sick.

I was doing the same thing :(. I was just realizing that during our

vacation to the beach last summer I never once even got in the ocean.

Too stressful! And I was really in denial about how I was doing.

>I too tried adrenal cortex extract, and it didn't work for me, made

me feel funny.

I'm trying something called Adrenergize now, and it seems OK (the

other ACE I tried made me really anxious).

> But Isocort made me feel better right away. So Isocort is worth a

try for those who can't get a doctor to prescribe HC or Cortef.

I'm so glad you found something. Now I understand how critically

important it is to treat adrenals. I feel like I've come alive.

Nell

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