Guest guest Posted June 22, 2004 Report Share Posted June 22, 2004 Yes, my sister has IgAN too, but she has a very very mild and fortunately benign case of it. I seriously doubt she will ever progress to end stage. In a message dated 6/22/2004 1:17:00 AM Pacific Daylight Time, janelly_22@... writes: > I was just wondering if anyone here has IGAN within a family. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 22, 2004 Report Share Posted June 22, 2004 Yes, my sister has IgAN too, but she has a very very mild and fortunately benign case of it. I seriously doubt she will ever progress to end stage. In a message dated 6/22/2004 1:17:00 AM Pacific Daylight Time, janelly_22@... writes: > I was just wondering if anyone here has IGAN within a family. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 22, 2004 Report Share Posted June 22, 2004 Yes, my sister has IgAN too, but she has a very very mild and fortunately benign case of it. I seriously doubt she will ever progress to end stage. In a message dated 6/22/2004 1:17:00 AM Pacific Daylight Time, janelly_22@... writes: > I was just wondering if anyone here has IGAN within a family. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 22, 2004 Report Share Posted June 22, 2004 Janelle, It's not unusual to have some blood in the urine during or after a severe URI. If it's a strep infection, it's called post-strep glumerulonephritis, and it usually clears up a few weeks. This happened with my younger son (my older son has IgAN and I donated a kidney to him) when he was in the ER with a severe strep infection and an abscessed tonsil. They did a routine urinalysis before releasing him and found blood. I panicked and was ranting to the doctor about how I didn't have another kidney to give. The poor doc had no idea why I was having this fit, and later it seemed rather humorous. Fortunately, after getting his tonsils out, that son has had no further problems with blood in his urine. Let's hope it's similar for your brother. Betsy > I was just wondering if anyone here has IGAN within a family. My > brother, who is normally very healthy, is in sick bay in the armed > forces for an upper respitory infection and he is experiencing blood > in his urine. I am hoping and praying that it isn't IGAN. But it > seems like such a coincidence, especially in such a short time after > I was diagnosed. I just found out today and my mother is a nervous > wreck. He is going to have a biopsy in a month. > I have read on the internet that there are clusters in some > families, but it isn't that common. I don't know of anyone else in > my family who has had this. > My mother was born with a birth defect and she only has > one " fuctioning " kidney. She doesn't have IGAN, and the doctors say > it is not related at all. It just really stumps me that there is no > link between my mother's problems and mine, and now with my brother. > If anyone has any input on this I would be really interested. > Thank you all so much. Take care! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 22, 2004 Report Share Posted June 22, 2004 Janelle, It's not unusual to have some blood in the urine during or after a severe URI. If it's a strep infection, it's called post-strep glumerulonephritis, and it usually clears up a few weeks. This happened with my younger son (my older son has IgAN and I donated a kidney to him) when he was in the ER with a severe strep infection and an abscessed tonsil. They did a routine urinalysis before releasing him and found blood. I panicked and was ranting to the doctor about how I didn't have another kidney to give. The poor doc had no idea why I was having this fit, and later it seemed rather humorous. Fortunately, after getting his tonsils out, that son has had no further problems with blood in his urine. Let's hope it's similar for your brother. Betsy > I was just wondering if anyone here has IGAN within a family. My > brother, who is normally very healthy, is in sick bay in the armed > forces for an upper respitory infection and he is experiencing blood > in his urine. I am hoping and praying that it isn't IGAN. But it > seems like such a coincidence, especially in such a short time after > I was diagnosed. I just found out today and my mother is a nervous > wreck. He is going to have a biopsy in a month. > I have read on the internet that there are clusters in some > families, but it isn't that common. I don't know of anyone else in > my family who has had this. > My mother was born with a birth defect and she only has > one " fuctioning " kidney. She doesn't have IGAN, and the doctors say > it is not related at all. It just really stumps me that there is no > link between my mother's problems and mine, and now with my brother. > If anyone has any input on this I would be really interested. > Thank you all so much. Take care! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 22, 2004 Report Share Posted June 22, 2004 Janelle, It's not unusual to have some blood in the urine during or after a severe URI. If it's a strep infection, it's called post-strep glumerulonephritis, and it usually clears up a few weeks. This happened with my younger son (my older son has IgAN and I donated a kidney to him) when he was in the ER with a severe strep infection and an abscessed tonsil. They did a routine urinalysis before releasing him and found blood. I panicked and was ranting to the doctor about how I didn't have another kidney to give. The poor doc had no idea why I was having this fit, and later it seemed rather humorous. Fortunately, after getting his tonsils out, that son has had no further problems with blood in his urine. Let's hope it's similar for your brother. Betsy > I was just wondering if anyone here has IGAN within a family. My > brother, who is normally very healthy, is in sick bay in the armed > forces for an upper respitory infection and he is experiencing blood > in his urine. I am hoping and praying that it isn't IGAN. But it > seems like such a coincidence, especially in such a short time after > I was diagnosed. I just found out today and my mother is a nervous > wreck. He is going to have a biopsy in a month. > I have read on the internet that there are clusters in some > families, but it isn't that common. I don't know of anyone else in > my family who has had this. > My mother was born with a birth defect and she only has > one " fuctioning " kidney. She doesn't have IGAN, and the doctors say > it is not related at all. It just really stumps me that there is no > link between my mother's problems and mine, and now with my brother. > If anyone has any input on this I would be really interested. > Thank you all so much. Take care! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 22, 2004 Report Share Posted June 22, 2004 Oh no Elwira, I didn't know you had that worry on your mind! I think you are very smart to take Radek to your neph. Please let us know what the doc says. You must be worried sick... Big hugs, Cy ODP: IGAN within families Dear Janelle, Dear friends, I do hope that IGAN is not inherited or in most cases will not be inherited or pasted to our kids... But as a mother I am also very scared...I was diagnosed 2 years ago, my kidney function was good ....My neph always wanted me to be careful about my son Radek and to do him blood and urine works from time to time...This year Radek had problems with kidney stones but as the stones are removed right now all his lab works should be back to normal....His creatine is still 1.3 , there is still blood in his urine, so I decided to take him to my neph this Thursday( as my visit is scheduled ). We will see what my doctor decides about Radek..... Hope it will not occur to be IGAN..... All the best, love, Elwira > ---------- > Od: RICHARD LLOYD[sMTP:alwynlloyd@...] > Odpowiedz do: iga-nephropathy > Wys³ano: 22 czerwca 2004 12:08 > Do: iga-nephropathy > Temat: Re: IGAN within families > > Janelle, > > There is / was kidney disease across 3 generations of my family (all > male). My father had kidney disease and his brother, and now I've got it. > Unfortunately I dont know the cause of my father's disease as he was only > diagnosed with end stage renal failure and by that stage the cause wasn't > an issue. > > According to the data 90% of IgAn is not inherited. So I'd take comfort in > that statistic if I were you. My brother is fine (38 years old). I'm > hoping also that he stays fine, a) because he's my brother, because he' > promised to help me should things turn out badly. > > > > Janelle wrote: > I was just wondering if anyone here has IGAN within a family. My > brother, who is normally very healthy, is in sick bay in the armed > forces for an upper respitory infection and he is experiencing blood > in his urine. I am hoping and praying that it isn't IGAN. But it > seems like such a coincidence, especially in such a short time after > I was diagnosed. I just found out today and my mother is a nervous > wreck. He is going to have a biopsy in a month. > I have read on the internet that there are clusters in some > families, but it isn't that common. I don't know of anyone else in > my family who has had this. > My mother was born with a birth defect and she only has > one " fuctioning " kidney. She doesn't have IGAN, and the doctors say > it is not related at all. It just really stumps me that there is no > link between my mother's problems and mine, and now with my brother. > If anyone has any input on this I would be really interested. > Thank you all so much. Take care! > > > > To edit your settings for the group, go to our Yahoo Group > home page: > http://groups.yahoo.com/group/iga-nephropathy/ > > To unsubcribe via email, > iga-nephropathy-unsubscribe > Visit our companion website at www.igan.ca. The site is entirely supported > by donations. If you would like to help, go to: > http://www.igan.ca/id62.htm > > Thank you > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 23, 2004 Report Share Posted June 23, 2004 I'm sorry I just found this post. My sister also has IgAN. After I was dx they did labs on my sisters every year, and one year she started showing symptons, they did the biopsy when she was 10 and she's been on BP meds ever since. My IgAN is a bit farther along then hers, thanks to me being pregnant. We have a half sister who's baby was born with kidney problems and she blames our dad, but he's healthier then anyone I know. BRANDY > I was just wondering if anyone here has IGAN within a family. My > brother, who is normally very healthy, is in sick bay in the armed > forces for an upper respitory infection and he is experiencing blood > in his urine. I am hoping and praying that it isn't IGAN. But it > seems like such a coincidence, especially in such a short time after > I was diagnosed. I just found out today and my mother is a nervous > wreck. He is going to have a biopsy in a month. > I have read on the internet that there are clusters in some > families, but it isn't that common. I don't know of anyone else in > my family who has had this. > My mother was born with a birth defect and she only has > one " fuctioning " kidney. She doesn't have IGAN, and the doctors say > it is not related at all. It just really stumps me that there is no > link between my mother's problems and mine, and now with my brother. > If anyone has any input on this I would be really interested. > Thank you all so much. Take care! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 23, 2004 Report Share Posted June 23, 2004 I'm sorry I just found this post. My sister also has IgAN. After I was dx they did labs on my sisters every year, and one year she started showing symptons, they did the biopsy when she was 10 and she's been on BP meds ever since. My IgAN is a bit farther along then hers, thanks to me being pregnant. We have a half sister who's baby was born with kidney problems and she blames our dad, but he's healthier then anyone I know. BRANDY > I was just wondering if anyone here has IGAN within a family. My > brother, who is normally very healthy, is in sick bay in the armed > forces for an upper respitory infection and he is experiencing blood > in his urine. I am hoping and praying that it isn't IGAN. But it > seems like such a coincidence, especially in such a short time after > I was diagnosed. I just found out today and my mother is a nervous > wreck. He is going to have a biopsy in a month. > I have read on the internet that there are clusters in some > families, but it isn't that common. I don't know of anyone else in > my family who has had this. > My mother was born with a birth defect and she only has > one " fuctioning " kidney. She doesn't have IGAN, and the doctors say > it is not related at all. It just really stumps me that there is no > link between my mother's problems and mine, and now with my brother. > If anyone has any input on this I would be really interested. > Thank you all so much. Take care! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 23, 2004 Report Share Posted June 23, 2004 I'm sorry I just found this post. My sister also has IgAN. After I was dx they did labs on my sisters every year, and one year she started showing symptons, they did the biopsy when she was 10 and she's been on BP meds ever since. My IgAN is a bit farther along then hers, thanks to me being pregnant. We have a half sister who's baby was born with kidney problems and she blames our dad, but he's healthier then anyone I know. BRANDY > I was just wondering if anyone here has IGAN within a family. My > brother, who is normally very healthy, is in sick bay in the armed > forces for an upper respitory infection and he is experiencing blood > in his urine. I am hoping and praying that it isn't IGAN. But it > seems like such a coincidence, especially in such a short time after > I was diagnosed. I just found out today and my mother is a nervous > wreck. He is going to have a biopsy in a month. > I have read on the internet that there are clusters in some > families, but it isn't that common. I don't know of anyone else in > my family who has had this. > My mother was born with a birth defect and she only has > one " fuctioning " kidney. She doesn't have IGAN, and the doctors say > it is not related at all. It just really stumps me that there is no > link between my mother's problems and mine, and now with my brother. > If anyone has any input on this I would be really interested. > Thank you all so much. Take care! Quote Link to comment Share on other sites More sharing options...
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