Re: ODP: IGAN within families

[Guest guest]

Hi Elvira,

I really pray that Radek does not have IgAN. Please let us know what the

Neph says on Thursday. I hope you get good news that you are stable too.

[Guest guest]

Hi Elvira,

I really pray that Radek does not have IgAN. Please let us know what the

Neph says on Thursday. I hope you get good news that you are stable too.

[Guest guest]

---

Oh, thank you ,

When I came back from work today, Radek checked his blood test's

documents, and discovered that by mistake I was given the wrong

creatine document! It was not Radek's but the other patient number -

the wrong name was written at the top..but I was too stressed to

notice that...So,

today in the evening we have been in hospital again to see the

urologist who was taking care of Radek's kidney stones...He ordered

some urine and blood works for tomorrow again, so we will have them

for our visit on Thursday...

I do hope that Radek's true creatine ratio will be normal and the

blood in his urine will not appear again.

But I must say I was quite happy when I found out the mistake....I

have more hope now....none of us parents want IGAN for our kids....

Anyway I will update after our visit ...hope I will be able to share

good news about me and Radek. I must say that for a month or so I

suffer from fatigue again....and even my low antigenic diet I follow

for two years now can not change that ha ha

God bless you all,

Elvira

In iga-nephropathy , W4JC@a... wrote:

> Hi Elvira,

>

> I really pray that Radek does not have IgAN. Please let us know

what the

> Neph says on Thursday. I hope you get good news that you are

stable too.

>

>

>

>

>

[Guest guest]

Hi Elvira,

Sorry to hear about your fatigue coming back. It is sure hard to make it

through the days with severe fatigue isn't it?

I hope you get good news for both you and Radek tomorrow.

In a message dated 6/22/2004 3:50:27 PM Pacific Daylight Time,

elwira.zmudzinska@... writes:

> I must say that for a month or so I

> suffer from fatigue again....