Re: Transplant Envy...and I am not proud of it

[Guest guest]

cindy,

barb said it perfectly! we all suffer a little envy, but your day will come just as i know chucks day will come. keep your chin up and pray for your co-worker just as she will pray for you when you time comes...............sally

[Guest guest]

Rifampin for the itching, honey. Tell your doctor. We did hydroxizine and benadryl with for a number of months with no luck (along with various lotions). I kept on his docs for about 3 months about trying Rifampin, including bringing them studies and articles that had been posted here. They finally agreed to put him on it and I think he's had break-through itching twice, each time when his went higher and it was ERCP time. Otherwise, nothing. And he was itching to the point of crying and rubbing his feet on the floor until he had blisters on them. Could hardly eat sometimes. It was horrible watching my baby feel like that and not be able to help him. And I can understand your frustration. I was going mad waiting for the 6 months to be up (from his lung tx) so could be listed for his liver. Then come to find out the beginning of September he'd

been listed August 2, almost a month earlier than expected. But then he developed that pneumatosis a month ago, which moved him to inactive. Now that's better, so I'm hoping they've reactivated him. GRRRRRR is all I have to say. Ami Baudoux wrote: Hi , it's me, although I can't bowhunt this yearbecause of some of my meds making light-headed. I amstill going rifle hunting if I don't get

thetransplant call.I was listed 3 months ago. A lady I work with gotlisted 2 weeks ago and got her call last week. I knowthere are other factors involved, but it still stinksto be 'waiting'.I have unrelenting itching and am takingQuestran,Hydroxyzine,Zofran,Benadryl and Naltrexonefor it without it taking it away. Baudoux-Northrup__________________________________________________

[Guest guest]

I did try Rifampin 2 different times with no success

at all.

I've basically tried everything anyone has ever

mentioned....meds, lotions, potions, uv light, loose

fitting clothes, mild baths....

Baudoux-Northrup

__________________________________________________

[Guest guest]

I did try Rifampin 2 different times with no success

at all.

I've basically tried everything anyone has ever

mentioned....meds, lotions, potions, uv light, loose

fitting clothes, mild baths....

Baudoux-Northrup

__________________________________________________

[Guest guest]

I did try Rifampin 2 different times with no success

at all.

I've basically tried everything anyone has ever

mentioned....meds, lotions, potions, uv light, loose

fitting clothes, mild baths....

Baudoux-Northrup

__________________________________________________

[Guest guest]

-----Original

Message-----

I feel even worse now....she had developed liver cancer and because she had

hep c she got a hep c liver.

,_._,___

Ok, so the cancer is why

she moved up the list so fast and why she got a new liver before you. Good for her, hopefully she got her new

liver in time. It’s not envy,

it’s wanting to put an end to your own illness. Everybody understands that and we all

feel the same way.

There are 2 types of

Hep C. One kind (let’s call

it A), treatment doesn’t work.

The other kind (type treatment can work. So they often put a type B liver into a

type A liver person, so that after transplant they can begin chemo and try to

get rid of the Hep C. Everyone

wants a clean shiny new liver, but if you have cancer or are so sick you can’t

wait, then a liver with Hep C already in it, can prolong your life and allow

for treatment.

, quit worrying

about this lady, she will be fine and so will you. Send her a card and concentrate on your self

for awhile – you deserve it.

How’s your

puppy?

Barb in Texas - Together in the Fight, Whatever it Takes!

Son Ken (32) UC 91 - PSC 99 Listed 7/21 @ Baylor Dallas

[Guest guest]

-----Original

Message-----

I feel even worse now....she had developed liver cancer and because she had

hep c she got a hep c liver.

,_._,___

Ok, so the cancer is why

she moved up the list so fast and why she got a new liver before you. Good for her, hopefully she got her new

liver in time. It’s not envy,

it’s wanting to put an end to your own illness. Everybody understands that and we all

feel the same way.

There are 2 types of

Hep C. One kind (let’s call

it A), treatment doesn’t work.

The other kind (type treatment can work. So they often put a type B liver into a

type A liver person, so that after transplant they can begin chemo and try to

get rid of the Hep C. Everyone

wants a clean shiny new liver, but if you have cancer or are so sick you can’t

wait, then a liver with Hep C already in it, can prolong your life and allow

for treatment.

, quit worrying

about this lady, she will be fine and so will you. Send her a card and concentrate on your self

for awhile – you deserve it.

How’s your

puppy?

Barb in Texas - Together in the Fight, Whatever it Takes!

Son Ken (32) UC 91 - PSC 99 Listed 7/21 @ Baylor Dallas

[Guest guest]

-----Original

Message-----

I feel even worse now....she had developed liver cancer and because she had

hep c she got a hep c liver.

,_._,___

Ok, so the cancer is why

she moved up the list so fast and why she got a new liver before you. Good for her, hopefully she got her new

liver in time. It’s not envy,

it’s wanting to put an end to your own illness. Everybody understands that and we all

feel the same way.

There are 2 types of

Hep C. One kind (let’s call

it A), treatment doesn’t work.

The other kind (type treatment can work. So they often put a type B liver into a

type A liver person, so that after transplant they can begin chemo and try to

get rid of the Hep C. Everyone

wants a clean shiny new liver, but if you have cancer or are so sick you can’t

wait, then a liver with Hep C already in it, can prolong your life and allow

for treatment.

, quit worrying

about this lady, she will be fine and so will you. Send her a card and concentrate on your self

for awhile – you deserve it.

How’s your

puppy?

Barb in Texas - Together in the Fight, Whatever it Takes!

Son Ken (32) UC 91 - PSC 99 Listed 7/21 @ Baylor Dallas

[Guest guest]

Thanks Barb, sometimes I just need that boot in the

rear.

She is doing fine and is home now.

Ginger Lee is doing so great. She helped me make

cookies last night. She puts her front paws on the

step stool and streches her neck to try and see on the

counter, and I talk to her like I am teaching her how

to bake, and she lifts her paw up slightly and cocks

her head like she is comprehending my every word.

Mike just laughed and laughed because she definitely

appears to understand everything I am saying. She my

little buddy.

Baudoux-Northrup

__________________________________________________

[Guest guest]

Thanks Barb, sometimes I just need that boot in the

rear.

She is doing fine and is home now.

Ginger Lee is doing so great. She helped me make

cookies last night. She puts her front paws on the

step stool and streches her neck to try and see on the

counter, and I talk to her like I am teaching her how

to bake, and she lifts her paw up slightly and cocks

her head like she is comprehending my every word.

Mike just laughed and laughed because she definitely

appears to understand everything I am saying. She my

little buddy.

Baudoux-Northrup

__________________________________________________