RE: Visit to neph tommorrow - Questions to Ask?

[Guest guest]

Barry there is a list of questions to ask your neph in the files section on

the Yahoo Groups site. Here is a copy of them from an old post as I can't

seem to get into the Yahoo groups site right now. Thank our lovely and

wonderful Cy for this list. )

Questions to ask your Nephrologist

1) What's your urine protein? How is it measured (dipstick, pro/creat

ratio, 24 hour)? Why is it being measured that way instead of some other

way? What significance does the doc read into those values?

2) What metrics does he base that mid-term conclusion on (i.e. GFR,

biopsy, other)?

3) Can he explain any biopsy results (if a biopsy was done)?

4) What's your creatinine level? What range can you expect your results to

fall in? When do you start worrying? How have they changed so far?

5) What markers does he look at for disease progression?

6) How often does he think the disease should be assessed this at this

time? How often does he want to do blood work and urinalysis?

7) What about treatment? How does he treat his other IgAN patients?

Why?

8) What's your hemoglobin and hematocrit? If these are abnormal, what does

he recommend?

9) Any dietary restrictions?

10) What is your blood pressure? How often should you be taking it? If

hypertension is a problem, what solutions can he offer?

11) What's the best way to get lab results to you?

12) What medications should you be taking?

13) What is your potassium level?

14) What is your creatinine clearance level?

Also make sure you get a copy of your labs to date...it's always good to

have your values in case of emergency and just for your records. I always

keep a running list of questions in my notebook with my b/p tracking results

as I think of them. That way I don't forget anything while I'm in the

office.

Amy

Visit to neph tommorrow - Questions to Ask?

> Hi All

>

> I dont do many posts on this forum just seem to read alot what you all

say.

>

> But im going to the neph tommorrow which fortuntaly always seems to be a

welcome uneventful event.

>

> I wish to ask him about my condition but he does seem very inpatient with

me as I dont think I ask him the right questions , every time I leave i am

reassured that things have got no worse ..............but still unclear of

how bad I am in the first place with igan.

>

> Any ideas for questions would be welcome

>

> Thanks

>

> Barry

>

>

> ---------------------------------

> ALL-NEW Yahoo! Messenger - sooooo many all-new ways to express yourself

>

>

[Guest guest]

Thanks Amy

Re: Visit to neph tommorrow - Questions to Ask?

Barry there is a list of questions to ask your neph in the files section

on

the Yahoo Groups site. Here is a copy of them from an old post as I

can't

seem to get into the Yahoo groups site right now. Thank our lovely and

wonderful Cy for this list. )

Questions to ask your Nephrologist

1) What's your urine protein? How is it measured (dipstick, pro/creat

ratio, 24 hour)? Why is it being measured that way instead of some

other

way? What significance does the doc read into those values?

2) What metrics does he base that mid-term conclusion on (i.e. GFR,

biopsy, other)?

3) Can he explain any biopsy results (if a biopsy was done)?

4) What's your creatinine level? What range can you expect your results

to

fall in? When do you start worrying? How have they changed so far?

5) What markers does he look at for disease progression?

6) How often does he think the disease should be assessed this at this

time? How often does he want to do blood work and urinalysis?

7) What about treatment? How does he treat his other IgAN patients?

Why?

8) What's your hemoglobin and hematocrit? If these are abnormal, what

does

he recommend?

9) Any dietary restrictions?

10) What is your blood pressure? How often should you be taking it?

If

hypertension is a problem, what solutions can he offer?

11) What's the best way to get lab results to you?

12) What medications should you be taking?

13) What is your potassium level?

14) What is your creatinine clearance level?

Also make sure you get a copy of your labs to date...it's always good to

have your values in case of emergency and just for your records. I

always

keep a running list of questions in my notebook with my b/p tracking

results

as I think of them. That way I don't forget anything while I'm in the

office.

Amy

Visit to neph tommorrow - Questions to Ask?

> Hi All

>

> I dont do many posts on this forum just seem to read alot what you all

say.

>

> But im going to the neph tommorrow which fortuntaly always seems to be

a

welcome uneventful event.

>

> I wish to ask him about my condition but he does seem very inpatient

with

me as I dont think I ask him the right questions , every time I leave i

am

reassured that things have got no worse ..............but still unclear

of

how bad I am in the first place with igan.

>

> Any ideas for questions would be welcome

>

> Thanks

>

> Barry

>

>

> ---------------------------------

> ALL-NEW Yahoo! Messenger - sooooo many all-new ways to express

yourself

>

>

[Guest guest]

Hi

Thanks for asking he was very unconcerned about my questions you must

remember that he is very abrupt and makes me feel im lucky to be in his

presence !!! He said there is no change in my condition and will see me

again in six months.

In England we don't get print outs of our lab results its more like take

a sneak look over there shoulder, I did see that my createnine was 113

but he never had results of 24 urine test said he will post

results......and then said he will see me in another 6 months

So I think that was a good visit.

Barry

Re: Visit to neph tommorrow - Questions to Ask?

Hi Barry,

Did you get your questions answered at your Neph appointment? I sure do

hope

you got news that all is stable.

Let us know how you are doing.

[Guest guest]

Thanks Amy

Re: Visit to neph tommorrow - Questions to Ask?

Barry your creatinine level looks good at 113. I hope you can continue

at

that level for a good long time. I'm sorry you seem to have a

primadonna

for a neph...perhaps if you bring him a large bouquet of roses next

visit he

might give you some of his precious time to answer questions. If you

have a

follow up in 6 months then, like Pierre said, there probably wasn't much

to

concern him...therefore it shouldn't concern you. I like Pierre's idea

of

getting the results from your GP, that's just darn sneaky.

Hang in there and I'm happy to hear you had an o.k. visit.

Amy

Re: Visit to neph tommorrow - Questions to Ask?

>

> Hi Barry,

>

> Did you get your questions answered at your Neph appointment? I sure

do

> hope

> you got news that all is stable.

>

> Let us know how you are doing.

>

>

>

>

>