Guest guest Posted March 26, 2004 Report Share Posted March 26, 2004 Sorry to hear about that . It could be worse, though. 35% kidney function can last for a long time. There's no point being evaluated for a transplant at this point, because with 35% kidney function, it could still be a long time before your husband needs a transplant. Yes, controlling blood pressure with the right medications certainly can slow down the progression of this kidney disease. You can read on my website, www.igan.ca , how IgAN can affect the transplanted kidney too. But, a great many people who get kidney transplants because of other kidney diseases besides IgAN are in the same boat, including the great majority who lost their original kidney function due to diabetes. It's a chance one has to take, just like the chance of rejection. Best of luck. Pierre Re:husband > Hi, > My husband is a persian gulf vet and is being treated at the VA. He had gone to the hospital monday blood pressure 179 over 104. the told him he has about 35% function now, we are starting to feel scared now. I want to see if I am a match but they said they dont do that until you are less than 20%. Also he said he goes back to the VA in 2 weeks and he will be in a study that is now in Japan where they lose 4% a year instead of the 16% that he has been. If the blood pressure is under control does this help with stablizing the kidney function? Also for donating a kidney to someone with IGA will the IGA attack that kidney too? We have a nineyear old and 18 month old . > > burns > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 26, 2004 Report Share Posted March 26, 2004 Sorry to hear about that . It could be worse, though. 35% kidney function can last for a long time. There's no point being evaluated for a transplant at this point, because with 35% kidney function, it could still be a long time before your husband needs a transplant. Yes, controlling blood pressure with the right medications certainly can slow down the progression of this kidney disease. You can read on my website, www.igan.ca , how IgAN can affect the transplanted kidney too. But, a great many people who get kidney transplants because of other kidney diseases besides IgAN are in the same boat, including the great majority who lost their original kidney function due to diabetes. It's a chance one has to take, just like the chance of rejection. Best of luck. Pierre Re:husband > Hi, > My husband is a persian gulf vet and is being treated at the VA. He had gone to the hospital monday blood pressure 179 over 104. the told him he has about 35% function now, we are starting to feel scared now. I want to see if I am a match but they said they dont do that until you are less than 20%. Also he said he goes back to the VA in 2 weeks and he will be in a study that is now in Japan where they lose 4% a year instead of the 16% that he has been. If the blood pressure is under control does this help with stablizing the kidney function? Also for donating a kidney to someone with IGA will the IGA attack that kidney too? We have a nineyear old and 18 month old . > > burns > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 26, 2004 Report Share Posted March 26, 2004 Sorry to hear about that . It could be worse, though. 35% kidney function can last for a long time. There's no point being evaluated for a transplant at this point, because with 35% kidney function, it could still be a long time before your husband needs a transplant. Yes, controlling blood pressure with the right medications certainly can slow down the progression of this kidney disease. You can read on my website, www.igan.ca , how IgAN can affect the transplanted kidney too. But, a great many people who get kidney transplants because of other kidney diseases besides IgAN are in the same boat, including the great majority who lost their original kidney function due to diabetes. It's a chance one has to take, just like the chance of rejection. Best of luck. Pierre Re:husband > Hi, > My husband is a persian gulf vet and is being treated at the VA. He had gone to the hospital monday blood pressure 179 over 104. the told him he has about 35% function now, we are starting to feel scared now. I want to see if I am a match but they said they dont do that until you are less than 20%. Also he said he goes back to the VA in 2 weeks and he will be in a study that is now in Japan where they lose 4% a year instead of the 16% that he has been. If the blood pressure is under control does this help with stablizing the kidney function? Also for donating a kidney to someone with IGA will the IGA attack that kidney too? We have a nineyear old and 18 month old . > > burns > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 26, 2004 Report Share Posted March 26, 2004 , I have a transplanted kidney and I have Igan. The disease has come back to the new kidney within 6 months and I am stable and functioning at 40%. I take fish oil and that has seemed to slow the progression. I agree, that kidney can last a long time. I have been functioning on 40% now for 2 years. Good luck, Lori Pierre L wrote: Sorry to hear about that . It could be worse, though. 35% kidney function can last for a long time. There's no point being evaluated for a transplant at this point, because with 35% kidney function, it could still be a long time before your husband needs a transplant. Yes, controlling blood pressure with the right medications certainly can slow down the progression of this kidney disease. You can read on my website, www.igan.ca , how IgAN can affect the transplanted kidney too. But, a great many people who get kidney transplants because of other kidney diseases besides IgAN are in the same boat, including the great majority who lost their original kidney function due to diabetes. It's a chance one has to take, just like the chance of rejection. Best of luck. Pierre Re:husband > Hi, > My husband is a persian gulf vet and is being treated at the VA. He had gone to the hospital monday blood pressure 179 over 104. the told him he has about 35% function now, we are starting to feel scared now. I want to see if I am a match but they said they dont do that until you are less than 20%. Also he said he goes back to the VA in 2 weeks and he will be in a study that is now in Japan where they lose 4% a year instead of the 16% that he has been. If the blood pressure is under control does this help with stablizing the kidney function? Also for donating a kidney to someone with IGA will the IGA attack that kidney too? We have a nineyear old and 18 month old . > > burns > > To edit your settings for the group, go to our Yahoo Group home page: http://groups.yahoo.com/group/iga-nephropathy/ To unsubcribe via email, iga-nephropathy-unsubscribe Visit our companion website at www.igan.ca. The site is entirely supported by donations. If you would like to help, go to: http://www.igan.ca/id62.htm Thank you Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 26, 2004 Report Share Posted March 26, 2004 , I have a transplanted kidney and I have Igan. The disease has come back to the new kidney within 6 months and I am stable and functioning at 40%. I take fish oil and that has seemed to slow the progression. I agree, that kidney can last a long time. I have been functioning on 40% now for 2 years. Good luck, Lori Pierre L wrote: Sorry to hear about that . It could be worse, though. 35% kidney function can last for a long time. There's no point being evaluated for a transplant at this point, because with 35% kidney function, it could still be a long time before your husband needs a transplant. Yes, controlling blood pressure with the right medications certainly can slow down the progression of this kidney disease. You can read on my website, www.igan.ca , how IgAN can affect the transplanted kidney too. But, a great many people who get kidney transplants because of other kidney diseases besides IgAN are in the same boat, including the great majority who lost their original kidney function due to diabetes. It's a chance one has to take, just like the chance of rejection. Best of luck. Pierre Re:husband > Hi, > My husband is a persian gulf vet and is being treated at the VA. He had gone to the hospital monday blood pressure 179 over 104. the told him he has about 35% function now, we are starting to feel scared now. I want to see if I am a match but they said they dont do that until you are less than 20%. Also he said he goes back to the VA in 2 weeks and he will be in a study that is now in Japan where they lose 4% a year instead of the 16% that he has been. If the blood pressure is under control does this help with stablizing the kidney function? Also for donating a kidney to someone with IGA will the IGA attack that kidney too? We have a nineyear old and 18 month old . > > burns > > To edit your settings for the group, go to our Yahoo Group home page: http://groups.yahoo.com/group/iga-nephropathy/ To unsubcribe via email, iga-nephropathy-unsubscribe Visit our companion website at www.igan.ca. The site is entirely supported by donations. If you would like to help, go to: http://www.igan.ca/id62.htm Thank you Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 26, 2004 Report Share Posted March 26, 2004 , I have a transplanted kidney and I have Igan. The disease has come back to the new kidney within 6 months and I am stable and functioning at 40%. I take fish oil and that has seemed to slow the progression. I agree, that kidney can last a long time. I have been functioning on 40% now for 2 years. Good luck, Lori Pierre L wrote: Sorry to hear about that . It could be worse, though. 35% kidney function can last for a long time. There's no point being evaluated for a transplant at this point, because with 35% kidney function, it could still be a long time before your husband needs a transplant. Yes, controlling blood pressure with the right medications certainly can slow down the progression of this kidney disease. You can read on my website, www.igan.ca , how IgAN can affect the transplanted kidney too. But, a great many people who get kidney transplants because of other kidney diseases besides IgAN are in the same boat, including the great majority who lost their original kidney function due to diabetes. It's a chance one has to take, just like the chance of rejection. Best of luck. Pierre Re:husband > Hi, > My husband is a persian gulf vet and is being treated at the VA. He had gone to the hospital monday blood pressure 179 over 104. the told him he has about 35% function now, we are starting to feel scared now. I want to see if I am a match but they said they dont do that until you are less than 20%. Also he said he goes back to the VA in 2 weeks and he will be in a study that is now in Japan where they lose 4% a year instead of the 16% that he has been. If the blood pressure is under control does this help with stablizing the kidney function? Also for donating a kidney to someone with IGA will the IGA attack that kidney too? We have a nineyear old and 18 month old . > > burns > > To edit your settings for the group, go to our Yahoo Group home page: http://groups.yahoo.com/group/iga-nephropathy/ To unsubcribe via email, iga-nephropathy-unsubscribe Visit our companion website at www.igan.ca. The site is entirely supported by donations. If you would like to help, go to: http://www.igan.ca/id62.htm Thank you Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 27, 2004 Report Share Posted March 27, 2004 Hi , Welcome to you and your husband. First, please extend a heartfelt thank you to your husband for his sacrificial service to our country. Second, I am so sorry he has been diagnosed with IgAN. The good news is that 35% kidney function can last a very very long time. I have had IgAN since my mid teens, and now in my mid 40s I am just now getting to the point where dialysis is looming on the horizon. In the meantime, I have married, raised two children, worked full time and lived a very full life. Controlling his blood pressure will be key to protecting the kidney function he has though since high BP in itself is a risk factor for kidney failure. I would be very interested to know what his treatment course is for the study in Japan. Please keep us in the loop on how they plan to treat him when he goes back in two weeks. I hope you find much support and encouragement here. Welcome again, In a message dated 3/26/2004 9:53:06 AM Pacific Standard Time, bingobuddy92@... writes: > Hi, > My husband is a persian gulf vet and is being treated at the VA. He had > gone to the hospital monday blood pressure 179 over 104. the told him he has > about 35% function now, we are starting to feel scared now. I want to see if I > am a match but they said they dont do that until you are less than 20%. Also > he said he goes back to the VA in 2 weeks and he will be in a study that is > now in Japan where they lose 4% a year instead of the 16% that he has been. > If the blood pressure is under control does this help with stablizing the > kidney function? Also for donating a kidney to someone with IGA will the IGA > attack that kidney too? We have a nineyear old and 18 month old . > > burns Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 27, 2004 Report Share Posted March 27, 2004 Hi , Welcome to you and your husband. First, please extend a heartfelt thank you to your husband for his sacrificial service to our country. Second, I am so sorry he has been diagnosed with IgAN. The good news is that 35% kidney function can last a very very long time. I have had IgAN since my mid teens, and now in my mid 40s I am just now getting to the point where dialysis is looming on the horizon. In the meantime, I have married, raised two children, worked full time and lived a very full life. Controlling his blood pressure will be key to protecting the kidney function he has though since high BP in itself is a risk factor for kidney failure. I would be very interested to know what his treatment course is for the study in Japan. Please keep us in the loop on how they plan to treat him when he goes back in two weeks. I hope you find much support and encouragement here. Welcome again, In a message dated 3/26/2004 9:53:06 AM Pacific Standard Time, bingobuddy92@... writes: > Hi, > My husband is a persian gulf vet and is being treated at the VA. He had > gone to the hospital monday blood pressure 179 over 104. the told him he has > about 35% function now, we are starting to feel scared now. I want to see if I > am a match but they said they dont do that until you are less than 20%. Also > he said he goes back to the VA in 2 weeks and he will be in a study that is > now in Japan where they lose 4% a year instead of the 16% that he has been. > If the blood pressure is under control does this help with stablizing the > kidney function? Also for donating a kidney to someone with IGA will the IGA > attack that kidney too? We have a nineyear old and 18 month old . > > burns Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 27, 2004 Report Share Posted March 27, 2004 Hi , Welcome to you and your husband. First, please extend a heartfelt thank you to your husband for his sacrificial service to our country. Second, I am so sorry he has been diagnosed with IgAN. The good news is that 35% kidney function can last a very very long time. I have had IgAN since my mid teens, and now in my mid 40s I am just now getting to the point where dialysis is looming on the horizon. In the meantime, I have married, raised two children, worked full time and lived a very full life. Controlling his blood pressure will be key to protecting the kidney function he has though since high BP in itself is a risk factor for kidney failure. I would be very interested to know what his treatment course is for the study in Japan. Please keep us in the loop on how they plan to treat him when he goes back in two weeks. I hope you find much support and encouragement here. Welcome again, In a message dated 3/26/2004 9:53:06 AM Pacific Standard Time, bingobuddy92@... writes: > Hi, > My husband is a persian gulf vet and is being treated at the VA. He had > gone to the hospital monday blood pressure 179 over 104. the told him he has > about 35% function now, we are starting to feel scared now. I want to see if I > am a match but they said they dont do that until you are less than 20%. Also > he said he goes back to the VA in 2 weeks and he will be in a study that is > now in Japan where they lose 4% a year instead of the 16% that he has been. > If the blood pressure is under control does this help with stablizing the > kidney function? Also for donating a kidney to someone with IGA will the IGA > attack that kidney too? We have a nineyear old and 18 month old . > > burns Quote Link to comment Share on other sites More sharing options...
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