Hypotonia (Low Muscle Tone)

[Guest guest]

Are there any parents out there who have a child with low muscle tone?

My 16 month old daughter has low muscle tone and when she is feeling

weak, leans her head to her right side. This has been diagnosed as

torticollis, although our physical therapist says that it is not a

" true " torticollis to the extent that it is not a shortening of the

muscle.

t got her band on Wednesday and we've noticed that due to her low

muscle tone, she is having much greater difficulty holding her head in

midline. We don't want to move backwards in this area as she was

about 7 months old before she could hold her head up independently.

She also cannot roll over with the DOCBand on--it's too heavy. (She is

not sitting up independently yet or crawling or walking.)

My question is:

Are there any parents out there who have used the DOCBand with

children who have low muscle tone? Did you see any negative effects?

Thanks for your help!

Janice

[Guest guest]

Are there any parents out there who have a child with low muscle tone?

My 16 month old daughter has low muscle tone and when she is feeling

weak, leans her head to her right side. This has been diagnosed as

torticollis, although our physical therapist says that it is not a

" true " torticollis to the extent that it is not a shortening of the

muscle.

t got her band on Wednesday and we've noticed that due to her low

muscle tone, she is having much greater difficulty holding her head in

midline. We don't want to move backwards in this area as she was

about 7 months old before she could hold her head up independently.

She also cannot roll over with the DOCBand on--it's too heavy. (She is

not sitting up independently yet or crawling or walking.)

My question is:

Are there any parents out there who have used the DOCBand with

children who have low muscle tone? Did you see any negative effects?

Thanks for your help!

Janice

[Guest guest]

Hi Janice,

My name is and my 9 month old Olivia was diagnosed with

hypotonia at 6 months of age. She has a " mild " presentation and also

has about 3 months developmental delay. She received her doc band at

about 8 mo and has been doing great. In fact it actually helped her

with rolling as her flat head was inhibiting the rolling. I am new

to this and have learned a lot from the group at hypotonia

hope. There are so many families at that site that every level of

hypotonia has got to be represented. You may want to check them

out. And as you are further along in this with your child, could you

tell me if you have noticed an overall improvement in tone, no change

or deterioration. My little sweety seems like she makes some gains

and then takes a couple of steps back. As far as the doc band is

concerned, are you getting any therapy through early intervention?

If so you might ask your therapists what they think. Sorry if I am

not too much help, I know how overwhelming it has become for me

trying to juggle all these different things with my little one, I

just keep praying for wisdom to do what is best.

, mom to Olivia 9mo, doc band and hypotonia

>

> Are there any parents out there who have a child with low muscle

tone?

> My 16 month old daughter has low muscle tone and when she is

feeling

> weak, leans her head to her right side. This has been diagnosed as

> torticollis, although our physical therapist says that it is not a

> " true " torticollis to the extent that it is not a shortening of the

> muscle.

> t got her band on Wednesday and we've noticed that due to her

low

> muscle tone, she is having much greater difficulty holding her head

in

> midline. We don't want to move backwards in this area as she was

> about 7 months old before she could hold her head up independently.

> She also cannot roll over with the DOCBand on--it's too heavy. (She

is

> not sitting up independently yet or crawling or walking.)

> My question is:

> Are there any parents out there who have used the DOCBand with

> children who have low muscle tone? Did you see any negative

effects?

> Thanks for your help!

> Janice

>

[Guest guest]

Hi Janice,

My name is and my 9 month old Olivia was diagnosed with

hypotonia at 6 months of age. She has a " mild " presentation and also

has about 3 months developmental delay. She received her doc band at

about 8 mo and has been doing great. In fact it actually helped her

with rolling as her flat head was inhibiting the rolling. I am new

to this and have learned a lot from the group at hypotonia

hope. There are so many families at that site that every level of

hypotonia has got to be represented. You may want to check them

out. And as you are further along in this with your child, could you

tell me if you have noticed an overall improvement in tone, no change

or deterioration. My little sweety seems like she makes some gains

and then takes a couple of steps back. As far as the doc band is

concerned, are you getting any therapy through early intervention?

If so you might ask your therapists what they think. Sorry if I am

not too much help, I know how overwhelming it has become for me

trying to juggle all these different things with my little one, I

just keep praying for wisdom to do what is best.

, mom to Olivia 9mo, doc band and hypotonia

>

> Are there any parents out there who have a child with low muscle

tone?

> My 16 month old daughter has low muscle tone and when she is

feeling

> weak, leans her head to her right side. This has been diagnosed as

> torticollis, although our physical therapist says that it is not a

> " true " torticollis to the extent that it is not a shortening of the

> muscle.

> t got her band on Wednesday and we've noticed that due to her

low

> muscle tone, she is having much greater difficulty holding her head

in

> midline. We don't want to move backwards in this area as she was

> about 7 months old before she could hold her head up independently.

> She also cannot roll over with the DOCBand on--it's too heavy. (She

is

> not sitting up independently yet or crawling or walking.)

> My question is:

> Are there any parents out there who have used the DOCBand with

> children who have low muscle tone? Did you see any negative

effects?

> Thanks for your help!

> Janice

>

[Guest guest]

Janice:

My son is a DOC band grad (in 2000) -- this year at almost 6 he was

diagnosed by a PT with Hypotonia in his upper extremities. Some of what you

say was present when he was younger but not so pronounced, so we didn't ever

question the pediatrician about it, and he never crawled (did an " army

crawl " scooting on his belly and used his elbows/arms to move, but got to

where he wanted to go, and again, never said anything to the ped about it.).

He started to walk on his first birthday. I can't remember when he sat up by

himself. He did fine in the DOC band, though. His head went straight back

(no slope) and so, even at 5 and 6 months sat with his chin towards his

chest. He could, when prompted bring his head up though. We thought this

was just the size of his head that caused it. He didn't go to one side or

the other though. During treatment, with the DOCBand (which almost covered

his whole head because of his head shape), he gained the muscle strength to

hold his head up, etc.

aka " Kali "

mom to Quinn, born 11/19/99 -- DOC band graduate for scaphocephalic head

shape 10/00

Cincinnati Ohio

brief bio and before/after pix here

http://www.cappskids.org/CAPPSPlagioKidQuinn.htm

Hypotonia (Low Muscle Tone)

Are there any parents out there who have a child with low muscle tone?

My 16 month old daughter has low muscle tone and when she is feeling

weak, leans her head to her right side. This has been diagnosed as

torticollis, although our physical therapist says that it is not a

" true " torticollis to the extent that it is not a shortening of the

muscle.

t got her band on Wednesday and we've noticed that due to her low

muscle tone, she is having much greater difficulty holding her head in

midline. We don't want to move backwards in this area as she was

about 7 months old before she could hold her head up independently.

She also cannot roll over with the DOCBand on--it's too heavy. (She is

not sitting up independently yet or crawling or walking.)

My question is:

Are there any parents out there who have used the DOCBand with

children who have low muscle tone? Did you see any negative effects?

Thanks for your help!

Janice

For more plagio info

[Guest guest]

Janice:

My son is a DOC band grad (in 2000) -- this year at almost 6 he was

diagnosed by a PT with Hypotonia in his upper extremities. Some of what you

say was present when he was younger but not so pronounced, so we didn't ever

question the pediatrician about it, and he never crawled (did an " army

crawl " scooting on his belly and used his elbows/arms to move, but got to

where he wanted to go, and again, never said anything to the ped about it.).

He started to walk on his first birthday. I can't remember when he sat up by

himself. He did fine in the DOC band, though. His head went straight back

(no slope) and so, even at 5 and 6 months sat with his chin towards his

chest. He could, when prompted bring his head up though. We thought this

was just the size of his head that caused it. He didn't go to one side or

the other though. During treatment, with the DOCBand (which almost covered

his whole head because of his head shape), he gained the muscle strength to

hold his head up, etc.

aka " Kali "

mom to Quinn, born 11/19/99 -- DOC band graduate for scaphocephalic head

shape 10/00

Cincinnati Ohio

brief bio and before/after pix here

http://www.cappskids.org/CAPPSPlagioKidQuinn.htm

Hypotonia (Low Muscle Tone)

Are there any parents out there who have a child with low muscle tone?

My 16 month old daughter has low muscle tone and when she is feeling

weak, leans her head to her right side. This has been diagnosed as

torticollis, although our physical therapist says that it is not a

" true " torticollis to the extent that it is not a shortening of the

muscle.

t got her band on Wednesday and we've noticed that due to her low

muscle tone, she is having much greater difficulty holding her head in

midline. We don't want to move backwards in this area as she was

about 7 months old before she could hold her head up independently.

She also cannot roll over with the DOCBand on--it's too heavy. (She is

not sitting up independently yet or crawling or walking.)

My question is:

Are there any parents out there who have used the DOCBand with

children who have low muscle tone? Did you see any negative effects?

Thanks for your help!

Janice

For more plagio info

[Guest guest]

,

Thanks for the input. I do belong to Hypotonia Hope, but pretty much

stopped hanging out there once we rec'd our daughter's diagnosis that

was causing the hypotonia, Mitochondrial Disease. You make a good

point though--maybe I will post on there to see if anyone used a

DOCBand with their child.

In so far as how development is concerned, I'm sure it's different

since she has a disease that affects her muscles. However, she has

definitely improved over time--it's just SLOW and steady. When she

gets sick, she does regress, but thankfully has returned to baseline

each time.

Good luck with Olivia! I love that name!

Janice

> >

> > Are there any parents out there who have a child with low muscle

> tone?

> > My 16 month old daughter has low muscle tone and when she is

> feeling

> > weak, leans her head to her right side. This has been diagnosed as

> > torticollis, although our physical therapist says that it is not a

> > " true " torticollis to the extent that it is not a shortening of the

> > muscle.

> > t got her band on Wednesday and we've noticed that due to her

> low

> > muscle tone, she is having much greater difficulty holding her head

> in

> > midline. We don't want to move backwards in this area as she was

> > about 7 months old before she could hold her head up independently.

> > She also cannot roll over with the DOCBand on--it's too heavy. (She

> is

> > not sitting up independently yet or crawling or walking.)

> > My question is:

> > Are there any parents out there who have used the DOCBand with

> > children who have low muscle tone? Did you see any negative

> effects?

> > Thanks for your help!

> > Janice

> >

>

[Guest guest]

,

Thanks for the input. I do belong to Hypotonia Hope, but pretty much

stopped hanging out there once we rec'd our daughter's diagnosis that

was causing the hypotonia, Mitochondrial Disease. You make a good

point though--maybe I will post on there to see if anyone used a

DOCBand with their child.

In so far as how development is concerned, I'm sure it's different

since she has a disease that affects her muscles. However, she has

definitely improved over time--it's just SLOW and steady. When she

gets sick, she does regress, but thankfully has returned to baseline

each time.

Good luck with Olivia! I love that name!

Janice

> >

> > Are there any parents out there who have a child with low muscle

> tone?

> > My 16 month old daughter has low muscle tone and when she is

> feeling

> > weak, leans her head to her right side. This has been diagnosed as

> > torticollis, although our physical therapist says that it is not a

> > " true " torticollis to the extent that it is not a shortening of the

> > muscle.

> > t got her band on Wednesday and we've noticed that due to her

> low

> > muscle tone, she is having much greater difficulty holding her head

> in

> > midline. We don't want to move backwards in this area as she was

> > about 7 months old before she could hold her head up independently.

> > She also cannot roll over with the DOCBand on--it's too heavy. (She

> is

> > not sitting up independently yet or crawling or walking.)

> > My question is:

> > Are there any parents out there who have used the DOCBand with

> > children who have low muscle tone? Did you see any negative

> effects?

> > Thanks for your help!

> > Janice

> >

>

[Guest guest]

Hi Janice, my son is a STARgrad (4/04) and is now 2 1/2 years old.

He was diagnosed with hypotonia by his PT. He didn't crawl until 12

months and walked at 18 months (not sure if this is due to hypotnoia

or not, my 8yo dd crawled at 11mo, walked at 17mo and she has not

had any physical problems). The diagnosis was not made until he

started standing and he was standing on the insides of his feet.

He does still walk on the insides of his feet, and it does affect

his balance. He can jump, climb, run, etc. The problem comes when

he tries to walk up or down stairs. We have had inserts for his

shoes in the past, he outgrew them and we're getting new ones next

week. The ped has said to not worry about it until he's 3 and if

it's still bad we'll go to a specialist. He has improved gradually,

one foot more than the other, so I am not *too* worried about it.

I am going to check out the group previously mention, Hypotonia

Hope now!

Cory

-mom to

[Guest guest]

Hi Janice, my son is a STARgrad (4/04) and is now 2 1/2 years old.

He was diagnosed with hypotonia by his PT. He didn't crawl until 12

months and walked at 18 months (not sure if this is due to hypotnoia

or not, my 8yo dd crawled at 11mo, walked at 17mo and she has not

had any physical problems). The diagnosis was not made until he

started standing and he was standing on the insides of his feet.

He does still walk on the insides of his feet, and it does affect

his balance. He can jump, climb, run, etc. The problem comes when

he tries to walk up or down stairs. We have had inserts for his

shoes in the past, he outgrew them and we're getting new ones next

week. The ped has said to not worry about it until he's 3 and if

it's still bad we'll go to a specialist. He has improved gradually,

one foot more than the other, so I am not *too* worried about it.

I am going to check out the group previously mention, Hypotonia

Hope now!

Cory

-mom to