To Jody/anyone who may know: Re: off ATDs

December 3, 2001

Dear Jody,

I am wondering...you said that you don't want to stop PTU until your

TSI ab's are less than .01...I have been on PTU since Sept. My TSI

test came back 98% which is normal(normal is less than 130%) but it

was not an amount like yours, but rather a percent. Do you know the

difference ? Are there two different kinds of TSI tests ? Thanks,

-- In graves_support@y..., " Jody Spitale " <luckystrike@h...> wrote:

> HI Mylene,

> Ask your doctor to run a Free T3 and Free T4 and TSI antibody

before

> removing you completely from you ATD. See where those tests are

now and

> again in 8-12 weeks and keep them monitoried. If your TSI

antibodies are

> still elevated, ask him to keep you on the ATD for a while longer,

even at

> the very reduced dose you are now on, considering you have already

come out

> of remission once.

>

> I have read other people in remission who are nervous of coming off

their

> ATD's and I know I would be too, it is kind of like a security

blanket in my

> mind. I don't want to come off the PTU until my TSI ab's are less

than .01

> and remain there for a while.

>

> Make sure when you leave the xenical you do it the way they say, I

think you

> need to cut down and leave gradually...but I could be wrong.

> Take care and keep on keeping healthy!

> Jody

>

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