Re: Feel as well as pre-thyca?

[Guest guest]

YES, Karlie--as someone else said--there IS light at the end of the

RAI tunnel.....

I've had thyca for over 20 years, and in fact, because of the dose of

synthroid that I'm on, I have more energy than many of my non-

thyca friends. (and of course, I'm also smarter and better looking!)

After my meds were regulated, I really felt better after my RAI than

ever.

Example--RAI in early January--Hiking vacation in Austria in June.

Hope this helps!

c

pt: 1981 (Pap Ca, 6 nodes involved),

pt:2001, tt:2001 (Recurrent Pap ca)

RAI 159 mci 1/02

Synthroid 200 mcg

[Guest guest]

YES, Karlie--as someone else said--there IS light at the end of the

RAI tunnel.....

I've had thyca for over 20 years, and in fact, because of the dose of

synthroid that I'm on, I have more energy than many of my non-

thyca friends. (and of course, I'm also smarter and better looking!)

After my meds were regulated, I really felt better after my RAI than

ever.

Example--RAI in early January--Hiking vacation in Austria in June.

Hope this helps!

c

pt: 1981 (Pap Ca, 6 nodes involved),

pt:2001, tt:2001 (Recurrent Pap ca)

RAI 159 mci 1/02

Synthroid 200 mcg

[Guest guest]

Karlene,

YMMV, of course, but I actually feel BETTER 13 years post dx than I

did before my treatment. It didn't happen fast; I went through the

usual agonies of replacing unsatisfactory doctors and trying to get my

meds adjusted. When I still didn't feel quite right several months

after RAI, I often got discouraged; for a while, I was convinced that

I would be fat, tired, dim, and grumpy for the rest of my life.

Just when I had resigned myself to my fate (being fat, grumpy, and

tired beats being dead, right?), things gradually began to get better.

Some days I made it all the way through dinner without a nap. My

taste buds started to work again. I started to actually finish some

of the projects I started. Brain fog became intermittent rather than

constant. I lost weight. By and by, I got back to my normal pre-

thyca condition... and just kept going :-).

It happens gradually over a period of several months, but it DOES

happen. I know how eager you are to feel " all better " now that your

RAI is behind you, but if there's one thing thyca will teach you, it's

patience. All you can do is go with the flow, keep taking naps when

you need them, and try not to take it personally when your brain fog

makes your loved ones laugh at you :-). It will all go away in its

own time.

Hope this helps,

ellen

--

mailto:ellen@...

[Guest guest]

I feel the same as I did pre-thyca, no difference in energy level,

moods etc - I had surgery in aug of 99, RAI in april 00, and except

for yearly testing, there is no difference in my life. It took about

6 months for me to be back to normal after surgery, just to go out of

whack again for RAI.. but I bounced back from that in about a month

or so.

barb

tt 8/99 RAI 4/00 Clean Scans 12/00, 5/02

> So, you long-timers out there....Once your medications are

regulated,

> do you eventually feel as well as you did pre-thyca? (energy

level,

> mood, etc.?) I am still pretty hypo after RAI on 9/20/02 (150 mci)

> and still have lots of brain fog and am still taking naps

everyday.

> When can I expect this to get better and will I eventually return

to

> my pre-thyca energy level, etc?

>

> Thanks so much for your help.

>

> Karlene Behlen

> Pap cancer

> TT 8/9/02

> RAI 150 mci 9/20/02

[Guest guest]

I feel the same as I did pre-thyca, no difference in energy level,

moods etc - I had surgery in aug of 99, RAI in april 00, and except

for yearly testing, there is no difference in my life. It took about

6 months for me to be back to normal after surgery, just to go out of

whack again for RAI.. but I bounced back from that in about a month

or so.

barb

tt 8/99 RAI 4/00 Clean Scans 12/00, 5/02

> So, you long-timers out there....Once your medications are

regulated,

> do you eventually feel as well as you did pre-thyca? (energy

level,

> mood, etc.?) I am still pretty hypo after RAI on 9/20/02 (150 mci)

> and still have lots of brain fog and am still taking naps

everyday.

> When can I expect this to get better and will I eventually return

to

> my pre-thyca energy level, etc?

>

> Thanks so much for your help.

>

> Karlene Behlen

> Pap cancer

> TT 8/9/02

> RAI 150 mci 9/20/02

[Guest guest]

I feel the same as I did pre-thyca, no difference in energy level,

moods etc - I had surgery in aug of 99, RAI in april 00, and except

for yearly testing, there is no difference in my life. It took about

6 months for me to be back to normal after surgery, just to go out of

whack again for RAI.. but I bounced back from that in about a month

or so.

barb

tt 8/99 RAI 4/00 Clean Scans 12/00, 5/02

> So, you long-timers out there....Once your medications are

regulated,

> do you eventually feel as well as you did pre-thyca? (energy

level,

> mood, etc.?) I am still pretty hypo after RAI on 9/20/02 (150 mci)

> and still have lots of brain fog and am still taking naps

everyday.

> When can I expect this to get better and will I eventually return

to

> my pre-thyca energy level, etc?

>

> Thanks so much for your help.

>

> Karlene Behlen

> Pap cancer

> TT 8/9/02

> RAI 150 mci 9/20/02

[Guest guest]

In a message dated 10/21/02 9:55:08 AM Eastern Daylight Time,

karlene.behlen@... writes:

<<

So, you long-timers out there....Once your medications are regulated,

do you eventually feel as well as you did pre-thyca? >>

I don't feel like I qualify as a " long timer " as it has been less than a year

since my TT (1/8/02) and I didn't have RAI until 7/2/02, but I feel fine. My

TSH is still a bit high at 1.3 but we're working to get that regulated. I

pretty much feel the same as before this thyca journey started.

~Kim in NJ

pap ca 3.9 cm

TT 1/8/02

RAI 7/2/02

[Guest guest]

Hi all,

I had my PT and TT in 2000. All my levels are fine, scans are great, but I

still don't have the energy that I had pre-thyca either. I feel good, work

all day, etc., but it's just not the same. I imagine that the xtra 20 lbs

(since thyca) has alot to do with it also.

Best wishes to all,

Lynn in New York

PT 1/00, TT 3/00, RAI 149 mCi 5/00, clean scan 9/01, clean scan (thyrogen)

10/02

[Guest guest]

Hi all,

I had my PT and TT in 2000. All my levels are fine, scans are great, but I

still don't have the energy that I had pre-thyca either. I feel good, work

all day, etc., but it's just not the same. I imagine that the xtra 20 lbs

(since thyca) has alot to do with it also.

Best wishes to all,

Lynn in New York

PT 1/00, TT 3/00, RAI 149 mCi 5/00, clean scan 9/01, clean scan (thyrogen)

10/02

[Guest guest]

Hi all,

I had my PT and TT in 2000. All my levels are fine, scans are great, but I

still don't have the energy that I had pre-thyca either. I feel good, work

all day, etc., but it's just not the same. I imagine that the xtra 20 lbs

(since thyca) has alot to do with it also.

Best wishes to all,

Lynn in New York

PT 1/00, TT 3/00, RAI 149 mCi 5/00, clean scan 9/01, clean scan (thyrogen)

10/02

[Guest guest]

Barb Kozlowski said:

> Gayle,

> I am so glad that you wrote what you did, I was beginning to

> think I

> was the only one who has never felt the same since my tt back in 2000.

> I felt so wonderful with so much energy, let alone about 60 pounds

> lighter, prior to surgery. I think what happens is you begin to

> forget just how good you did feel and how you do feel becomes normal.

> I work, etc. so I can't say that I don't have energy, but nothing like

> before. I have learned to live with things the way they are.

> Reading all these people who feel great, I was starting to think maybe

> it was just me, but so glad to know that I am not alone. Barbk

--

Hi Barb,

Don't you also have hypoparathyriodism? Don't forget to take that into

account. And the fact that you are working. Be easy on yoursself. Even

with HPTH, I felt better than previously *after* the RAI and stabilization

of all my many meds. There is hope. Hang in there.

in Canton

--

1965 TT, no RAI, hypoparathyroidism

1982 Recurrence in neck & chest, RAI 176 mCi

2001 Clean scan PTL~!

[Guest guest]

Barb Kozlowski said:

> Gayle,

> I am so glad that you wrote what you did, I was beginning to

> think I

> was the only one who has never felt the same since my tt back in 2000.

> I felt so wonderful with so much energy, let alone about 60 pounds

> lighter, prior to surgery. I think what happens is you begin to

> forget just how good you did feel and how you do feel becomes normal.

> I work, etc. so I can't say that I don't have energy, but nothing like

> before. I have learned to live with things the way they are.

> Reading all these people who feel great, I was starting to think maybe

> it was just me, but so glad to know that I am not alone. Barbk

--

Hi Barb,

Don't you also have hypoparathyriodism? Don't forget to take that into

account. And the fact that you are working. Be easy on yoursself. Even

with HPTH, I felt better than previously *after* the RAI and stabilization

of all my many meds. There is hope. Hang in there.

in Canton

--

1965 TT, no RAI, hypoparathyroidism

1982 Recurrence in neck & chest, RAI 176 mCi

2001 Clean scan PTL~!

[Guest guest]

Barb Kozlowski said:

> Gayle,

> I am so glad that you wrote what you did, I was beginning to

> think I

> was the only one who has never felt the same since my tt back in 2000.

> I felt so wonderful with so much energy, let alone about 60 pounds

> lighter, prior to surgery. I think what happens is you begin to

> forget just how good you did feel and how you do feel becomes normal.

> I work, etc. so I can't say that I don't have energy, but nothing like

> before. I have learned to live with things the way they are.

> Reading all these people who feel great, I was starting to think maybe

> it was just me, but so glad to know that I am not alone. Barbk

--

Hi Barb,

Don't you also have hypoparathyriodism? Don't forget to take that into

account. And the fact that you are working. Be easy on yoursself. Even

with HPTH, I felt better than previously *after* the RAI and stabilization

of all my many meds. There is hope. Hang in there.

in Canton

--

1965 TT, no RAI, hypoparathyroidism

1982 Recurrence in neck & chest, RAI 176 mCi

2001 Clean scan PTL~!

[Guest guest]

Now that a few brave souls have written I have to cast my votes with

the not-as-well group. I am just over a year past my TT and RAI and,

while functioning(work full time, two young kids), I don't even feel

a shadow of my former self. And my blood levels are testing in the

proper range for a thycan (properly suppressed) so my meds have been

the same for months. We are in the process of moving and I can do so

little without becoming achy and tired I know my family thinks I'm a

slouch. And I just feel like a hypochondriac. I'm not resigning

myself to a lifetime of this but the end of that tunnel doesn't seem

to be shining yet! Sue from CT

[Guest guest]

Now that a few brave souls have written I have to cast my votes with

the not-as-well group. I am just over a year past my TT and RAI and,

while functioning(work full time, two young kids), I don't even feel

a shadow of my former self. And my blood levels are testing in the

proper range for a thycan (properly suppressed) so my meds have been

the same for months. We are in the process of moving and I can do so

little without becoming achy and tired I know my family thinks I'm a

slouch. And I just feel like a hypochondriac. I'm not resigning

myself to a lifetime of this but the end of that tunnel doesn't seem

to be shining yet! Sue from CT

[Guest guest]

Now that a few brave souls have written I have to cast my votes with

the not-as-well group. I am just over a year past my TT and RAI and,

while functioning(work full time, two young kids), I don't even feel

a shadow of my former self. And my blood levels are testing in the

proper range for a thycan (properly suppressed) so my meds have been

the same for months. We are in the process of moving and I can do so

little without becoming achy and tired I know my family thinks I'm a

slouch. And I just feel like a hypochondriac. I'm not resigning

myself to a lifetime of this but the end of that tunnel doesn't seem

to be shining yet! Sue from CT

[Guest guest]

Hi,

Me too. I sometimes wonder if I really was different. But I know

that both physically and mentally I have changed. I do sometimes have

a twinge of my old self, positive and energetic; I wish I knew what

triggered it.

I have recently been taking some adrenal hormones thinking that organ

may be totally exhausted. I noticed a change in the summer, but

nothing now.

Also I have been reading how the liver converts the T4 to T3(the real

thyroid hormone) and people who take a lot of pharmecuticals need to

help keep the liver functioning by cleansing and supportive nutrients.

I may sound a little flaky because I tend to be a little more into

the natural or alternative approaches. The conventional doctors also

tend not to care how you feel as long as the TSH level is suppressed.

Hey I live in Ct too. Do you know that a Thyca group just began in

Stratford?

Laurie

DX,TT,RAI 1996

Clear Scan 2002

> Now that a few brave souls have written I have to cast my votes

with

> the not-as-well group. I am just over a year past my TT and RAI

and,

> while functioning(work full time, two young kids), I don't even

feel

> a shadow of my former self. And my blood levels are testing in the

> proper range for a thycan (properly suppressed) so my meds have

been

> the same for months. We are in the process of moving and I can do

so

> little without becoming achy and tired I know my family thinks I'm

a

> slouch. And I just feel like a hypochondriac. I'm not resigning

> myself to a lifetime of this but the end of that tunnel doesn't

seem

> to be shining yet! Sue from CT

[Guest guest]

Hi,

Me too. I sometimes wonder if I really was different. But I know

that both physically and mentally I have changed. I do sometimes have

a twinge of my old self, positive and energetic; I wish I knew what

triggered it.

I have recently been taking some adrenal hormones thinking that organ

may be totally exhausted. I noticed a change in the summer, but

nothing now.

Also I have been reading how the liver converts the T4 to T3(the real

thyroid hormone) and people who take a lot of pharmecuticals need to

help keep the liver functioning by cleansing and supportive nutrients.

I may sound a little flaky because I tend to be a little more into

the natural or alternative approaches. The conventional doctors also

tend not to care how you feel as long as the TSH level is suppressed.

Hey I live in Ct too. Do you know that a Thyca group just began in

Stratford?

Laurie

DX,TT,RAI 1996

Clear Scan 2002

> Now that a few brave souls have written I have to cast my votes

with

> the not-as-well group. I am just over a year past my TT and RAI

and,

> while functioning(work full time, two young kids), I don't even

feel

> a shadow of my former self. And my blood levels are testing in the

> proper range for a thycan (properly suppressed) so my meds have

been

> the same for months. We are in the process of moving and I can do

so

> little without becoming achy and tired I know my family thinks I'm

a

> slouch. And I just feel like a hypochondriac. I'm not resigning

> myself to a lifetime of this but the end of that tunnel doesn't

seem

> to be shining yet! Sue from CT

[Guest guest]

Hi,

Me too. I sometimes wonder if I really was different. But I know

that both physically and mentally I have changed. I do sometimes have

a twinge of my old self, positive and energetic; I wish I knew what

triggered it.

I have recently been taking some adrenal hormones thinking that organ

may be totally exhausted. I noticed a change in the summer, but

nothing now.

Also I have been reading how the liver converts the T4 to T3(the real

thyroid hormone) and people who take a lot of pharmecuticals need to

help keep the liver functioning by cleansing and supportive nutrients.

I may sound a little flaky because I tend to be a little more into

the natural or alternative approaches. The conventional doctors also

tend not to care how you feel as long as the TSH level is suppressed.

Hey I live in Ct too. Do you know that a Thyca group just began in

Stratford?

Laurie

DX,TT,RAI 1996

Clear Scan 2002

> Now that a few brave souls have written I have to cast my votes

with

> the not-as-well group. I am just over a year past my TT and RAI

and,

> while functioning(work full time, two young kids), I don't even

feel

> a shadow of my former self. And my blood levels are testing in the

> proper range for a thycan (properly suppressed) so my meds have

been

> the same for months. We are in the process of moving and I can do

so

> little without becoming achy and tired I know my family thinks I'm

a

> slouch. And I just feel like a hypochondriac. I'm not resigning

> myself to a lifetime of this but the end of that tunnel doesn't

seem

> to be shining yet! Sue from CT

[Guest guest]

> Hi,

> Me too. I sometimes wonder if I really was different. But I know

> that both physically and mentally I have changed. I do sometimes

have

> a twinge of my old self, positive and energetic; I wish I knew what

> triggered it.

> I have recently been taking some adrenal hormones thinking that

organ

> may be totally exhausted. I noticed a change in the summer, but

> nothing now.

> Also I have been reading how the liver converts the T4 to T3(the

real

> thyroid hormone) and people who take a lot of pharmecuticals need

to

> help keep the liver functioning by cleansing and supportive

nutrients.

> I may sound a little flaky because I tend to be a little more into

> the natural or alternative approaches. The conventional doctors

also

> tend not to care how you feel as long as the TSH level is

suppressed.

> Hey I live in Ct too. Do you know that a Thyca group just began in

> Stratford?

>

> Laurie

> DX,TT,RAI 1996

> Clear Scan 2002

>

Hi Laurie!

Yes, I've been going to the group--I remember you! You'll know me

when we meet next time! Good to have such nice company!!!:>) Sue

from CT

[Guest guest]

> Hi,

> Me too. I sometimes wonder if I really was different. But I know

> that both physically and mentally I have changed. I do sometimes

have

> a twinge of my old self, positive and energetic; I wish I knew what

> triggered it.

> I have recently been taking some adrenal hormones thinking that

organ

> may be totally exhausted. I noticed a change in the summer, but

> nothing now.

> Also I have been reading how the liver converts the T4 to T3(the

real

> thyroid hormone) and people who take a lot of pharmecuticals need

to

> help keep the liver functioning by cleansing and supportive

nutrients.

> I may sound a little flaky because I tend to be a little more into

> the natural or alternative approaches. The conventional doctors

also

> tend not to care how you feel as long as the TSH level is

suppressed.

> Hey I live in Ct too. Do you know that a Thyca group just began in

> Stratford?

>

> Laurie

> DX,TT,RAI 1996

> Clear Scan 2002

>

Hi Laurie!

Yes, I've been going to the group--I remember you! You'll know me

when we meet next time! Good to have such nice company!!!:>) Sue

from CT

[Guest guest]

> Hi,

> Me too. I sometimes wonder if I really was different. But I know

> that both physically and mentally I have changed. I do sometimes

have

> a twinge of my old self, positive and energetic; I wish I knew what

> triggered it.

> I have recently been taking some adrenal hormones thinking that

organ

> may be totally exhausted. I noticed a change in the summer, but

> nothing now.

> Also I have been reading how the liver converts the T4 to T3(the

real

> thyroid hormone) and people who take a lot of pharmecuticals need

to

> help keep the liver functioning by cleansing and supportive

nutrients.

> I may sound a little flaky because I tend to be a little more into

> the natural or alternative approaches. The conventional doctors

also

> tend not to care how you feel as long as the TSH level is

suppressed.

> Hey I live in Ct too. Do you know that a Thyca group just began in

> Stratford?

>

> Laurie

> DX,TT,RAI 1996

> Clear Scan 2002

>

Hi Laurie!

Yes, I've been going to the group--I remember you! You'll know me

when we meet next time! Good to have such nice company!!!:>) Sue

from CT

[Guest guest]

--Laurie,

Maybe you would feel better on synthroid or another form of T4 rather than

Armour.

- In Thyca@y..., " ljsh96 " <laurie.salvati@p...> wrote:

> Hi,

> Me too. I sometimes wonder if I really was different. But I know

> that both physically and mentally I have changed. I do sometimes have

> a twinge of my old self, positive and energetic; I wish I knew what

> triggered it.

> I have recently been taking some adrenal hormones thinking that organ

> may be totally exhausted. I noticed a change in the summer, but

> nothing now.

> Also I have been reading how the liver converts the T4 to T3(the real

> thyroid hormone) and people who take a lot of pharmecuticals need to

> help keep the liver functioning by cleansing and supportive nutrients.

> I may sound a little flaky because I tend to be a little more into

> the natural or alternative approaches. The conventional doctors also

> tend not to care how you feel as long as the TSH level is suppressed.

> Hey I live in Ct too. Do you know that a Thyca group just began in

> Stratford?

>

> Laurie

> DX,TT,RAI 1996

> Clear Scan 2002

>

>

> > Now that a few brave souls have written I have to cast my votes

> with

> > the not-as-well group. I am just over a year past my TT and RAI

> and,

> > while functioning(work full time, two young kids), I don't even

> feel

> > a shadow of my former self. And my blood levels are testing in the

> > proper range for a thycan (properly suppressed) so my meds have

> been

> > the same for months. We are in the process of moving and I can do

> so

> > little without becoming achy and tired I know my family thinks I'm

> a

> > slouch. And I just feel like a hypochondriac. I'm not resigning

> > myself to a lifetime of this but the end of that tunnel doesn't

> seem

> > to be shining yet! Sue from CT

[Guest guest]

--Laurie,

Maybe you would feel better on synthroid or another form of T4 rather than

Armour.

- In Thyca@y..., " ljsh96 " <laurie.salvati@p...> wrote:

> Hi,

> Me too. I sometimes wonder if I really was different. But I know

> that both physically and mentally I have changed. I do sometimes have

> a twinge of my old self, positive and energetic; I wish I knew what

> triggered it.

> I have recently been taking some adrenal hormones thinking that organ

> may be totally exhausted. I noticed a change in the summer, but

> nothing now.

> Also I have been reading how the liver converts the T4 to T3(the real

> thyroid hormone) and people who take a lot of pharmecuticals need to

> help keep the liver functioning by cleansing and supportive nutrients.

> I may sound a little flaky because I tend to be a little more into

> the natural or alternative approaches. The conventional doctors also

> tend not to care how you feel as long as the TSH level is suppressed.

> Hey I live in Ct too. Do you know that a Thyca group just began in

> Stratford?

>

> Laurie

> DX,TT,RAI 1996

> Clear Scan 2002

>

>

> > Now that a few brave souls have written I have to cast my votes

> with

> > the not-as-well group. I am just over a year past my TT and RAI

> and,

> > while functioning(work full time, two young kids), I don't even

> feel

> > a shadow of my former self. And my blood levels are testing in the

> > proper range for a thycan (properly suppressed) so my meds have

> been

> > the same for months. We are in the process of moving and I can do

> so

> > little without becoming achy and tired I know my family thinks I'm

> a

> > slouch. And I just feel like a hypochondriac. I'm not resigning

> > myself to a lifetime of this but the end of that tunnel doesn't

> seem

> > to be shining yet! Sue from CT

[Guest guest]

--Laurie,

Maybe you would feel better on synthroid or another form of T4 rather than

Armour.

- In Thyca@y..., " ljsh96 " <laurie.salvati@p...> wrote:

> Hi,

> Me too. I sometimes wonder if I really was different. But I know

> that both physically and mentally I have changed. I do sometimes have

> a twinge of my old self, positive and energetic; I wish I knew what

> triggered it.

> I have recently been taking some adrenal hormones thinking that organ

> may be totally exhausted. I noticed a change in the summer, but

> nothing now.

> Also I have been reading how the liver converts the T4 to T3(the real

> thyroid hormone) and people who take a lot of pharmecuticals need to

> help keep the liver functioning by cleansing and supportive nutrients.

> I may sound a little flaky because I tend to be a little more into

> the natural or alternative approaches. The conventional doctors also

> tend not to care how you feel as long as the TSH level is suppressed.

> Hey I live in Ct too. Do you know that a Thyca group just began in

> Stratford?

>

> Laurie

> DX,TT,RAI 1996

> Clear Scan 2002

>

>

> > Now that a few brave souls have written I have to cast my votes

> with

> > the not-as-well group. I am just over a year past my TT and RAI

> and,

> > while functioning(work full time, two young kids), I don't even

> feel

> > a shadow of my former self. And my blood levels are testing in the

> > proper range for a thycan (properly suppressed) so my meds have

> been

> > the same for months. We are in the process of moving and I can do

> so

> > little without becoming achy and tired I know my family thinks I'm

> a

> > slouch. And I just feel like a hypochondriac. I'm not resigning

> > myself to a lifetime of this but the end of that tunnel doesn't

> seem

> > to be shining yet! Sue from CT