Jump to content
RemedySpot.com

RE: Welcome to Fibromyalgia-CFS

Rate this topic


Guest guest

Recommended Posts

Hi Lorraine,

Thanks for the welcome.....U know what..my brain does that to. when it

isn't running 100 mph it's standing still not moving at all. The worst

for me is typing. If I don't look at the key bored I do just fine. but

if I look I screw it all up. (but I always have to look.....go figure!)

My brain works faster then my fingers most days while on the computer.

it sure is frustrating LOL Thank god for spell check is all I can say

hehe

~~~ Jo

Hello CAthyjo

Welcome to the group. It's good to talk as when we do

we find out that we have so much in common. My brain

works faster than my hands can write, but having the

computer as been a great help as I can keep up and If

I make mistakes I can always rectify it before sending

and not have to rewrite everything as I used to have

to do before computers came around.

God bless

Lorraine UK

Link to comment
Share on other sites

Hi Lorraine,

Thanks for the welcome.....U know what..my brain does that to. when it

isn't running 100 mph it's standing still not moving at all. The worst

for me is typing. If I don't look at the key bored I do just fine. but

if I look I screw it all up. (but I always have to look.....go figure!)

My brain works faster then my fingers most days while on the computer.

it sure is frustrating LOL Thank god for spell check is all I can say

hehe

~~~ Jo

Hello CAthyjo

Welcome to the group. It's good to talk as when we do

we find out that we have so much in common. My brain

works faster than my hands can write, but having the

computer as been a great help as I can keep up and If

I make mistakes I can always rectify it before sending

and not have to rewrite everything as I used to have

to do before computers came around.

God bless

Lorraine UK

Link to comment
Share on other sites

  • 3 weeks later...

Hello, everyone!

I just joined the FMS-CFS mailing list today to try to get some more

information regarding FMS, as I believe I suffer from this condition.

Name: Donna Riley

Male/female: Female

Age area: 30

Country/City/Farm life: City-NYC to be exact

Do you have Fibromyalgia or CFS: I believe I have fibromyalgia...

How bad is it: Right now it is very, very bad

How long have you had it?: A year?

What have you found works for you: I haven't found anything that helps yet

Are you on disability: Not yet

Married/ Single: Married

Work out or stay at home: I am currently staying at home

What else can I tell you guys? I also have a disease called endometriosis,

that I have been suffering from for over 5 years-for those of you who don't

know, endometriosis and FMS are commonly seen together or with other

autoimmune disorders.

I look forward to getting to know all of you and benefiting from your

knowledge.

-Donna Riley

niobioblio@...

Link to comment
Share on other sites

Hello, everyone!

I just joined the FMS-CFS mailing list today to try to get some more

information regarding FMS, as I believe I suffer from this condition.

Name: Donna Riley

Male/female: Female

Age area: 30

Country/City/Farm life: City-NYC to be exact

Do you have Fibromyalgia or CFS: I believe I have fibromyalgia...

How bad is it: Right now it is very, very bad

How long have you had it?: A year?

What have you found works for you: I haven't found anything that helps yet

Are you on disability: Not yet

Married/ Single: Married

Work out or stay at home: I am currently staying at home

What else can I tell you guys? I also have a disease called endometriosis,

that I have been suffering from for over 5 years-for those of you who don't

know, endometriosis and FMS are commonly seen together or with other

autoimmune disorders.

I look forward to getting to know all of you and benefiting from your

knowledge.

-Donna Riley

niobioblio@...

Link to comment
Share on other sites

Hello, everyone!

I just joined the FMS-CFS mailing list today to try to get some more

information regarding FMS, as I believe I suffer from this condition.

Name: Donna Riley

Male/female: Female

Age area: 30

Country/City/Farm life: City-NYC to be exact

Do you have Fibromyalgia or CFS: I believe I have fibromyalgia...

How bad is it: Right now it is very, very bad

How long have you had it?: A year?

What have you found works for you: I haven't found anything that helps yet

Are you on disability: Not yet

Married/ Single: Married

Work out or stay at home: I am currently staying at home

What else can I tell you guys? I also have a disease called endometriosis,

that I have been suffering from for over 5 years-for those of you who don't

know, endometriosis and FMS are commonly seen together or with other

autoimmune disorders.

I look forward to getting to know all of you and benefiting from your

knowledge.

-Donna Riley

niobioblio@...

Link to comment
Share on other sites

I live on the upper East side and have a great doctor that specializes in CFIDS

and FMS. Let me know if you want her info. slaroc@...

Let's see, I'm 36, married, two kids from a previous marriage. My doctor has

found a few things that help me.

\|/ \|/ \|/ \|/ \|/ \|/ \|/ \|/ \|/ \|/ \|/ \|/ \|/ \|/ \|/ \|/ \|/

and Lucky (SD)

http://luckylaroche.homestead.com/files/index.htm

\|/ \|/ \|/ \|/ \|/ \|/ \|/ \|/ \|/ \|/ \|/ \|/ \|/ \|/ \|/ \|/\|/

Re: Welcome to

Hello, everyone!

I just joined the FMS-CFS mailing list today to try to get some more

information regarding FMS, as I believe I suffer from this condition.

Name: Donna Riley

Male/female: Female

Age area: 30

Country/City/Farm life: City-NYC to be exact

Do you have Fibromyalgia or CFS: I believe I have fibromyalgia...

How bad is it: Right now it is very, very bad

How long have you had it?: A year?

What have you found works for you: I haven't found anything that helps yet

Are you on disability: Not yet

Married/ Single: Married

Work out or stay at home: I am currently staying at home

What else can I tell you guys? I also have a disease called endometriosis,

that I have been suffering from for over 5 years-for those of you who don't

know, endometriosis and FMS are commonly seen together or with other

autoimmune disorders.

I look forward to getting to know all of you and benefiting from your

knowledge.

-Donna Riley

niobioblio@...

Link to comment
Share on other sites

Hi Donna

Welcome to the group. I also suffer from endo and fm, along with a host

of other problems. If you have any questions, just ask away, people are

glad to help.

Darcy

Link to comment
Share on other sites

Hi Donna

Welcome to the group. I also suffer from endo and fm, along with a host

of other problems. If you have any questions, just ask away, people are

glad to help.

Darcy

Link to comment
Share on other sites

Hi Donna

Welcome to the group. I also suffer from endo and fm, along with a host

of other problems. If you have any questions, just ask away, people are

glad to help.

Darcy

Link to comment
Share on other sites

  • 5 weeks later...

Hi! My name is Meshell. I was diagnosed with FMS/CFS/MPS (along with

several other accompanying illnesses) in 1998 after never recovering from an

operation in 1997 to remove one of my kidneys. I am a 30-year-old

homeschooling mother of 2. My 12-year-old daughter also has fibro, but

doesn't want to go on prescription meds just yet. We didn't know of her

fibro until I was diagnosed....I had never heard of it until then. I

attributed all of her symptoms to a brain injury she had when she was 2. I

know now that the surgery likely triggered the fibro. I look forward to

getting to know all of you here.

Meshell

Link to comment
Share on other sites

Hi! My name is Meshell. I was diagnosed with FMS/CFS/MPS (along with

several other accompanying illnesses) in 1998 after never recovering from an

operation in 1997 to remove one of my kidneys. I am a 30-year-old

homeschooling mother of 2. My 12-year-old daughter also has fibro, but

doesn't want to go on prescription meds just yet. We didn't know of her

fibro until I was diagnosed....I had never heard of it until then. I

attributed all of her symptoms to a brain injury she had when she was 2. I

know now that the surgery likely triggered the fibro. I look forward to

getting to know all of you here.

Meshell

Link to comment
Share on other sites

Hi! My name is Meshell. I was diagnosed with FMS/CFS/MPS (along with

several other accompanying illnesses) in 1998 after never recovering from an

operation in 1997 to remove one of my kidneys. I am a 30-year-old

homeschooling mother of 2. My 12-year-old daughter also has fibro, but

doesn't want to go on prescription meds just yet. We didn't know of her

fibro until I was diagnosed....I had never heard of it until then. I

attributed all of her symptoms to a brain injury she had when she was 2. I

know now that the surgery likely triggered the fibro. I look forward to

getting to know all of you here.

Meshell

Link to comment
Share on other sites

Hi Meshell.. ( I hope I spelled your name

right.. if I didnt.. I'm sorry... )..

welcome to the group.. I'm really new here myself

and this has been a wonderful bunch of people...

I look forward to getting to know you..

I'm sorry about your daughter having this too..

its bad as an adult.. but I waas bipolar as a kid

and I know how screwy it can be..

Serena

=====

Believe more deeply. Hold your face up to the light, even though

for the moment you do not see. Bill W

__________________________________________________

Link to comment
Share on other sites

Hi Meshell.. ( I hope I spelled your name

right.. if I didnt.. I'm sorry... )..

welcome to the group.. I'm really new here myself

and this has been a wonderful bunch of people...

I look forward to getting to know you..

I'm sorry about your daughter having this too..

its bad as an adult.. but I waas bipolar as a kid

and I know how screwy it can be..

Serena

=====

Believe more deeply. Hold your face up to the light, even though

for the moment you do not see. Bill W

__________________________________________________

Link to comment
Share on other sites

Hi Meshell.. ( I hope I spelled your name

right.. if I didnt.. I'm sorry... )..

welcome to the group.. I'm really new here myself

and this has been a wonderful bunch of people...

I look forward to getting to know you..

I'm sorry about your daughter having this too..

its bad as an adult.. but I waas bipolar as a kid

and I know how screwy it can be..

Serena

=====

Believe more deeply. Hold your face up to the light, even though

for the moment you do not see. Bill W

__________________________________________________

Link to comment
Share on other sites

Hi Meshell & welcome to the group. I look forward to

getting to know you as well.

Diane

--- CoveredWoman@... wrote:

> Hi! My name is Meshell. I was diagnosed with

> FMS/CFS/MPS (along with

> several other accompanying illnesses) in 1998 after

> never recovering from an

> operation in 1997 to remove one of my kidneys. I am

> a 30-year-old

> homeschooling mother of 2. My 12-year-old daughter

> also has fibro, but

> doesn't want to go on prescription meds just yet.

> We didn't know of her

> fibro until I was diagnosed....I had never heard of

> it until then. I

> attributed all of her symptoms to a brain injury she

> had when she was 2. I

> know now that the surgery likely triggered the

> fibro. I look forward to

> getting to know all of you here.

>

> Meshell

>

__________________________________________________

Link to comment
Share on other sites

Hi Meshell & welcome to the group. I look forward to

getting to know you as well.

Diane

--- CoveredWoman@... wrote:

> Hi! My name is Meshell. I was diagnosed with

> FMS/CFS/MPS (along with

> several other accompanying illnesses) in 1998 after

> never recovering from an

> operation in 1997 to remove one of my kidneys. I am

> a 30-year-old

> homeschooling mother of 2. My 12-year-old daughter

> also has fibro, but

> doesn't want to go on prescription meds just yet.

> We didn't know of her

> fibro until I was diagnosed....I had never heard of

> it until then. I

> attributed all of her symptoms to a brain injury she

> had when she was 2. I

> know now that the surgery likely triggered the

> fibro. I look forward to

> getting to know all of you here.

>

> Meshell

>

__________________________________________________

Link to comment
Share on other sites

Hi Meshell & welcome to the group. I look forward to

getting to know you as well.

Diane

--- CoveredWoman@... wrote:

> Hi! My name is Meshell. I was diagnosed with

> FMS/CFS/MPS (along with

> several other accompanying illnesses) in 1998 after

> never recovering from an

> operation in 1997 to remove one of my kidneys. I am

> a 30-year-old

> homeschooling mother of 2. My 12-year-old daughter

> also has fibro, but

> doesn't want to go on prescription meds just yet.

> We didn't know of her

> fibro until I was diagnosed....I had never heard of

> it until then. I

> attributed all of her symptoms to a brain injury she

> had when she was 2. I

> know now that the surgery likely triggered the

> fibro. I look forward to

> getting to know all of you here.

>

> Meshell

>

__________________________________________________

Link to comment
Share on other sites

  • 1 month later...

--- Moderator

< -owner > wrote:

>

> Hello,

>

> Welcome to the E-mail list.

>

> SEND POST TO: fibromyalgia-cfs

>

> Would you share any or all of the things below? Your

> answer might just be a help to someone else in some

> areas.

> If you answer any of these questions please make a

> double space ( enter twice) between them so they

> will not all run together.

>

>

> Age range:51

> Male/female:female

>

> What are the symptoms?hurt all over, headaches,

depression, fatigue, sleeplessness.

> Has you illness been diagnosed? just recently

> How long was it that you suffered before you found

> out what was wrong?years

> If Fibto-CFS How long have you been suffering with

> it? probably 20 years.

> Is there a time that you can remember when it

> started? no

> Some of us have found lack of exercise we are

> overweight. Have you found this to be a problem

> also? yes, i have found it very difficult to lose

weight.

> Are you on disability? no

> If you are any pointers for others trying to get on

> disability? n/a

> What have you found that helps ease the pain, warm

> baths, medications etc.? nothing

> Do you have sleep problems? How do you deal with it?

> yes, but i am taking elavil now.

> Do you have family that understands your illness?

not like i would like for them to understand, because

I know now since my father died he must have had it

too, and i didn't understand him.

> Some have found certain foods causes problems with

> CFS or Fibor, have you? no

>

> What type of Dr have you found that has helped you

> the most? I just recently changed drs, because my

dr., a male, did not have a clue. The only thing he

ever did for me was prescribe Vioxx, which didn't help

that much. I started going to a female dr 2 weeks ago

and she seemed to know all about fm. She prescribed

Elavil at night, Celexa in the daytime, and Flexaril

for muscles. I feel better.

>

> If you want to leave a bio you may go to the groups

> page at www.yahoogroups,com log in to the file area

> and make a folder. There you can leave a picture of

> yourself, be sure to click to notify the list. You

> can also leave a bio by making text file then

> bio.txt

> Post are in text only not html codes.

>

> SEND POST TO: fibromyalgia-cfs

>

>

..

>

> >

>

>

__________________________________________________

Link to comment
Share on other sites

--- Moderator

< -owner > wrote:

>

> Hello,

>

> Welcome to the E-mail list.

>

> SEND POST TO: fibromyalgia-cfs

>

> Would you share any or all of the things below? Your

> answer might just be a help to someone else in some

> areas.

> If you answer any of these questions please make a

> double space ( enter twice) between them so they

> will not all run together.

>

>

> Age range:51

> Male/female:female

>

> What are the symptoms?hurt all over, headaches,

depression, fatigue, sleeplessness.

> Has you illness been diagnosed? just recently

> How long was it that you suffered before you found

> out what was wrong?years

> If Fibto-CFS How long have you been suffering with

> it? probably 20 years.

> Is there a time that you can remember when it

> started? no

> Some of us have found lack of exercise we are

> overweight. Have you found this to be a problem

> also? yes, i have found it very difficult to lose

weight.

> Are you on disability? no

> If you are any pointers for others trying to get on

> disability? n/a

> What have you found that helps ease the pain, warm

> baths, medications etc.? nothing

> Do you have sleep problems? How do you deal with it?

> yes, but i am taking elavil now.

> Do you have family that understands your illness?

not like i would like for them to understand, because

I know now since my father died he must have had it

too, and i didn't understand him.

> Some have found certain foods causes problems with

> CFS or Fibor, have you? no

>

> What type of Dr have you found that has helped you

> the most? I just recently changed drs, because my

dr., a male, did not have a clue. The only thing he

ever did for me was prescribe Vioxx, which didn't help

that much. I started going to a female dr 2 weeks ago

and she seemed to know all about fm. She prescribed

Elavil at night, Celexa in the daytime, and Flexaril

for muscles. I feel better.

>

> If you want to leave a bio you may go to the groups

> page at www.yahoogroups,com log in to the file area

> and make a folder. There you can leave a picture of

> yourself, be sure to click to notify the list. You

> can also leave a bio by making text file then

> bio.txt

> Post are in text only not html codes.

>

> SEND POST TO: fibromyalgia-cfs

>

>

..

>

> >

>

>

__________________________________________________

Link to comment
Share on other sites

--- Moderator

< -owner > wrote:

>

> Hello,

>

> Welcome to the E-mail list.

>

> SEND POST TO: fibromyalgia-cfs

>

> Would you share any or all of the things below? Your

> answer might just be a help to someone else in some

> areas.

> If you answer any of these questions please make a

> double space ( enter twice) between them so they

> will not all run together.

>

>

> Age range:51

> Male/female:female

>

> What are the symptoms?hurt all over, headaches,

depression, fatigue, sleeplessness.

> Has you illness been diagnosed? just recently

> How long was it that you suffered before you found

> out what was wrong?years

> If Fibto-CFS How long have you been suffering with

> it? probably 20 years.

> Is there a time that you can remember when it

> started? no

> Some of us have found lack of exercise we are

> overweight. Have you found this to be a problem

> also? yes, i have found it very difficult to lose

weight.

> Are you on disability? no

> If you are any pointers for others trying to get on

> disability? n/a

> What have you found that helps ease the pain, warm

> baths, medications etc.? nothing

> Do you have sleep problems? How do you deal with it?

> yes, but i am taking elavil now.

> Do you have family that understands your illness?

not like i would like for them to understand, because

I know now since my father died he must have had it

too, and i didn't understand him.

> Some have found certain foods causes problems with

> CFS or Fibor, have you? no

>

> What type of Dr have you found that has helped you

> the most? I just recently changed drs, because my

dr., a male, did not have a clue. The only thing he

ever did for me was prescribe Vioxx, which didn't help

that much. I started going to a female dr 2 weeks ago

and she seemed to know all about fm. She prescribed

Elavil at night, Celexa in the daytime, and Flexaril

for muscles. I feel better.

>

> If you want to leave a bio you may go to the groups

> page at www.yahoogroups,com log in to the file area

> and make a folder. There you can leave a picture of

> yourself, be sure to click to notify the list. You

> can also leave a bio by making text file then

> bio.txt

> Post are in text only not html codes.

>

> SEND POST TO: fibromyalgia-cfs

>

>

..

>

> >

>

>

__________________________________________________

Link to comment
Share on other sites

Join the conversation

You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.

Guest
Reply to this topic...

×   Pasted as rich text.   Paste as plain text instead

  Only 75 emoji are allowed.

×   Your link has been automatically embedded.   Display as a link instead

×   Your previous content has been restored.   Clear editor

×   You cannot paste images directly. Upload or insert images from URL.

Loading...
×
×
  • Create New...