Re: Question..Dr's tommorrow

[Guest guest]

A rash NEVER has to do with an adjustment in meds. The rash is trying to

tell you that you're allergic to something, and, if it is the Tapazole, you

are continuing to take it, while it may eventually set you up for a

dangerous anaphylactic attack, where the throat closes and you stop

breathing. Maybe I'm wrong, but I'm seeing the heart rate thing as more of

an allergic response to something. What is it that proves that you were/are

hyper? Where are the tests to prove this? Did they say that you are hyper

based on the TSH alone? If they did, they are sadly mistaken about this.

Have they not suggested taking Methimazole instead? It is another med to

reduce the thyroid hormones' effects, just like Tapazole. Why have they not

changed to this? What are your Free T3 and Free T4?

Question..Dr's tommorrow

> I am phoning the doctor to try and get in tommorrow..

> My story so far..

> I have a goiter, increasing quite rapidly. My bloodwork comes back

> normal but on the hyperside, after 7 months of monitoring and a high

> pulse rate that has not dropped my doctor decided to put me on PTU.

> He put me on 100mcg 3 times a day..I decided that was too much

> considering my numbers were not that off so I started by taking 50mcg

> 3 times a day and taking Bromolain to help reduce the inflammation,

> two days later I was rashed out and had to quit the Bromolain.

> Benadryl..

> Two days after that I went for a 24 hour holster monitor..add

> benadryl and betamethasone cream as I had hives where all the

> electrodes were.

> three days later and off benadryl for the second time..I start having

> all these red dots all over my arms..hard to explain but looks like

> blood is sweating through the pores? You could wipe the spots away

> but they would come right back and itchy.. stop PTU add benadryl..

> two days later stop benadryl and hyper symptoms coming back..start

> PTU again but at 25 mcg three times a day..dose has been working good

> although a little low as shakes, high heart beat etc. come back about

> an hour before dose time..did this for about a week, starting getting

> itchy and my skin feels like it is on fire..no real hive rash, just

> all red and blotchy with hives that seem to come and go..red spots

> are slowly coming back but not as bad..been taking Benadryl when it

> gets too bad and it seems to help a little..

>

> My guess is when I see the doctor he is going to flip at me for

> staying on the PTU..and not going into see him sooner.

> I should mention that my goiter was first discovered by an allergist

> as Benadryl seems to be about the only thing I am not allergic to

> when it comes to meds and chemicals.. He has already stated that I

> can not take Tapazole because of allergies?

>

> Any one with any ideas besides quit the PTU? I can already tell it is

> working, I am not getting the pains in my neck..my hands can feel hot

> and cold and I am sleeping at night..I still have some symptoms

> because it is a low dose but I was hoping they would go away if I

> stayed on it and I was hoping the rash was just my body adjusting ot

> the meds..mind you my sleeping could have more to do with taking so

> much Benadryl..

>

> Kats3boys

[Guest guest]

A rash NEVER has to do with an adjustment in meds. The rash is trying to

tell you that you're allergic to something, and, if it is the Tapazole, you

are continuing to take it, while it may eventually set you up for a

dangerous anaphylactic attack, where the throat closes and you stop

breathing. Maybe I'm wrong, but I'm seeing the heart rate thing as more of

an allergic response to something. What is it that proves that you were/are

hyper? Where are the tests to prove this? Did they say that you are hyper

based on the TSH alone? If they did, they are sadly mistaken about this.

Have they not suggested taking Methimazole instead? It is another med to

reduce the thyroid hormones' effects, just like Tapazole. Why have they not

changed to this? What are your Free T3 and Free T4?

Question..Dr's tommorrow

> I am phoning the doctor to try and get in tommorrow..

> My story so far..

> I have a goiter, increasing quite rapidly. My bloodwork comes back

> normal but on the hyperside, after 7 months of monitoring and a high

> pulse rate that has not dropped my doctor decided to put me on PTU.

> He put me on 100mcg 3 times a day..I decided that was too much

> considering my numbers were not that off so I started by taking 50mcg

> 3 times a day and taking Bromolain to help reduce the inflammation,

> two days later I was rashed out and had to quit the Bromolain.

> Benadryl..

> Two days after that I went for a 24 hour holster monitor..add

> benadryl and betamethasone cream as I had hives where all the

> electrodes were.

> three days later and off benadryl for the second time..I start having

> all these red dots all over my arms..hard to explain but looks like

> blood is sweating through the pores? You could wipe the spots away

> but they would come right back and itchy.. stop PTU add benadryl..

> two days later stop benadryl and hyper symptoms coming back..start

> PTU again but at 25 mcg three times a day..dose has been working good

> although a little low as shakes, high heart beat etc. come back about

> an hour before dose time..did this for about a week, starting getting

> itchy and my skin feels like it is on fire..no real hive rash, just

> all red and blotchy with hives that seem to come and go..red spots

> are slowly coming back but not as bad..been taking Benadryl when it

> gets too bad and it seems to help a little..

>

> My guess is when I see the doctor he is going to flip at me for

> staying on the PTU..and not going into see him sooner.

> I should mention that my goiter was first discovered by an allergist

> as Benadryl seems to be about the only thing I am not allergic to

> when it comes to meds and chemicals.. He has already stated that I

> can not take Tapazole because of allergies?

>

> Any one with any ideas besides quit the PTU? I can already tell it is

> working, I am not getting the pains in my neck..my hands can feel hot

> and cold and I am sleeping at night..I still have some symptoms

> because it is a low dose but I was hoping they would go away if I

> stayed on it and I was hoping the rash was just my body adjusting ot

> the meds..mind you my sleeping could have more to do with taking so

> much Benadryl..

>

> Kats3boys

[Guest guest]

Hi,

When you say that your tests come back within the normal

range...Could you tell us what these numbers are along with the lab

ranges?

Is the doctor and the lab using the new lab ranges or the old, out

of date ranges for the tests...???

I am concerned because of the growing goiter...?Has the doctor made

any suggestions towards removing the goiter?

Gossimer

>

> The doctor did take me off the meds as yeah, I am allegic to them.

> I was on PTU not Tapazole..the doctor already suggested I could

not

> take Tap due to its chemical make up and because of other

allergies

> I already have. I am just sick of being allergic to everything.

> My doctor has run all the tests on me..they are all in normal

ranges

> although the Free 4 is at the high end and the Free 3 is just

> above..my TSH is 0.92.. my WBC count is H and so is my platelet

> count.

> Bloodpressure is normal but pulse is around 90-95 resting..this

has

> been going on since November, and my goiter has gotten larger and

I

> have been having hyper symptoms off and on so the doctor decided

to

> try the PTU to give the thyroid a rest..

> For now I am off of everything and will redo the bloodwork in two

> weeks.

> Wierd though I had the Perticulae ( sp) rash on my arms which

> indicates a low platlet count but my platelet count was high on

June

> 16th.

[Guest guest]

> Hi,

> When you say that your tests come back within the normal

> range...Could you tell us what these numbers are along with the lab

> ranges?

> Is the doctor and the lab using the new lab ranges or the old, out

> of date ranges for the tests...???

>

> I am concerned because of the growing goiter...?Has the doctor made

> any suggestions towards removing the goiter?

>

> Gossimer

>

blood panel..WBC flagged H..range 4-11..test 11.5

break down on count is normal..says it indicates inflammation..( duh,

that would be the thyroid)( he's worried) ( last one was 9)

Platelets..flagged H...range 230-400..test 425.

Says he is not too worried about this but needs to be watched..says

more than likely the body is trying to heal the thyroid from the

inflammation.

TSH..normal..has not changed...0.92 range 0.45-5.

Free T4 normal..has not changed...20 range 11-22.

I do not have my Free 3 numbers..

Last Ultrasound on Thyroid was at the beginning of December. It shows

a diffuse Goiter, no nodules , cysts or any thing irregular just even

inflammation.

I started on Saturday with the pains back in my neck,

augh..everything I have read said it is not suppose to hurt but mine

does.

The blood work above is from June 16th..I am in Canada and we do not

have the same intitlement to the labs although my doctor does show

them to me and go over them with me so I wrote down the ones I could

remember.

I was suppose to redo bloodwork on July 16th but now he wants me to

wait until the 21st..( off meds for two weeks) then depending on my

bloodwork we will see what the next step is.

If I become more hyper or if the goiter grows much larger I will

either have to do RAI or surgery. He says he will direct me to a

Thyroid specialist out at UBC and let him decide.

My doc is hoping I will go hypo on my own and then synthroid should

reduce the swelling..

Things I do not understand ..pain..( it should not hurt)

Why no change in TSH? I have had a problem my whole life with wieght.

Getting the Flu shot has helped me keep it on the last few years but

everytime I would do my physical my doctor has run the TSH test and

we went through the old records to see if there was a change and it

always has been 0.92.

So for now I am back to waiting and seeing.

Kats3boys

[Guest guest]

Hi Kats,

As of, I believe, last Nov: you are entitled to your records I have been getting mine and I live just south of Hamilton, Ont. I think it comes under something like the freedom of information. If I remember right you are in BC try going online for info of your province' rules or find where you could call to get that info.

Dawn kats3boys wrote:

> Hi,> When you say that your tests come back within the normal > range...Could you tell us what these numbers are along with the lab > ranges? > Is the doctor and the lab using the new lab ranges or the old, out > of date ranges for the tests...???> > I am concerned because of the growing goiter...?Has the doctor made > any suggestions towards removing the goiter?> > Gossimer> blood panel..WBC flagged H..range 4-11..test 11.5break down on count is normal..says it indicates inflammation..( duh,that would be the thyroid)( he's worried) ( last one was 9)Platelets..flagged H...range 230-400..test 425.Says he is not too worried about this but needs to be watched..saysmore than

likely the body is trying to heal the thyroid from theinflammation.TSH..normal..has not changed...0.92 range 0.45-5.Free T4 normal..has not changed...20 range 11-22.I do not have my Free 3 numbers..Last Ultrasound on Thyroid was at the beginning of December. It shows a diffuse Goiter, no nodules , cysts or any thing irregular just even inflammation.I started on Saturday with the pains back in my neck, augh..everything I have read said it is not suppose to hurt but mine does. The blood work above is from June 16th..I am in Canada and we do not have the same intitlement to the labs although my doctor does show them to me and go over them with me so I wrote down the ones I could remember.I was suppose to redo bloodwork on July 16th but now he wants me to wait until the 21st..( off meds for two weeks) then depending on my bloodwork we will see what the next step is.If I become more hyper or if the

goiter grows much larger I will either have to do RAI or surgery. He says he will direct me to a Thyroid specialist out at UBC and let him decide.My doc is hoping I will go hypo on my own and then synthroid should reduce the swelling..Things I do not understand ..pain..( it should not hurt) Why no change in TSH? I have had a problem my whole life with wieght. Getting the Flu shot has helped me keep it on the last few years but everytime I would do my physical my doctor has run the TSH test and we went through the old records to see if there was a change and it always has been 0.92. So for now I am back to waiting and seeing.Kats3boys __________________________________________________

[Guest guest]

Hi Kats,

As of, I believe, last Nov: you are entitled to your records I have been getting mine and I live just south of Hamilton, Ont. I think it comes under something like the freedom of information. If I remember right you are in BC try going online for info of your province' rules or find where you could call to get that info.

Dawn kats3boys wrote:

> Hi,> When you say that your tests come back within the normal > range...Could you tell us what these numbers are along with the lab > ranges? > Is the doctor and the lab using the new lab ranges or the old, out > of date ranges for the tests...???> > I am concerned because of the growing goiter...?Has the doctor made > any suggestions towards removing the goiter?> > Gossimer> blood panel..WBC flagged H..range 4-11..test 11.5break down on count is normal..says it indicates inflammation..( duh,that would be the thyroid)( he's worried) ( last one was 9)Platelets..flagged H...range 230-400..test 425.Says he is not too worried about this but needs to be watched..saysmore than

likely the body is trying to heal the thyroid from theinflammation.TSH..normal..has not changed...0.92 range 0.45-5.Free T4 normal..has not changed...20 range 11-22.I do not have my Free 3 numbers..Last Ultrasound on Thyroid was at the beginning of December. It shows a diffuse Goiter, no nodules , cysts or any thing irregular just even inflammation.I started on Saturday with the pains back in my neck, augh..everything I have read said it is not suppose to hurt but mine does. The blood work above is from June 16th..I am in Canada and we do not have the same intitlement to the labs although my doctor does show them to me and go over them with me so I wrote down the ones I could remember.I was suppose to redo bloodwork on July 16th but now he wants me to wait until the 21st..( off meds for two weeks) then depending on my bloodwork we will see what the next step is.If I become more hyper or if the

goiter grows much larger I will either have to do RAI or surgery. He says he will direct me to a Thyroid specialist out at UBC and let him decide.My doc is hoping I will go hypo on my own and then synthroid should reduce the swelling..Things I do not understand ..pain..( it should not hurt) Why no change in TSH? I have had a problem my whole life with wieght. Getting the Flu shot has helped me keep it on the last few years but everytime I would do my physical my doctor has run the TSH test and we went through the old records to see if there was a change and it always has been 0.92. So for now I am back to waiting and seeing.Kats3boys __________________________________________________

[Guest guest]

I realize that Canada has different rules as to getting referals to

see specialists...however, I think this is one time that I would be

screaming at your general doctor for that referal to the Endo. The

fact that it hurts is not good in any way shape or form.

My doctor did get me in to see an Endo, rather quickly, it only took

two weeks..unfortunately I was not impressed with the Endo and

neither was my doctor..the Endo figured I was wasting his time and my

time..and that for some reason I was 6 months early on see him..and

to wait unitl the symptoms get worse. He did leave a list of steps

for my GP to follow and do follow up with..unfortunately the labs

requested by the Endo..my GP does not get although the GP sends all

labs to the Endo..

My GP only gets the Endo's evaluation of the labs, this is why I know

the Free 3 is just above the normal range but not the exact number..

We have a stupid rule here regarding Free 3 testing, it can only be

ordered one week after the Free 4 and only be ordered so many times

etc. or the GP is in trouble..none of these rules of course apply to

the Endo..

Unless I get worse my doc wants me to wait for two weeks from the

time quiting meds for more bloodwork. Today I am not feeling

bad..high pulse, that internal shakey feeling and my hands are a bit

sweaty( sticky , yuck ) but things have calmed down after that

initial dump minus the pain.

Depending on my bloodwork it will depend how quick I can get in to

see an Endo although I am going to get him to do another Ultrasound

on me if nothing shows. He already has an Endo he wants to send me

to, and not the same Endo either..So right now a lot depends on my

new labs coming up.

Kats3boys

[Guest guest]

I realize that Canada has different rules as to getting referals to

see specialists...however, I think this is one time that I would be

screaming at your general doctor for that referal to the Endo. The

fact that it hurts is not good in any way shape or form.

My doctor did get me in to see an Endo, rather quickly, it only took

two weeks..unfortunately I was not impressed with the Endo and

neither was my doctor..the Endo figured I was wasting his time and my

time..and that for some reason I was 6 months early on see him..and

to wait unitl the symptoms get worse. He did leave a list of steps

for my GP to follow and do follow up with..unfortunately the labs

requested by the Endo..my GP does not get although the GP sends all

labs to the Endo..

My GP only gets the Endo's evaluation of the labs, this is why I know

the Free 3 is just above the normal range but not the exact number..

We have a stupid rule here regarding Free 3 testing, it can only be

ordered one week after the Free 4 and only be ordered so many times

etc. or the GP is in trouble..none of these rules of course apply to

the Endo..

Unless I get worse my doc wants me to wait for two weeks from the

time quiting meds for more bloodwork. Today I am not feeling

bad..high pulse, that internal shakey feeling and my hands are a bit

sweaty( sticky , yuck ) but things have calmed down after that

initial dump minus the pain.

Depending on my bloodwork it will depend how quick I can get in to

see an Endo although I am going to get him to do another Ultrasound

on me if nothing shows. He already has an Endo he wants to send me

to, and not the same Endo either..So right now a lot depends on my

new labs coming up.

Kats3boys

[Guest guest]

I realize that Canada has different rules as to getting referals to

see specialists...however, I think this is one time that I would be

screaming at your general doctor for that referal to the Endo. The

fact that it hurts is not good in any way shape or form.

My doctor did get me in to see an Endo, rather quickly, it only took

two weeks..unfortunately I was not impressed with the Endo and

neither was my doctor..the Endo figured I was wasting his time and my

time..and that for some reason I was 6 months early on see him..and

to wait unitl the symptoms get worse. He did leave a list of steps

for my GP to follow and do follow up with..unfortunately the labs

requested by the Endo..my GP does not get although the GP sends all

labs to the Endo..

My GP only gets the Endo's evaluation of the labs, this is why I know

the Free 3 is just above the normal range but not the exact number..

We have a stupid rule here regarding Free 3 testing, it can only be

ordered one week after the Free 4 and only be ordered so many times

etc. or the GP is in trouble..none of these rules of course apply to

the Endo..

Unless I get worse my doc wants me to wait for two weeks from the

time quiting meds for more bloodwork. Today I am not feeling

bad..high pulse, that internal shakey feeling and my hands are a bit

sweaty( sticky , yuck ) but things have calmed down after that

initial dump minus the pain.

Depending on my bloodwork it will depend how quick I can get in to

see an Endo although I am going to get him to do another Ultrasound

on me if nothing shows. He already has an Endo he wants to send me

to, and not the same Endo either..So right now a lot depends on my

new labs coming up.

Kats3boys