Post TT, RAI & Thyroid Hormones

October 13, 2002

Hello Everyone. I'm fairly new to this site. I posted my first

message back in August just prior to my TT. I have Multiple

Sclerosis and wondered back then if there was anyone else out there

who had MS and had had major surgery - I wanted to know what to

expect. I heard from a couple of people on an MS bulletin board that

I might expect to be more fatigued after surgery because of MS.

Well, I had my surgery on Aug 27 and found out on Aug 29 that I have

papillary thyroid cancer with follicular variant. (By the way, I had

a biopsy a year ago that was benign, so my Endo and I were surprised

to say the leasat.) The nodule was 2.6 cm in the right lobe and a

samll benign nodule was found in the left lobe. The nodes were ok.

I had RAI, 103 Mci, on Sept 23. I felt worse the 2 1/2 weeks after

the RAI than I did after surgery and during the LID prep for the

treatment. Absolutely NO energy and very depressed. I started

taking 150mg of Levoxyl on Sept 24 and my Endo also prescribed a half

tab of Synthroid for several weeks to help " jump start " things, as

she put it.

I wonder how long it usually takes for the hormones to " kick in " .

I'm starting to feel " normal " , in terms of having more energy. But

I'm wondering about my metabolism...even though I'm exercising EVERY

day and watching what I eat, I feel like I'm gaining weight DAILY!

(I don't have a scale so don't really know if/how much I've gained).

But I feel like I'm BLOWING UP!

Can anyone out there tell me if my metabolism will ever allow me to

drink more than water!!!???

....and another thing - my taste buds have been " off " since the RAI.

My toungue feels like it's been burnt and the taste of food is very

faint, almost flavorless. I read that it may take several months for

taste buds to return to normal...anybody have sny experience with

that?

Thanks,

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