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?? for those transplanted

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Ken & I went in to

Baylor today so he could get the lab work done and his vaccinations. While we were there, we saw a man who had

his tx a few months ago (he was going through a small rejection he said.) Anyway, he was wearing one of those back

braces – the kind that goes around your waist & has Velcro in the

front. He said he tells everyone to

get one, that it holds your tummy in place & allows you to walk freely. Said he doesn’t wear it at home, as

he needs to build his muscles up after surgery, but he never leaves home

without it. Does this sound like a

good idea?

Barb

in Texas - Together in the Fight, Whatever it Takes!

Son

Ken (32) UC 91 - PSC 99

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well Mike had an umbilical hernia that was repaired at transplant - it was

caused from his enlarged spleen and at the end he had alot of fluid build

up..................

" Assumption is the mother of all screw ups "

>

>Reply-To:

>To: < >

>Subject: RE: ?? for those transplanted

>Date: Sat, 22 Jul 2006 08:36:41 -0500

>

>-----Original Message----- On Behalf Of * *

> Mike was told he could do no abdominal exercise for one year - no

>lifting for the first year or two - apparantly it is very easy to

>develop a hernia -

>

>I'm thinking this (hernia) may have been one of the reasons the man was

>wearing the brace. It certainly would offer support to the tummy area.

>I'll ask the tx team next time we go.

>

>Thanks,

>Barb in Texas

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well Mike had an umbilical hernia that was repaired at transplant - it was

caused from his enlarged spleen and at the end he had alot of fluid build

up..................

" Assumption is the mother of all screw ups "

>

>Reply-To:

>To: < >

>Subject: RE: ?? for those transplanted

>Date: Sat, 22 Jul 2006 08:36:41 -0500

>

>-----Original Message----- On Behalf Of * *

> Mike was told he could do no abdominal exercise for one year - no

>lifting for the first year or two - apparantly it is very easy to

>develop a hernia -

>

>I'm thinking this (hernia) may have been one of the reasons the man was

>wearing the brace. It certainly would offer support to the tummy area.

>I'll ask the tx team next time we go.

>

>Thanks,

>Barb in Texas

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Lonnie thought he had a hernia month or so ago. We went to his

hepatologist and he said it looks like, feels like and acts like a

hernia. He suggested a CT scan to confirm. A week later, the CT

scan showed an abdominal adhesion.

(Maureen - I think his was caused by Superhandyman activity level,

too.)

Since Lonnie had also had a full colon removal, the hepatologist

suggested we talked to that group of surgeons instead of the liver

surgeons. The appointment was set for six weeks later!

We finally got in to see the colon surgeons and were told there was

nothing they could do. The couldn't go in laproscopically because

they couldn't get through all the scar tissue. He refused to go in

surgically so not to produce more scar tissue. The recommendation

was to just live with it and take pain killers when it flairs.

Last week, Lonnie went in for bloodwork. The results were elevated

everything. The transplant coordinator suggested laying off the

pain killers and coming in later this week for more bloodwork.

It's a viscious cycle!

Kathy

wife of Lonnie

'87 UC/PSC

'00 ilio anal pull through with J-pouch reconstruction

'04 ltx

(we just found out that our new youth pastor's wife has suffered UC,

had the colon removal and also suffering chronic pouchitis!)

>

> Patti is right (hi there, Patti!!!), post-tx herniation is quite

common.

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