?? for those transplanted

[Guest guest]

Ken & I went in to

Baylor today so he could get the lab work done and his vaccinations. While we were there, we saw a man who had

his tx a few months ago (he was going through a small rejection he said.) Anyway, he was wearing one of those back

braces – the kind that goes around your waist & has Velcro in the

front. He said he tells everyone to

get one, that it holds your tummy in place & allows you to walk freely. Said he doesn’t wear it at home, as

he needs to build his muscles up after surgery, but he never leaves home

without it. Does this sound like a

good idea?

Barb

in Texas - Together in the Fight, Whatever it Takes!

Son

Ken (32) UC 91 - PSC 99

[Guest guest]

Not for transplant, but I wore a " corset " after back surgery, and only out

of bed. He's right in that you lose muscle tone in your abdominals with it

on. It might be a question to ask those who've had caesareans (might be

similar?).

Arne

55 - UC 1977, PSC 2000

Alive and (mostly) well in Minnesota

________________________________

From: [mailto: ] On

Behalf Of Barb Henshaw

Ken & I went in to Baylor today so he could get the lab work done and his

vaccinations. While we were there, we saw a man who had his tx a few months

ago (he was going through a small rejection he said.) Anyway, he was

wearing one of those back braces - the kind that goes around your waist &

has Velcro in the front. He said he tells everyone to get one, that it

holds your tummy in place & allows you to walk freely. Said he doesn't wear

it at home, as he needs to build his muscles up after surgery, but he never

leaves home without it. Does this sound like a good idea?

Barb in Texas - Together in the Fight, Whatever it Takes!

Son Ken (32) UC 91 - PSC 99

[Guest guest]

Not for transplant, but I wore a " corset " after back surgery, and only out

of bed. He's right in that you lose muscle tone in your abdominals with it

on. It might be a question to ask those who've had caesareans (might be

similar?).

Arne

55 - UC 1977, PSC 2000

Alive and (mostly) well in Minnesota

________________________________

From: [mailto: ] On

Behalf Of Barb Henshaw

Ken & I went in to Baylor today so he could get the lab work done and his

vaccinations. While we were there, we saw a man who had his tx a few months

ago (he was going through a small rejection he said.) Anyway, he was

wearing one of those back braces - the kind that goes around your waist &

has Velcro in the front. He said he tells everyone to get one, that it

holds your tummy in place & allows you to walk freely. Said he doesn't wear

it at home, as he needs to build his muscles up after surgery, but he never

leaves home without it. Does this sound like a good idea?

Barb in Texas - Together in the Fight, Whatever it Takes!

Son Ken (32) UC 91 - PSC 99

[Guest guest]

Barb -

Mike said he never used one or never saw the need for one - he doesn't

understand why anybody would need one......perhaps there was another

reason......

Mike was told he could do no abdominal exercise for one year - no lifting

for the first year or two - apparantly it is very easy to develop a hernia -

they were all for exercise, but nothing at all that would pull on the

abdominal muscles -

Pati

" Assumption is the mother of all screw ups "

>

>Reply-To:

>To: < >

>Subject: ?? for those transplanted

>Date: Fri, 21 Jul 2006 14:03:56 -0500

>

>Ken & I went in to Baylor today so he could get the lab work done and

>his vaccinations. While we were there, we saw a man who had his tx a

>few months ago (he was going through a small rejection he said.)

>Anyway, he was wearing one of those back braces - the kind that goes

>around your waist & has Velcro in the front. He said he tells everyone

>to get one, that it holds your tummy in place & allows you to walk

>freely. Said he doesn't wear it at home, as he needs to build his

>muscles up after surgery, but he never leaves home without it. Does

>this sound like a good idea?

>

>Barb in Texas - Together in the Fight, Whatever it Takes!

>Son Ken (32) UC 91 - PSC 99

>

>

[Guest guest]

-----Original

Message----- On Behalf Of * *

Mike was told he

could do no abdominal exercise for one year - no lifting for the first year or

two - apparantly it is very easy to develop a hernia –

I’m thinking

this (hernia) may have been one of the reasons the man was wearing the brace. It certainly would offer support to the

tummy area. I’ll ask the tx team

next time we go.

Thanks,

Barb in Texas

[Guest guest]

Patti is right (hi there, Patti!!!), post-tx

herniation is quite common. Jim had a humdinger, most likely due to his

Superhandyman activity level, all the lifting that he “sneaked” (it

was impossible for me to always have eyes in the back of his head and help him

remain compliant to his doctors’ orders, and gosh darn it, in his own

defense, he felt so immensely BETTER, hahaha), not to mention all his

exercising (esp. sit-ups). Jim’s denial kicked in again, albeit in

a different way (Maureen to Jim: “Sweetheart, the doctors said they don’t

want you doing that;” Jim to Maureen: “No, this I can do.”

Maureen to Jim: “No, honey, with all due respect, I don’t think so,

because they specifically warned you against doing that” Jim to

Maureen: “I’m fine!”)

USC would not bring Jim for surgical

repair until after he was one year out from tx, and they kept him up there

overnight. Sheesh.

Irene’s Marty – same deal, if

I remember correctly… (UCLA?) had to surgically repair post-tx herniation.

I do soooo remember gleaning so many

ideas, suggestions & stuff about what to expect from this group prior to

Jim’s tx, and gobs of it was right-on, but regarding other matters, USC would

say “no, we don’t do that here” or “no, other’s

might do that, but we don’t feel that’s necessary.” Always

when I asked for clarification, they provided ample explanation. So, through

Jim’s/’s experience, and depending upon where you pursue your transplant,

I learned protocol can differ pretty wildly from tx center to tx center. Best

to run this stuff by the transplant coordinator, I suppose.

Maureen

From: [mailto: ] On Behalf Of Barb Henshaw

Sent: Saturday, July 22, 2006 6:37

AM; To: ; Subject: RE: ?? for those

transplanted

-----Original

Message----- On Behalf Of * *

Mike was told he could do no abdominal exercise for one

year - no lifting for the first year or two - apparantly it is very easy to

develop a hernia –

I’m thinking this (hernia) may have been one of the

reasons the man was wearing the brace. It certainly would offer support

to the tummy area. I’ll ask the tx team next time we go.

Thanks,

Barb in Texas

[Guest guest]

Lonnie thought he had a hernia month or so ago. We went to his

hepatologist and he said it looks like, feels like and acts like a

hernia. He suggested a CT scan to confirm. A week later, the CT

scan showed an abdominal adhesion.

(Maureen - I think his was caused by Superhandyman activity level,

too.)

Since Lonnie had also had a full colon removal, the hepatologist

suggested we talked to that group of surgeons instead of the liver

surgeons. The appointment was set for six weeks later!

We finally got in to see the colon surgeons and were told there was

nothing they could do. The couldn't go in laproscopically because

they couldn't get through all the scar tissue. He refused to go in

surgically so not to produce more scar tissue. The recommendation

was to just live with it and take pain killers when it flairs.

Last week, Lonnie went in for bloodwork. The results were elevated

everything. The transplant coordinator suggested laying off the

pain killers and coming in later this week for more bloodwork.

It's a viscious cycle!

Kathy

wife of Lonnie

'87 UC/PSC

'00 ilio anal pull through with J-pouch reconstruction

'04 ltx

(we just found out that our new youth pastor's wife has suffered UC,

had the colon removal and also suffering chronic pouchitis!)

>

> Patti is right (hi there, Patti!!!), post-tx herniation is quite

common.