Guest guest Posted July 21, 2006 Report Share Posted July 21, 2006 Ken & I went in to Baylor today so he could get the lab work done and his vaccinations. While we were there, we saw a man who had his tx a few months ago (he was going through a small rejection he said.) Anyway, he was wearing one of those back braces – the kind that goes around your waist & has Velcro in the front. He said he tells everyone to get one, that it holds your tummy in place & allows you to walk freely. Said he doesn’t wear it at home, as he needs to build his muscles up after surgery, but he never leaves home without it. Does this sound like a good idea? Barb in Texas - Together in the Fight, Whatever it Takes! Son Ken (32) UC 91 - PSC 99 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 21, 2006 Report Share Posted July 21, 2006 Not for transplant, but I wore a " corset " after back surgery, and only out of bed. He's right in that you lose muscle tone in your abdominals with it on. It might be a question to ask those who've had caesareans (might be similar?). Arne 55 - UC 1977, PSC 2000 Alive and (mostly) well in Minnesota ________________________________ From: [mailto: ] On Behalf Of Barb Henshaw Ken & I went in to Baylor today so he could get the lab work done and his vaccinations. While we were there, we saw a man who had his tx a few months ago (he was going through a small rejection he said.) Anyway, he was wearing one of those back braces - the kind that goes around your waist & has Velcro in the front. He said he tells everyone to get one, that it holds your tummy in place & allows you to walk freely. Said he doesn't wear it at home, as he needs to build his muscles up after surgery, but he never leaves home without it. Does this sound like a good idea? Barb in Texas - Together in the Fight, Whatever it Takes! Son Ken (32) UC 91 - PSC 99 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 21, 2006 Report Share Posted July 21, 2006 Thanks Arne, it sounded like a good idea to me. Your right, I probably should ask first. Barb in Texas Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 21, 2006 Report Share Posted July 21, 2006 Thanks Arne, it sounded like a good idea to me. Your right, I probably should ask first. Barb in Texas Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 21, 2006 Report Share Posted July 21, 2006 Thanks Arne, it sounded like a good idea to me. Your right, I probably should ask first. Barb in Texas Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 22, 2006 Report Share Posted July 22, 2006 well Mike had an umbilical hernia that was repaired at transplant - it was caused from his enlarged spleen and at the end he had alot of fluid build up.................. " Assumption is the mother of all screw ups " > >Reply-To: >To: < > >Subject: RE: ?? for those transplanted >Date: Sat, 22 Jul 2006 08:36:41 -0500 > >-----Original Message----- On Behalf Of * * > Mike was told he could do no abdominal exercise for one year - no >lifting for the first year or two - apparantly it is very easy to >develop a hernia - > >I'm thinking this (hernia) may have been one of the reasons the man was >wearing the brace. It certainly would offer support to the tummy area. >I'll ask the tx team next time we go. > >Thanks, >Barb in Texas Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 22, 2006 Report Share Posted July 22, 2006 Patti is right (hi there, Patti!!!), post-tx herniation is quite common. Jim had a humdinger, most likely due to his Superhandyman activity level, all the lifting that he “sneaked” (it was impossible for me to always have eyes in the back of his head and help him remain compliant to his doctors’ orders, and gosh darn it, in his own defense, he felt so immensely BETTER, hahaha), not to mention all his exercising (esp. sit-ups). Jim’s denial kicked in again, albeit in a different way (Maureen to Jim: “Sweetheart, the doctors said they don’t want you doing that;” Jim to Maureen: “No, this I can do.” Maureen to Jim: “No, honey, with all due respect, I don’t think so, because they specifically warned you against doing that” Jim to Maureen: “I’m fine!”) USC would not bring Jim for surgical repair until after he was one year out from tx, and they kept him up there overnight. Sheesh. Irene’s Marty – same deal, if I remember correctly… (UCLA?) had to surgically repair post-tx herniation. I do soooo remember gleaning so many ideas, suggestions & stuff about what to expect from this group prior to Jim’s tx, and gobs of it was right-on, but regarding other matters, USC would say “no, we don’t do that here” or “no, other’s might do that, but we don’t feel that’s necessary.” Always when I asked for clarification, they provided ample explanation. So, through Jim’s/’s experience, and depending upon where you pursue your transplant, I learned protocol can differ pretty wildly from tx center to tx center. Best to run this stuff by the transplant coordinator, I suppose. Maureen From: [mailto: ] On Behalf Of Barb Henshaw Sent: Saturday, July 22, 2006 6:37 AM; To: ; Subject: RE: ?? for those transplanted -----Original Message----- On Behalf Of * * Mike was told he could do no abdominal exercise for one year - no lifting for the first year or two - apparantly it is very easy to develop a hernia – I’m thinking this (hernia) may have been one of the reasons the man was wearing the brace. It certainly would offer support to the tummy area. I’ll ask the tx team next time we go. Thanks, Barb in Texas Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 22, 2006 Report Share Posted July 22, 2006 Patti is right (hi there, Patti!!!), post-tx herniation is quite common. Jim had a humdinger, most likely due to his Superhandyman activity level, all the lifting that he “sneaked” (it was impossible for me to always have eyes in the back of his head and help him remain compliant to his doctors’ orders, and gosh darn it, in his own defense, he felt so immensely BETTER, hahaha), not to mention all his exercising (esp. sit-ups). Jim’s denial kicked in again, albeit in a different way (Maureen to Jim: “Sweetheart, the doctors said they don’t want you doing that;” Jim to Maureen: “No, this I can do.” Maureen to Jim: “No, honey, with all due respect, I don’t think so, because they specifically warned you against doing that” Jim to Maureen: “I’m fine!”) USC would not bring Jim for surgical repair until after he was one year out from tx, and they kept him up there overnight. Sheesh. Irene’s Marty – same deal, if I remember correctly… (UCLA?) had to surgically repair post-tx herniation. I do soooo remember gleaning so many ideas, suggestions & stuff about what to expect from this group prior to Jim’s tx, and gobs of it was right-on, but regarding other matters, USC would say “no, we don’t do that here” or “no, other’s might do that, but we don’t feel that’s necessary.” Always when I asked for clarification, they provided ample explanation. So, through Jim’s/’s experience, and depending upon where you pursue your transplant, I learned protocol can differ pretty wildly from tx center to tx center. Best to run this stuff by the transplant coordinator, I suppose. Maureen From: [mailto: ] On Behalf Of Barb Henshaw Sent: Saturday, July 22, 2006 6:37 AM; To: ; Subject: RE: ?? for those transplanted -----Original Message----- On Behalf Of * * Mike was told he could do no abdominal exercise for one year - no lifting for the first year or two - apparantly it is very easy to develop a hernia – I’m thinking this (hernia) may have been one of the reasons the man was wearing the brace. It certainly would offer support to the tummy area. I’ll ask the tx team next time we go. Thanks, Barb in Texas Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 24, 2006 Report Share Posted July 24, 2006 Lonnie thought he had a hernia month or so ago. We went to his hepatologist and he said it looks like, feels like and acts like a hernia. He suggested a CT scan to confirm. A week later, the CT scan showed an abdominal adhesion. (Maureen - I think his was caused by Superhandyman activity level, too.) Since Lonnie had also had a full colon removal, the hepatologist suggested we talked to that group of surgeons instead of the liver surgeons. The appointment was set for six weeks later! We finally got in to see the colon surgeons and were told there was nothing they could do. The couldn't go in laproscopically because they couldn't get through all the scar tissue. He refused to go in surgically so not to produce more scar tissue. The recommendation was to just live with it and take pain killers when it flairs. Last week, Lonnie went in for bloodwork. The results were elevated everything. The transplant coordinator suggested laying off the pain killers and coming in later this week for more bloodwork. It's a viscious cycle! Kathy wife of Lonnie '87 UC/PSC '00 ilio anal pull through with J-pouch reconstruction '04 ltx (we just found out that our new youth pastor's wife has suffered UC, had the colon removal and also suffering chronic pouchitis!) > > Patti is right (hi there, Patti!!!), post-tx herniation is quite common. Quote Link to comment Share on other sites More sharing options...
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