Re: Disappointed and unsure

[Guest guest]

Hi Em,

I'm new here but I just wanted to let you know that I know EXACTLY what you

are going through. I've had the very same feelings. *I* know I am in pain,

but I look just fine to everyone else. Doctors can make you feel like you

are exaggerating or making things up sometimes, even when you don't even

tell ALL your symptoms, just the main ones. I've even found myself

downplaying my pain and symptoms so they won't think I'm nuts.

I'm going through more testing, etc., myself right now because my

rheumatologist suspects I may have lupus or something else going on, but

even now I feel like I should make it seem not so bad...

Anyway, hang in there. WE know you aren't making this stuff up! You should

be proud of yourself for losing so much weight (congratulations!) and

holding down a good job, etc. You have lots to be proud of in yourself, and

if you feel down or depressed once in a while... well, who doesn't?

Take care.

~~Dianne~~*

janissa@... wrote:

>I don't know what to make of my recent dr's appt. My bloodwork came back

>showing nothing, although he assured me that I did have FM. But soon the

>talk turned to how I needed to find a boyfriend, friends, get out, enjoy

>life, exercise " till you sweat, " and so on.

>

>I don't think any of those goals are bad ones, by any means. But I'm

>saddened, because I know that starting an exercise program is going to be

>hard and very painful, and where exactly does one find a

>boyfriend? Growing on a tree? Do I just whistle and one appears?

>

>I feel truly as if everyone -- including my psychiatrist and my

>rheumatologist -- believes that my problems are essentially all in my

>head. I can't seem to communicate the idea that yes, I have a history of

>clinical depression, but this pain is honest-to-God pain, not a figment of

>my imagination.

>

>I really don't know what to do now. I'm making an appt to go to our

>Lifestyles Center (at the hospital where I work) to see about an exercise

>plan. But it truly feels as if no one believes me. I feel like a sham,

>like a fake. I have done so well, and I'm not sure this doctor realizes

>what all I have done. I'm a strict vegetarian. I have lost 45 pounds

>since Dec., and four dress sizes. I have a steady job, with benefits. I

>eat produce I grow myself, and am careful with my eating habits. I don't

>drink alcohol.

>

>So why do I feel like a complete idiotic hypochondriac failure?

>

>Jeez, if I wasn't depressed before, that dr's visit sure would make me feel

>that way now.

>

>Em

>

_________________________________________________________________

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[Guest guest]

Hi Em,

I'm new here but I just wanted to let you know that I know EXACTLY what you

are going through. I've had the very same feelings. *I* know I am in pain,

but I look just fine to everyone else. Doctors can make you feel like you

are exaggerating or making things up sometimes, even when you don't even

tell ALL your symptoms, just the main ones. I've even found myself

downplaying my pain and symptoms so they won't think I'm nuts.

I'm going through more testing, etc., myself right now because my

rheumatologist suspects I may have lupus or something else going on, but

even now I feel like I should make it seem not so bad...

Anyway, hang in there. WE know you aren't making this stuff up! You should

be proud of yourself for losing so much weight (congratulations!) and

holding down a good job, etc. You have lots to be proud of in yourself, and

if you feel down or depressed once in a while... well, who doesn't?

Take care.

~~Dianne~~*

janissa@... wrote:

>I don't know what to make of my recent dr's appt. My bloodwork came back

>showing nothing, although he assured me that I did have FM. But soon the

>talk turned to how I needed to find a boyfriend, friends, get out, enjoy

>life, exercise " till you sweat, " and so on.

>

>I don't think any of those goals are bad ones, by any means. But I'm

>saddened, because I know that starting an exercise program is going to be

>hard and very painful, and where exactly does one find a

>boyfriend? Growing on a tree? Do I just whistle and one appears?

>

>I feel truly as if everyone -- including my psychiatrist and my

>rheumatologist -- believes that my problems are essentially all in my

>head. I can't seem to communicate the idea that yes, I have a history of

>clinical depression, but this pain is honest-to-God pain, not a figment of

>my imagination.

>

>I really don't know what to do now. I'm making an appt to go to our

>Lifestyles Center (at the hospital where I work) to see about an exercise

>plan. But it truly feels as if no one believes me. I feel like a sham,

>like a fake. I have done so well, and I'm not sure this doctor realizes

>what all I have done. I'm a strict vegetarian. I have lost 45 pounds

>since Dec., and four dress sizes. I have a steady job, with benefits. I

>eat produce I grow myself, and am careful with my eating habits. I don't

>drink alcohol.

>

>So why do I feel like a complete idiotic hypochondriac failure?

>

>Jeez, if I wasn't depressed before, that dr's visit sure would make me feel

>that way now.

>

>Em

>

_________________________________________________________________

Get your FREE download of MSN Explorer at http://explorer.msn.com/intl.asp

[Guest guest]

Hi Em,

I'm new here but I just wanted to let you know that I know EXACTLY what you

are going through. I've had the very same feelings. *I* know I am in pain,

but I look just fine to everyone else. Doctors can make you feel like you

are exaggerating or making things up sometimes, even when you don't even

tell ALL your symptoms, just the main ones. I've even found myself

downplaying my pain and symptoms so they won't think I'm nuts.

I'm going through more testing, etc., myself right now because my

rheumatologist suspects I may have lupus or something else going on, but

even now I feel like I should make it seem not so bad...

Anyway, hang in there. WE know you aren't making this stuff up! You should

be proud of yourself for losing so much weight (congratulations!) and

holding down a good job, etc. You have lots to be proud of in yourself, and

if you feel down or depressed once in a while... well, who doesn't?

Take care.

~~Dianne~~*

janissa@... wrote:

>I don't know what to make of my recent dr's appt. My bloodwork came back

>showing nothing, although he assured me that I did have FM. But soon the

>talk turned to how I needed to find a boyfriend, friends, get out, enjoy

>life, exercise " till you sweat, " and so on.

>

>I don't think any of those goals are bad ones, by any means. But I'm

>saddened, because I know that starting an exercise program is going to be

>hard and very painful, and where exactly does one find a

>boyfriend? Growing on a tree? Do I just whistle and one appears?

>

>I feel truly as if everyone -- including my psychiatrist and my

>rheumatologist -- believes that my problems are essentially all in my

>head. I can't seem to communicate the idea that yes, I have a history of

>clinical depression, but this pain is honest-to-God pain, not a figment of

>my imagination.

>

>I really don't know what to do now. I'm making an appt to go to our

>Lifestyles Center (at the hospital where I work) to see about an exercise

>plan. But it truly feels as if no one believes me. I feel like a sham,

>like a fake. I have done so well, and I'm not sure this doctor realizes

>what all I have done. I'm a strict vegetarian. I have lost 45 pounds

>since Dec., and four dress sizes. I have a steady job, with benefits. I

>eat produce I grow myself, and am careful with my eating habits. I don't

>drink alcohol.

>

>So why do I feel like a complete idiotic hypochondriac failure?

>

>Jeez, if I wasn't depressed before, that dr's visit sure would make me feel

>that way now.

>

>Em

>

_________________________________________________________________

Get your FREE download of MSN Explorer at http://explorer.msn.com/intl.asp

[Guest guest]

Hi Em,

When you have fibro, your blood tests come back

normal. The tests I had initially were to see if I had

any rheumatoid or osteo arthirits. Negative. As far

as exercise (I've had fibro 27 years), all it did for

me was make me hurt more, so I finally quit. I think

when your doctor says to find a boyfriend, etc., etc.,

what he should be saying is try to do things that you

enjoy, that make you feel relaxed, instead of staying

in bed. For me, I sit in my boat and read or watch

movies. Fibro really does get better if you can do

things you really like that take your mind off it.

For me, it used to be going to the beach. Between the

sun and going in the water, the pain would go away.

It would come back as soon as I got home, but it sure

was nice while I was there. As far as a boyfriend,

they're just a pain in the ass (or back or neck)

anyway, so don't count on a cure there (lol). My

fibro is practially gone. Don't give up hope.

Joanne

--- Dianne P wrote:

> Hi Em,

>

> I'm new here but I just wanted to let you know that

> I know EXACTLY what you

> are going through. I've had the very same feelings.

> *I* know I am in pain,

> but I look just fine to everyone else. Doctors can

> make you feel like you

> are exaggerating or making things up sometimes, even

> when you don't even

> tell ALL your symptoms, just the main ones. I've

> even found myself

> downplaying my pain and symptoms so they won't think

> I'm nuts.

>

> I'm going through more testing, etc., myself right

> now because my

> rheumatologist suspects I may have lupus or

> something else going on, but

> even now I feel like I should make it seem not so

> bad...

>

> Anyway, hang in there. WE know you aren't making

> this stuff up! You should

> be proud of yourself for losing so much weight

> (congratulations!) and

> holding down a good job, etc. You have lots to be

> proud of in yourself, and

> if you feel down or depressed once in a while...

> well, who doesn't?

>

> Take care.

>

> ~~Dianne~~*

>

>

>

> janissa@... wrote:

>

> >I don't know what to make of my recent dr's appt.

> My bloodwork came back

> >showing nothing, although he assured me that I did

> have FM. But soon the

> >talk turned to how I needed to find a boyfriend,

> friends, get out, enjoy

> >life, exercise " till you sweat, " and so on.

> >

> >I don't think any of those goals are bad ones, by

> any means. But I'm

> >saddened, because I know that starting an exercise

> program is going to be

> >hard and very painful, and where exactly does one

> find a

> >boyfriend? Growing on a tree? Do I just whistle

> and one appears?

> >

> >I feel truly as if everyone -- including my

> psychiatrist and my

> >rheumatologist -- believes that my problems are

> essentially all in my

> >head. I can't seem to communicate the idea that

> yes, I have a history of

> >clinical depression, but this pain is honest-to-God

> pain, not a figment of

> >my imagination.

> >

> >I really don't know what to do now. I'm making an

> appt to go to our

> >Lifestyles Center (at the hospital where I work) to

> see about an exercise

> >plan. But it truly feels as if no one believes me.

> I feel like a sham,

> >like a fake. I have done so well, and I'm not sure

> this doctor realizes

> >what all I have done. I'm a strict vegetarian. I

> have lost 45 pounds

> >since Dec., and four dress sizes. I have a steady

> job, with benefits. I

> >eat produce I grow myself, and am careful with my

> eating habits. I don't

> >drink alcohol.

> >

> >So why do I feel like a complete idiotic

> hypochondriac failure?

> >

> >Jeez, if I wasn't depressed before, that dr's visit

> sure would make me feel

> >that way now.

> >

> >Em

> >

>

>

>

_________________________________________________________________

> Get your FREE download of MSN Explorer at

> http://explorer.msn.com/intl.asp

>

>

__________________________________________________

[Guest guest]

Been there had that. You may find that the majority of

us have had some experience like this with the Doctors

we have seen. We all feel the same that we aren't

listened too enough. I was in hospital and finally had

enough and exploded and screamed out that I was in

pain and would move if I could. It was then that they

finally realised how bad I was.

Don't give up. Find another Dr who understand about

Fibromyalgia and you will have all the support you

need and the help you need. As for exercise, you may

find that you end up worse than you now are so be

prepared for the outcome. Try the exercise gently,

don't overdo it and try to do as others, who are

fitter than we are, do. If it aggravates your

condition then don't push yourself into more pain.

Some Fibro patients can do gentle exercise and some

can't. I am one that can not.

Don't give up, keep in touch, we understand even

though some in the world don't.

Lorraine UK

--- janissa@... wrote:

<HR>

<html><body>

<tt>

<BR>

<BR>

I don't know what to make of my recent dr's appt.  My

bloodwork came back <BR>

showing nothing, although he assured me that I did

have FM.  But soon the <BR>

talk turned to how I needed to find a boyfriend,

friends, get out, enjoy <BR>

life, exercise " till you sweat, " and so on.<BR>

<BR>

I don't think any of those goals are bad ones, by any

means.  But I'm <BR>

saddened, because I know that starting an exercise

program is going to be <BR>

hard and very painful, and where exactly does one find

a <BR>

boyfriend?  Growing on a tree?  Do I just whistle and

one appears?<BR>

<BR>

I feel truly as if everyone -- including my

psychiatrist and my <BR>

rheumatologist -- believes that my problems are

essentially all in my <BR>

head.  I can't seem to communicate the idea that yes,

I have a history of <BR>

clinical depression, but this pain is honest-to-God

pain, not a figment of <BR>

my imagination.<BR>

<BR>

I really don't know what to do now.  I'm making an

appt to go to our <BR>

Lifestyles Center (at the hospital where I work) to

see about an exercise <BR>

plan.  But it truly feels as if no one believes me.  I

feel like a sham, <BR>

like a fake.  I have done so well, and I'm not sure

this doctor realizes <BR>

what all I have done.  I'm a strict vegetarian.  I

have lost 45 pounds <BR>

since Dec., and four dress sizes.  I have a steady

job, with benefits.  I <BR>

eat produce I grow myself, and am careful with my

eating habits.  I don't <BR>

drink alcohol.<BR>

<BR>

So why do I feel like a complete idiotic hypochondriac

failure?<BR>

<BR>

Jeez, if I wasn't depressed before, that dr's visit

sure would make me feel <BR>

that way now.<BR>

<BR>

Em<BR>

<BR>

</tt>

<br>

<!-- |**|begin egp html banner|**| -->

<table border=0 cellspacing=0 cellpadding=2>

<tr bgcolor=#FFFFCC>

<td align=center><font size= " -1 "

color=#003399><b>

[Guest guest]

Been there had that. You may find that the majority of

us have had some experience like this with the Doctors

we have seen. We all feel the same that we aren't

listened too enough. I was in hospital and finally had

enough and exploded and screamed out that I was in

pain and would move if I could. It was then that they

finally realised how bad I was.

Don't give up. Find another Dr who understand about

Fibromyalgia and you will have all the support you

need and the help you need. As for exercise, you may

find that you end up worse than you now are so be

prepared for the outcome. Try the exercise gently,

don't overdo it and try to do as others, who are

fitter than we are, do. If it aggravates your

condition then don't push yourself into more pain.

Some Fibro patients can do gentle exercise and some

can't. I am one that can not.

Don't give up, keep in touch, we understand even

though some in the world don't.

Lorraine UK

--- janissa@... wrote:

<HR>

<html><body>

<tt>

<BR>

<BR>

I don't know what to make of my recent dr's appt.  My

bloodwork came back <BR>

showing nothing, although he assured me that I did

have FM.  But soon the <BR>

talk turned to how I needed to find a boyfriend,

friends, get out, enjoy <BR>

life, exercise " till you sweat, " and so on.<BR>

<BR>

I don't think any of those goals are bad ones, by any

means.  But I'm <BR>

saddened, because I know that starting an exercise

program is going to be <BR>

hard and very painful, and where exactly does one find

a <BR>

boyfriend?  Growing on a tree?  Do I just whistle and

one appears?<BR>

<BR>

I feel truly as if everyone -- including my

psychiatrist and my <BR>

rheumatologist -- believes that my problems are

essentially all in my <BR>

head.  I can't seem to communicate the idea that yes,

I have a history of <BR>

clinical depression, but this pain is honest-to-God

pain, not a figment of <BR>

my imagination.<BR>

<BR>

I really don't know what to do now.  I'm making an

appt to go to our <BR>

Lifestyles Center (at the hospital where I work) to

see about an exercise <BR>

plan.  But it truly feels as if no one believes me.  I

feel like a sham, <BR>

like a fake.  I have done so well, and I'm not sure

this doctor realizes <BR>

what all I have done.  I'm a strict vegetarian.  I

have lost 45 pounds <BR>

since Dec., and four dress sizes.  I have a steady

job, with benefits.  I <BR>

eat produce I grow myself, and am careful with my

eating habits.  I don't <BR>

drink alcohol.<BR>

<BR>

So why do I feel like a complete idiotic hypochondriac

failure?<BR>

<BR>

Jeez, if I wasn't depressed before, that dr's visit

sure would make me feel <BR>

that way now.<BR>

<BR>

Em<BR>

<BR>

</tt>

<br>

<!-- |**|begin egp html banner|**| -->

<table border=0 cellspacing=0 cellpadding=2>

<tr bgcolor=#FFFFCC>

<td align=center><font size= " -1 "

color=#003399><b>

[Guest guest]

Been there had that. You may find that the majority of

us have had some experience like this with the Doctors

we have seen. We all feel the same that we aren't

listened too enough. I was in hospital and finally had

enough and exploded and screamed out that I was in

pain and would move if I could. It was then that they

finally realised how bad I was.

Don't give up. Find another Dr who understand about

Fibromyalgia and you will have all the support you

need and the help you need. As for exercise, you may

find that you end up worse than you now are so be

prepared for the outcome. Try the exercise gently,

don't overdo it and try to do as others, who are

fitter than we are, do. If it aggravates your

condition then don't push yourself into more pain.

Some Fibro patients can do gentle exercise and some

can't. I am one that can not.

Don't give up, keep in touch, we understand even

though some in the world don't.

Lorraine UK

--- janissa@... wrote:

<HR>

<html><body>

<tt>

<BR>

<BR>

I don't know what to make of my recent dr's appt.  My

bloodwork came back <BR>

showing nothing, although he assured me that I did

have FM.  But soon the <BR>

talk turned to how I needed to find a boyfriend,

friends, get out, enjoy <BR>

life, exercise " till you sweat, " and so on.<BR>

<BR>

I don't think any of those goals are bad ones, by any

means.  But I'm <BR>

saddened, because I know that starting an exercise

program is going to be <BR>

hard and very painful, and where exactly does one find

a <BR>

boyfriend?  Growing on a tree?  Do I just whistle and

one appears?<BR>

<BR>

I feel truly as if everyone -- including my

psychiatrist and my <BR>

rheumatologist -- believes that my problems are

essentially all in my <BR>

head.  I can't seem to communicate the idea that yes,

I have a history of <BR>

clinical depression, but this pain is honest-to-God

pain, not a figment of <BR>

my imagination.<BR>

<BR>

I really don't know what to do now.  I'm making an

appt to go to our <BR>

Lifestyles Center (at the hospital where I work) to

see about an exercise <BR>

plan.  But it truly feels as if no one believes me.  I

feel like a sham, <BR>

like a fake.  I have done so well, and I'm not sure

this doctor realizes <BR>

what all I have done.  I'm a strict vegetarian.  I

have lost 45 pounds <BR>

since Dec., and four dress sizes.  I have a steady

job, with benefits.  I <BR>

eat produce I grow myself, and am careful with my

eating habits.  I don't <BR>

drink alcohol.<BR>

<BR>

So why do I feel like a complete idiotic hypochondriac

failure?<BR>

<BR>

Jeez, if I wasn't depressed before, that dr's visit

sure would make me feel <BR>

that way now.<BR>

<BR>

Em<BR>

<BR>

</tt>

<br>

<!-- |**|begin egp html banner|**| -->

<table border=0 cellspacing=0 cellpadding=2>

<tr bgcolor=#FFFFCC>

<td align=center><font size= " -1 "

color=#003399><b>

[Guest guest]

janissa@... wrote:

> I feel truly as if everyone -- including my psychiatrist and my

> rheumatologist -- believes that my problems are essentially all in my

> head. I can't seem to communicate the idea that yes, I have a history of

> clinical depression, but this pain is honest-to-God pain, not a figment of

> my imagination.

I wonder if sometimes it isn't that we pay the price for others. I am

sure the doctors have run into their share of people who when asked if

they exercise (non fm or cfs people) say " oh yes " or " I try, but I just

can't walk that far " when in reality, they really don't want to make the

effort and have never even bothered to try. So they lie about it, the

doctors " know " they lie, and so when it comes to us, they think we're

just making things up too? It's easier to think that we just don't want

to make an effort to exercise than it is to realize we can't exercise

and know there is nothing they can do to help us. I despite people

thinking they know how I feel/what I can do better than me, sitting

right here in my own body. We know you really have pain, so feel free

to vent here whenever you want to.

Darcy