Guest guest Posted May 12, 2004 Report Share Posted May 12, 2004 Hi Pierre, Lemonade is one of my favorite summertime drinks, so it is good it is low in potassium. I make my own at home too since my Mother-in-law always brings me bags of lemons off her tree. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 12, 2004 Report Share Posted May 12, 2004 I don't know. By the time a cola gets to your kidneys, it's just blood. Phosphorus in drinks and food is something that has to be limited in the diet of people with more advanced chronic renal insufficiency because phosphorus binds to readily with calcium, that having elevated blood levels of phosphorus gradually sucks the calcium out of your bones - eventually leading to a kind of osteoporosis. It's something that happens over a long period of time, years even. I don't think one Coke or Pepsi is that much phosphorus by itself. There are people who do have very bad pain in the kidneys or the kidney area, but nobody really knows why this happens, and, thankfully, most people with IgAN don't have that. Cola's are kind of acidic though. Could the pain be more from your digestive system, perhaps even some kind of pancreatic colic. I sometimes get that when I drink coffee, especially on an empty stomach. Physiologically, the part of the kidneys that filters blood (and that is affected by IgAN) doesn't have any nerves that feel or transmit pain. As I've posted many times in the past, I once had very bad pain that I swore was my right kidney. It turned out I was having gallbladder attacks. Pierre drinking coke or pepsi > I would like to know if this affects anyone else and if it is bad > for the kidneys. I have IGA and I usually don't drink pop (coke or > pepsi) and on the days that I do drink more than one a day my > kidneys hurt real bad, almost to the point of crying. I can hardly > bend over the pain gets so bad. If u have IGA is drinking pop not a > good idea? is it the phospates in the pop that cause the pain? I > hope someone can shead some light on this. > > Thanks > Poneyboy > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 12, 2004 Report Share Posted May 12, 2004 I don't know. By the time a cola gets to your kidneys, it's just blood. Phosphorus in drinks and food is something that has to be limited in the diet of people with more advanced chronic renal insufficiency because phosphorus binds to readily with calcium, that having elevated blood levels of phosphorus gradually sucks the calcium out of your bones - eventually leading to a kind of osteoporosis. It's something that happens over a long period of time, years even. I don't think one Coke or Pepsi is that much phosphorus by itself. There are people who do have very bad pain in the kidneys or the kidney area, but nobody really knows why this happens, and, thankfully, most people with IgAN don't have that. Cola's are kind of acidic though. Could the pain be more from your digestive system, perhaps even some kind of pancreatic colic. I sometimes get that when I drink coffee, especially on an empty stomach. Physiologically, the part of the kidneys that filters blood (and that is affected by IgAN) doesn't have any nerves that feel or transmit pain. As I've posted many times in the past, I once had very bad pain that I swore was my right kidney. It turned out I was having gallbladder attacks. Pierre drinking coke or pepsi > I would like to know if this affects anyone else and if it is bad > for the kidneys. I have IGA and I usually don't drink pop (coke or > pepsi) and on the days that I do drink more than one a day my > kidneys hurt real bad, almost to the point of crying. I can hardly > bend over the pain gets so bad. If u have IGA is drinking pop not a > good idea? is it the phospates in the pop that cause the pain? I > hope someone can shead some light on this. > > Thanks > Poneyboy > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 12, 2004 Report Share Posted May 12, 2004 I don't know. By the time a cola gets to your kidneys, it's just blood. Phosphorus in drinks and food is something that has to be limited in the diet of people with more advanced chronic renal insufficiency because phosphorus binds to readily with calcium, that having elevated blood levels of phosphorus gradually sucks the calcium out of your bones - eventually leading to a kind of osteoporosis. It's something that happens over a long period of time, years even. I don't think one Coke or Pepsi is that much phosphorus by itself. There are people who do have very bad pain in the kidneys or the kidney area, but nobody really knows why this happens, and, thankfully, most people with IgAN don't have that. Cola's are kind of acidic though. Could the pain be more from your digestive system, perhaps even some kind of pancreatic colic. I sometimes get that when I drink coffee, especially on an empty stomach. Physiologically, the part of the kidneys that filters blood (and that is affected by IgAN) doesn't have any nerves that feel or transmit pain. As I've posted many times in the past, I once had very bad pain that I swore was my right kidney. It turned out I was having gallbladder attacks. Pierre drinking coke or pepsi > I would like to know if this affects anyone else and if it is bad > for the kidneys. I have IGA and I usually don't drink pop (coke or > pepsi) and on the days that I do drink more than one a day my > kidneys hurt real bad, almost to the point of crying. I can hardly > bend over the pain gets so bad. If u have IGA is drinking pop not a > good idea? is it the phospates in the pop that cause the pain? I > hope someone can shead some light on this. > > Thanks > Poneyboy > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 12, 2004 Report Share Posted May 12, 2004 Thanks for the reply. The pain is on both sides, favors my left side more and it is high about right where they did my bio. I only get it when I drink pop though, so I'm at a loss. again thanks for the info it has helped. Poneyboy " The Needs of the many outweigh the needs of the few...or the one " Spock Star Trek II The Wrath of Kahn. MSN poneyboy1967@... Yahoo poneyboyfx ICQ 301927482 drinking coke or pepsi > I would like to know if this affects anyone else and if it is bad > for the kidneys. I have IGA and I usually don't drink pop (coke or > pepsi) and on the days that I do drink more than one a day my > kidneys hurt real bad, almost to the point of crying. I can hardly > bend over the pain gets so bad. If u have IGA is drinking pop not a > good idea? is it the phospates in the pop that cause the pain? I > hope someone can shead some light on this. > > Thanks > Poneyboy > To edit your settings for the group, go to our Yahoo Group home page: http://groups.yahoo.com/group/iga-nephropathy/ To unsubcribe via email, iga-nephropathy-unsubscribe Visit our companion website at www.igan.ca. The site is entirely supported by donations. If you would like to help, go to: http://www.igan.ca/id62.htm Thank you Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 12, 2004 Report Share Posted May 12, 2004 Thanks for the reply. The pain is on both sides, favors my left side more and it is high about right where they did my bio. I only get it when I drink pop though, so I'm at a loss. again thanks for the info it has helped. Poneyboy " The Needs of the many outweigh the needs of the few...or the one " Spock Star Trek II The Wrath of Kahn. MSN poneyboy1967@... Yahoo poneyboyfx ICQ 301927482 drinking coke or pepsi > I would like to know if this affects anyone else and if it is bad > for the kidneys. I have IGA and I usually don't drink pop (coke or > pepsi) and on the days that I do drink more than one a day my > kidneys hurt real bad, almost to the point of crying. I can hardly > bend over the pain gets so bad. If u have IGA is drinking pop not a > good idea? is it the phospates in the pop that cause the pain? I > hope someone can shead some light on this. > > Thanks > Poneyboy > To edit your settings for the group, go to our Yahoo Group home page: http://groups.yahoo.com/group/iga-nephropathy/ To unsubcribe via email, iga-nephropathy-unsubscribe Visit our companion website at www.igan.ca. The site is entirely supported by donations. If you would like to help, go to: http://www.igan.ca/id62.htm Thank you Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 12, 2004 Report Share Posted May 12, 2004 Thanks for the reply. The pain is on both sides, favors my left side more and it is high about right where they did my bio. I only get it when I drink pop though, so I'm at a loss. again thanks for the info it has helped. Poneyboy " The Needs of the many outweigh the needs of the few...or the one " Spock Star Trek II The Wrath of Kahn. MSN poneyboy1967@... Yahoo poneyboyfx ICQ 301927482 drinking coke or pepsi > I would like to know if this affects anyone else and if it is bad > for the kidneys. I have IGA and I usually don't drink pop (coke or > pepsi) and on the days that I do drink more than one a day my > kidneys hurt real bad, almost to the point of crying. I can hardly > bend over the pain gets so bad. If u have IGA is drinking pop not a > good idea? is it the phospates in the pop that cause the pain? I > hope someone can shead some light on this. > > Thanks > Poneyboy > To edit your settings for the group, go to our Yahoo Group home page: http://groups.yahoo.com/group/iga-nephropathy/ To unsubcribe via email, iga-nephropathy-unsubscribe Visit our companion website at www.igan.ca. The site is entirely supported by donations. If you would like to help, go to: http://www.igan.ca/id62.htm Thank you Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 12, 2004 Report Share Posted May 12, 2004 Well, at least if you know what causes it, you can just drink something else If you ever progress to more advanced renal insufficiency, you won't be able to drink cola anyway because of the phosphorus. Pains like this remain somewhat of a mystery. As I said, nobody really knows why some people with IgAN get flank pain, and others don't, nor what the mechanism is that actually causes it. Have your tried cranberry cocktail? It's a very popular choice among people who are on a low potassium renal diet. They always have some where I go for dialysis. Lemonade is good too, as, contrary to what we might assume since it's citrus, it's low in potassium. Both are fine phosphorus-wise also. There's a new lemonade out that I tried a few days ago, and I just love it. It's called Tropicana Twister. At home, I just make my own, though. Pierre Re: drinking coke or pepsi > Thanks for the reply. The pain is on both sides, favors my left side more and it is high about right where they did my bio. I only get it when I drink pop though, so I'm at a loss. again thanks for the info it has helped. > > Poneyboy > > " The Needs of the many outweigh the needs > of the few...or the one " Spock Star Trek II > The Wrath of Kahn. > MSN poneyboy1967@... > Yahoo poneyboyfx > ICQ 301927482 > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 12, 2004 Report Share Posted May 12, 2004 Well, at least if you know what causes it, you can just drink something else If you ever progress to more advanced renal insufficiency, you won't be able to drink cola anyway because of the phosphorus. Pains like this remain somewhat of a mystery. As I said, nobody really knows why some people with IgAN get flank pain, and others don't, nor what the mechanism is that actually causes it. Have your tried cranberry cocktail? It's a very popular choice among people who are on a low potassium renal diet. They always have some where I go for dialysis. Lemonade is good too, as, contrary to what we might assume since it's citrus, it's low in potassium. Both are fine phosphorus-wise also. There's a new lemonade out that I tried a few days ago, and I just love it. It's called Tropicana Twister. At home, I just make my own, though. Pierre Re: drinking coke or pepsi > Thanks for the reply. The pain is on both sides, favors my left side more and it is high about right where they did my bio. I only get it when I drink pop though, so I'm at a loss. again thanks for the info it has helped. > > Poneyboy > > " The Needs of the many outweigh the needs > of the few...or the one " Spock Star Trek II > The Wrath of Kahn. > MSN poneyboy1967@... > Yahoo poneyboyfx > ICQ 301927482 > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 12, 2004 Report Share Posted May 12, 2004 Well, at least if you know what causes it, you can just drink something else If you ever progress to more advanced renal insufficiency, you won't be able to drink cola anyway because of the phosphorus. Pains like this remain somewhat of a mystery. As I said, nobody really knows why some people with IgAN get flank pain, and others don't, nor what the mechanism is that actually causes it. Have your tried cranberry cocktail? It's a very popular choice among people who are on a low potassium renal diet. They always have some where I go for dialysis. Lemonade is good too, as, contrary to what we might assume since it's citrus, it's low in potassium. Both are fine phosphorus-wise also. There's a new lemonade out that I tried a few days ago, and I just love it. It's called Tropicana Twister. At home, I just make my own, though. Pierre Re: drinking coke or pepsi > Thanks for the reply. The pain is on both sides, favors my left side more and it is high about right where they did my bio. I only get it when I drink pop though, so I'm at a loss. again thanks for the info it has helped. > > Poneyboy > > " The Needs of the many outweigh the needs > of the few...or the one " Spock Star Trek II > The Wrath of Kahn. > MSN poneyboy1967@... > Yahoo poneyboyfx > ICQ 301927482 > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 12, 2004 Report Share Posted May 12, 2004 laura,,,we love lemons here too,,,but they cost so much here,,they are so high,,,,so we hardly ever have it ,,,i buy the bottle lemonades,,minutemaid light,,,,it is only 5 calories per serving,,,it is great!!!!,,,,,,crystal Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 12, 2004 Report Share Posted May 12, 2004 laura,,,we love lemons here too,,,but they cost so much here,,they are so high,,,,so we hardly ever have it ,,,i buy the bottle lemonades,,minutemaid light,,,,it is only 5 calories per serving,,,it is great!!!!,,,,,,crystal Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 12, 2004 Report Share Posted May 12, 2004 Well, but it has been cold here lately, not a very sunny California if that is any consolation :-) In a message dated 5/12/2004 7:37:22 PM Pacific Daylight Time, pierre-groups@... writes: > Well, you just had to show off living in California now, did you > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 12, 2004 Report Share Posted May 12, 2004 Well, but it has been cold here lately, not a very sunny California if that is any consolation :-) In a message dated 5/12/2004 7:37:22 PM Pacific Daylight Time, pierre-groups@... writes: > Well, you just had to show off living in California now, did you > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 12, 2004 Report Share Posted May 12, 2004 Well, but it has been cold here lately, not a very sunny California if that is any consolation :-) In a message dated 5/12/2004 7:37:22 PM Pacific Daylight Time, pierre-groups@... writes: > Well, you just had to show off living in California now, did you > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 12, 2004 Report Share Posted May 12, 2004 Hi Poneyboy, I am afraid that a generalized diet for IgAN really needs to be tailored according to your specific laboratory results. For 15 years, I had no potassium restrictions, but now I run very high and have sever restrictions. In general, most IgAN patients do have to watch protein consumption (thus the advise to get off Atkins) and low sodium. It really is a good idea to consult your doctor before altering your diet though. I am so sorry you have had such bad luck with Nephrologists. I hope you can find a good one who is more compassionate soon. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 12, 2004 Report Share Posted May 12, 2004 Hi Poneyboy, I am afraid that a generalized diet for IgAN really needs to be tailored according to your specific laboratory results. For 15 years, I had no potassium restrictions, but now I run very high and have sever restrictions. In general, most IgAN patients do have to watch protein consumption (thus the advise to get off Atkins) and low sodium. It really is a good idea to consult your doctor before altering your diet though. I am so sorry you have had such bad luck with Nephrologists. I hope you can find a good one who is more compassionate soon. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 12, 2004 Report Share Posted May 12, 2004 I actually still have a Coke now and then. My phosphorus numbers are always good, and they check them monthly since I've been on dialysis. After a while, you get to know what you can cheat on and what you can't. I like other dark soft drinks too, like Dr. Pepper and Bark's root beer. I have no idea how these measure up in terms of phosphorus though. I like spruce beer whenever I can find it too, but it's pretty rare nowadays. Pierre Re: drinking coke or pepsi > Hi I just wanted to say that with out soda I would > just die. I live off the stuff, I drink diet coke or > pepsi everday and I don't just mean one, and if i > can't have soda I drink tea. I never hardly drink > water not unless it is flavored. I know that the > darker the drink the worse it is on the kidneys but I > am a caffiene aholic. does that make sense? i do hope > you have agood day. bye Tonya Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 12, 2004 Report Share Posted May 12, 2004 Well, you just had to show off living in California now, did you Pierre Re: drinking coke or pepsi > Hi Pierre, > > Lemonade is one of my favorite summertime drinks, so it is good it is low in > potassium. I make my own at home too since my Mother-in-law always brings me > bags of lemons off her tree. > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 12, 2004 Report Share Posted May 12, 2004 Well, you just had to show off living in California now, did you Pierre Re: drinking coke or pepsi > Hi Pierre, > > Lemonade is one of my favorite summertime drinks, so it is good it is low in > potassium. I make my own at home too since my Mother-in-law always brings me > bags of lemons off her tree. > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 12, 2004 Report Share Posted May 12, 2004 When we make lemonade we also make our own so we know what we are drinking. I did not know potassium caused any trouble for the kidneys. when I was dx my neph doctor did not tell me anything to look out for except to come off the Atkins diet. soon after seeing me for a few visits moved to new England, she gave me to the meanest doctor in the world. he was so mean I don't see how he had any patients. so I quit going to him and started letting my regular doctor do my 24 hour. I have not been to a neph in about 3 years. I can't find any good ones around where I live and I have to drive over 100 miles just to see the mean one. I would like to know all the diet restrictions for IgAN that I should know. my wife told me when I first got dx that she thought my neph doctor was scattered brain and not with it. she did my bio and took out 3 samples then she let a student wanting to become a neph take a sample and I thought he killed me, the pain killer did not do a good job, and I screamed my head off and cried. so my wife thought she was a bad doctor. I have not had good experiences with neph doctors. I would like to find another one that is nice and good. My current diet is no raw sugar, fructose or stevia,a no red meat at all. a few sweets not many a pop a day, lots of fish and fruits and vegies. tea, lemonade, sobe drinks, juice, milk, I also take fish oil, vit e, vit c, vit b complex, altace, lamictal, risperdal. Please tell me what I need to change or add. I want my kidneys to last as long as possible. Poneyboy " The Needs of the many outweigh the needs of the few...or the one " Spock Star Trek II The Wrath of Kahn. MSN poneyboy1967@... Yahoo poneyboyfx ICQ 301927482 Re: drinking coke or pepsi > Thanks for the reply. The pain is on both sides, favors my left side more and it is high about right where they did my bio. I only get it when I drink pop though, so I'm at a loss. again thanks for the info it has helped. > > Poneyboy > > " The Needs of the many outweigh the needs > of the few...or the one " Spock Star Trek II > The Wrath of Kahn. > MSN poneyboy1967@... > Yahoo poneyboyfx > ICQ 301927482 > To edit your settings for the group, go to our Yahoo Group home page: http://groups.yahoo.com/group/iga-nephropathy/ To unsubcribe via email, iga-nephropathy-unsubscribe Visit our companion website at www.igan.ca. The site is entirely supported by donations. If you would like to help, go to: http://www.igan.ca/id62.htm Thank you ------------------------------------------------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 12, 2004 Report Share Posted May 12, 2004 When we make lemonade we also make our own so we know what we are drinking. I did not know potassium caused any trouble for the kidneys. when I was dx my neph doctor did not tell me anything to look out for except to come off the Atkins diet. soon after seeing me for a few visits moved to new England, she gave me to the meanest doctor in the world. he was so mean I don't see how he had any patients. so I quit going to him and started letting my regular doctor do my 24 hour. I have not been to a neph in about 3 years. I can't find any good ones around where I live and I have to drive over 100 miles just to see the mean one. I would like to know all the diet restrictions for IgAN that I should know. my wife told me when I first got dx that she thought my neph doctor was scattered brain and not with it. she did my bio and took out 3 samples then she let a student wanting to become a neph take a sample and I thought he killed me, the pain killer did not do a good job, and I screamed my head off and cried. so my wife thought she was a bad doctor. I have not had good experiences with neph doctors. I would like to find another one that is nice and good. My current diet is no raw sugar, fructose or stevia,a no red meat at all. a few sweets not many a pop a day, lots of fish and fruits and vegies. tea, lemonade, sobe drinks, juice, milk, I also take fish oil, vit e, vit c, vit b complex, altace, lamictal, risperdal. Please tell me what I need to change or add. I want my kidneys to last as long as possible. Poneyboy " The Needs of the many outweigh the needs of the few...or the one " Spock Star Trek II The Wrath of Kahn. MSN poneyboy1967@... Yahoo poneyboyfx ICQ 301927482 Re: drinking coke or pepsi > Thanks for the reply. The pain is on both sides, favors my left side more and it is high about right where they did my bio. I only get it when I drink pop though, so I'm at a loss. again thanks for the info it has helped. > > Poneyboy > > " The Needs of the many outweigh the needs > of the few...or the one " Spock Star Trek II > The Wrath of Kahn. > MSN poneyboy1967@... > Yahoo poneyboyfx > ICQ 301927482 > To edit your settings for the group, go to our Yahoo Group home page: http://groups.yahoo.com/group/iga-nephropathy/ To unsubcribe via email, iga-nephropathy-unsubscribe Visit our companion website at www.igan.ca. The site is entirely supported by donations. If you would like to help, go to: http://www.igan.ca/id62.htm Thank you ------------------------------------------------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 13, 2004 Report Share Posted May 13, 2004 Crystal, I knew you were a soul sister! Unfortunately, where and I live, lemons grow on trees. I always wondered who bought them in grocery stores! Unfortunately, the ultimate price tag involves living in California. Lemons might be ALL that's free here! Cy Re: drinking coke or pepsi > laura,,,we love lemons here too,,,but they cost so much here,,they are so > high,,,,so we hardly ever have it ,,,i buy the bottle lemonades,,minutemaid > light,,,,it is only 5 calories per serving,,,it is great!!!!,,,,,,crystal > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 13, 2004 Report Share Posted May 13, 2004 Crystal, I knew you were a soul sister! Unfortunately, where and I live, lemons grow on trees. I always wondered who bought them in grocery stores! Unfortunately, the ultimate price tag involves living in California. Lemons might be ALL that's free here! Cy Re: drinking coke or pepsi > laura,,,we love lemons here too,,,but they cost so much here,,they are so > high,,,,so we hardly ever have it ,,,i buy the bottle lemonades,,minutemaid > light,,,,it is only 5 calories per serving,,,it is great!!!!,,,,,,crystal > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 13, 2004 Report Share Posted May 13, 2004 Crystal, I knew you were a soul sister! Unfortunately, where and I live, lemons grow on trees. I always wondered who bought them in grocery stores! Unfortunately, the ultimate price tag involves living in California. Lemons might be ALL that's free here! Cy Re: drinking coke or pepsi > laura,,,we love lemons here too,,,but they cost so much here,,they are so > high,,,,so we hardly ever have it ,,,i buy the bottle lemonades,,minutemaid > light,,,,it is only 5 calories per serving,,,it is great!!!!,,,,,,crystal > > > Quote Link to comment Share on other sites More sharing options...
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