Guest guest Posted September 16, 2006 Report Share Posted September 16, 2006 Hi Mike, I experienced frequent to constant nausea, started taking promethazine, tried maranol (medical marijauna pill, tried some other drugs and finally ended up on zofran twice a day, 8 mg which was the most helpful so that I could keep up my nutrition. I also used the promethazine for " breakthrough " nausea. I had huge battles with my insurance and my doctor always groaned when she had to talk to them.... she finally convince them that it was either the hospital for IV zofran or the pills and they relented! I hope you don't have to go to that extreme, but you should talk to your doctor. Its important to keep up your nutrition. Hope that helps, Deb in Seattle Tx 1/19/06 and walked 6 miles today in preparation for the Seattle Half Marathon!!!! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 16, 2006 Report Share Posted September 16, 2006 Hi Mike, I experienced frequent to constant nausea, started taking promethazine, tried maranol (medical marijauna pill, tried some other drugs and finally ended up on zofran twice a day, 8 mg which was the most helpful so that I could keep up my nutrition. I also used the promethazine for " breakthrough " nausea. I had huge battles with my insurance and my doctor always groaned when she had to talk to them.... she finally convince them that it was either the hospital for IV zofran or the pills and they relented! I hope you don't have to go to that extreme, but you should talk to your doctor. Its important to keep up your nutrition. Hope that helps, Deb in Seattle Tx 1/19/06 and walked 6 miles today in preparation for the Seattle Half Marathon!!!! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 16, 2006 Report Share Posted September 16, 2006 Hi Mike, I experienced frequent to constant nausea, started taking promethazine, tried maranol (medical marijauna pill, tried some other drugs and finally ended up on zofran twice a day, 8 mg which was the most helpful so that I could keep up my nutrition. I also used the promethazine for " breakthrough " nausea. I had huge battles with my insurance and my doctor always groaned when she had to talk to them.... she finally convince them that it was either the hospital for IV zofran or the pills and they relented! I hope you don't have to go to that extreme, but you should talk to your doctor. Its important to keep up your nutrition. Hope that helps, Deb in Seattle Tx 1/19/06 and walked 6 miles today in preparation for the Seattle Half Marathon!!!! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 16, 2006 Report Share Posted September 16, 2006 Zofran has worked for me when nothing else has, but it is very expensive if you have no insurance coverage for Rxs. Last year I had a major bout with labrythitis and its dizziness and found that crystallized ginger slivers helped to quell the nausea. I've also brewed " ginger tea " -- powdered ginger in hot water (to taste). Phenergan works for some people, but it makes me so sleepy that I swear I have no brain function -- and compazine doesn't work well for me either. They may be options for you, however. Penny In , " kate ackerman " wrote: > she finally convince them that it was either the hospital for > IV zofran or the pills and they relented! I hope you don't have to go > to that extreme, but you should talk to your doctor. Its important to > keep up your nutrition. > > Hope that helps, > > Deb in Seattle Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 16, 2006 Report Share Posted September 16, 2006 Zofran has worked for me when nothing else has, but it is very expensive if you have no insurance coverage for Rxs. Last year I had a major bout with labrythitis and its dizziness and found that crystallized ginger slivers helped to quell the nausea. I've also brewed " ginger tea " -- powdered ginger in hot water (to taste). Phenergan works for some people, but it makes me so sleepy that I swear I have no brain function -- and compazine doesn't work well for me either. They may be options for you, however. Penny In , " kate ackerman " wrote: > she finally convince them that it was either the hospital for > IV zofran or the pills and they relented! I hope you don't have to go > to that extreme, but you should talk to your doctor. Its important to > keep up your nutrition. > > Hope that helps, > > Deb in Seattle Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 16, 2006 Report Share Posted September 16, 2006 Zofran has worked for me when nothing else has, but it is very expensive if you have no insurance coverage for Rxs. Last year I had a major bout with labrythitis and its dizziness and found that crystallized ginger slivers helped to quell the nausea. I've also brewed " ginger tea " -- powdered ginger in hot water (to taste). Phenergan works for some people, but it makes me so sleepy that I swear I have no brain function -- and compazine doesn't work well for me either. They may be options for you, however. Penny In , " kate ackerman " wrote: > she finally convince them that it was either the hospital for > IV zofran or the pills and they relented! I hope you don't have to go > to that extreme, but you should talk to your doctor. Its important to > keep up your nutrition. > > Hope that helps, > > Deb in Seattle Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 17, 2006 Report Share Posted September 17, 2006 Mike, I took ginger root capsules for years, followed by a HUGE glass of water (to avoid heartburn like symptoms), and when that stopped working I was given a Rx for compazine and for Tigan suppositories when the compazine failed me. Earlier this year the compazine stopped doing the job, and due to a UC flare the Tigan was of no use, so I am now taking Zofran. I would ask your doctor about Phenergren, Compazine, Tigan or Zofran. Suffering with nausea is not necessary, when there are so many things they can prescribe for relief. Good luck in finding what works for you! (MO)PSC & UC '84, chronic pancreatitis '97, listed for tx 06/05for details see www.caringbridge.org/visit/melaniejs Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 17, 2006 Report Share Posted September 17, 2006 Mike, I took ginger root capsules for years, followed by a HUGE glass of water (to avoid heartburn like symptoms), and when that stopped working I was given a Rx for compazine and for Tigan suppositories when the compazine failed me. Earlier this year the compazine stopped doing the job, and due to a UC flare the Tigan was of no use, so I am now taking Zofran. I would ask your doctor about Phenergren, Compazine, Tigan or Zofran. Suffering with nausea is not necessary, when there are so many things they can prescribe for relief. Good luck in finding what works for you! (MO)PSC & UC '84, chronic pancreatitis '97, listed for tx 06/05for details see www.caringbridge.org/visit/melaniejs Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 17, 2006 Report Share Posted September 17, 2006 Mike, I took ginger root capsules for years, followed by a HUGE glass of water (to avoid heartburn like symptoms), and when that stopped working I was given a Rx for compazine and for Tigan suppositories when the compazine failed me. Earlier this year the compazine stopped doing the job, and due to a UC flare the Tigan was of no use, so I am now taking Zofran. I would ask your doctor about Phenergren, Compazine, Tigan or Zofran. Suffering with nausea is not necessary, when there are so many things they can prescribe for relief. Good luck in finding what works for you! (MO)PSC & UC '84, chronic pancreatitis '97, listed for tx 06/05for details see www.caringbridge.org/visit/melaniejs Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 17, 2006 Report Share Posted September 17, 2006 Penny and Deb, Many thanks for your prompt responses regarding the treatment of nausea, I'll give your suggestions a try. Mike > > she finally convince them that it was either the hospital for > > IV zofran or the pills and they relented! I hope you don't have to go > > to that extreme, but you should talk to your doctor. Its important to > > keep up your nutrition. > > > > Hope that helps, > > > > Deb in Seattle > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 17, 2006 Report Share Posted September 17, 2006 Penny and Deb, Many thanks for your prompt responses regarding the treatment of nausea, I'll give your suggestions a try. Mike > > she finally convince them that it was either the hospital for > > IV zofran or the pills and they relented! I hope you don't have to go > > to that extreme, but you should talk to your doctor. Its important to > > keep up your nutrition. > > > > Hope that helps, > > > > Deb in Seattle > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 17, 2006 Report Share Posted September 17, 2006 Penny and Deb, Many thanks for your prompt responses regarding the treatment of nausea, I'll give your suggestions a try. Mike > > she finally convince them that it was either the hospital for > > IV zofran or the pills and they relented! I hope you don't have to go > > to that extreme, but you should talk to your doctor. Its important to > > keep up your nutrition. > > > > Hope that helps, > > > > Deb in Seattle > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 17, 2006 Report Share Posted September 17, 2006 Although I don't have constant nausea, when it hits it's bad. I also have itching...and I was prescribed Zofran. It is a very very expensive anti-nausea med used primarily for chemo/radiation patients. Baudoux-Northrup __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 17, 2006 Report Share Posted September 17, 2006 Although I don't have constant nausea, when it hits it's bad. I also have itching...and I was prescribed Zofran. It is a very very expensive anti-nausea med used primarily for chemo/radiation patients. Baudoux-Northrup __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 17, 2006 Report Share Posted September 17, 2006 Although I don't have constant nausea, when it hits it's bad. I also have itching...and I was prescribed Zofran. It is a very very expensive anti-nausea med used primarily for chemo/radiation patients. Baudoux-Northrup __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 18, 2006 Report Share Posted September 18, 2006 Something that alleviated most of my nausea symptoms was changing the way I drink my medication around. I take Rifampicine(locally sold as, amongst others: Rimactaine) and Utro. (Locally sold as Ursotan). Originally my Px indicated that I have to drink the Rifampicine in the mornings, 300mg. Eventually, after experimenting I found that by taking it in the evenings before bed-time, the nausea also didn’t recur in daytime hours – and because I am asleep after taking it – I am not aware of it at nights. Regards, -SJ South Africa Dx PSC UC April 2005 From: [mailto: ] On Behalf Of hist.prof Sent: 16 September 2006 19:01 PM To: Subject: nausea & PSC I'm new to the group - just joined a couple weeks ago. I (male, 57)was diagnosed with PSC about a month ago after an emergency ERCP. My biggest complaint so far is almost constant nausea and a mild stomach ache which has led to weight loss (30 lbs. over th lst 6 months). Has anyone else had this symptom and any suggestions on how to deal with it? Thanks in advance. Mike Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 18, 2006 Report Share Posted September 18, 2006 Something that alleviated most of my nausea symptoms was changing the way I drink my medication around. I take Rifampicine(locally sold as, amongst others: Rimactaine) and Utro. (Locally sold as Ursotan). Originally my Px indicated that I have to drink the Rifampicine in the mornings, 300mg. Eventually, after experimenting I found that by taking it in the evenings before bed-time, the nausea also didn’t recur in daytime hours – and because I am asleep after taking it – I am not aware of it at nights. Regards, -SJ South Africa Dx PSC UC April 2005 From: [mailto: ] On Behalf Of hist.prof Sent: 16 September 2006 19:01 PM To: Subject: nausea & PSC I'm new to the group - just joined a couple weeks ago. I (male, 57)was diagnosed with PSC about a month ago after an emergency ERCP. My biggest complaint so far is almost constant nausea and a mild stomach ache which has led to weight loss (30 lbs. over th lst 6 months). Has anyone else had this symptom and any suggestions on how to deal with it? Thanks in advance. Mike Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 18, 2006 Report Share Posted September 18, 2006 Something that alleviated most of my nausea symptoms was changing the way I drink my medication around. I take Rifampicine(locally sold as, amongst others: Rimactaine) and Utro. (Locally sold as Ursotan). Originally my Px indicated that I have to drink the Rifampicine in the mornings, 300mg. Eventually, after experimenting I found that by taking it in the evenings before bed-time, the nausea also didn’t recur in daytime hours – and because I am asleep after taking it – I am not aware of it at nights. Regards, -SJ South Africa Dx PSC UC April 2005 From: [mailto: ] On Behalf Of hist.prof Sent: 16 September 2006 19:01 PM To: Subject: nausea & PSC I'm new to the group - just joined a couple weeks ago. I (male, 57)was diagnosed with PSC about a month ago after an emergency ERCP. My biggest complaint so far is almost constant nausea and a mild stomach ache which has led to weight loss (30 lbs. over th lst 6 months). Has anyone else had this symptom and any suggestions on how to deal with it? Thanks in advance. Mike Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 18, 2006 Report Share Posted September 18, 2006 Yes, I was having the same symptoms around the time they listed me for my transplant. I went to see an acupuncturist. I explained to her that I had liver problems and that I was constantly nauseous and that I had no appetite. I would go twice a week to see her. It was a bit expensive (most insurance companies only cover a small portion if anything) but I feel that it is what keep me strong until I got my transplant. Pat > > I'm new to the group - just joined a couple weeks ago. I (male, 57) was > diagnosed with PSC about a month ago after an emergency ERCP. My > biggest complaint so far is almost constant nausea and a mild stomach > ache which has led to weight loss (30 lbs. over th lst 6 months). Has > anyone else had this symptom and any suggestions on how to deal with it? > > Thanks in advance. > > Mike > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 18, 2006 Report Share Posted September 18, 2006 Yes, I was having the same symptoms around the time they listed me for my transplant. I went to see an acupuncturist. I explained to her that I had liver problems and that I was constantly nauseous and that I had no appetite. I would go twice a week to see her. It was a bit expensive (most insurance companies only cover a small portion if anything) but I feel that it is what keep me strong until I got my transplant. Pat > > I'm new to the group - just joined a couple weeks ago. I (male, 57) was > diagnosed with PSC about a month ago after an emergency ERCP. My > biggest complaint so far is almost constant nausea and a mild stomach > ache which has led to weight loss (30 lbs. over th lst 6 months). Has > anyone else had this symptom and any suggestions on how to deal with it? > > Thanks in advance. > > Mike > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 18, 2006 Report Share Posted September 18, 2006 Yes, I was having the same symptoms around the time they listed me for my transplant. I went to see an acupuncturist. I explained to her that I had liver problems and that I was constantly nauseous and that I had no appetite. I would go twice a week to see her. It was a bit expensive (most insurance companies only cover a small portion if anything) but I feel that it is what keep me strong until I got my transplant. Pat > > I'm new to the group - just joined a couple weeks ago. I (male, 57) was > diagnosed with PSC about a month ago after an emergency ERCP. My > biggest complaint so far is almost constant nausea and a mild stomach > ache which has led to weight loss (30 lbs. over th lst 6 months). Has > anyone else had this symptom and any suggestions on how to deal with it? > > Thanks in advance. > > Mike > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 18, 2006 Report Share Posted September 18, 2006 Thanks Pat, sounds like a good idea. Mike > > > > I'm new to the group - just joined a couple weeks ago. I (male, 57) > was > > diagnosed with PSC about a month ago after an emergency ERCP. My > > biggest complaint so far is almost constant nausea and a mild > stomach > > ache which has led to weight loss (30 lbs. over th lst 6 months). > Has > > anyone else had this symptom and any suggestions on how to deal > with it? > > > > Thanks in advance. > > > > Mike > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 18, 2006 Report Share Posted September 18, 2006 Thanks Pat, sounds like a good idea. Mike > > > > I'm new to the group - just joined a couple weeks ago. I (male, 57) > was > > diagnosed with PSC about a month ago after an emergency ERCP. My > > biggest complaint so far is almost constant nausea and a mild > stomach > > ache which has led to weight loss (30 lbs. over th lst 6 months). > Has > > anyone else had this symptom and any suggestions on how to deal > with it? > > > > Thanks in advance. > > > > Mike > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 18, 2006 Report Share Posted September 18, 2006 Thanks Pat, sounds like a good idea. Mike > > > > I'm new to the group - just joined a couple weeks ago. I (male, 57) > was > > diagnosed with PSC about a month ago after an emergency ERCP. My > > biggest complaint so far is almost constant nausea and a mild > stomach > > ache which has led to weight loss (30 lbs. over th lst 6 months). > Has > > anyone else had this symptom and any suggestions on how to deal > with it? > > > > Thanks in advance. > > > > Mike > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 19, 2006 Report Share Posted September 19, 2006 , Thanks for the suggestions - this is all so new to me but it sure helps knowing others are going throught the same things. Looks like it's going to be a long haul which is a lot better than a short haul! Best, Mike > > Mike, > I took ginger root capsules for years, followed by a HUGE glass of water (to > avoid heartburn like symptoms), and when that stopped working I was given a Rx > for compazine and for Tigan suppositories when the compazine failed me. > Earlier this year the compazine stopped doing the job, and due to a UC flare the > Tigan was of no use, so I am now taking Zofran. I would ask your doctor about > Phenergren, Compazine, Tigan or Zofran. Suffering with nausea is not > necessary, when there are so many things they can prescribe for relief. > > Good luck in finding what works for you! > (MO) > PSC & UC '84, chronic pancreatitis '97, listed for tx 06/05 > for details see www.caringbridge.org/visit/melaniejs > Quote Link to comment Share on other sites More sharing options...
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