Guest guest Posted September 9, 2001 Report Share Posted September 9, 2001 Yes, I've had Mono 4 times before getting Fibro, and now since I've had FMS, I've had it 2 more times...Shay Join my new Diabetic Recipes group @ http://groups.yahoo.com/group/Recipes4Diabetes God Bless You All, Shay/Shalynn and the rescue gang; Max, Samson Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 9, 2001 Report Share Posted September 9, 2001 Yes, I've had Mono 4 times before getting Fibro, and now since I've had FMS, I've had it 2 more times...Shay Join my new Diabetic Recipes group @ http://groups.yahoo.com/group/Recipes4Diabetes God Bless You All, Shay/Shalynn and the rescue gang; Max, Samson Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 9, 2001 Report Share Posted September 9, 2001 Yes, I've had Mono 4 times before getting Fibro, and now since I've had FMS, I've had it 2 more times...Shay Join my new Diabetic Recipes group @ http://groups.yahoo.com/group/Recipes4Diabetes God Bless You All, Shay/Shalynn and the rescue gang; Max, Samson Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 10, 2001 Report Share Posted September 10, 2001 At 01:55 PM 09/09/2001 -0400, ShayPugHugs@... wrote: >Yes, I've had Mono 4 times before getting Fibro, and now since I've had >FMS, I've had it 2 more times... Shay, according to my doc (PCP), you can't get it more than once. You test positive for it -- and I certainly FELT as if I had mono again -- but my understanding is that true relapses are exceptionally rare. It might be that you had FM before you knew you had FM, you know what I mean? I can't really feel much difference, myself, between mono and FM. I thought I relapsed 4 times after that first bout, but evidently two of the four markers in the blood tests done for mono suggest otherwise. I'm not a scientist, so can't explain how the markers work, but if two of the four are low, it indicates that while you have Epstein-Barr virus in your system, you do not actually have active mononucleosis. The similarities I've encountered over the past year and a half -- the mono, the lactic acid burn in my muscles, and their similarities to FM -- leave me with so many questions, and I'm not even finding on the internet or questioning professionals, anything about research being done on a possible connection in these areas. Could Epstein-Barr be a factor in FM? It is a ferocious virus to begin with; it's not a stretch to believe that it could cause lingering, even life-long, problems. Do the muscles of FM sufferers simply not break down lactic acid? Best, Em ~~~~~~~~~~~~~ It is the tale, not he who tells it. ~~~~~~~~~~~~~ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 10, 2001 Report Share Posted September 10, 2001 At 01:55 PM 09/09/2001 -0400, ShayPugHugs@... wrote: >Yes, I've had Mono 4 times before getting Fibro, and now since I've had >FMS, I've had it 2 more times... Shay, according to my doc (PCP), you can't get it more than once. You test positive for it -- and I certainly FELT as if I had mono again -- but my understanding is that true relapses are exceptionally rare. It might be that you had FM before you knew you had FM, you know what I mean? I can't really feel much difference, myself, between mono and FM. I thought I relapsed 4 times after that first bout, but evidently two of the four markers in the blood tests done for mono suggest otherwise. I'm not a scientist, so can't explain how the markers work, but if two of the four are low, it indicates that while you have Epstein-Barr virus in your system, you do not actually have active mononucleosis. The similarities I've encountered over the past year and a half -- the mono, the lactic acid burn in my muscles, and their similarities to FM -- leave me with so many questions, and I'm not even finding on the internet or questioning professionals, anything about research being done on a possible connection in these areas. Could Epstein-Barr be a factor in FM? It is a ferocious virus to begin with; it's not a stretch to believe that it could cause lingering, even life-long, problems. Do the muscles of FM sufferers simply not break down lactic acid? Best, Em ~~~~~~~~~~~~~ It is the tale, not he who tells it. ~~~~~~~~~~~~~ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 10, 2001 Report Share Posted September 10, 2001 I have a good friend that has the Epstein-Barr and also has fibro. I don't know that this proves that the two are compatibility. Take care, Irene co-moderator > I've never heard anyone mention the Epstein-Barr virus in connection > with FM. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 10, 2001 Report Share Posted September 10, 2001 I have a good friend that has the Epstein-Barr and also has fibro. I don't know that this proves that the two are compatibility. Take care, Irene co-moderator > I've never heard anyone mention the Epstein-Barr virus in connection > with FM. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 10, 2001 Report Share Posted September 10, 2001 I have a good friend that has the Epstein-Barr and also has fibro. I don't know that this proves that the two are compatibility. Take care, Irene co-moderator > I've never heard anyone mention the Epstein-Barr virus in connection > with FM. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 10, 2001 Report Share Posted September 10, 2001 janissa@... wrote: > Could Epstein-Barr be a factor in > FM? It is a ferocious virus to begin with; it's not a stretch to believe > that it could cause lingering, even life-long, problems. Do the muscles of > FM sufferers simply not break down lactic acid? I've never heard anyone mention the Epstein-Barr virus in connection with FM. If anything, it's usually associated with CFS, although they still all don't agree with it being the cause or associated definitely with the CFS. I've never had mononucleosis. I have heard the theory that FM sufferers don't break down lactic acid as well because of the poor sleep cycles. Even so, for either disease, many people who don't have either FM or CFS carry the Epstein-Barr virus with them in their bodies and have absolutely no sign anything is wrong with them. I'm not sure science is close to an answer with this one. Darcy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 10, 2001 Report Share Posted September 10, 2001 janissa@... wrote: > Could Epstein-Barr be a factor in > FM? It is a ferocious virus to begin with; it's not a stretch to believe > that it could cause lingering, even life-long, problems. Do the muscles of > FM sufferers simply not break down lactic acid? I've never heard anyone mention the Epstein-Barr virus in connection with FM. If anything, it's usually associated with CFS, although they still all don't agree with it being the cause or associated definitely with the CFS. I've never had mononucleosis. I have heard the theory that FM sufferers don't break down lactic acid as well because of the poor sleep cycles. Even so, for either disease, many people who don't have either FM or CFS carry the Epstein-Barr virus with them in their bodies and have absolutely no sign anything is wrong with them. I'm not sure science is close to an answer with this one. Darcy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 10, 2001 Report Share Posted September 10, 2001 If you are serious about a poll, you will need to get the questions together and send the poll to Bierman. She is the owner of this list and she would have to approve the idea and tell you where to post the list of questions. Take care, Irene co-moderator > I mean, maybe we could do a poll. What diseases have we all had? > allergies, medical procedures, hereditary problems, family histories, that > sort of thing. Consider ourselves some kind of control group. What we'd > do with that information, I don't know, but maybe we could find out if we > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 10, 2001 Report Share Posted September 10, 2001 At 06:43 AM 09/10/2001 -0400, Darcy Stockstill wrote: >Even so, for either disease, many people who don't have either FM or CFS >carry the Epstein-Barr virus with them in their bodies and have absolutely >no sign anything is wrong with them. I'm not sure science is close to an >answer with this one. Absolutely right, and to my knowledge *everyone* carries the E-B virus; it just isn't activated in a lot of people. I'm just throwing out ideas for discussion, that's all. It's driving me nuts that I do not know why I have this, and my doctor doesn't know why -- no one knows why. I just find myself questioning all kinds of things -- like, " I had X, wonder if that had any bearing on this, " and so on. I mean, maybe we could do a poll. What diseases have we all had? allergies, medical procedures, hereditary problems, family histories, that sort of thing. Consider ourselves some kind of control group. What we'd do with that information, I don't know, but maybe we could find out if we have other things in common besides FM? Sorry to be so rabble-rouser-y. I'm kind of like a bulldog sometimes on these things. Best, Em ~~~~~~~~~~~~~ It is the tale, not he who tells it. ~~~~~~~~~~~~~ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 10, 2001 Report Share Posted September 10, 2001 At 06:43 AM 09/10/2001 -0400, Darcy Stockstill wrote: >Even so, for either disease, many people who don't have either FM or CFS >carry the Epstein-Barr virus with them in their bodies and have absolutely >no sign anything is wrong with them. I'm not sure science is close to an >answer with this one. Absolutely right, and to my knowledge *everyone* carries the E-B virus; it just isn't activated in a lot of people. I'm just throwing out ideas for discussion, that's all. It's driving me nuts that I do not know why I have this, and my doctor doesn't know why -- no one knows why. I just find myself questioning all kinds of things -- like, " I had X, wonder if that had any bearing on this, " and so on. I mean, maybe we could do a poll. What diseases have we all had? allergies, medical procedures, hereditary problems, family histories, that sort of thing. Consider ourselves some kind of control group. What we'd do with that information, I don't know, but maybe we could find out if we have other things in common besides FM? Sorry to be so rabble-rouser-y. I'm kind of like a bulldog sometimes on these things. Best, Em ~~~~~~~~~~~~~ It is the tale, not he who tells it. ~~~~~~~~~~~~~ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 10, 2001 Report Share Posted September 10, 2001 At 06:43 AM 09/10/2001 -0400, Darcy Stockstill wrote: >Even so, for either disease, many people who don't have either FM or CFS >carry the Epstein-Barr virus with them in their bodies and have absolutely >no sign anything is wrong with them. I'm not sure science is close to an >answer with this one. Absolutely right, and to my knowledge *everyone* carries the E-B virus; it just isn't activated in a lot of people. I'm just throwing out ideas for discussion, that's all. It's driving me nuts that I do not know why I have this, and my doctor doesn't know why -- no one knows why. I just find myself questioning all kinds of things -- like, " I had X, wonder if that had any bearing on this, " and so on. I mean, maybe we could do a poll. What diseases have we all had? allergies, medical procedures, hereditary problems, family histories, that sort of thing. Consider ourselves some kind of control group. What we'd do with that information, I don't know, but maybe we could find out if we have other things in common besides FM? Sorry to be so rabble-rouser-y. I'm kind of like a bulldog sometimes on these things. Best, Em ~~~~~~~~~~~~~ It is the tale, not he who tells it. ~~~~~~~~~~~~~ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 10, 2001 Report Share Posted September 10, 2001 Hi, It is possible for epstein-barr virus and mono to re-occur several times. I have experienced chronic epstein-barr and relapses for several years. A person can have relapses if they have a low immune system or under extreme stress. I have found documentation on this fact. Now I have FM/CFS, meniere's disease, and experience seizures. sheila Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 10, 2001 Report Share Posted September 10, 2001 Hi, It is possible for epstein-barr virus and mono to re-occur several times. I have experienced chronic epstein-barr and relapses for several years. A person can have relapses if they have a low immune system or under extreme stress. I have found documentation on this fact. Now I have FM/CFS, meniere's disease, and experience seizures. sheila Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 10, 2001 Report Share Posted September 10, 2001 Hi, It is possible for epstein-barr virus and mono to re-occur several times. I have experienced chronic epstein-barr and relapses for several years. A person can have relapses if they have a low immune system or under extreme stress. I have found documentation on this fact. Now I have FM/CFS, meniere's disease, and experience seizures. sheila Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 17, 2001 Report Share Posted September 17, 2001 Yes I was diagnosed with The Epstein-Barr virus just last year, I'm 31 years old and my doctor said I have had Mono since my child hood in my blood stream. Could this be a connection with Fibro? Also a Positive Epstein-Barr means Chronic Fatigue Syndrome according to my doctor. Thank You Pamm Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 17, 2001 Report Share Posted September 17, 2001 Pamm: There is a definite link between CFS and Epstein-Barr. I had Mono when I was 17 and ever since then I have been ill with CFS. I also test positive and have an extremely high titer for EBV. -Lynne --- PUSASALES@... wrote: > Yes I was diagnosed with The Epstein-Barr virus just > last year, I'm 31 years > old and my doctor said I have had Mono since my > child hood in my blood > stream. Could this be a connection with Fibro? > Also a Positive Epstein-Barr > means Chronic Fatigue Syndrome according to my > doctor. Thank You Pamm > ===== ~Lynne Palmdale, California (Mojave desert) Age 50 Single Mom of 14 year old daughter Have had CFS/Fibro since the age of 17 Have a female Rottweiler, a male Malamute/Wolf hybrid, and a male roller canary Have been on SSI for two and a half years (finally) __________________________________________________ Terrorist Attacks on U.S. - How can you help? Donate cash, emergency relief information http://dailynews.yahoo.com/fc/US/Emergency_Information/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 17, 2001 Report Share Posted September 17, 2001 Pamm: There is a definite link between CFS and Epstein-Barr. I had Mono when I was 17 and ever since then I have been ill with CFS. I also test positive and have an extremely high titer for EBV. -Lynne --- PUSASALES@... wrote: > Yes I was diagnosed with The Epstein-Barr virus just > last year, I'm 31 years > old and my doctor said I have had Mono since my > child hood in my blood > stream. Could this be a connection with Fibro? > Also a Positive Epstein-Barr > means Chronic Fatigue Syndrome according to my > doctor. Thank You Pamm > ===== ~Lynne Palmdale, California (Mojave desert) Age 50 Single Mom of 14 year old daughter Have had CFS/Fibro since the age of 17 Have a female Rottweiler, a male Malamute/Wolf hybrid, and a male roller canary Have been on SSI for two and a half years (finally) __________________________________________________ Terrorist Attacks on U.S. - How can you help? Donate cash, emergency relief information http://dailynews.yahoo.com/fc/US/Emergency_Information/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 18, 2001 Report Share Posted September 18, 2001 Can somebody explain EPSTEIN-BARR please? ~ Jo Pamm: There is a definite link between CFS and Epstein-Barr. I had Mono when I was 17 and ever since then I have been ill with CFS. I also test positive and have an extremely high titer for EBV. -Lynne Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 18, 2001 Report Share Posted September 18, 2001 Can somebody explain EPSTEIN-BARR please? ~ Jo Pamm: There is a definite link between CFS and Epstein-Barr. I had Mono when I was 17 and ever since then I have been ill with CFS. I also test positive and have an extremely high titer for EBV. -Lynne Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 18, 2001 Report Share Posted September 18, 2001 Can somebody explain EPSTEIN-BARR please? ~ Jo Pamm: There is a definite link between CFS and Epstein-Barr. I had Mono when I was 17 and ever since then I have been ill with CFS. I also test positive and have an extremely high titer for EBV. -Lynne Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 21, 2001 Report Share Posted September 21, 2001 " Buechler, Ken and " wrote: > > Hello, > I had no idea what this EPSTEIN-BARR thing was all about, so I started > researching it on line, I see it says that it is CFS? are these 2 > things, the CFS & EB the same? > ~CJ They aren't the same thing, but some people feel that the Epstein-Barr virus causes CFS in some people who have it. Others don't agree at all and point out that many people who don't have Chronic Fatigue Syndrome have the Epstein-Barr virus antibodies in their blood. It is often linked with CFS, but they aren't the same thing. Darcy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 21, 2001 Report Share Posted September 21, 2001 " Buechler, Ken and " wrote: > > Hello, > I had no idea what this EPSTEIN-BARR thing was all about, so I started > researching it on line, I see it says that it is CFS? are these 2 > things, the CFS & EB the same? > ~CJ They aren't the same thing, but some people feel that the Epstein-Barr virus causes CFS in some people who have it. Others don't agree at all and point out that many people who don't have Chronic Fatigue Syndrome have the Epstein-Barr virus antibodies in their blood. It is often linked with CFS, but they aren't the same thing. Darcy Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.