Re: went to craniofacial specialist....

August 9, 2005

Louise,

Which docs have you seen in MA? We saw Dr. Madsen and he gave us a

script and wrote a great letter of med necessity. It is in the

files section if you'd like to read it. Though she was 3mos when we

got the script, NOPCO wouldn't band her for two more months b/c they

told us she was too young. We went to CT. Have you thought of

seeing the doctor CT refers to even though it is out of state? They

used to do a one evening a week thing w/the doctor and the ortho

from CT. It might be worth the travel (and possible out of pocket

expense) if you are having that much trouble.

, mom to Hannah, DOCgrad

Cape Cod, Ma

http://hannahsnoggin.typepad.com

> > Brought my son in yesterday because of his tongue deviateing

to

> the

> > right all the time- well I forget if it was this group or the

tort

> > one I saw a pic called misaligned jaw when I clicked on it-

guess

> > what it was my sons tongue! The baby had a misaligned jaw

which

> > caused his tongue to deviate to that side. I felt like such a

> > fool. I had thought his jaw/ gums looked off, knew his left

one

> was

> > smaller than the right side but hadn't put 1 and 1 together

that

> not

> > only was it a external thing but internal as well. Do you

> > understand what I'm saying? i feel so dum-how could I not

have

> > reliezed that sooner? So anyways I already knew the problem

but

> > needed a cure. The specialist said that due to his tort it

must

> > have been the position he was in the womb that caused his left

> side

> > of the jaw not to grow as much as the right so his left sidde

is

> > shorter causing the left gums to meet sooner than right which

> since

> > the jaw is slopped the tingue falls to that side. Then

goes on

> > to say oh yes and his ears are off-a big speal on which one

was

> > higher and off...Well hello I just told you that-Did i not

just

> say

> > I went to ct BECAUSE of these issues and they recommended a

band

> so

> > I NEED a letter of med necces.???? Oh and because his jaw is

> > misaligned his little chin points a little more to the left.

BUT

> he

> > wont write me anything because a band is ONLY for up to 3

mths

> AND

> > IT DOES NOT fix misaligned ears. That the ears that babies

are

> born

> > with are there fixed postition and they simply do not just

move.

> A

> > band/helmet is for rounding out the head only. And there is

> nothing

> > he can do for the jaw-1. he is too young 2. He thinks t will

> > correct itself. I'm about to give up. I think I have been to

> EVERY

> > dam doc in MA and just cant get that letter. I'm so burnt out

> > emotionally I feel every single trip to the doctor is just

another

> > knife stab to my heart. I cant take this anymore. How can I

help

> > my son if who I need to help me help him wont??

>

> For more plagio info

August 9, 2005