Re: second guessing myself

July 10, 2005

Hi there

I found a lot of people were a bit dubious or tried to reassure me

there was no problem before I got the band. This is because they

don't know a lot about it, perhaps imagine it to be horrible for the

baby and also don't want to make you feel bad about your child's

condition (they can hardly go 'wow, yes, it is really bad isn't

it'). Funnily enough, after my daughter got her band, everyone who

said it was not that bad then was really supportive and said they

would have definitely done the same thing! People often come around

when they can see the big difference it makes- most of my friends

said my daughter didn't look like the same child once her helmet

came off which made me thing they all thought it was really bad

before but didn't like to mention it!

The moral here is you have to do what's right and not worry too much

what others say, like !!!!!!

Hannah (mum to Lucia, London, UK)

Cranio grad

> > > Hi all,

> > > I originally contacted Carol directly about this

> > but I

> > > thought I'd post it the group to get some feedback

> > > from everyone.

> > > I'm having cold feet about banding my son now. My

> > > husband is very excited and wants to do it for

> > sure

> > > but now that we are approved and have the

> > appointment,

> > > I'm not so sure. I looked at the pics I posted

> > and

> > > maybe it's me but I don't think he's that bad.

> > Also,

> > > when we went to our 4th of July parade, there was

> > a

> > > 2-3 year old boy about 3 feet in front of me who's

> > > head was

> > > IDENTICAL to 's. I mean, to the point where

> > I

> > > was STARING at this poor kid because I just

> > couldn't

> > > believe it. I realized that the kid didn't look

> > bad

> > > at all and it made me second guess my decision.

> > >

> > > His severity is moderate to high moderate. At

> > > least that's what CT told me. They took

> > measurements

> > > there as well as at Kennedy Kreiger but I never

> > got

> > > copies of them. I see poeple posting their babies

> > > measurements but I have no idea what it means.

> > > Kennedy Kreiger told me that it was basically up

> > to us

> > > to decide to band or not (duh). They did

> > recommend

> > > repo and CST for 3 months to see if that would

> > help

> > > but also added that the banding is more effective,

> > the

> > > younger the baby.

> > > So anyway, that's where I stand. I know it's

> > > ultimately our decision but I can't stand the back

> > and

> > > forth I'm going through.

> > >

> > > Manon

> > > Mom to T.

> > > brachy/mild plagio/to be banded Aug. 1

> > > MD

> > >

> > > __________________________________

> > > for Mobile

> > > Take with you! Check email on your

> > mobile phone.

> > > http://mobile./learn/mail

> >

>

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July 10, 2005