Re: Please share with us.. [list owner request]

[Guest guest]

--- mary_bierman@... wrote:

> I have made this up for new subscribers so maybe

> they will share with

> us. How about taking time to share some of these

> things with the list.

> They are not scattered here and there through post

> over a period of

> time, but maybe seeing them on a list will help

> others in some way.

>

> This is not a have to, but would you share with us?

>

> Please send us a hello. Introduction ideas below

> share what you feel

> comfortable with. Please separate each answer for

> easier reading. Some

> things are listed that most complain about. The list

> shares these

> things trying to help each other.

>

> Name: June Langley

> Married/single: I am married to a wonderful and very

understanding man.

> Does family understand your illness: My husband does

but my two sons

do not, as they

want the old

Mom

back.

> Male/female { some names one can't tell}: Female.

> Age area: I am 48 years old, but feel like I am 90.

> Area of the world do you live in: I live in Fort

Worth, Texas.

> Country/City/Farm life: It is a city life..

> How bad is it: I have had times when I thought that

it was so bad, but then I look

around,

and I see that others have it worst

then myself.

> How long have you had Fibromyalgia or CFS: I have

had

it since

my teens,

but I was

tested

for

it three

years

ago.

> Did a trauma in your life start it: I can't really

say that it did,

but it became

full force when

I lost my oldest

son in 1991. My

son was 18 years

old when he

died.

> What have you found works for you: My faith in God,

and that I have a

very

understanding

Doctor.

> What kind of Dr do you find works best in helping

> you with this disease? My Family Practice Doctor. If

I go in to see him, and I

tell

him that I want to try some-

thing that I have researched

on or heard others state that

it might have worked for them

then he gives the " Okay. " You

can't get any better than

that.

> Do you have sleep problems: Yes, I can't sleep

without sleep aids, and

when I do get to sleep

I have problems waking

up early the next day.

> Does diet effect you: I have acid reflux, and so I

have to watch what I eat in

that area.

> Feel better with cold/hot weather: I feel better

with

hot weather, as

the cold weather

makes me hurt.

> Warm baths are heaven sent dealing with pain:

I find that any kind of warmth is a heaven sent.

> Most people with Fibro are overweight I think for

> lack of activity, do

> you find this to be true with you: I am not

overweight since

I quit taking the

cortesteriods and

the Elavil. The

Elavil will put

so

much weight on a

person, as one of

the side effects

is the craving of

sweets.

> What time of the day is the best time for you:

The best time of day for me is mid-afternoon.

> Do you have good days then bad ones or all of them

> bad: I have more bad days then good, but I just

continue to live, and keep the faith.

> On disability: No.

> If so hints on how you were able to get it since it

> is hard to get:

>

> Have to have helpers: I have a wonderful husband

that

helps me, and I thank God for

him.

> Work out or stay at home: I work fulltime with the

Developmentally Handdicap-

ped, as I am a WEC (Week-

end Coordinator/Trainer).

I spend 60 hours away from

home at one setting.

>

> Do you have " Now what am I here for times " :

I think that I am here for a purpose, and I think

that I have been introduced to this illness for a

reason. I still do not know what that reason is yet,

but I am striving to find out. The point of it all

is that " YOU CAN LET THIS ILLNESS/DISEASE GET THE

THE BEST OF YOU OR YOU CAN CHOOSE TO LIVE, AND MAKE

THE MOST OUT OF WHAT LIFE THAT GOD GAVE YOU. " I am

a survivor, and I choose to live, and try not to let

life pass me by.

> Share your funny memory problem story:

> I don't know about a funny memory problem, but I do

> know that one time I was so embrassed that I wanted

to just crawl under something and hide. I used to

have two jobs up until one year ago, and I had these

jobs for like 8 years. Anyway, I was sitting at my

desk in a school cafeteria, as I was a Manager, and

I went to get up from my desk to tell my staff to

complete their task, and I just fell out of my desk,

and hit my head on a brick wall. I just laid there,

as I almost knocked myself out, and I looked up to

see my staff looking at me. They asked me what had I

been drinking, and I was so dazed that I could not

utter a sound. I hurridly got up, and sat back down

at my desk. When my staff left for the day I asked a

custodian gentleman that had a crush on me to come

check on me in an hour if I was not gone home by

then. He looked at me and stated I knew that you

would come around, and give me a chance. I just

about

knocked myself out again, as I could have kicked my-

self wondering what did I just ask that man to do..

So that is sort of a memory problem, as my head

hurt,

and I had to fight the attentions off from an

admirer

> I hope that this tells the group something about me.

Love to all. June

__________________________________________________

Terrorist Attacks on U.S. - How can you help?

Donate cash, emergency relief information

http://dailynews.yahoo.com/fc/US/Emergency_Information/

[Guest guest]

--- mary_bierman@... wrote:

> I have made this up for new subscribers so maybe

> they will share with

> us. How about taking time to share some of these

> things with the list.

> They are not scattered here and there through post

> over a period of

> time, but maybe seeing them on a list will help

> others in some way.

>

> This is not a have to, but would you share with us?

>

> Please send us a hello. Introduction ideas below

> share what you feel

> comfortable with. Please separate each answer for

> easier reading. Some

> things are listed that most complain about. The list

> shares these

> things trying to help each other.

>

> Name: June Langley

> Married/single: I am married to a wonderful and very

understanding man.

> Does family understand your illness: My husband does

but my two sons

do not, as they

want the old

Mom

back.

> Male/female { some names one can't tell}: Female.

> Age area: I am 48 years old, but feel like I am 90.

> Area of the world do you live in: I live in Fort

Worth, Texas.

> Country/City/Farm life: It is a city life..

> How bad is it: I have had times when I thought that

it was so bad, but then I look

around,

and I see that others have it worst

then myself.

> How long have you had Fibromyalgia or CFS: I have

had

it since

my teens,

but I was

tested

for

it three

years

ago.

> Did a trauma in your life start it: I can't really

say that it did,

but it became

full force when

I lost my oldest

son in 1991. My

son was 18 years

old when he

died.

> What have you found works for you: My faith in God,

and that I have a

very

understanding

Doctor.

> What kind of Dr do you find works best in helping

> you with this disease? My Family Practice Doctor. If

I go in to see him, and I

tell

him that I want to try some-

thing that I have researched

on or heard others state that

it might have worked for them

then he gives the " Okay. " You

can't get any better than

that.

> Do you have sleep problems: Yes, I can't sleep

without sleep aids, and

when I do get to sleep

I have problems waking

up early the next day.

> Does diet effect you: I have acid reflux, and so I

have to watch what I eat in

that area.

> Feel better with cold/hot weather: I feel better

with

hot weather, as

the cold weather

makes me hurt.

> Warm baths are heaven sent dealing with pain:

I find that any kind of warmth is a heaven sent.

> Most people with Fibro are overweight I think for

> lack of activity, do

> you find this to be true with you: I am not

overweight since

I quit taking the

cortesteriods and

the Elavil. The

Elavil will put

so

much weight on a

person, as one of

the side effects

is the craving of

sweets.

> What time of the day is the best time for you:

The best time of day for me is mid-afternoon.

> Do you have good days then bad ones or all of them

> bad: I have more bad days then good, but I just

continue to live, and keep the faith.

> On disability: No.

> If so hints on how you were able to get it since it

> is hard to get:

>

> Have to have helpers: I have a wonderful husband

that

helps me, and I thank God for

him.

> Work out or stay at home: I work fulltime with the

Developmentally Handdicap-

ped, as I am a WEC (Week-

end Coordinator/Trainer).

I spend 60 hours away from

home at one setting.

>

> Do you have " Now what am I here for times " :

I think that I am here for a purpose, and I think

that I have been introduced to this illness for a

reason. I still do not know what that reason is yet,

but I am striving to find out. The point of it all

is that " YOU CAN LET THIS ILLNESS/DISEASE GET THE

THE BEST OF YOU OR YOU CAN CHOOSE TO LIVE, AND MAKE

THE MOST OUT OF WHAT LIFE THAT GOD GAVE YOU. " I am

a survivor, and I choose to live, and try not to let

life pass me by.

> Share your funny memory problem story:

> I don't know about a funny memory problem, but I do

> know that one time I was so embrassed that I wanted

to just crawl under something and hide. I used to

have two jobs up until one year ago, and I had these

jobs for like 8 years. Anyway, I was sitting at my

desk in a school cafeteria, as I was a Manager, and

I went to get up from my desk to tell my staff to

complete their task, and I just fell out of my desk,

and hit my head on a brick wall. I just laid there,

as I almost knocked myself out, and I looked up to

see my staff looking at me. They asked me what had I

been drinking, and I was so dazed that I could not

utter a sound. I hurridly got up, and sat back down

at my desk. When my staff left for the day I asked a

custodian gentleman that had a crush on me to come

check on me in an hour if I was not gone home by

then. He looked at me and stated I knew that you

would come around, and give me a chance. I just

about

knocked myself out again, as I could have kicked my-

self wondering what did I just ask that man to do..

So that is sort of a memory problem, as my head

hurt,

and I had to fight the attentions off from an

admirer

> I hope that this tells the group something about me.

Love to all. June

__________________________________________________

Terrorist Attacks on U.S. - How can you help?

Donate cash, emergency relief information

http://dailynews.yahoo.com/fc/US/Emergency_Information/

[Guest guest]

--- mary_bierman@... wrote:

> I have made this up for new subscribers so maybe

> they will share with

> us. How about taking time to share some of these

> things with the list.

> They are not scattered here and there through post

> over a period of

> time, but maybe seeing them on a list will help

> others in some way.

>

> This is not a have to, but would you share with us?

>

> Please send us a hello. Introduction ideas below

> share what you feel

> comfortable with. Please separate each answer for

> easier reading. Some

> things are listed that most complain about. The list

> shares these

> things trying to help each other.

>

> Name: June Langley

> Married/single: I am married to a wonderful and very

understanding man.

> Does family understand your illness: My husband does

but my two sons

do not, as they

want the old

Mom

back.

> Male/female { some names one can't tell}: Female.

> Age area: I am 48 years old, but feel like I am 90.

> Area of the world do you live in: I live in Fort

Worth, Texas.

> Country/City/Farm life: It is a city life..

> How bad is it: I have had times when I thought that

it was so bad, but then I look

around,

and I see that others have it worst

then myself.

> How long have you had Fibromyalgia or CFS: I have

had

it since

my teens,

but I was

tested

for

it three

years

ago.

> Did a trauma in your life start it: I can't really

say that it did,

but it became

full force when

I lost my oldest

son in 1991. My

son was 18 years

old when he

died.

> What have you found works for you: My faith in God,

and that I have a

very

understanding

Doctor.

> What kind of Dr do you find works best in helping

> you with this disease? My Family Practice Doctor. If

I go in to see him, and I

tell

him that I want to try some-

thing that I have researched

on or heard others state that

it might have worked for them

then he gives the " Okay. " You

can't get any better than

that.

> Do you have sleep problems: Yes, I can't sleep

without sleep aids, and

when I do get to sleep

I have problems waking

up early the next day.

> Does diet effect you: I have acid reflux, and so I

have to watch what I eat in

that area.

> Feel better with cold/hot weather: I feel better

with

hot weather, as

the cold weather

makes me hurt.

> Warm baths are heaven sent dealing with pain:

I find that any kind of warmth is a heaven sent.

> Most people with Fibro are overweight I think for

> lack of activity, do

> you find this to be true with you: I am not

overweight since

I quit taking the

cortesteriods and

the Elavil. The

Elavil will put

so

much weight on a

person, as one of

the side effects

is the craving of

sweets.

> What time of the day is the best time for you:

The best time of day for me is mid-afternoon.

> Do you have good days then bad ones or all of them

> bad: I have more bad days then good, but I just

continue to live, and keep the faith.

> On disability: No.

> If so hints on how you were able to get it since it

> is hard to get:

>

> Have to have helpers: I have a wonderful husband

that

helps me, and I thank God for

him.

> Work out or stay at home: I work fulltime with the

Developmentally Handdicap-

ped, as I am a WEC (Week-

end Coordinator/Trainer).

I spend 60 hours away from

home at one setting.

>

> Do you have " Now what am I here for times " :

I think that I am here for a purpose, and I think

that I have been introduced to this illness for a

reason. I still do not know what that reason is yet,

but I am striving to find out. The point of it all

is that " YOU CAN LET THIS ILLNESS/DISEASE GET THE

THE BEST OF YOU OR YOU CAN CHOOSE TO LIVE, AND MAKE

THE MOST OUT OF WHAT LIFE THAT GOD GAVE YOU. " I am

a survivor, and I choose to live, and try not to let

life pass me by.

> Share your funny memory problem story:

> I don't know about a funny memory problem, but I do

> know that one time I was so embrassed that I wanted

to just crawl under something and hide. I used to

have two jobs up until one year ago, and I had these

jobs for like 8 years. Anyway, I was sitting at my

desk in a school cafeteria, as I was a Manager, and

I went to get up from my desk to tell my staff to

complete their task, and I just fell out of my desk,

and hit my head on a brick wall. I just laid there,

as I almost knocked myself out, and I looked up to

see my staff looking at me. They asked me what had I

been drinking, and I was so dazed that I could not

utter a sound. I hurridly got up, and sat back down

at my desk. When my staff left for the day I asked a

custodian gentleman that had a crush on me to come

check on me in an hour if I was not gone home by

then. He looked at me and stated I knew that you

would come around, and give me a chance. I just

about

knocked myself out again, as I could have kicked my-

self wondering what did I just ask that man to do..

So that is sort of a memory problem, as my head

hurt,

and I had to fight the attentions off from an

admirer

> I hope that this tells the group something about me.

Love to all. June

__________________________________________________

Terrorist Attacks on U.S. - How can you help?

Donate cash, emergency relief information

http://dailynews.yahoo.com/fc/US/Emergency_Information/

[Guest guest]

> Name: Lynne Gorn

> Married/single: Divorced

> Does family understand your illness:

I only have one remaining family member who is my 45

year old sister and sometimes she is supportive and at

other times, she appears to think that I am a

hypochondriac. My 14 year old daughter has always seen

me like this so to her, it's normal.

> Male/female { some names one can't tell}: Female

> Age area: 50

> Area of the world do you live in:

Mojave desert of southern California.

> Country/City/Farm life: An isolated rural desert

region.

> How bad is it: Very bad. Most times I stay in bed

and sleep.

> How long have you had Fibromyalgia or CFS: Since I

was 17 after a severe bout with Mononucleosis.

> Did a trauma in your life start it: Trauma sets off

my flares.

> What have you found works for you: Lots of sleep,

lack of stress (ha!), this Group:)

> What kind of Dr do you find works best in helping

> you with this disease? My lousy insurance is only

accepted by the local G.P. and she does nothing to

help me...just tells me to eat fruit, take vitamins,

that the disease is incurable, and that I am too fat.

I would recommend a Rheumatologist for me and

everyone.

> Do you have sleep problems: I used to have terrible

insomnia all my life but since I have passed menopause

and gone on new Meds, I sleep easily and well.

Sleeping is what I do most and best LOL.

> Does diet effect you: Fried, greasy, sugary or

spicy foods and red meat inflames my gallbladder and

gives me diarrhea.

> Feel better with cold/hot weather: Cold.

> Warm baths are heaven sent dealing with pain: I

can't fit into my bath-tub so I don't know:)

> Most people with Fibro are overweight I think for

> lack of activity, do

> you find this to be true with you: (See Above) Yes.

Most of my life I was skinny and always felt proud

about it but since I passed 48 and went on hormone

replacement therapy and new Meds, I have gained almost

100 pounds.

> What time of the day is the best time for you: from

10 am until 3 pm.

> Do you have good days then bad ones or all of them

> bad: Most bad, some good.

> On disability: I have had Disability for 2 and a

half years.

> If so hints on how you were able to get it since it

> is hard to get: Get a GOOD attorney (one who

specializes and/or has had a lot of experience in this

area.) Also you must have at least one sympathetic

doctor that you have gone to for a long time. Everyone

is always turned down the first time so don't despair

if you are. I got it my second time and I consider

myself very lucky as it is especially hard to get in

California.

>

> Have to have helpers: My 14 year old daughter helps

me a lot.

> Work out or stay at home: Stay at home after working

all my life.

>

> Do you have " Now what am I here for times " : Too ofen

to count.

> Share your funny memory problem story: My memory

problem makes me sad.

>

=====

~Lynne

Palmdale, California (Mojave desert)

Age 50

Single Mom of 14 year old daughter

Have had CFS/Fibro since the age of 17

Have a female Rottweiler, a male Malamute/Wolf hybrid, and a male roller canary

Have been on SSI for two and a half years (finally)

__________________________________________________

Terrorist Attacks on U.S. - How can you help?

Donate cash, emergency relief information

http://dailynews.yahoo.com/fc/US/Emergency_Information/

[Guest guest]

> Name: Lynne Gorn

> Married/single: Divorced

> Does family understand your illness:

I only have one remaining family member who is my 45

year old sister and sometimes she is supportive and at

other times, she appears to think that I am a

hypochondriac. My 14 year old daughter has always seen

me like this so to her, it's normal.

> Male/female { some names one can't tell}: Female

> Age area: 50

> Area of the world do you live in:

Mojave desert of southern California.

> Country/City/Farm life: An isolated rural desert

region.

> How bad is it: Very bad. Most times I stay in bed

and sleep.

> How long have you had Fibromyalgia or CFS: Since I

was 17 after a severe bout with Mononucleosis.

> Did a trauma in your life start it: Trauma sets off

my flares.

> What have you found works for you: Lots of sleep,

lack of stress (ha!), this Group:)

> What kind of Dr do you find works best in helping

> you with this disease? My lousy insurance is only

accepted by the local G.P. and she does nothing to

help me...just tells me to eat fruit, take vitamins,

that the disease is incurable, and that I am too fat.

I would recommend a Rheumatologist for me and

everyone.

> Do you have sleep problems: I used to have terrible

insomnia all my life but since I have passed menopause

and gone on new Meds, I sleep easily and well.

Sleeping is what I do most and best LOL.

> Does diet effect you: Fried, greasy, sugary or

spicy foods and red meat inflames my gallbladder and

gives me diarrhea.

> Feel better with cold/hot weather: Cold.

> Warm baths are heaven sent dealing with pain: I

can't fit into my bath-tub so I don't know:)

> Most people with Fibro are overweight I think for

> lack of activity, do

> you find this to be true with you: (See Above) Yes.

Most of my life I was skinny and always felt proud

about it but since I passed 48 and went on hormone

replacement therapy and new Meds, I have gained almost

100 pounds.

> What time of the day is the best time for you: from

10 am until 3 pm.

> Do you have good days then bad ones or all of them

> bad: Most bad, some good.

> On disability: I have had Disability for 2 and a

half years.

> If so hints on how you were able to get it since it

> is hard to get: Get a GOOD attorney (one who

specializes and/or has had a lot of experience in this

area.) Also you must have at least one sympathetic

doctor that you have gone to for a long time. Everyone

is always turned down the first time so don't despair

if you are. I got it my second time and I consider

myself very lucky as it is especially hard to get in

California.

>

> Have to have helpers: My 14 year old daughter helps

me a lot.

> Work out or stay at home: Stay at home after working

all my life.

>

> Do you have " Now what am I here for times " : Too ofen

to count.

> Share your funny memory problem story: My memory

problem makes me sad.

>

=====

~Lynne

Palmdale, California (Mojave desert)

Age 50

Single Mom of 14 year old daughter

Have had CFS/Fibro since the age of 17

Have a female Rottweiler, a male Malamute/Wolf hybrid, and a male roller canary

Have been on SSI for two and a half years (finally)

__________________________________________________

Terrorist Attacks on U.S. - How can you help?

Donate cash, emergency relief information

http://dailynews.yahoo.com/fc/US/Emergency_Information/

[Guest guest]

Lynne

My husband and I used to live in Barstow, but are now in Hemet. We have

several good friends in the Palmdale/Lancaster area. Also, I had a

Wolf/Keeshound hybrid. Small world...just kind of honing in on

similarities. This is a friendly and informative list.

>~Lynne

>Palmdale, California (Mojave desert)

>Age 50

>Single Mom of 14 year old daughter

>Have had CFS/Fibro since the age of 17

>Have a female Rottweiler, a male Malamute/Wolf hybrid, and a male roller

>canary

>Have been on SSI for two and a half years (finally)