awaiting repeat I-131 ablation

[Guest guest]

Hello,

Just joined the group. I will be having my second I-131 ablation on

Oct. 1. Very hypo right now, all while taking care of a new puppy.

I just wanted some reassurance from others who have had to have I-131

twice, let alone surgery twice.

My original throidectomy was Oct. 2001, and I had a modified neck

dissection this June. Took out 15 nodes, 4 positive.

I will be receiving 150 this time, instead of 100. Dreading it. I was

very sick last time with nausea and vomiting.

I think just hearing from others will help. I feel physically and

emotionally fine when on my Synthroid. Can't wait to get back on it.

Look forward to replies.

Thank you,

Marilee

[Guest guest]

Marilee -

Welcome to the group.

Were you on a low iodine diet before your first ablation?

My original cancer was not as extensive as yours, but I didn't know enough

to do the diet before my first treatment on (100 mCi). When I had my

first follow up scan, everyone assumed it would be negative, but there was

uptake in the thyroid bed, most likely unablated remnant.

This time, I had done a strict LID for two weeks, had a second ablation

(also 100 mCi).

I had a follow up scan earlier this year, and it was clean.

I didn't have a problem either time with nausea, but others do, and there

are certain things you can do.

See http://groups.yahoo.com/group/Thyca/message/13726 ..... nausea & RAI on

an empty stomach

http://groups.yahoo.com/group/Thyca/message/17032 .... some solutions for

RAI related nausea

Below are links to some archived messages dealing with some other side

effects of RAI.

Good luck -

NYC

To access these letters, go to ..........

http://groups.yahoo.com/group/Thyca/messages

and enter the message number into the small box marked " msg # "

(or enter http://groups.yahoo.com/group/Thyca/message/xxxxî

in the URL, substituting the message number for the x's).

RAI SIDE EFFECTS:

13726 ..... some recommendations from list members for post RAI nausea

plus letter from Dr. Ain on RAI nausea & empty stomach

before RAI pill)

17032 ..... nausea, indigestion & other stomach upsets ... some solutions

16624 ..... salivary gland solutions (includes link to members'

suggestions)

13119 ..... salivary glands: Nick's collection of doctors' letters

14248 ..... painful tongue; loss of taste (Dr. )

17961 ..... salivary glands - Sharon's doctor's suggestions

17030 ..... dry or tearing eyes

15030 ..... thrush ..... members' suggestions, plus a link to

patient information (including remedies)

11252 ..... Jill advises having any needed dental work done in advance

ucberkmom wrote:

> Hello,

>

> Just joined the group. I will be having my second I-131 ablation on

> Oct. 1. Very hypo right now, all while taking care of a new puppy.

>

> I just wanted some reassurance from others who have had to have I-131

> twice, let alone surgery twice.

>

> My original throidectomy was Oct. 2001, and I had a modified neck

> dissection this June. Took out 15 nodes, 4 positive.

>

> I will be receiving 150 this time, instead of 100. Dreading it. I was

> very sick last time with nausea and vomiting.

>

> I think just hearing from others will help. I feel physically and

> emotionally fine when on my Synthroid. Can't wait to get back on it.

>

> Look forward to replies.

>

> Thank you,

>

> Marilee

[Guest guest]

Marilee -

Welcome to the group.

Were you on a low iodine diet before your first ablation?

My original cancer was not as extensive as yours, but I didn't know enough

to do the diet before my first treatment on (100 mCi). When I had my

first follow up scan, everyone assumed it would be negative, but there was

uptake in the thyroid bed, most likely unablated remnant.

This time, I had done a strict LID for two weeks, had a second ablation

(also 100 mCi).

I had a follow up scan earlier this year, and it was clean.

I didn't have a problem either time with nausea, but others do, and there

are certain things you can do.

See http://groups.yahoo.com/group/Thyca/message/13726 ..... nausea & RAI on

an empty stomach

http://groups.yahoo.com/group/Thyca/message/17032 .... some solutions for

RAI related nausea

Below are links to some archived messages dealing with some other side

effects of RAI.

Good luck -

NYC

To access these letters, go to ..........

http://groups.yahoo.com/group/Thyca/messages

and enter the message number into the small box marked " msg # "

(or enter http://groups.yahoo.com/group/Thyca/message/xxxxî

in the URL, substituting the message number for the x's).

RAI SIDE EFFECTS:

13726 ..... some recommendations from list members for post RAI nausea

plus letter from Dr. Ain on RAI nausea & empty stomach

before RAI pill)

17032 ..... nausea, indigestion & other stomach upsets ... some solutions

16624 ..... salivary gland solutions (includes link to members'

suggestions)

13119 ..... salivary glands: Nick's collection of doctors' letters

14248 ..... painful tongue; loss of taste (Dr. )

17961 ..... salivary glands - Sharon's doctor's suggestions

17030 ..... dry or tearing eyes

15030 ..... thrush ..... members' suggestions, plus a link to

patient information (including remedies)

11252 ..... Jill advises having any needed dental work done in advance

ucberkmom wrote:

> Hello,

>

> Just joined the group. I will be having my second I-131 ablation on

> Oct. 1. Very hypo right now, all while taking care of a new puppy.

>

> I just wanted some reassurance from others who have had to have I-131

> twice, let alone surgery twice.

>

> My original throidectomy was Oct. 2001, and I had a modified neck

> dissection this June. Took out 15 nodes, 4 positive.

>

> I will be receiving 150 this time, instead of 100. Dreading it. I was

> very sick last time with nausea and vomiting.

>

> I think just hearing from others will help. I feel physically and

> emotionally fine when on my Synthroid. Can't wait to get back on it.

>

> Look forward to replies.

>

> Thank you,

>

> Marilee

[Guest guest]

Marilee -

Welcome to the group.

Were you on a low iodine diet before your first ablation?

My original cancer was not as extensive as yours, but I didn't know enough

to do the diet before my first treatment on (100 mCi). When I had my

first follow up scan, everyone assumed it would be negative, but there was

uptake in the thyroid bed, most likely unablated remnant.

This time, I had done a strict LID for two weeks, had a second ablation

(also 100 mCi).

I had a follow up scan earlier this year, and it was clean.

I didn't have a problem either time with nausea, but others do, and there

are certain things you can do.

See http://groups.yahoo.com/group/Thyca/message/13726 ..... nausea & RAI on

an empty stomach

http://groups.yahoo.com/group/Thyca/message/17032 .... some solutions for

RAI related nausea

Below are links to some archived messages dealing with some other side

effects of RAI.

Good luck -

NYC

To access these letters, go to ..........

http://groups.yahoo.com/group/Thyca/messages

and enter the message number into the small box marked " msg # "

(or enter http://groups.yahoo.com/group/Thyca/message/xxxxî

in the URL, substituting the message number for the x's).

RAI SIDE EFFECTS:

13726 ..... some recommendations from list members for post RAI nausea

plus letter from Dr. Ain on RAI nausea & empty stomach

before RAI pill)

17032 ..... nausea, indigestion & other stomach upsets ... some solutions

16624 ..... salivary gland solutions (includes link to members'

suggestions)

13119 ..... salivary glands: Nick's collection of doctors' letters

14248 ..... painful tongue; loss of taste (Dr. )

17961 ..... salivary glands - Sharon's doctor's suggestions

17030 ..... dry or tearing eyes

15030 ..... thrush ..... members' suggestions, plus a link to

patient information (including remedies)

11252 ..... Jill advises having any needed dental work done in advance

ucberkmom wrote:

> Hello,

>

> Just joined the group. I will be having my second I-131 ablation on

> Oct. 1. Very hypo right now, all while taking care of a new puppy.

>

> I just wanted some reassurance from others who have had to have I-131

> twice, let alone surgery twice.

>

> My original throidectomy was Oct. 2001, and I had a modified neck

> dissection this June. Took out 15 nodes, 4 positive.

>

> I will be receiving 150 this time, instead of 100. Dreading it. I was

> very sick last time with nausea and vomiting.

>

> I think just hearing from others will help. I feel physically and

> emotionally fine when on my Synthroid. Can't wait to get back on it.

>

> Look forward to replies.

>

> Thank you,

>

> Marilee

[Guest guest]

> Hello,

>

> Just joined the group. I will be having my second I-131 ablation on

> Oct. 1. Very hypo right now, all while taking care of a new puppy.

Oh dear.. I think back to both my hypo times and the new puppy

times.. combined you must be the poster child for incredibly tired!!!

>

>

> I will be receiving 150 this time, instead of 100. Dreading it. I

was

> very sick last time with nausea and vomiting.

Make sure your docs all know that.. not just read it in the charts

but address that with them, there is stuff they can give you for both

the nausea and vomiting.. its bad enough to be radioactive and hypo

without spewing it all over.. so ask...

Marilee -- good luck.. and once you are full of RAI.. stay clear of

that puppy like you would from a baby..!..

I've only had one ablation (and I sure hope thats all I have) but I

can empathize with you... its no fun being hypo and awaiting RAI. but

do all you can to get your docs to address the nausea.

barb

TT 8/99 RAI 4/00 Clean Scans 12/00 5/02

[Guest guest]

> Hello,

>

> Just joined the group. I will be having my second I-131 ablation on

> Oct. 1. Very hypo right now, all while taking care of a new puppy.

Oh dear.. I think back to both my hypo times and the new puppy

times.. combined you must be the poster child for incredibly tired!!!

>

>

> I will be receiving 150 this time, instead of 100. Dreading it. I

was

> very sick last time with nausea and vomiting.

Make sure your docs all know that.. not just read it in the charts

but address that with them, there is stuff they can give you for both

the nausea and vomiting.. its bad enough to be radioactive and hypo

without spewing it all over.. so ask...

Marilee -- good luck.. and once you are full of RAI.. stay clear of

that puppy like you would from a baby..!..

I've only had one ablation (and I sure hope thats all I have) but I

can empathize with you... its no fun being hypo and awaiting RAI. but

do all you can to get your docs to address the nausea.

barb

TT 8/99 RAI 4/00 Clean Scans 12/00 5/02

[Guest guest]

> Hello,

>

> Just joined the group. I will be having my second I-131 ablation on

> Oct. 1. Very hypo right now, all while taking care of a new puppy.

Oh dear.. I think back to both my hypo times and the new puppy

times.. combined you must be the poster child for incredibly tired!!!

>

>

> I will be receiving 150 this time, instead of 100. Dreading it. I

was

> very sick last time with nausea and vomiting.

Make sure your docs all know that.. not just read it in the charts

but address that with them, there is stuff they can give you for both

the nausea and vomiting.. its bad enough to be radioactive and hypo

without spewing it all over.. so ask...

Marilee -- good luck.. and once you are full of RAI.. stay clear of

that puppy like you would from a baby..!..

I've only had one ablation (and I sure hope thats all I have) but I

can empathize with you... its no fun being hypo and awaiting RAI. but

do all you can to get your docs to address the nausea.

barb

TT 8/99 RAI 4/00 Clean Scans 12/00 5/02

[Guest guest]

Yes I was on a low-iodine diet for two weeks. Should be on it about

three weeks by the time of the scan. My doc felt that sine I-131

doesn't readily uptake in the lymph nodes, my original dose of 100

might not have been enough.

>

> > Hello,

> >

> > Just joined the group. I will be having my second I-131 ablation

on

> > Oct. 1. Very hypo right now, all while taking care of a new puppy.

> >

> > I just wanted some reassurance from others who have had to have I-

131

> > twice, let alone surgery twice.

> >

> > My original throidectomy was Oct. 2001, and I had a modified neck

> > dissection this June. Took out 15 nodes, 4 positive.

> >

> > I will be receiving 150 this time, instead of 100. Dreading it. I

was

> > very sick last time with nausea and vomiting.

> >

> > I think just hearing from others will help. I feel physically and

> > emotionally fine when on my Synthroid. Can't wait to get back on

it.

> >

> > Look forward to replies.

> >

> > Thank you,

> >

> > Marilee

>

>

>

[Guest guest]

Yes I was on a low-iodine diet for two weeks. Should be on it about

three weeks by the time of the scan. My doc felt that sine I-131

doesn't readily uptake in the lymph nodes, my original dose of 100

might not have been enough.

>

> > Hello,

> >

> > Just joined the group. I will be having my second I-131 ablation

on

> > Oct. 1. Very hypo right now, all while taking care of a new puppy.

> >

> > I just wanted some reassurance from others who have had to have I-

131

> > twice, let alone surgery twice.

> >

> > My original throidectomy was Oct. 2001, and I had a modified neck

> > dissection this June. Took out 15 nodes, 4 positive.

> >

> > I will be receiving 150 this time, instead of 100. Dreading it. I

was

> > very sick last time with nausea and vomiting.

> >

> > I think just hearing from others will help. I feel physically and

> > emotionally fine when on my Synthroid. Can't wait to get back on

it.

> >

> > Look forward to replies.

> >

> > Thank you,

> >

> > Marilee

>

>

>