Re: Re: Reply from Jill/IC

[Guest guest]

Jill,

That is hard when you don't feel you have your mother's support. You

definitely do have the support of many people here in your kidney family though,

and

we really do understand all you are going through.

I sometimes think IgAN is hard because we look fine on the outside, so it is

hard to believe anything serious could be wrong with us. It is not like a

broken arm or broken leg or something that is apparent. Even my own

Nephrologist, who I absolutely adore by the way, says it is really hard for him

to believe

that my kidneys are so bad when I look so well.

I guess it is just the nature of IgAN.

Even though you feel betrayed by your body right now, you will come to a

place where you can more easily accept all that having IgAN means, and it will

become more normal for you I promise.

Take care of yourself,

[Guest guest]

Jill,

That is hard when you don't feel you have your mother's support. You

definitely do have the support of many people here in your kidney family though,

and

we really do understand all you are going through.

I sometimes think IgAN is hard because we look fine on the outside, so it is

hard to believe anything serious could be wrong with us. It is not like a

broken arm or broken leg or something that is apparent. Even my own

Nephrologist, who I absolutely adore by the way, says it is really hard for him

to believe

that my kidneys are so bad when I look so well.

I guess it is just the nature of IgAN.

Even though you feel betrayed by your body right now, you will come to a

place where you can more easily accept all that having IgAN means, and it will

become more normal for you I promise.

Take care of yourself,

[Guest guest]

Jill,

That is hard when you don't feel you have your mother's support. You

definitely do have the support of many people here in your kidney family though,

and

we really do understand all you are going through.

I sometimes think IgAN is hard because we look fine on the outside, so it is

hard to believe anything serious could be wrong with us. It is not like a

broken arm or broken leg or something that is apparent. Even my own

Nephrologist, who I absolutely adore by the way, says it is really hard for him

to believe

that my kidneys are so bad when I look so well.

I guess it is just the nature of IgAN.

Even though you feel betrayed by your body right now, you will come to a

place where you can more easily accept all that having IgAN means, and it will

become more normal for you I promise.

Take care of yourself,

[Guest guest]

Hi Amy,

It sounds like your mother went to the opposite extreme than your grandmother

did! Neither extreme is good. I am sorry that you had to go to the extreme

of it being more painful to call your mother than it was worth. I really hope

she wakes up and can treasure your relationship and be more supportive of

you. It hurts when your own parent is doubting.

I hope she takes her kidney symptoms seriously. Maybe seeing what you are

going through will help motivate her to take care of herself and get her kidneys

checked out.

Even when our families of origin don't understand and leave us feeling

disappointed, we have this family that completely understands and is always

waiting

to come along side each other along the way.

[Guest guest]

Hi Amy,

It sounds like your mother went to the opposite extreme than your grandmother

did! Neither extreme is good. I am sorry that you had to go to the extreme

of it being more painful to call your mother than it was worth. I really hope

she wakes up and can treasure your relationship and be more supportive of

you. It hurts when your own parent is doubting.

I hope she takes her kidney symptoms seriously. Maybe seeing what you are

going through will help motivate her to take care of herself and get her kidneys

checked out.

Even when our families of origin don't understand and leave us feeling

disappointed, we have this family that completely understands and is always

waiting

to come along side each other along the way.

[Guest guest]

Hi Amy,

It sounds like your mother went to the opposite extreme than your grandmother

did! Neither extreme is good. I am sorry that you had to go to the extreme

of it being more painful to call your mother than it was worth. I really hope

she wakes up and can treasure your relationship and be more supportive of

you. It hurts when your own parent is doubting.

I hope she takes her kidney symptoms seriously. Maybe seeing what you are

going through will help motivate her to take care of herself and get her kidneys

checked out.

Even when our families of origin don't understand and leave us feeling

disappointed, we have this family that completely understands and is always

waiting

to come along side each other along the way.

[Guest guest]

Jill, IC sounds horrid! I'm glad you pushed the doctors into checking it

out and getting you the help you need for it.

I know the feeling regarding your mom, I can't talk to my mother at all

about this or any health related issues either. I've also gotten the " are

you sure you're not just making this up? " line from my mom. The problem

with us is her mother was a prescription drug addict, now everytime I talk

with my mom about what is going on with me all I hear is " Are you sure you

need to be taking that drug? You know I don't even take Tylenol. " ARGH! I

want to scream " Mom I'm not your mother I don't go to numerous doctors and

get prescriptions for nothing at all just so I can take drugs! " I stopped

calling her about 6 months ago because I realized calling her hurt more than

not calling her. She also has some major stuff going on with her kidneys

but she refuses to have it looked into because she doesn't want to be like

her mother.....last time I talked to her I finally said " well you are going

to be like your mother if you don't get it checked, dead. " I hoped it would

be a wake up call as she told me she made an appointment with the doctor

that week. Instead of having the doctor check her kidney function she just

had him check and adjust her b/p meds (the only ones she will take) and

again refused the urinalysis and bloodwork for kidneys. I would love for

her to get checked out since if she has IgAN I would like to know. She's

had blood and protein in her urine for years now.

The nice part about this group is you can talk here and we will listen. )

Amy

Re: Re: Reply from Jill/IC

> ,

> I am sorry, I had that experience with my own mother. After all the tests

and still no answer, she asked me one day if I was making up my pain for

attention. I couldn't believe that she had said that. And she is a nurse. It

really hurt me that my own mother was sayin that. then I got diagnosed with

Endometriosis, iga, IC, hypoglycemia, heart problems, and now high blood

pressure. I feel like I grew up near a power plant and that my body is

rejected. I never in my life thought I would ever have so many problems and

only be 28! But iam learning to deal with all of it, I just feel like I

don't have my mother to talk to. Jill H

>