Does anyone else just feel scared sometimes?

[Guest guest]

Hi Jill,

I think all of us have days when we feel scared about our future, but if it

is to the point where it is handicapping your ability to enjoy life, it might

be a good idea to ask the doctor. Remember that depression is not uncommon

when dealing with any chronic illness. But even with depression, there is a

difference between having some days when you feel scared and feeling panic. If

you feel panic, please do mention it to your doctor. I would hate for you to

suffer needlessly when there is treatment available.

Take care of yourself!

[Guest guest]

Hi Jill,

I think all of us have days when we feel scared about our future, but if it

is to the point where it is handicapping your ability to enjoy life, it might

be a good idea to ask the doctor. Remember that depression is not uncommon

when dealing with any chronic illness. But even with depression, there is a

difference between having some days when you feel scared and feeling panic. If

you feel panic, please do mention it to your doctor. I would hate for you to

suffer needlessly when there is treatment available.

Take care of yourself!

[Guest guest]

Hi Jill,

I think all of us have days when we feel scared about our future, but if it

is to the point where it is handicapping your ability to enjoy life, it might

be a good idea to ask the doctor. Remember that depression is not uncommon

when dealing with any chronic illness. But even with depression, there is a

difference between having some days when you feel scared and feeling panic. If

you feel panic, please do mention it to your doctor. I would hate for you to

suffer needlessly when there is treatment available.

Take care of yourself!

[Guest guest]

Sometimes I just feel so scared about everything, and then I feel

guilty for worrying about myself so much. I mean, I should be

thankful that I have IGAN and not something far more serious, but I

swear all these meds I'm on, I just worry that one of these days I'm

going to have a bad reaction to the meds and not wake up one

morning. I know I need to trust my doctor that he knows what he's

doing and he's not going to do anything to hurt me, but after I had

so many other doctor's misdiagnose me, etc. I have real trust

issues. Does anyone else panic like that occasionally? Or should I

be asking for anti-anxiety meds? I don't know what I'd do without

this board, I just feel like my family doesn't understand what I'm

going thru, nor do they really know how to deal with it. Of course,

I'm not sure how to deal with all of it either.

Jill

*By the way, yes, its 2:20am and I am on the internet instead of

sleeping! Also, I am in the processing of weaning off of Prednisone

right now so if I seem a little emotional, this could be why!

[Guest guest]

Hi Jill,

I'm 37 now, but I have had panic attacks since I was a teen. When the doctor

told me I had kidney disease, I went into full panic mode thinking about what

will happen to my little girl if I am too sick to take care of her and what

will the future hold and on and on with worries. The biggest source of help to

me has been this group and the old archives. I found a suggestion from

someone in the archives (thanks !) that I do with my daughter where we go

through the alphabet together and say one thing for each letter that we are

grateful for and this calms me more than anything and reminds me how much I am

blessed with. I hope you feel better and know there are a whole bunch of people

here who understand and are feeling the same way you do.

Cheryl

[Guest guest]

Jill my mom just sent me this message as I too have been feeling scared

about things going on. Especially with my recent drop in b/p and jaw pain

stuff. Perhaps it will help you put things in perspective a bit, I know it

did for me.

STORY: TWO WOLVES

An elder Cherokee Native American was teaching his

grandchildren about life.

He said to them; " A fight is going on inside me...

it is a terrible fight and it is between two wolves.

One wolf represents fear, anger, envy, sorrow, regret,

greed, arrogance, self-pity, guilt, resentment,

inferiority, lies, false pride, superiority, and ego.

The other stands for joy, peace, love, hope, sharing,

serenity, humility, kindness, benevolence, friendship,

empathy, generosity, truth, compassion, and faith.

This same fight is going on inside you, and inside

every other person, too.

They thought about it for a minute and then one

child asked his grandfather,

'WHICH WOLF WILL WIN? "

The old Cherokee simply replied....

" THE ONE YOU FEED. "

Like said if things get overwhelming then I would check with your

doctor about it. Fear is a normal thing, fear of the unknown (and there are

many unknowns with this particular disease) is hard to cope with at times.

Every time I start a new medication I get scared due to the nasty reactions

I have had in the past. But I have to keep looking at it as " this can help

me so I need to try it " . My husband and kids support me fairly well but my

siblings and mom have no clue about what is going on with me or how to

handle it. Without this group to turn to I would have given into the fear

and anxiety long ago. Hang in there Jill, coming down off the prednisone is

hard. The withdrawal, to me, seems worse than being on the high doses early

on in my treatment. I have to keep reminding myself that this will pass, in

a few months I will be done with this drug (for the time being) and my

emotional state will normalize again. It is highly frustrating while you

are going thru it though, I know, I'm there too.

Please take care of yourself and give yourself some time to sort things out

in your head. I'm always around to talk to if you need it.

Amy

Does anyone else just feel " scared " sometimes?

> Sometimes I just feel so scared about everything, and then I feel

> guilty for worrying about myself so much. I mean, I should be

> thankful that I have IGAN and not something far more serious, but I

> swear all these meds I'm on, I just worry that one of these days I'm

> going to have a bad reaction to the meds and not wake up one

> morning. I know I need to trust my doctor that he knows what he's

> doing and he's not going to do anything to hurt me, but after I had

> so many other doctor's misdiagnose me, etc. I have real trust

> issues. Does anyone else panic like that occasionally? Or should I

> be asking for anti-anxiety meds? I don't know what I'd do without

> this board, I just feel like my family doesn't understand what I'm

> going thru, nor do they really know how to deal with it. Of course,

> I'm not sure how to deal with all of it either.

>

> Jill

>

> *By the way, yes, its 2:20am and I am on the internet instead of

> sleeping! Also, I am in the processing of weaning off of Prednisone

> right now so if I seem a little emotional, this could be why!

>

>

>

>

> To edit your settings for the group, go to our Yahoo Group

> home page:

> http://groups.yahoo.com/group/iga-nephropathy/

>

> To unsubcribe via email,

> iga-nephropathy-unsubscribe

> Visit our companion website at www.igan.ca. The site is entirely supported

by donations. If you would like to help, go to:

> http://www.igan.ca/id62.htm

>

> Thank you

>

[Guest guest]

Jill my mom just sent me this message as I too have been feeling scared

about things going on. Especially with my recent drop in b/p and jaw pain

stuff. Perhaps it will help you put things in perspective a bit, I know it

did for me.

STORY: TWO WOLVES

An elder Cherokee Native American was teaching his

grandchildren about life.

He said to them; " A fight is going on inside me...

it is a terrible fight and it is between two wolves.

One wolf represents fear, anger, envy, sorrow, regret,

greed, arrogance, self-pity, guilt, resentment,

inferiority, lies, false pride, superiority, and ego.

The other stands for joy, peace, love, hope, sharing,

serenity, humility, kindness, benevolence, friendship,

empathy, generosity, truth, compassion, and faith.

This same fight is going on inside you, and inside

every other person, too.

They thought about it for a minute and then one

child asked his grandfather,

'WHICH WOLF WILL WIN? "

The old Cherokee simply replied....

" THE ONE YOU FEED. "

Like said if things get overwhelming then I would check with your

doctor about it. Fear is a normal thing, fear of the unknown (and there are

many unknowns with this particular disease) is hard to cope with at times.

Every time I start a new medication I get scared due to the nasty reactions

I have had in the past. But I have to keep looking at it as " this can help

me so I need to try it " . My husband and kids support me fairly well but my

siblings and mom have no clue about what is going on with me or how to

handle it. Without this group to turn to I would have given into the fear

and anxiety long ago. Hang in there Jill, coming down off the prednisone is

hard. The withdrawal, to me, seems worse than being on the high doses early

on in my treatment. I have to keep reminding myself that this will pass, in

a few months I will be done with this drug (for the time being) and my

emotional state will normalize again. It is highly frustrating while you

are going thru it though, I know, I'm there too.

Please take care of yourself and give yourself some time to sort things out

in your head. I'm always around to talk to if you need it.

Amy

Does anyone else just feel " scared " sometimes?

> Sometimes I just feel so scared about everything, and then I feel

> guilty for worrying about myself so much. I mean, I should be

> thankful that I have IGAN and not something far more serious, but I

> swear all these meds I'm on, I just worry that one of these days I'm

> going to have a bad reaction to the meds and not wake up one

> morning. I know I need to trust my doctor that he knows what he's

> doing and he's not going to do anything to hurt me, but after I had

> so many other doctor's misdiagnose me, etc. I have real trust

> issues. Does anyone else panic like that occasionally? Or should I

> be asking for anti-anxiety meds? I don't know what I'd do without

> this board, I just feel like my family doesn't understand what I'm

> going thru, nor do they really know how to deal with it. Of course,

> I'm not sure how to deal with all of it either.

>

> Jill

>

> *By the way, yes, its 2:20am and I am on the internet instead of

> sleeping! Also, I am in the processing of weaning off of Prednisone

> right now so if I seem a little emotional, this could be why!

>

>

>

>

> To edit your settings for the group, go to our Yahoo Group

> home page:

> http://groups.yahoo.com/group/iga-nephropathy/

>

> To unsubcribe via email,

> iga-nephropathy-unsubscribe

> Visit our companion website at www.igan.ca. The site is entirely supported

by donations. If you would like to help, go to:

> http://www.igan.ca/id62.htm

>

> Thank you

>

[Guest guest]

Don't let it be a fear of the unkown. It's not unknown. Nobody is immune to

disease and accidents. Keep it in perspective. As kidney diseases go, IgAN

is a relatively mild disease for most people. If it's faster, or after many

years, if you reach the point where you need dialysis, well, you need

dialysis. It's not what we would wish for ourselves, but it's not the end of

the world either. Use every cliche in the book on yourself if you have to,

like, take it one step at a time. You will adjust as you cross each new

bridge, even though it might seem insurmountable now, as you imagine what

might lie ahead. Keep yourself occupied doing things, no matter whether it's

work, hobby or helping others through volunteer work. Eat (don't go

overboard on dieting), get lots of moderate exercise and fresh air. You will

be Ok. There are plenty of people who are paralysed with fear, and they

don't even have a disease.

Of course, we all feel scared sometimes. That's normal. As others have said,

don't let the fear rule your life. If it does, then, it's more than the

usual kind of fear we all have sometimes, and it needs some treatment (not

necessarily medications either). Meet other people with kidney disease if

you can. Maybe there's a local chapter of the Kidney Foundation, and maybe

they hold live support groups. Online is one thing, but live is better. Ask

around, call them, etc.

When I let myself just sit there and start to think about it too much, it

gets to me too. So, I don't, or at least, I try not to let it.

Think positive!

Pierre

[Guest guest]

Don't let it be a fear of the unkown. It's not unknown. Nobody is immune to

disease and accidents. Keep it in perspective. As kidney diseases go, IgAN

is a relatively mild disease for most people. If it's faster, or after many

years, if you reach the point where you need dialysis, well, you need

dialysis. It's not what we would wish for ourselves, but it's not the end of

the world either. Use every cliche in the book on yourself if you have to,

like, take it one step at a time. You will adjust as you cross each new

bridge, even though it might seem insurmountable now, as you imagine what

might lie ahead. Keep yourself occupied doing things, no matter whether it's

work, hobby or helping others through volunteer work. Eat (don't go

overboard on dieting), get lots of moderate exercise and fresh air. You will

be Ok. There are plenty of people who are paralysed with fear, and they

don't even have a disease.

Of course, we all feel scared sometimes. That's normal. As others have said,

don't let the fear rule your life. If it does, then, it's more than the

usual kind of fear we all have sometimes, and it needs some treatment (not

necessarily medications either). Meet other people with kidney disease if

you can. Maybe there's a local chapter of the Kidney Foundation, and maybe

they hold live support groups. Online is one thing, but live is better. Ask

around, call them, etc.

When I let myself just sit there and start to think about it too much, it

gets to me too. So, I don't, or at least, I try not to let it.

Think positive!

Pierre

[Guest guest]

Jill,

You have already received some great advice here. Not sure I can

add much. I find for myself that worrying is the price I pay for

trying to anticipate or engineer the future. If I focus on my wife,

my kids and family, and the fact that they are here today, right

now, things get better. All everyone has is this moment, nothing

more. Also, it is completely normal to cycle through feeling

helpless and afraid. Understand that these feeling will pass

(should pass). If they don't, seek professional help.

By the way. Was the sun out where you were today?

Lead

> Sometimes I just feel so scared about everything, and then I feel

> guilty for worrying about myself so much. I mean, I should be

> thankful that I have IGAN and not something far more serious, but

I

> swear all these meds I'm on, I just worry that one of these days

I'm

> going to have a bad reaction to the meds and not wake up one

> morning. I know I need to trust my doctor that he knows what he's

> doing and he's not going to do anything to hurt me, but after I

had

> so many other doctor's misdiagnose me, etc. I have real trust

> issues. Does anyone else panic like that occasionally? Or should

I

> be asking for anti-anxiety meds? I don't know what I'd do without

> this board, I just feel like my family doesn't understand what I'm

> going thru, nor do they really know how to deal with it. Of

course,

> I'm not sure how to deal with all of it either.

>

> Jill

>

> *By the way, yes, its 2:20am and I am on the internet instead of

> sleeping! Also, I am in the processing of weaning off of

Prednisone

> right now so if I seem a little emotional, this could be why!

[Guest guest]

Jill,

You have already received some great advice here. Not sure I can

add much. I find for myself that worrying is the price I pay for

trying to anticipate or engineer the future. If I focus on my wife,

my kids and family, and the fact that they are here today, right

now, things get better. All everyone has is this moment, nothing

more. Also, it is completely normal to cycle through feeling

helpless and afraid. Understand that these feeling will pass

(should pass). If they don't, seek professional help.

By the way. Was the sun out where you were today?

Lead

> Sometimes I just feel so scared about everything, and then I feel

> guilty for worrying about myself so much. I mean, I should be

> thankful that I have IGAN and not something far more serious, but

I

> swear all these meds I'm on, I just worry that one of these days

I'm

> going to have a bad reaction to the meds and not wake up one

> morning. I know I need to trust my doctor that he knows what he's

> doing and he's not going to do anything to hurt me, but after I

had

> so many other doctor's misdiagnose me, etc. I have real trust

> issues. Does anyone else panic like that occasionally? Or should

I

> be asking for anti-anxiety meds? I don't know what I'd do without

> this board, I just feel like my family doesn't understand what I'm

> going thru, nor do they really know how to deal with it. Of

course,

> I'm not sure how to deal with all of it either.

>

> Jill

>

> *By the way, yes, its 2:20am and I am on the internet instead of

> sleeping! Also, I am in the processing of weaning off of

Prednisone

> right now so if I seem a little emotional, this could be why!

[Guest guest]

Jill,

You have already received some great advice here. Not sure I can

add much. I find for myself that worrying is the price I pay for

trying to anticipate or engineer the future. If I focus on my wife,

my kids and family, and the fact that they are here today, right

now, things get better. All everyone has is this moment, nothing

more. Also, it is completely normal to cycle through feeling

helpless and afraid. Understand that these feeling will pass

(should pass). If they don't, seek professional help.

By the way. Was the sun out where you were today?

Lead

> Sometimes I just feel so scared about everything, and then I feel

> guilty for worrying about myself so much. I mean, I should be

> thankful that I have IGAN and not something far more serious, but

I

> swear all these meds I'm on, I just worry that one of these days

I'm

> going to have a bad reaction to the meds and not wake up one

> morning. I know I need to trust my doctor that he knows what he's

> doing and he's not going to do anything to hurt me, but after I

had

> so many other doctor's misdiagnose me, etc. I have real trust

> issues. Does anyone else panic like that occasionally? Or should

I

> be asking for anti-anxiety meds? I don't know what I'd do without

> this board, I just feel like my family doesn't understand what I'm

> going thru, nor do they really know how to deal with it. Of

course,

> I'm not sure how to deal with all of it either.

>

> Jill

>

> *By the way, yes, its 2:20am and I am on the internet instead of

> sleeping! Also, I am in the processing of weaning off of

Prednisone

> right now so if I seem a little emotional, this could be why!

[Guest guest]

Hi Jill,

I think it's normal to feel this way sometimes, get into a panic and

worry about everything and then feel guilty. When I was about to go

on prednisone, I was a big worrywart over everything, what would the

pred do to me, what the future meant for me, would I ever have kids,

etc. etc.

And yes, I felt all the guilty feelings after too...as you say, our

health condition is bad, but really, it could have been worse. And

yet, all this uncertainty and meds and possible side effects are

enough to put anyone into a tizzy just thinking about it.

Occasionally I sometimes find myself " on edge " like that, but it's

not been too bad. I keep focussing on my daily life and routine and

activities. Keeps me busy enough and distracted from such thoughts.

I am so thankful for my husband for his support, putting things into

perspective for me, and just generally being there and all. And of

course for this group - gives me a place to vent where everyone

understands. : )

Sophia

> Sometimes I just feel so scared about everything, and then I feel

> guilty for worrying about myself so much. I mean, I should be

> thankful that I have IGAN and not something far more serious, but

I

> swear all these meds I'm on, I just worry that one of these days

I'm

> going to have a bad reaction to the meds and not wake up one

> morning. I know I need to trust my doctor that he knows what he's

> doing and he's not going to do anything to hurt me, but after I

had

> so many other doctor's misdiagnose me, etc. I have real trust

> issues. Does anyone else panic like that occasionally? Or should

I

> be asking for anti-anxiety meds? I don't know what I'd do without

> this board, I just feel like my family doesn't understand what I'm

> going thru, nor do they really know how to deal with it. Of

course,

> I'm not sure how to deal with all of it either.

>

> Jill

>

> *By the way, yes, its 2:20am and I am on the internet instead of

> sleeping! Also, I am in the processing of weaning off of

Prednisone

> right now so if I seem a little emotional, this could be why!

[Guest guest]

Hi Jill,

I think it's normal to feel this way sometimes, get into a panic and

worry about everything and then feel guilty. When I was about to go

on prednisone, I was a big worrywart over everything, what would the

pred do to me, what the future meant for me, would I ever have kids,

etc. etc.

And yes, I felt all the guilty feelings after too...as you say, our

health condition is bad, but really, it could have been worse. And

yet, all this uncertainty and meds and possible side effects are

enough to put anyone into a tizzy just thinking about it.

Occasionally I sometimes find myself " on edge " like that, but it's

not been too bad. I keep focussing on my daily life and routine and

activities. Keeps me busy enough and distracted from such thoughts.

I am so thankful for my husband for his support, putting things into

perspective for me, and just generally being there and all. And of

course for this group - gives me a place to vent where everyone

understands. : )

Sophia

> Sometimes I just feel so scared about everything, and then I feel

> guilty for worrying about myself so much. I mean, I should be

> thankful that I have IGAN and not something far more serious, but

I

> swear all these meds I'm on, I just worry that one of these days

I'm

> going to have a bad reaction to the meds and not wake up one

> morning. I know I need to trust my doctor that he knows what he's

> doing and he's not going to do anything to hurt me, but after I

had

> so many other doctor's misdiagnose me, etc. I have real trust

> issues. Does anyone else panic like that occasionally? Or should

I

> be asking for anti-anxiety meds? I don't know what I'd do without

> this board, I just feel like my family doesn't understand what I'm

> going thru, nor do they really know how to deal with it. Of

course,

> I'm not sure how to deal with all of it either.

>

> Jill

>

> *By the way, yes, its 2:20am and I am on the internet instead of

> sleeping! Also, I am in the processing of weaning off of

Prednisone

> right now so if I seem a little emotional, this could be why!

[Guest guest]

Hi Amy,

I liked the story of the two wolves. That is a good reminder for all of us!

[Guest guest]

Hi Amy,

I liked the story of the two wolves. That is a good reminder for all of us!

[Guest guest]

Hi Cheryl,

I am so glad you liked that. I can't take credit for it as an orignial idea. I

heard it probably 15 years ago on a Christian radio program, can't even remember

who the speaker was anymore, but I practice that too and taught both my

daughters. I helps me to put things into perspective.

In a message dated 5/27/2004 1:17:36 PM Eastern Daylight Time, Chucktkn writes:

> I found a suggestion from

> someone in the archives (thanks !) that I do with my daughter where we go

> through the alphabet together and say one thing for each letter that we are

> grateful for and this calms me more than anything and reminds me how much I am

> blessed with. I hope you feel better and know there are a

> whole bunch of people

> here who understand and are feeling the same way you do.

> Cheryl

[Guest guest]

Hi Cheryl,

I am so glad you liked that. I can't take credit for it as an orignial idea. I

heard it probably 15 years ago on a Christian radio program, can't even remember

who the speaker was anymore, but I practice that too and taught both my

daughters. I helps me to put things into perspective.

In a message dated 5/27/2004 1:17:36 PM Eastern Daylight Time, Chucktkn writes:

> I found a suggestion from

> someone in the archives (thanks !) that I do with my daughter where we go

> through the alphabet together and say one thing for each letter that we are

> grateful for and this calms me more than anything and reminds me how much I am

> blessed with. I hope you feel better and know there are a

> whole bunch of people

> here who understand and are feeling the same way you do.

> Cheryl

[Guest guest]

Hi Cheryl,

I am so glad you liked that. I can't take credit for it as an orignial idea. I

heard it probably 15 years ago on a Christian radio program, can't even remember

who the speaker was anymore, but I practice that too and taught both my

daughters. I helps me to put things into perspective.

In a message dated 5/27/2004 1:17:36 PM Eastern Daylight Time, Chucktkn writes:

> I found a suggestion from

> someone in the archives (thanks !) that I do with my daughter where we go

> through the alphabet together and say one thing for each letter that we are

> grateful for and this calms me more than anything and reminds me how much I am

> blessed with. I hope you feel better and know there are a

> whole bunch of people

> here who understand and are feeling the same way you do.

> Cheryl

[Guest guest]

Amy, I totally love this story about the two wolves. It's a great

reminder for me too.

Sophia

> Jill my mom just sent me this message as I too have been feeling

scared

> about things going on. Especially with my recent drop in b/p and

jaw pain

> stuff. Perhaps it will help you put things in perspective a bit,

I know it

> did for me.

> STORY: TWO WOLVES

>

> An elder Cherokee Native American was teaching his

> grandchildren about life.

>

> He said to them; " A fight is going on inside me...

> it is a terrible fight and it is between two wolves.

>

> One wolf represents fear, anger, envy, sorrow, regret,

> greed, arrogance, self-pity, guilt, resentment,

> inferiority, lies, false pride, superiority, and ego.

>

> The other stands for joy, peace, love, hope, sharing,

> serenity, humility, kindness, benevolence, friendship,

> empathy, generosity, truth, compassion, and faith.

>

> This same fight is going on inside you, and inside

> every other person, too.

>

> They thought about it for a minute and then one

> child asked his grandfather,

> 'WHICH WOLF WILL WIN? "

>

> The old Cherokee simply replied....

> " THE ONE YOU FEED. "

>

> Like said if things get overwhelming then I would check with

your

> doctor about it. Fear is a normal thing, fear of the unknown (and

there are

> many unknowns with this particular disease) is hard to cope with

at times.

> Every time I start a new medication I get scared due to the nasty

reactions

> I have had in the past. But I have to keep looking at it as " this

can help

> me so I need to try it " . My husband and kids support me fairly

well but my

> siblings and mom have no clue about what is going on with me or

how to

> handle it. Without this group to turn to I would have given into

the fear

> and anxiety long ago. Hang in there Jill, coming down off the

prednisone is

> hard. The withdrawal, to me, seems worse than being on the high

doses early

> on in my treatment. I have to keep reminding myself that this

will pass, in

> a few months I will be done with this drug (for the time being)

and my

> emotional state will normalize again. It is highly frustrating

while you

> are going thru it though, I know, I'm there too.

>

> Please take care of yourself and give yourself some time to sort

things out

> in your head. I'm always around to talk to if you need it.

>

> Amy

> Does anyone else just feel " scared " sometimes?

>

>

> > Sometimes I just feel so scared about everything, and then I feel

> > guilty for worrying about myself so much. I mean, I should be

> > thankful that I have IGAN and not something far more serious,

but I

> > swear all these meds I'm on, I just worry that one of these days

I'm

> > going to have a bad reaction to the meds and not wake up one

> > morning. I know I need to trust my doctor that he knows what

he's

> > doing and he's not going to do anything to hurt me, but after I

had

> > so many other doctor's misdiagnose me, etc. I have real trust

> > issues. Does anyone else panic like that occasionally? Or

should I

> > be asking for anti-anxiety meds? I don't know what I'd do without

> > this board, I just feel like my family doesn't understand what

I'm

> > going thru, nor do they really know how to deal with it. Of

course,

> > I'm not sure how to deal with all of it either.

> >

> > Jill

> >

> > *By the way, yes, its 2:20am and I am on the internet instead of

> > sleeping! Also, I am in the processing of weaning off of

Prednisone

> > right now so if I seem a little emotional, this could be why!

> >

> >

> >

> >

> > To edit your settings for the group, go to our Yahoo Group

> > home page:

> > http://groups.yahoo.com/group/iga-nephropathy/

> >

> > To unsubcribe via email,

> > iga-nephropathy-unsubscribe

> > Visit our companion website at www.igan.ca. The site is entirely

supported

> by donations. If you would like to help, go to:

> > http://www.igan.ca/id62.htm

> >

> > Thank you

> >

[Guest guest]

Amy, I totally love this story about the two wolves. It's a great

reminder for me too.

Sophia

> Jill my mom just sent me this message as I too have been feeling

scared

> about things going on. Especially with my recent drop in b/p and

jaw pain

> stuff. Perhaps it will help you put things in perspective a bit,

I know it

> did for me.

> STORY: TWO WOLVES

>

> An elder Cherokee Native American was teaching his

> grandchildren about life.

>

> He said to them; " A fight is going on inside me...

> it is a terrible fight and it is between two wolves.

>

> One wolf represents fear, anger, envy, sorrow, regret,

> greed, arrogance, self-pity, guilt, resentment,

> inferiority, lies, false pride, superiority, and ego.

>

> The other stands for joy, peace, love, hope, sharing,

> serenity, humility, kindness, benevolence, friendship,

> empathy, generosity, truth, compassion, and faith.

>

> This same fight is going on inside you, and inside

> every other person, too.

>

> They thought about it for a minute and then one

> child asked his grandfather,

> 'WHICH WOLF WILL WIN? "

>

> The old Cherokee simply replied....

> " THE ONE YOU FEED. "

>

> Like said if things get overwhelming then I would check with

your

> doctor about it. Fear is a normal thing, fear of the unknown (and

there are

> many unknowns with this particular disease) is hard to cope with

at times.

> Every time I start a new medication I get scared due to the nasty

reactions

> I have had in the past. But I have to keep looking at it as " this

can help

> me so I need to try it " . My husband and kids support me fairly

well but my

> siblings and mom have no clue about what is going on with me or

how to

> handle it. Without this group to turn to I would have given into

the fear

> and anxiety long ago. Hang in there Jill, coming down off the

prednisone is

> hard. The withdrawal, to me, seems worse than being on the high

doses early

> on in my treatment. I have to keep reminding myself that this

will pass, in

> a few months I will be done with this drug (for the time being)

and my

> emotional state will normalize again. It is highly frustrating

while you

> are going thru it though, I know, I'm there too.

>

> Please take care of yourself and give yourself some time to sort

things out

> in your head. I'm always around to talk to if you need it.

>

> Amy

> Does anyone else just feel " scared " sometimes?

>

>

> > Sometimes I just feel so scared about everything, and then I feel

> > guilty for worrying about myself so much. I mean, I should be

> > thankful that I have IGAN and not something far more serious,

but I

> > swear all these meds I'm on, I just worry that one of these days

I'm

> > going to have a bad reaction to the meds and not wake up one

> > morning. I know I need to trust my doctor that he knows what

he's

> > doing and he's not going to do anything to hurt me, but after I

had

> > so many other doctor's misdiagnose me, etc. I have real trust

> > issues. Does anyone else panic like that occasionally? Or

should I

> > be asking for anti-anxiety meds? I don't know what I'd do without

> > this board, I just feel like my family doesn't understand what

I'm

> > going thru, nor do they really know how to deal with it. Of

course,

> > I'm not sure how to deal with all of it either.

> >

> > Jill

> >

> > *By the way, yes, its 2:20am and I am on the internet instead of

> > sleeping! Also, I am in the processing of weaning off of

Prednisone

> > right now so if I seem a little emotional, this could be why!

> >

> >

> >

> >

> > To edit your settings for the group, go to our Yahoo Group

> > home page:

> > http://groups.yahoo.com/group/iga-nephropathy/

> >

> > To unsubcribe via email,

> > iga-nephropathy-unsubscribe

> > Visit our companion website at www.igan.ca. The site is entirely

supported

> by donations. If you would like to help, go to:

> > http://www.igan.ca/id62.htm

> >

> > Thank you

> >

[Guest guest]

Amy, I totally love this story about the two wolves. It's a great

reminder for me too.

Sophia

> Jill my mom just sent me this message as I too have been feeling

scared

> about things going on. Especially with my recent drop in b/p and

jaw pain

> stuff. Perhaps it will help you put things in perspective a bit,

I know it

> did for me.

> STORY: TWO WOLVES

>

> An elder Cherokee Native American was teaching his

> grandchildren about life.

>

> He said to them; " A fight is going on inside me...

> it is a terrible fight and it is between two wolves.

>

> One wolf represents fear, anger, envy, sorrow, regret,

> greed, arrogance, self-pity, guilt, resentment,

> inferiority, lies, false pride, superiority, and ego.

>

> The other stands for joy, peace, love, hope, sharing,

> serenity, humility, kindness, benevolence, friendship,

> empathy, generosity, truth, compassion, and faith.

>

> This same fight is going on inside you, and inside

> every other person, too.

>

> They thought about it for a minute and then one

> child asked his grandfather,

> 'WHICH WOLF WILL WIN? "

>

> The old Cherokee simply replied....

> " THE ONE YOU FEED. "

>

> Like said if things get overwhelming then I would check with

your

> doctor about it. Fear is a normal thing, fear of the unknown (and

there are

> many unknowns with this particular disease) is hard to cope with

at times.

> Every time I start a new medication I get scared due to the nasty

reactions

> I have had in the past. But I have to keep looking at it as " this

can help

> me so I need to try it " . My husband and kids support me fairly

well but my

> siblings and mom have no clue about what is going on with me or

how to

> handle it. Without this group to turn to I would have given into

the fear

> and anxiety long ago. Hang in there Jill, coming down off the

prednisone is

> hard. The withdrawal, to me, seems worse than being on the high

doses early

> on in my treatment. I have to keep reminding myself that this

will pass, in

> a few months I will be done with this drug (for the time being)

and my

> emotional state will normalize again. It is highly frustrating

while you

> are going thru it though, I know, I'm there too.

>

> Please take care of yourself and give yourself some time to sort

things out

> in your head. I'm always around to talk to if you need it.

>

> Amy

> Does anyone else just feel " scared " sometimes?

>

>

> > Sometimes I just feel so scared about everything, and then I feel

> > guilty for worrying about myself so much. I mean, I should be

> > thankful that I have IGAN and not something far more serious,

but I

> > swear all these meds I'm on, I just worry that one of these days

I'm

> > going to have a bad reaction to the meds and not wake up one

> > morning. I know I need to trust my doctor that he knows what

he's

> > doing and he's not going to do anything to hurt me, but after I

had

> > so many other doctor's misdiagnose me, etc. I have real trust

> > issues. Does anyone else panic like that occasionally? Or

should I

> > be asking for anti-anxiety meds? I don't know what I'd do without

> > this board, I just feel like my family doesn't understand what

I'm

> > going thru, nor do they really know how to deal with it. Of

course,

> > I'm not sure how to deal with all of it either.

> >

> > Jill

> >

> > *By the way, yes, its 2:20am and I am on the internet instead of

> > sleeping! Also, I am in the processing of weaning off of

Prednisone

> > right now so if I seem a little emotional, this could be why!

> >

> >

> >

> >

> > To edit your settings for the group, go to our Yahoo Group

> > home page:

> > http://groups.yahoo.com/group/iga-nephropathy/

> >

> > To unsubcribe via email,

> > iga-nephropathy-unsubscribe

> > Visit our companion website at www.igan.ca. The site is entirely

supported

> by donations. If you would like to help, go to:

> > http://www.igan.ca/id62.htm

> >

> > Thank you

> >

[Guest guest]

Jill,

There are days and night when all I want to do is curl up in bed and

lay yin the dark waiting for the world to pass me by. I havn't been

but on anti-depression yet but have talk to the doctor about it and

he informed that it was normal to get depressed sometime when so much

is going on. Rainy days used be a good day, I love the sound of rain

falling; but latly it makes me want to just curl up and stay in bed.

So I have been trying to find things to get my mind off what going on

with my body. Keeping a journal or diary might help. I know if I get

to a certain point I can just pick up a piece a paper and write

myself a letter or write a peom and or story.

Hope things get better for you.

Martha