Guest guest Posted July 19, 2006 Report Share Posted July 19, 2006 Hi Deb. Now that Jim’s feared non-compliance (re liver biopsy recommendation) seems a non-issue, and given that the coordinator is open to Jim repeating labs this Monday for another look-see comparison by the hepatologist, it is I who is experiencing a few 2nd thoughts about any invasive procedures. I did, though, ask the tx coordinator what he’d recommend if we weren’t talking about Jim, but, hypothetically, his dearest friend or most beloved family member, and it was up to him to make a recommendation (that’s something we sometimes do when seeking medical counsel… putting it on a different level for the medical professional). Without hesitancy, he said to biopsy (and his verdict had nothing to do, I assume, with Jim’s great PPO insurance, although your point on that is well taken!!!). Yes, Jim’s on Urso post-tx (actually, Actigall), but I had to fight USC super-hard on that, too. I wanted high-dose immediately upon tx, but they pooh-poohed my referral to certain studies, saying (after a cursory glance at copies of my papers I gave them) “oh, they pop Urso like candy.” I persisted at every clinic visit (bringing in new study cases) and eventually, acquiescence came, albeit in the form of low dose, not high. Very frustrating, as you can imagine. Assuming fatty liver could be ruled out via non-invasive means, then your suggestion to asking them how biopsy results would change Jim’s treatment plan certainly seems rock-solid. In the meantime, we’ll of course keep the biopsy appointment for the time being, while we await further discussion with USC about the results of this upcoming Monday’s labs, blahbitty blah blah. Thanks very, VERY much for your post, Deb. You have a way of explaining and writing things down that don’t add to my confusion. Bless you for that! :-) Love, Maureen From: [mailto: ] On Behalf Of Deb in VA Sent: Tuesday, July 18, 2006 2:42 PM; To: ; Subject: Re: jim (help, please) So, rejection is an immediate kettle of fish. If that's off the table, then I'd find out about how the biopsy results would change his treatment plan, if at all and base your decision about whether to do the test on that... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 21, 2006 Report Share Posted September 21, 2006 I was sorry to read about your mom, how is she doing? Barb in Texas - Together in the Fight, Whatever it Takes! Son Ken (32) UC 91 - PSC 99 Listed 7/21 @ Baylor Dallas Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 21, 2006 Report Share Posted September 21, 2006 I was sorry to read about your mom, how is she doing? Barb in Texas - Together in the Fight, Whatever it Takes! Son Ken (32) UC 91 - PSC 99 Listed 7/21 @ Baylor Dallas Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 2, 2006 Report Share Posted October 2, 2006 -----Original Message----- They no longer do the nasty Versed and Fentanyl coctail - instead they used Propanol Couldn’t have been Propanol that’s a solvent. Propranolol is what Ken takes for high blood pressure (in his case, for his varices). The last time Ken was knocked out they used a milky white substance. Both Ken & his GI were thrilled to finally find something that actually knocks him out and keeps him out –that was a first for Ken. Barb in Texas___ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 2, 2006 Report Share Posted October 2, 2006 -----Original Message----- They no longer do the nasty Versed and Fentanyl coctail - instead they used Propanol Couldn’t have been Propanol that’s a solvent. Propranolol is what Ken takes for high blood pressure (in his case, for his varices). The last time Ken was knocked out they used a milky white substance. Both Ken & his GI were thrilled to finally find something that actually knocks him out and keeps him out –that was a first for Ken. Barb in Texas___ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 2, 2006 Report Share Posted October 2, 2006 -----Original Message----- They no longer do the nasty Versed and Fentanyl coctail - instead they used Propanol Couldn’t have been Propanol that’s a solvent. Propranolol is what Ken takes for high blood pressure (in his case, for his varices). The last time Ken was knocked out they used a milky white substance. Both Ken & his GI were thrilled to finally find something that actually knocks him out and keeps him out –that was a first for Ken. Barb in Texas___ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 2, 2006 Report Share Posted October 2, 2006 The med is called Propafal or Diprivan. At the hospital we call it milk of amnesia. It works immedicately upon starting the drip and even people with liver disease will metabilize it very fast so once you turn the drip off you wake right up. MartiBarb Henshaw wrote: -----Original Message----- They no longer do the nasty Versed and Fentanyl coctail - instead they used Propanol Couldn’t have been Propanol that’s a solvent. Propranolol is what Ken takes for high blood pressure (in his case, for his varices). The last time Ken was knocked out they used a milky white substance. Both Ken & his GI were thrilled to finally find something that actually knocks him out and keeps him out –that was a first for Ken. Barb in Texas___ Get your email and more, right on the new Yahoo.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 2, 2006 Report Share Posted October 2, 2006 The med is called Propafal or Diprivan. At the hospital we call it milk of amnesia. It works immedicately upon starting the drip and even people with liver disease will metabilize it very fast so once you turn the drip off you wake right up. MartiBarb Henshaw wrote: -----Original Message----- They no longer do the nasty Versed and Fentanyl coctail - instead they used Propanol Couldn’t have been Propanol that’s a solvent. Propranolol is what Ken takes for high blood pressure (in his case, for his varices). The last time Ken was knocked out they used a milky white substance. Both Ken & his GI were thrilled to finally find something that actually knocks him out and keeps him out –that was a first for Ken. Barb in Texas___ Get your email and more, right on the new Yahoo.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 2, 2006 Report Share Posted October 2, 2006 The med is called Propafal or Diprivan. At the hospital we call it milk of amnesia. It works immedicately upon starting the drip and even people with liver disease will metabilize it very fast so once you turn the drip off you wake right up. MartiBarb Henshaw wrote: -----Original Message----- They no longer do the nasty Versed and Fentanyl coctail - instead they used Propanol Couldn’t have been Propanol that’s a solvent. Propranolol is what Ken takes for high blood pressure (in his case, for his varices). The last time Ken was knocked out they used a milky white substance. Both Ken & his GI were thrilled to finally find something that actually knocks him out and keeps him out –that was a first for Ken. Barb in Texas___ Get your email and more, right on the new Yahoo.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 3, 2006 Report Share Posted October 3, 2006 My bad - I guess the amnesia part worked so well that I forgot specifically what it is called. I'm also on Propranalol, so I guess I was easily confused since they both came up during the same visit. Heck, last night, in the ER for a fever (I'm home now w/ a follow up with the ENT scheduled for tomorrow), I kept trying to say lovenox for levequin. What was more confusing, I'd been on both of them recently, too! Ugh! Take care, Deb in VA > > The med is called Propafal or Diprivan. At the hospital we call it milk of amnesia. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 3, 2006 Report Share Posted October 3, 2006 My bad - I guess the amnesia part worked so well that I forgot specifically what it is called. I'm also on Propranalol, so I guess I was easily confused since they both came up during the same visit. Heck, last night, in the ER for a fever (I'm home now w/ a follow up with the ENT scheduled for tomorrow), I kept trying to say lovenox for levequin. What was more confusing, I'd been on both of them recently, too! Ugh! Take care, Deb in VA > > The med is called Propafal or Diprivan. At the hospital we call it milk of amnesia. Quote Link to comment Share on other sites More sharing options...
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