Re: HELLO TOPPER-Here are my tempertures-HELP ME PLEASE

[Guest guest]

I think you just about covered it all Topper. Until she gets aggressive with her doctor (no I don't mean beat him up, lol, but we'd LIKE to), nothing is going to happen here. Or, if need be, until she CHANGES doctors, she's not going to get diagnosed with the DIRECTION of her thyroid problem. Hashi's is a gritch to deal with, but it's got to be a progressive-aggressive thing. You can't change the spots on a leopard, as you can't change the mindset of a doctor, but you must try, but abandon shio quickly if he doesn't comply. Time's a wastin.

Re: HELLO TOPPER-Here are my tempertures-HELP ME PLEASE

Thanks for the reminder Theresa.... I read this when you first sent it but didn't respond right away and it got pushed to the rear of the pile.... sorry!!!!

I just sat and read through all your posts from the last month.... What I'm seeing is that you have Hashi's ... you were in a hyper swing and the doc blamed it on the Armour.. the 'fluctuating T3' in it... and switched you to Synthroid... You started going through muscle cramping/aches across your shoulders... you've had 'internal twitching'.

Your temps, now, are showing low in the morning... a bit too low, suggesting lowered metabolism... then they come up, as they should.. then go down a bit again, as they should... so the rise and fall are 'okay'.... Question.. what kind of a thermometer are you using and where are you putting it (under arm or under tongue)

You've also been getting angry and snappy... not usual for you, I take it... that suggests hyper swing as well or an issue with conversion.. the reverse T3 issue...

You're on a supplement for the immune system... stop it now... it's pissing off (for lack of a better word) the thyroid antibodies.

You need to have copies of your labs while on Armour and those taken after switching to Synthroid.. if this is the first test since switching, how long has it been since you switched?

You're going in to the doc on Wednesday... These are the tests that you NEED done.

TSH

Free T3

Free T4

Reverse T3

Thyroid antibodies

Ferritin

Bs

Bone Density

If you are on insurance and she starts balking that this is too much or some are not needed. Take some of your anger/rage and point it in her direction. You have Hashi's. You've recently had a hyper swing and were pulled off Armour and put on Synthroid, you need to know what your antibody levels are and you need to know how well your body is converting, since you are now on a Synthetic T4 only med.

You've gone long enough feeling like crap and you want the care for properly, starting now. Skipping Synthetic for a day won't do squat for you that day or the next. T4 doesn't work that way.

You need copies of your labs, a phone call saying 'in range' and continue on your current dose is not acceptable. You want copies of your labs to put in your home medical emergency file and to be able to accurately track how your body is responding to your medication.

Your goal is to suppress your TSH to be able to have better control over the Hashis's and reduce the severity and frequency of the Hashi's swings.

You want to be back in six weeks to have the same labs run again and to determine if you will be continuing on synthetics, or go back to natural, and what other adjustments will be needed.

Lets go over this some more... have others jump in to make sure that we cover everything... and then you can write up your list so that you have everything straight in your mind and notes to take with you.

Oh... can you give me the list of EVERYTHING you are taking right now... meds, herbals, supplements? Also, do you smoke, do caffeine... anything like that? I know about the mercury fillings....

Topper ()

On Sat, 11 Jun 2005 04:15:02 -0000 "mike27591" writes:

Topper Please Help me with my temperture readings. What do you mean. See below. thanksTheresa

[Guest guest]

Last time I saw the doctor she told me that there was not anything

you can do for the High Antiboidies. All you can do is try to get

your thyroid at a normal level. Thanks for the help and advice.

Sure do appreciate it.

Theresa

> I think you just about covered it all Topper. Until she gets

aggressive with her doctor (no I don't mean beat him up, lol, but

we'd LIKE to), nothing is going to happen here. Or, if need be,

until she CHANGES doctors, she's not going to get diagnosed with the

DIRECTION of her thyroid problem. Hashi's is a gritch to deal with,

but it's got to be a progressive-aggressive thing. You can't change

the spots on a leopard, as you can't change the mindset of a doctor,

but you must try, but abandon shio quickly if he doesn't comply.

Time's a wastin.

>

>

>

> Re: HELLO TOPPER-Here are my

tempertures-HELP ME PLEASE

>

>

> Thanks for the reminder Theresa.... I read this when you first

sent it but didn't respond right away and it got pushed to the rear

of the pile.... sorry!!!!

>

> I just sat and read through all your posts from the last

month.... What I'm seeing is that you have Hashi's ... you were in a

hyper swing and the doc blamed it on the Armour.. the 'fluctuating

T3' in it... and switched you to Synthroid... You started going

through muscle cramping/aches across your shoulders... you've

had 'internal twitching'.

>

> Your temps, now, are showing low in the morning... a bit too low,

suggesting lowered metabolism... then they come up, as they should..

then go down a bit again, as they should... so the rise and fall

are 'okay'.... Question.. what kind of a thermometer are you using

and where are you putting it (under arm or under tongue)

>

> You've also been getting angry and snappy... not usual for you, I

take it... that suggests hyper swing as well or an issue with

conversion.. the reverse T3 issue...

>

> You're on a supplement for the immune system... stop it now...

it's pissing off (for lack of a better word) the thyroid antibodies.

>

> You need to have copies of your labs while on Armour and those

taken after switching to Synthroid.. if this is the first test since

switching, how long has it been since you switched?

>

> You're going in to the doc on Wednesday... These are the tests

that you NEED done.

> TSH

> Free T3

> Free T4

> Reverse T3

> Thyroid antibodies

> Ferritin

> Bs

> Bone Density

>

> If you are on insurance and she starts balking that this is too

much or some are not needed. Take some of your anger/rage and point

it in her direction. You have Hashi's. You've recently had a hyper

swing and were pulled off Armour and put on Synthroid, you need to

know what your antibody levels are and you need to know how well your

body is converting, since you are now on a Synthetic T4 only med.

>

> You've gone long enough feeling like crap and you want the care

for properly, starting now. Skipping Synthetic for a day won't do

squat for you that day or the next. T4 doesn't work that way.

>

> You need copies of your labs, a phone call saying 'in range' and

continue on your current dose is not acceptable. You want copies of

your labs to put in your home medical emergency file and to be able

to accurately track how your body is responding to your medication.

>

> Your goal is to suppress your TSH to be able to have better

control over the Hashis's and reduce the severity and frequency of

the Hashi's swings.

>

> You want to be back in six weeks to have the same labs run again

and to determine if you will be continuing on synthetics, or go back

to natural, and what other adjustments will be needed.

>

> Lets go over this some more... have others jump in to make sure

that we cover everything... and then you can write up your list so

that you have everything straight in your mind and notes to take with

you.

>

> Oh... can you give me the list of EVERYTHING you are taking right

now... meds, herbals, supplements? Also, do you smoke, do caffeine...

anything like that? I know about the mercury fillings....

>

> Topper ()

>

> On Sat, 11 Jun 2005 04:15:02 -0000 " mike27591 " <wynn8113@b...>

writes:

> Topper Please Help me with my temperture readings. What do you

> mean. See below.

> thanks

> Theresa

[Guest guest]

I take Super Enchinichea right now and was taking some Bladderwrack

tincture to help build up my iodine and immune system also. I am

assuming from this statement below that when you have Hashi's this

prolly isnt a good idea. I assumed it meant my immune system was really

bad and not working properly. Am I mistaken? Please advise as I am

learning all this stuff.

Also this herbal group I am in tells me I just need to stop everything

and Do a TOTAL BODY CLEANSE along With some Green Superfood and my body

will rekick my whole system into working correctly. Is this just bull?

I tried following there advise once a couple months ago and thats when

my husband had to take of work and rush me to the doctor cause I was so

weak I couldnt take care of our baby and my thyroid was pulsating

throbbing (just like yesterday)

thanks

Deana

>

> You're on a supplement for the immune system... stop it now...

> it's pissing off (for lack of a better word) the thyroid antibodies.

>

>

[Guest guest]

I take Super Enchinichea right now and was taking some Bladderwrack

tincture to help build up my iodine and immune system also. I am

assuming from this statement below that when you have Hashi's this

prolly isnt a good idea. I assumed it meant my immune system was really

bad and not working properly. Am I mistaken? Please advise as I am

learning all this stuff.

Also this herbal group I am in tells me I just need to stop everything

and Do a TOTAL BODY CLEANSE along With some Green Superfood and my body

will rekick my whole system into working correctly. Is this just bull?

I tried following there advise once a couple months ago and thats when

my husband had to take of work and rush me to the doctor cause I was so

weak I couldnt take care of our baby and my thyroid was pulsating

throbbing (just like yesterday)

thanks

Deana

>

> You're on a supplement for the immune system... stop it now...

> it's pissing off (for lack of a better word) the thyroid antibodies.

>

>

[Guest guest]

Hi Deana,

I now have a naturopathic doc and she would not even tell me to stop taking any of the 10 different meds that I was on, so I would be very carefull about who you take advice from. It has been 'my' experience that some people that believe in the non-drug approach can go more than a little overboard with advice on things and if they have no knowledge of what is going on with you or about thyroid in general then their advice could be detrimental to you. As for the iodine that is something to be very cautious with whether hypo or hyper and so I will let someone who has more knowledge get back to you on that. Cleansing your system [something that I am doing] does not mean that it will heal the thyroid but I made the choice not to take any other pills, only what the naturopath prescribed, all mine. If at the end of this I still have to take meds for the thyroid it will be Armour [or Canadian equivalent] and the Adrenal that I am on now then that is

fine. If I don't need to that will be great but I am not expecting to be healed by cleansing because the years of damage may make that impossible. I do know that this is the best that I have felt in about 20 years and I am very happy about that. My advice be careful of advice that is given without good info or knowledge. Putting back the soap box before Topper knows that it is missing..........

Hope this helps.

Dawn Deana Brown wrote:

I take Super Enchinichea right now and was taking some Bladderwrack tincture to help build up my iodine and immune system also. I am assuming from this statement below that when you have Hashi's this prolly isnt a good idea. I assumed it meant my immune system was really bad and not working properly. Am I mistaken? Please advise as I am learning all this stuff.Also this herbal group I am in tells me I just need to stop everything and Do a TOTAL BODY CLEANSE along With some Green Superfood and my body will rekick my whole system into working correctly. Is this just bull? I tried following there advise once a couple months ago and thats when my husband had to take of work and rush me to the doctor cause I was so weak I couldnt take care of our baby and my thyroid was pulsating throbbing (just like

yesterday)thanksDeana> > You're on a supplement for the immune system... stop it now...> it's pissing off (for lack of a better word) the thyroid antibodies.> >

Discover Yahoo! Stay in touch with email, IM, photo sharing more. Check it out!

[Guest guest]

You're okay Dawn... just make sure that it's back in the same corner, over there by the window, for the next person that needs to soap box.... has a supply at her place.... and several of the other folks around here finally broke down and got their own....

...they sure do come in handy.... but, well, sometimes I stack them and end up getting too high up there and make a fool of myself... like the locking myself in the bathroom story.... oh my gosh... I just said it again!!!!

*blush*

Topper ()

On Sun, 12 Jun 2005 15:49:57 -0700 (PDT) dawn prince writes:

Hi Deana,

I now have a naturopathic doc and she would not even tell me to stop taking any of the 10 different meds that I was on, so I would be very carefull about who you take advice from. It has been 'my' experience that some people that believe in the non-drug approach can go more than a little overboard with advice on things and if they have no knowledge of what is going on with you or about thyroid in general then their advice could be detrimental to you. As for the iodine that is something to be very cautious with whether hypo or hyper and so I will let someone who has more knowledge get back to you on that. Cleansing your system [something that I am doing] does not mean that it will heal the thyroid but I made the choice not to take any other pills, only what the naturopath prescribed, all mine. If at the end of this I still have to take meds for the thyroid it will be Armour [or Canadian equivalent] and the Adrenal that I am on now then that is fine. If I don't need to that will be great but I am not expecting to be healed by cleansing because the years of damage may make that impossible. I do know that this is the best that I have felt in about 20 years and I am very happy about that. My advice be careful of advice that is given without good info or knowledge. Putting back the soap box before Topper knows that it is missing..........

Hope this helps.

Dawn

[Guest guest]

I think you need to take a few steps back and take only the meds you

need to take..a lot of meds interact and this includes natural vs.

synthetic as most synthetics were drived from a natural source to

begin with.

You have two main problems right now..one being the thyroid..so yuo

obviously need to take a thyroid medication.

You also have a severe yeast/fungus infection that needs to be

treated. Personally I perfer Aciddophillis..but you need to decide on

one and take it until the yeast is completely gone and then continue

on it for a week just to make sure you give it a good kick..

After the yeast problem is solved then if you need to add in more

pills, do it slowly and only one at a time... I understand everyone

wants to feel better now but it is really hard to tell what effect

you get from what pill good or bad if you are taking them all and

adding in taking out and not really sure what you are doing.

Just a note..but immune support drugs that are stimulants..they

really should be avoided..things like Echinacia etc. stimulate the

immune system..if you have an auto immune disorder you do not want to

stimmulate it but find alternatives to build it stronger..This is the

same reason they say no caffiene, no smoking etc. it is the same

effect. And usually they are only meant to be taken for two weeks and

longer and they can mess up the system, especially the high doses

they are available in..Too much long term Vitamin C can be bad for

you too and I would quit everything except the thyroid and yeast meds

and take a few steps back..

[Guest guest]

In response to your questions Topper

> Talk to me about why vitamins make you sick..... What type vitamins,

> do you take them with food, or an empty stomach.. that kind of stuff....

** They make me feel nauseated, dizzy and get headaches and irratible. I

am talking Multivitamins and the Bcomplex vitamins - I take them with

food and water**

> You mentioned that you now on Armour and synthetic, in another post

> you made today.... how much of each are you taking?

> **Untill I hear back from the doctor I am on 125mcg Levothyroxine and

> 1 and 1/2 grains of Armour Thats what the on call doctor told me to do

> on Sunday untill I hear back from my doctor today.**

> I'd like to hear about your eating habits, too... how often do you

> eat... what kinds of foods do you eat... I know you said you're eating

> a LOT now with the nursing and your body being goofed up... but I want

> to hear what you are eating.... like do you sit down and oink on fruit

> and then an hour later wolf down bread.... that kind of stuff... what

> do you eat, when, what stuff together, what are you craving....

*I eat and drink about every hour to hour and half. Breakfast is usually

oatmeal with raisins, toast and fruit, or something my hubby cooks* then

I snack on organic fruit throughout the day along with water* lunch is

usually a sandwich and veggies with Milk* then more water and snacking

of fruit and or toast and crackers* and finally dinner is the one meal I

eat meat unless I had a meat sandwich for lunch then I have two meats

that day. But I make our dinner menu every thursday for the following

week. This weeks menu will give you an example of what we eat

-----------------------------------------------------------

*Dinner Menu *

*DAY 1: Friday *

*BK – warm shredded wheat, ground flax seed, raisins, milk*

* *

*Lunch – Instant Veggie Soup (Raw recipe)*

* *

*Dinner – Cuban Style Pork Shoulder*

* Black Bean & Fruit Salad*

* Egg Drop Soup *

* *

*DAY 2: Saturday*

*BK – Blueberry Cornmeal Pancakes, Leftover Cuban Pork*

* *

*Lunch – Salsa, Chips, Vegan Avacado Dip*

* *

*Dinner – Pasta with swordfish or tuna, Salad*

* *

*DAY 3: Sunday*

*BK – Vegetable and Potato Pancakes with Apple Sauce, Fresh Fruit Salad*

* *

*Lunch – Grilled Panini (**Turkey**, Lettuce, Onion, Tomato, Red Pepper)*

* Orzo Salad (orzo, red pepper, basil, corn, olive oil – vinegar, salt

and pepper, garlic)*

* *

*Dinner – Penne Pasta with Shrimp, Tomatoes, and Feta*

* *

* *

*DAY 4: Monday*

*BK – Oatmeal, cinnamon, raw honey, raisins*

* *

*Lunch – Nero (7grain bread, Provolone, Mayo, Sprouts, Tomato, Red Onion

and deli turkey)*

* Apple*

* *

*Dinner – Roasted Chicken*

* Herbed Oven New Potatoes*

* Orzo Salad (orzo, red pepper, basil, corn, olive oil – vinegar, salt

and pepper, garlic)*

* *

*DAY 5: Tuesday*

*BK – Vegetable cheese Omelet with bacon *

* *

*Lunch – Carribbean BBQ Ham Grilled Panini*

* Mixed Greens Topped with Black Bean & Fruit Salad *

*Dinner – Roasted Salmon with Lemon-Tarragon Butter*

* New Potato – Asperagus Salad*

* *

* *

* *

*DAY 6: Wednesday*

*BK – Carrot Bread topped with fruit and yogurt*

* *

*Lunch – Chicken club Twister *

* (Spinach Tortilla with mayo, bacon, Grilled chicken breast, lettuce,

cheese and tomato)*

* New Potato – Asperagus Salad*

* *

*Dinner – **Turkey** Rigatoni With roasted red pepper and Garbanzo beans*

* Warm Flat bread with garlic and parsley tomato and mozz cheese*

* *

*DAY 7: Thursday*

*BK – French Toast, Eggs, Ham and Fruit Salad*

* *

*Lunch – Red Pepper Humus on Garden Herb Crackers*

* Penne Pasta with Roasted yellow pepper, tomato, eggplant and Feta Cheese*

* *

*Dinner – Tri Color Vegan stuffed Peppers*

* Spanish Rice*

* *

* *

* *

*DAY 8: Friday*

* *

*BK - warm shredded wheat, ground flax seed, raisins, milk*

* *

* *

*_Specialty Bakery for the Week_*

* *

*Rhubab-Ginger Upside Down Cake*

--------------------------------------------------------------------------------\

-------

> :-)

Deana

[Guest guest]

I have Hashi's. I tried Echinacea for a week or two about 5 or 6 yrs ago.

The corneas and scleras of my eyes swelled, and I had some of my first few

asthma attacks. I couldn't figure out what was going on, until I read a

very long article in the newspaper during about the 2nd week, saying that

Echinacea is guess what---a ragweed! I am violently allergic to the

ragweeds. Ragweed is not just one plant, but a group of plants all related

to each other. There is the one plant that we think of as the only ragweed,

but Echinacea is in that group of plants. The advice in the article was not

to take it, if you have this allergy. I stopped it. Three days later, the

eye symptoms and asthma abated, at least temporarily. I have had asthma

attacks since then, but NEVER these weird eye symptoms. My eyes were

literally---this is gross---leaking pus through those little tear ducts. It

was horrible. Some of the " immune system " herbs do mobilize certain ones of

the T cells in the immune system. I frankly am connecting this to the

development of autoantibodies. Even the scientific literature states this

because there is an enzyme or a substance missing in us autoimmune people

that normally allows the mobilized T cells to " recognize self " as not being

the enemy, only to attack actual foreign bodies. Anything that mobilizes

these little bugars is going to cause an avalanche. It IS confusing, as

cortisol does help us with our natural immunity and the building of our

immune system. Cortisol another sbjct? Nope.

Re: HELLO TOPPER-Here are my

tempertures-HELP ME PLEASE

> I take Super Enchinichea right now and was taking some Bladderwrack

> tincture to help build up my iodine and immune system also. I am

> assuming from this statement below that when you have Hashi's this

> prolly isnt a good idea. I assumed it meant my immune system was really

> bad and not working properly. Am I mistaken? Please advise as I am

> learning all this stuff.

>

> Also this herbal group I am in tells me I just need to stop everything

> and Do a TOTAL BODY CLEANSE along With some Green Superfood and my body

> will rekick my whole system into working correctly. Is this just bull?

>

> I tried following there advise once a couple months ago and thats when

> my husband had to take of work and rush me to the doctor cause I was so

> weak I couldnt take care of our baby and my thyroid was pulsating

> throbbing (just like yesterday)

>

> thanks

> Deana