Re: Chonic Debilitating Disease..............?

[Guest guest]

Deborah wrote:

>

> ...that will only get worse? This is the first time I've hear

> someone say this. Seems I've read in the literature it usually does

> not get worse.

I think most people on these boards will say it does get worse as time

goes by. For some people it doesn't get any worse. Another thing to

remember is that most of the people on these boards aren't doing well,

they're looking for support, help with their problems, looking for

answers, as a general rule, they aren't having an easy time with their

illnesses (as if anyone with these illnesses has an " easy " time). I

have a friend who has had fibro for years and years. She has basically

stayed at the same level for the whole time. She is still working a 40

hour week. She isn't on any support group. I've only had the full

fibro symptoms for about a year, although I've had some symptoms for

several years. I've gotten worse. I'm on the boards. See what I'm

trying to say? A lot of the people who may be staying the same may not

feel the need for a support group, so you don't see those people,

instead you see those of us who have gotten worse and feel the need for

a support group.

Darcy

[Guest guest]

I think everyone should have hope. I got better.

I've had it 27 years. The first 20 years were

horrible, but the last 7 have been great. My doctor

told me a long time ago that he thought eventually my

body would say, enough is enough, and I guess it did.

I'm still working (31 years), I go boating, fishing,

and I'm happy to be here.

Joanne

--- L G wrote:

> I have only heard of maybe 5 people out of hundreds

> that have gotten better from this disease. It is

> only

> logical as one gets older and the body gets weaker

> from age, that the symptoms will get worse. I have

> had CFS/Fibro since I was 17 and when I was very

> young, I had many remissions but since the age of

> 38,

> I have been in a 12 year relapse that has still not

> ended and keeps getting worse. I take excellent

> care

> of myself and have good doctors but I can see the

> progressive deterioration especially after I went

> through Menopause. So, it's better not to give

> anyone false hope although I guess every now and

> then

> a miracle may happen.

> -Lynne

>

> --- ee Meade wrote:

> > > ...that will only get worse? This is the first

> > time I've hear

> > > someone say this. Seems I've read in the

> > literature it usually does

> > > not get worse.

> >

> > Deb,

> >

> > I've heard the same thing, and I think others on

> > this list have been told

> > this by their doctors.

> >

> > I do not believe there has been enough research

> done

> > on this illness to

> > determine whether or not it gets worse with

> > time--the diagnosis itself has

> > only existed for what? about 10 years?

> >

> > Logic tells me that it must get worse. I mean,

> > after years of not getting

> > restful, restorative sleep, the body will

> > progressively lose its ability to

> > compensate. After years of continual muscle

> > contractions, the muscles

> > themselves might become distorted, and they

> > certainly will distort the

> > skeletal system, don't you think?

> >

> > All I know is, my symptoms have gotten worse over

> > the years, although I

> > still hold out hope for relief!

> >

> > Hugs,

> > ee

> >

> >

> >

>

>

> __________________________________________________

>

[Guest guest]

Dearest Joanne:

I am so happy that you have been able to work all

these years but that tells me that your case is not

that severe. There are many different levels of

severity; like mine for instance. I could never hold

a job for too long because I would get too sick and

miss too many days. Are you sure you have FMS/CFS? I

never said anyone should not have hope. I said that

people should not have false hope. Every one is

different. God Bless you.

-Lynne

--- Joanne McNabb wrote:

> I think everyone should have hope. I got better.

> I've had it 27 years. The first 20 years were

> horrible, but the last 7 have been great. My doctor

> told me a long time ago that he thought eventually

> my

> body would say, enough is enough, and I guess it

> did.

> I'm still working (31 years), I go boating, fishing,

> and I'm happy to be here.

>

> Joanne

> --- L G wrote:

> > I have only heard of maybe 5 people out of

> hundreds

> > that have gotten better from this disease. It is

> > only

> > logical as one gets older and the body gets weaker

> > from age, that the symptoms will get worse. I

> have

> > had CFS/Fibro since I was 17 and when I was very

> > young, I had many remissions but since the age of

> > 38,

> > I have been in a 12 year relapse that has still

> not

> > ended and keeps getting worse. I take excellent

> > care

> > of myself and have good doctors but I can see the

> > progressive deterioration especially after I went

> > through Menopause. So, it's better not to give

> > anyone false hope although I guess every now and

> > then

> > a miracle may happen.

> > -Lynne

> >

> > --- ee Meade wrote:

> > > > ...that will only get worse? This is the

> first

> > > time I've hear

> > > > someone say this. Seems I've read in the

> > > literature it usually does

> > > > not get worse.

> > >

> > > Deb,

> > >

> > > I've heard the same thing, and I think others on

> > > this list have been told

> > > this by their doctors.

> > >

> > > I do not believe there has been enough research

> > done

> > > on this illness to

> > > determine whether or not it gets worse with

> > > time--the diagnosis itself has

> > > only existed for what? about 10 years?

> > >

> > > Logic tells me that it must get worse. I mean,

> > > after years of not getting

> > > restful, restorative sleep, the body will

> > > progressively lose its ability to

> > > compensate. After years of continual muscle

> > > contractions, the muscles

> > > themselves might become distorted, and they

> > > certainly will distort the

> > > skeletal system, don't you think?

> > >

> > > All I know is, my symptoms have gotten worse

> over

> > > the years, although I

> > > still hold out hope for relief!

> > >

> > > Hugs,

> > > ee

> > >

> > >

> > >

> >

> >

> > __________________________________________________

> >

[Guest guest]

Dearest Joanne:

I am so happy that you have been able to work all

these years but that tells me that your case is not

that severe. There are many different levels of

severity; like mine for instance. I could never hold

a job for too long because I would get too sick and

miss too many days. Are you sure you have FMS/CFS? I

never said anyone should not have hope. I said that

people should not have false hope. Every one is

different. God Bless you.

-Lynne

--- Joanne McNabb wrote:

> I think everyone should have hope. I got better.

> I've had it 27 years. The first 20 years were

> horrible, but the last 7 have been great. My doctor

> told me a long time ago that he thought eventually

> my

> body would say, enough is enough, and I guess it

> did.

> I'm still working (31 years), I go boating, fishing,

> and I'm happy to be here.

>

> Joanne

> --- L G wrote:

> > I have only heard of maybe 5 people out of

> hundreds

> > that have gotten better from this disease. It is

> > only

> > logical as one gets older and the body gets weaker

> > from age, that the symptoms will get worse. I

> have

> > had CFS/Fibro since I was 17 and when I was very

> > young, I had many remissions but since the age of

> > 38,

> > I have been in a 12 year relapse that has still

> not

> > ended and keeps getting worse. I take excellent

> > care

> > of myself and have good doctors but I can see the

> > progressive deterioration especially after I went

> > through Menopause. So, it's better not to give

> > anyone false hope although I guess every now and

> > then

> > a miracle may happen.

> > -Lynne

> >

> > --- ee Meade wrote:

> > > > ...that will only get worse? This is the

> first

> > > time I've hear

> > > > someone say this. Seems I've read in the

> > > literature it usually does

> > > > not get worse.

> > >

> > > Deb,

> > >

> > > I've heard the same thing, and I think others on

> > > this list have been told

> > > this by their doctors.

> > >

> > > I do not believe there has been enough research

> > done

> > > on this illness to

> > > determine whether or not it gets worse with

> > > time--the diagnosis itself has

> > > only existed for what? about 10 years?

> > >

> > > Logic tells me that it must get worse. I mean,

> > > after years of not getting

> > > restful, restorative sleep, the body will

> > > progressively lose its ability to

> > > compensate. After years of continual muscle

> > > contractions, the muscles

> > > themselves might become distorted, and they

> > > certainly will distort the

> > > skeletal system, don't you think?

> > >

> > > All I know is, my symptoms have gotten worse

> over

> > > the years, although I

> > > still hold out hope for relief!

> > >

> > > Hugs,

> > > ee

> > >

> > >

> > >

> >

> >

> > __________________________________________________

> >

[Guest guest]

Dearest Joanne:

I am so happy that you have been able to work all

these years but that tells me that your case is not

that severe. There are many different levels of

severity; like mine for instance. I could never hold

a job for too long because I would get too sick and

miss too many days. Are you sure you have FMS/CFS? I

never said anyone should not have hope. I said that

people should not have false hope. Every one is

different. God Bless you.

-Lynne

--- Joanne McNabb wrote:

> I think everyone should have hope. I got better.

> I've had it 27 years. The first 20 years were

> horrible, but the last 7 have been great. My doctor

> told me a long time ago that he thought eventually

> my

> body would say, enough is enough, and I guess it

> did.

> I'm still working (31 years), I go boating, fishing,

> and I'm happy to be here.

>

> Joanne

> --- L G wrote:

> > I have only heard of maybe 5 people out of

> hundreds

> > that have gotten better from this disease. It is

> > only

> > logical as one gets older and the body gets weaker

> > from age, that the symptoms will get worse. I

> have

> > had CFS/Fibro since I was 17 and when I was very

> > young, I had many remissions but since the age of

> > 38,

> > I have been in a 12 year relapse that has still

> not

> > ended and keeps getting worse. I take excellent

> > care

> > of myself and have good doctors but I can see the

> > progressive deterioration especially after I went

> > through Menopause. So, it's better not to give

> > anyone false hope although I guess every now and

> > then

> > a miracle may happen.

> > -Lynne

> >

> > --- ee Meade wrote:

> > > > ...that will only get worse? This is the

> first

> > > time I've hear

> > > > someone say this. Seems I've read in the

> > > literature it usually does

> > > > not get worse.

> > >

> > > Deb,

> > >

> > > I've heard the same thing, and I think others on

> > > this list have been told

> > > this by their doctors.

> > >

> > > I do not believe there has been enough research

> > done

> > > on this illness to

> > > determine whether or not it gets worse with

> > > time--the diagnosis itself has

> > > only existed for what? about 10 years?

> > >

> > > Logic tells me that it must get worse. I mean,

> > > after years of not getting

> > > restful, restorative sleep, the body will

> > > progressively lose its ability to

> > > compensate. After years of continual muscle

> > > contractions, the muscles

> > > themselves might become distorted, and they

> > > certainly will distort the

> > > skeletal system, don't you think?

> > >

> > > All I know is, my symptoms have gotten worse

> over

> > > the years, although I

> > > still hold out hope for relief!

> > >

> > > Hugs,

> > > ee

> > >

> > >

> > >

> >

> >

> > __________________________________________________

> >

[Guest guest]

Hi Lynne,

Oh, yes, I'm sure I have fibro. I wouldn't relive

those days. I would rather be in labor for the rest

of my life than feel that pain. I hurt so badly at

one time that I couldn't even wear my glasses. Every

muscle in my body was in spasm, and my body was

burning all over. My neck felt like a rope burn. I

feel like I got cheated out of the 20's and 30's

because I hurt so bad. I had two kids, and my husband

was an alcoholic, and I had to work. I would go in

the ladies room and cry from the pain. I would have

to lie down intermittently throughout the day. I was

lucky that I worked for the County and they couldn't

fire me. I'll tell you another thing. I could not do

it again. At age 49, I just couldn't take it. I'd

probably swallow a bottle of pills if I got that bad

again. The worst part was no one ever heard of it in

1974, and I didn't have all you wonderful people to

help me. There was no one for me to talk to. I

begged my doctor once to put me in the mental hospital

because I was afraid I would kill myself, but he

wouldn't do it. Oh, yes, I know how awful you feel,

and I wouldn't wish it on my worst enemy. I don't

know why I got better. I really don't, but I'm so

grateful to God that he took it away. Well, it's not

gone, but it's so much more manageable than I ever

would have thought.

Joanne

--- L G wrote:

> Dearest Joanne:

> I am so happy that you have been able to work all

> these years but that tells me that your case is not

> that severe. There are many different levels of

> severity; like mine for instance. I could never

> hold

> a job for too long because I would get too sick and

> miss too many days. Are you sure you have FMS/CFS?

> I

> never said anyone should not have hope. I said that

> people should not have false hope. Every one is

> different. God Bless you.

> -Lynne

>

> --- Joanne McNabb wrote:

> > I think everyone should have hope. I got better.

> > I've had it 27 years. The first 20 years were

> > horrible, but the last 7 have been great. My

> doctor

> > told me a long time ago that he thought eventually

> > my

> > body would say, enough is enough, and I guess it

> > did.

> > I'm still working (31 years), I go boating,

> fishing,

> > and I'm happy to be here.

> >

> > Joanne

> > --- L G wrote:

> > > I have only heard of maybe 5 people out of

> > hundreds

> > > that have gotten better from this disease. It

> is

> > > only

> > > logical as one gets older and the body gets

> weaker

> > > from age, that the symptoms will get worse. I

> > have

> > > had CFS/Fibro since I was 17 and when I was very

> > > young, I had many remissions but since the age

> of

> > > 38,

> > > I have been in a 12 year relapse that has still

> > not

> > > ended and keeps getting worse. I take excellent

> > > care

> > > of myself and have good doctors but I can see

> the

> > > progressive deterioration especially after I

> went

> > > through Menopause. So, it's better not to give

> > > anyone false hope although I guess every now and

> > > then

> > > a miracle may happen.

> > > -Lynne

> > >

> > > --- ee Meade wrote:

> > > > > ...that will only get worse? This is the

> > first

> > > > time I've hear

> > > > > someone say this. Seems I've read in the

> > > > literature it usually does

> > > > > not get worse.

> > > >

> > > > Deb,

> > > >

> > > > I've heard the same thing, and I think others

> on

> > > > this list have been told

> > > > this by their doctors.

> > > >

> > > > I do not believe there has been enough

> research

> > > done

> > > > on this illness to

> > > > determine whether or not it gets worse with

> > > > time--the diagnosis itself has

> > > > only existed for what? about 10 years?

> > > >

> > > > Logic tells me that it must get worse. I

> mean,

> > > > after years of not getting

> > > > restful, restorative sleep, the body will

> > > > progressively lose its ability to

> > > > compensate. After years of continual muscle

> > > > contractions, the muscles

> > > > themselves might become distorted, and they

> > > > certainly will distort the

> > > > skeletal system, don't you think?

> > > >

> > > > All I know is, my symptoms have gotten worse

> > over

> > > > the years, although I

> > > > still hold out hope for relief!

> > > >

> > > > Hugs,

> > > > ee

> > > >

> > > >

> > > >

> > >

> > >

> > >

> __________________________________________________

> > >

[Guest guest]

Great news for you Joanne. I am glad you are one of

the lucky ones to be in remission of this illness. I

hope you stay that way. Enjoy your life as much as you

can, then if things change you will have no regrets.

God Bless

Lorraine UK

--- Joanne Mc Nabb wrote:

<HR>

<html><body>

<tt>

Hi Lynne,<BR>

<BR>

Oh, yes, I'm sure I have fibro.  I wouldn't relive<BR>

those days.  I would rather be in labor for the

rest<BR>

of my life than feel that pain.  I hurt so badly

at<BR>

one time that I couldn't even wear my glasses. 

Every<BR>

muscle in my body was in spasm, and my body was<BR>

burning all over.  My neck felt like a rope burn. 

I<BR>

feel like I got cheated out of the 20's and 30's<BR>

because I hurt so bad.  I had two kids, and my

husband<BR>

was an alcoholic, and I had to work.  I would go

in<BR>

the ladies room and cry from the pain.  I would

have<BR>

to lie down intermittently throughout the day.  I

was<BR>

lucky that I worked for the County and they

couldn't<BR>

fire me.  I'll tell you another thing.  I could not

do<BR>

it again.  At age 49, I just couldn't take it. 

I'd<BR>

probably swallow a bottle of pills if I got that

bad<BR>

again.  The worst part was no one ever heard of it

in<BR>

1974, and I didn't have all you wonderful people

to<BR>

help me.  There was no one for me to talk to.  I<BR>

begged my doctor once to put me in the mental

hospital<BR>

because I was afraid I would kill myself, but he<BR>

wouldn't do it.  Oh, yes, I know how awful you

feel,<BR>

and I wouldn't wish it on my worst enemy.  I don't<BR>

know why I got better.  I really don't, but I'm so<BR>

grateful to God that he took it away.  Well, it's

not<BR>

gone, but it's so much more manageable than I ever<BR>

would have thought.<BR>

<BR>

Joanne<BR>

--- L G wrote:<BR>

> Dearest Joanne:<BR>

> I am so happy that you have been able to work

all<BR>

> these years but that tells me that your case is

not<BR>

> that severe.  There are many different levels of<BR>

> severity; like mine for instance.  I could never<BR>

> hold<BR>

> a job for too long because I would get too sick

and<BR>

> miss too many days.  Are you sure you have

FMS/CFS?<BR>

> I<BR>

> never said anyone should not have hope.  I said

that<BR>

> people should not have false hope.  Every one is<BR>

> different. God Bless you.<BR>

> -Lynne<BR>

> <BR>

> --- Joanne McNabb

wrote:<BR>

> > I think everyone should have hope.  I got better.

<BR>

> > I've had it 27 years.  The first 20 years were<BR>

> > horrible, but the last 7 have been great.  My<BR>

> doctor<BR>

> > told me a long time ago that he thought

eventually<BR>

> > my<BR>

> > body would say, enough is enough, and I guess

it<BR>

> > did. <BR>

> > I'm still working (31 years), I go boating,<BR>

> fishing,<BR>

> > and I'm happy to be here.<BR>

> > <BR>

> > Joanne<BR>

> > --- L G wrote:<BR>

> > > I have only heard of maybe 5 people out of<BR>

> > hundreds<BR>

> > > that have gotten better from this disease. 

It<BR>

> is<BR>

> > > only<BR>

> > > logical as one gets older and the body gets<BR>

> weaker<BR>

> > > from age, that the symptoms will get worse. 

I<BR>

> > have<BR>

> > > had CFS/Fibro since I was 17 and when I was

very<BR>

> > > young, I had many remissions but since the

age<BR>

> of<BR>

> > > 38,<BR>

> > > I have been in a 12 year relapse that has

still<BR>

> > not<BR>

> > > ended and keeps getting worse.  I take

excellent<BR>

> > > care<BR>

> > > of myself and have good doctors but I can

see<BR>

> the<BR>

> > > progressive deterioration especially after I<BR>

> went<BR>

> > > through Menopause.   So, it's better not to

give<BR>

> > > anyone false hope although I guess every now

and<BR>

> > > then<BR>

> > > a miracle may happen. <BR>

> > >  -Lynne<BR>

> > > <BR>

> > > --- ee Meade

wrote:<BR>

> > > > > ...that will only get worse?  This is

the<BR>

> > first<BR>

> > > > time I've hear<BR>

> > > > > someone say this.  Seems I've read in

the<BR>

> > > > literature it usually does<BR>

> > > > > not get worse.<BR>

> > > > <BR>

> > > > Deb,<BR>

> > > > <BR>

> > > > I've heard the same thing, and I think

others<BR>

> on<BR>

> > > > this list have been told<BR>

> > > > this by their doctors.<BR>

> > > > <BR>

> > > > I do not believe there has been enough<BR>

> research<BR>

> > > done<BR>

> > > > on this illness to<BR>

> > > > determine whether or not it gets worse

with<BR>

> > > > time--the diagnosis itself has<BR>

> > > > only existed for what? about 10 years?<BR>

> > > > <BR>

> > > > Logic tells me that it must get worse.  I<BR>

> mean,<BR>

> > > > after years of not getting<BR>

> > > > restful, restorative sleep, the body will<BR>

> > > > progressively lose its ability to<BR>

> > > > compensate.  After years of continual

muscle<BR>

> > > > contractions, the muscles<BR>

> > > > themselves might become distorted, and

they<BR>

> > > > certainly will distort the<BR>

> > > > skeletal system, don't you think?<BR>

> > > > <BR>

> > > > All I know is, my symptoms have gotten

worse<BR>

> > over<BR>

> > > > the years, although I<BR>

> > > > still hold out hope for relief!<BR>

> > > > <BR>

> > > > Hugs,<BR>

> > > > ee<BR>

> > > > <BR>

> > > > <BR>

> > > > <BR>

> > > <BR>

> > > <BR>

> > ><BR>

>

__________________________________________________<BR>

> > >

[Guest guest]

Thank you, Lorraine. Sometimes I have to remember to

treasure each day. The only down side is I developed

interstitial cystitis 4-1/2 years ago, so I'm not

really pain free. But, as I try to explain to the IC

group, IC doesn't compare in pain to fibro. With IC,

your bladder and urethra burn. With fibro, you hurt

from the top of your head to the tips of your toes.

Joanne

--- Lorraine Bowen wrote:

> Great news for you Joanne. I am glad you are one of

> the lucky ones to be in remission of this illness. I

> hope you stay that way. Enjoy your life as much as

> you

> can, then if things change you will have no regrets.

>

> God Bless

>

> Lorraine UK

>

> --- Joanne Mc Nabb wrote:

> <HR>

> <html><body>

> <tt>

> Hi Lynne,<BR>

> <BR>

> Oh, yes, I'm sure I have fibro.  I wouldn't

> relive<BR>

> those days.  I would rather be in labor for the

> rest<BR>

> of my life than feel that pain.  I hurt so badly

> at<BR>

> one time that I couldn't even wear my glasses. 

> Every<BR>

> muscle in my body was in spasm, and my body was<BR>

> burning all over.  My neck felt like a rope burn. 

> I<BR>

> feel like I got cheated out of the 20's and 30's<BR>

> because I hurt so bad.  I had two kids, and my

> husband<BR>

> was an alcoholic, and I had to work.  I would go

> in<BR>

> the ladies room and cry from the pain.  I would

> have<BR>

> to lie down intermittently throughout the day.  I

> was<BR>

> lucky that I worked for the County and they

> couldn't<BR>

> fire me.  I'll tell you another thing.  I could not

> do<BR>

> it again.  At age 49, I just couldn't take it. 

> I'd<BR>

> probably swallow a bottle of pills if I got that

> bad<BR>

> again.  The worst part was no one ever heard of it

> in<BR>

> 1974, and I didn't have all you wonderful people

> to<BR>

> help me.  There was no one for me to talk to.  I<BR>

> begged my doctor once to put me in the mental

> hospital<BR>

> because I was afraid I would kill myself, but he<BR>

> wouldn't do it.  Oh, yes, I know how awful you

> feel,<BR>

> and I wouldn't wish it on my worst enemy.  I

> don't<BR>

> know why I got better.  I really don't, but I'm

> so<BR>

> grateful to God that he took it away.  Well, it's

> not<BR>

> gone, but it's so much more manageable than I

> ever<BR>

> would have thought.<BR>

> <BR>

> Joanne<BR>

> --- L G wrote:<BR>

> > Dearest Joanne:<BR>

> > I am so happy that you have been able to work

> all<BR>

> > these years but that tells me that your case is

> not<BR>

> > that severe.  There are many different levels

> of<BR>

> > severity; like mine for instance.  I could

> never<BR>

> > hold<BR>

> > a job for too long because I would get too sick

> and<BR>

> > miss too many days.  Are you sure you have

> FMS/CFS?<BR>

> > I<BR>

> > never said anyone should not have hope.  I said

> that<BR>

> > people should not have false hope.  Every one

> is<BR>

> > different. God Bless you.<BR>

> > -Lynne<BR>

> > <BR>

> > --- Joanne McNabb

> wrote:<BR>

> > > I think everyone should have hope.  I got

> better.

> <BR>

> > > I've had it 27 years.  The first 20 years

> were<BR>

> > > horrible, but the last 7 have been great. 

> My<BR>

> > doctor<BR>

> > > told me a long time ago that he thought

> eventually<BR>

> > > my<BR>

> > > body would say, enough is enough, and I guess

> it<BR>

> > > did. <BR>

> > > I'm still working (31 years), I go boating,<BR>

> > fishing,<BR>

> > > and I'm happy to be here.<BR>

> > > <BR>

> > > Joanne<BR>

> > > --- L G wrote:<BR>

> > > > I have only heard of maybe 5 people out of<BR>

> > > hundreds<BR>

> > > > that have gotten better from this disease. 

> It<BR>

> > is<BR>

> > > > only<BR>

> > > > logical as one gets older and the body

> gets<BR>

> > weaker<BR>

> > > > from age, that the symptoms will get worse. 

> I<BR>

> > > have<BR>

> > > > had CFS/Fibro since I was 17 and when I was

> very<BR>

> > > > young, I had many remissions but since the

> age<BR>

> > of<BR>

> > > > 38,<BR>

> > > > I have been in a 12 year relapse that has

> still<BR>

> > > not<BR>

> > > > ended and keeps getting worse.  I take

> excellent<BR>

> > > > care<BR>

> > > > of myself and have good doctors but I can

> see<BR>

> > the<BR>

> > > > progressive deterioration especially after

> I<BR>

> > went<BR>

> > > > through Menopause.   So, it's better not to

> give<BR>

> > > > anyone false hope although I guess every now

> and<BR>

> > > > then<BR>

> > > > a miracle may happen. <BR>

> > > >  -Lynne<BR>

> > > > <BR>

> > > > --- ee Meade

> wrote:<BR>

> > > > > > ...that will only get worse?  This is

> the<BR>

> > > first<BR>

> > > > > time I've hear<BR>

> > > > > > someone say this.  Seems I've read in

> the<BR>

> > > > > literature it usually does<BR>

> > > > > > not get worse.<BR>

> > > > > <BR>

> > > > > Deb,<BR>

> > > > > <BR>

> > > > > I've heard the same thing, and I think

> others<BR>

> > on<BR>

> > > > > this list have been told<BR>

> > > > > this by their doctors.<BR>

> > > > > <BR>

> > > > > I do not believe there has been enough<BR>

> > research<BR>

> > > > done<BR>

> > > > > on this illness to<BR>

> > > > > determine whether or not it gets worse

> with<BR>

> > > > > time--the diagnosis itself has<BR>

> > > > > only existed for what? about 10 years?<BR>

> > > > > <BR>

> > > > > Logic tells me that it must get worse. 

> I<BR>

> > mean,<BR>

> > > > > after years of not getting<BR>

> > > > > restful, restorative sleep, the body

> will<BR>

> > > > > progressively lose its ability to<BR>

> > > > > compensate.  After years of continual

> muscle<BR>

> > > > > contractions, the muscles<BR>

> > > > > themselves might become distorted, and

> they<BR>

> > > > > certainly will distort the<BR>

> > > > > skeletal system, don't you think?<BR>

> > > > > <BR>

> > > > > All I know is, my symptoms have gotten

> worse<BR>

> > > over<BR>

> > > > > the years, although I<BR>

> > > > > still hold out hope for relief!<BR>

> > > > > <BR>

> > > > > Hugs,<BR>

> > > > > ee<BR>

> > > > > <BR>

> > > > > <BR>

>

=== message truncated ===

__________________________________________________