Re: Intro and a few questions

[Guest guest]

Has any doctor mentioned the possibility of diabetic nephropathy to you?

Diabetes plus high blood pressure is pretty hard on the kidneys.

Unless there's heavy proteinuria (which causes sometimes severe symptoms of

its own), or, unless the IgAN is secondary to some other disease (of which

there are quite a few), IgAN itself really doesn't make you feel like

anything. It takes losing a lot of kidney function before a person can

really feel the effects, usually. Certainly well under 50% anyway, and many

don't feel a thing until they are just about ready for dialysis, or a year

or two away from it. Many of the things people feel are more related to

medications than the disease. Now, there can be exceptions. If, for example,

a person has problems with severe high blood pressure, well, sometimes you

can get headaches, heart problems, shortness of breath, a kind of swimmy

dizziness. Another exception is flank pain, which some people have, and for

which medical science really doesn't have an explanation.

25 years ago, I was also told I was probably just one of those people who

have microscopic hematuria for no known reason. It turned out there was a

reason, but it took a long time.

Pierre

Intro and a few questions

> Hello, I just found my way here from the " cafe " . I have not been

> definitely dx'ed with IgAN, but it was suggested and I am waiting

> for the results of my 24 hour urine and followup creatinine test.

> In March my creatinine was 1.7, up from 0.9 in January. The

> nephrologist is having a hard time believing that jump, so we are

> hoping it was a lab error or something transient. However, I have

> had microscopic hematuria for about 20 years, plus high blood

> pressure since 1991. They have done all kinds of tests imaginable

> to find the cause of my HBP, all to no avail (no family history). I

> also have diabetes and a few other medical issues.

>

> I am wondering how some of you " feel " , when your kidney function is

> still decent? Do you have any outward sx's with the IgAN? For the

> last year, I have had bouts of not feeling well, including weakness,

> easily fatigued, cognitive issues, etc. I do have Peripheral

> Neuropathy, but do not think it would have such effects. I am

> assuming that, if I do have some kidney problems, my function is

> still good, since my creatinine is not way off yet.

>

> Also, does anyone have headaches with Lisinopril? If so, do they go

> away after time? Mine are mostly at night, when I lay down. I do

> not think they are bp related, although I have not checked my bp

> while in bed! :-) I end up taking aceteminophen almost every night

> now, after I go to bed.

>

> Well, that is enough for now! Hopefully I will be able to come back

> later and let you all know that my kidneys are perfect, once I get

> those results! :-)

>

> By the way, do doctors still say " You are just one of those people

> who have microscopic hematuria and we don't know why! " I was told

> that 20 years ago and every test I can every remember had the

> hematuria, over the years. I didn't worry about it, though, because

> I was " told " not to!

>

> Blessings,

> Ramona

>

[Guest guest]

Has any doctor mentioned the possibility of diabetic nephropathy to you?

Diabetes plus high blood pressure is pretty hard on the kidneys.

Unless there's heavy proteinuria (which causes sometimes severe symptoms of

its own), or, unless the IgAN is secondary to some other disease (of which

there are quite a few), IgAN itself really doesn't make you feel like

anything. It takes losing a lot of kidney function before a person can

really feel the effects, usually. Certainly well under 50% anyway, and many

don't feel a thing until they are just about ready for dialysis, or a year

or two away from it. Many of the things people feel are more related to

medications than the disease. Now, there can be exceptions. If, for example,

a person has problems with severe high blood pressure, well, sometimes you

can get headaches, heart problems, shortness of breath, a kind of swimmy

dizziness. Another exception is flank pain, which some people have, and for

which medical science really doesn't have an explanation.

25 years ago, I was also told I was probably just one of those people who

have microscopic hematuria for no known reason. It turned out there was a

reason, but it took a long time.

Pierre

Intro and a few questions

> Hello, I just found my way here from the " cafe " . I have not been

> definitely dx'ed with IgAN, but it was suggested and I am waiting

> for the results of my 24 hour urine and followup creatinine test.

> In March my creatinine was 1.7, up from 0.9 in January. The

> nephrologist is having a hard time believing that jump, so we are

> hoping it was a lab error or something transient. However, I have

> had microscopic hematuria for about 20 years, plus high blood

> pressure since 1991. They have done all kinds of tests imaginable

> to find the cause of my HBP, all to no avail (no family history). I

> also have diabetes and a few other medical issues.

>

> I am wondering how some of you " feel " , when your kidney function is

> still decent? Do you have any outward sx's with the IgAN? For the

> last year, I have had bouts of not feeling well, including weakness,

> easily fatigued, cognitive issues, etc. I do have Peripheral

> Neuropathy, but do not think it would have such effects. I am

> assuming that, if I do have some kidney problems, my function is

> still good, since my creatinine is not way off yet.

>

> Also, does anyone have headaches with Lisinopril? If so, do they go

> away after time? Mine are mostly at night, when I lay down. I do

> not think they are bp related, although I have not checked my bp

> while in bed! :-) I end up taking aceteminophen almost every night

> now, after I go to bed.

>

> Well, that is enough for now! Hopefully I will be able to come back

> later and let you all know that my kidneys are perfect, once I get

> those results! :-)

>

> By the way, do doctors still say " You are just one of those people

> who have microscopic hematuria and we don't know why! " I was told

> that 20 years ago and every test I can every remember had the

> hematuria, over the years. I didn't worry about it, though, because

> I was " told " not to!

>

> Blessings,

> Ramona

>

[Guest guest]

Has any doctor mentioned the possibility of diabetic nephropathy to you?

Diabetes plus high blood pressure is pretty hard on the kidneys.

Unless there's heavy proteinuria (which causes sometimes severe symptoms of

its own), or, unless the IgAN is secondary to some other disease (of which

there are quite a few), IgAN itself really doesn't make you feel like

anything. It takes losing a lot of kidney function before a person can

really feel the effects, usually. Certainly well under 50% anyway, and many

don't feel a thing until they are just about ready for dialysis, or a year

or two away from it. Many of the things people feel are more related to

medications than the disease. Now, there can be exceptions. If, for example,

a person has problems with severe high blood pressure, well, sometimes you

can get headaches, heart problems, shortness of breath, a kind of swimmy

dizziness. Another exception is flank pain, which some people have, and for

which medical science really doesn't have an explanation.

25 years ago, I was also told I was probably just one of those people who

have microscopic hematuria for no known reason. It turned out there was a

reason, but it took a long time.

Pierre

Intro and a few questions

> Hello, I just found my way here from the " cafe " . I have not been

> definitely dx'ed with IgAN, but it was suggested and I am waiting

> for the results of my 24 hour urine and followup creatinine test.

> In March my creatinine was 1.7, up from 0.9 in January. The

> nephrologist is having a hard time believing that jump, so we are

> hoping it was a lab error or something transient. However, I have

> had microscopic hematuria for about 20 years, plus high blood

> pressure since 1991. They have done all kinds of tests imaginable

> to find the cause of my HBP, all to no avail (no family history). I

> also have diabetes and a few other medical issues.

>

> I am wondering how some of you " feel " , when your kidney function is

> still decent? Do you have any outward sx's with the IgAN? For the

> last year, I have had bouts of not feeling well, including weakness,

> easily fatigued, cognitive issues, etc. I do have Peripheral

> Neuropathy, but do not think it would have such effects. I am

> assuming that, if I do have some kidney problems, my function is

> still good, since my creatinine is not way off yet.

>

> Also, does anyone have headaches with Lisinopril? If so, do they go

> away after time? Mine are mostly at night, when I lay down. I do

> not think they are bp related, although I have not checked my bp

> while in bed! :-) I end up taking aceteminophen almost every night

> now, after I go to bed.

>

> Well, that is enough for now! Hopefully I will be able to come back

> later and let you all know that my kidneys are perfect, once I get

> those results! :-)

>

> By the way, do doctors still say " You are just one of those people

> who have microscopic hematuria and we don't know why! " I was told

> that 20 years ago and every test I can every remember had the

> hematuria, over the years. I didn't worry about it, though, because

> I was " told " not to!

>

> Blessings,

> Ramona

>

[Guest guest]

Hi Ramoma,

Welcome to the group. I think Pierre already answered your questions, but I

wanted to also welcome you.

[Guest guest]

Hi Ramoma,

Welcome to the group. I think Pierre already answered your questions, but I

wanted to also welcome you.

[Guest guest]

Ramona,

Welcome to the group! I

have been on Lisinopril a little over a year now. When I first started taking

it I thought it was causing a bunch of problems-like headaches, etc. However,

when I first start on a new medication I always attribute every little problem I

get to the new medication when in reality, if I think back, I was having all the

" side effects " before I started the medication-they were just in the back of my

mind.

Another thing, when I was pregnant a couple years ago my doctor said I had

microscopic hematuria, but it was probably just a " fluke thing " . She told me

that 3 times in 9 months! Back then I just believed her and didn't request any

further tests or anything else! I was told not to worry too and so I didn't!

Again, welcome to the group! I hope you find it as much help and comfort as I

have.

~Dana

Intro and a few questions

Hello, I just found my way here from the " cafe " . I have not been

definitely dx'ed with IgAN, but it was suggested and I am waiting

for the results of my 24 hour urine and followup creatinine test.

In March my creatinine was 1.7, up from 0.9 in January. The

nephrologist is having a hard time believing that jump, so we are

hoping it was a lab error or something transient. However, I have

had microscopic hematuria for about 20 years, plus high blood

pressure since 1991. They have done all kinds of tests imaginable

to find the cause of my HBP, all to no avail (no family history). I

also have diabetes and a few other medical issues.

I am wondering how some of you " feel " , when your kidney function is

still decent? Do you have any outward sx's with the IgAN? For the

last year, I have had bouts of not feeling well, including weakness,

easily fatigued, cognitive issues, etc. I do have Peripheral

Neuropathy, but do not think it would have such effects. I am

assuming that, if I do have some kidney problems, my function is

still good, since my creatinine is not way off yet.

Also, does anyone have headaches with Lisinopril? If so, do they go

away after time? Mine are mostly at night, when I lay down. I do

not think they are bp related, although I have not checked my bp

while in bed! :-) I end up taking aceteminophen almost every night

now, after I go to bed.

Well, that is enough for now! Hopefully I will be able to come back

later and let you all know that my kidneys are perfect, once I get

those results! :-)

By the way, do doctors still say " You are just one of those people

who have microscopic hematuria and we don't know why! " I was told

that 20 years ago and every test I can every remember had the

hematuria, over the years. I didn't worry about it, though, because

I was " told " not to!

Blessings,

Ramona

To edit your settings for the group, go to our Yahoo Group

home page:

http://groups.yahoo.com/group/iga-nephropathy/

To unsubcribe via email,

iga-nephropathy-unsubscribe

Visit our companion website at www.igan.ca. The site is entirely supported by

donations. If you would like to help, go to:

http://www.igan.ca/id62.htm

Thank you

[Guest guest]

Ramona,

Welcome to the group! I

have been on Lisinopril a little over a year now. When I first started taking

it I thought it was causing a bunch of problems-like headaches, etc. However,

when I first start on a new medication I always attribute every little problem I

get to the new medication when in reality, if I think back, I was having all the

" side effects " before I started the medication-they were just in the back of my

mind.

Another thing, when I was pregnant a couple years ago my doctor said I had

microscopic hematuria, but it was probably just a " fluke thing " . She told me

that 3 times in 9 months! Back then I just believed her and didn't request any

further tests or anything else! I was told not to worry too and so I didn't!

Again, welcome to the group! I hope you find it as much help and comfort as I

have.

~Dana

Intro and a few questions

Hello, I just found my way here from the " cafe " . I have not been

definitely dx'ed with IgAN, but it was suggested and I am waiting

for the results of my 24 hour urine and followup creatinine test.

In March my creatinine was 1.7, up from 0.9 in January. The

nephrologist is having a hard time believing that jump, so we are

hoping it was a lab error or something transient. However, I have

had microscopic hematuria for about 20 years, plus high blood

pressure since 1991. They have done all kinds of tests imaginable

to find the cause of my HBP, all to no avail (no family history). I

also have diabetes and a few other medical issues.

I am wondering how some of you " feel " , when your kidney function is

still decent? Do you have any outward sx's with the IgAN? For the

last year, I have had bouts of not feeling well, including weakness,

easily fatigued, cognitive issues, etc. I do have Peripheral

Neuropathy, but do not think it would have such effects. I am

assuming that, if I do have some kidney problems, my function is

still good, since my creatinine is not way off yet.

Also, does anyone have headaches with Lisinopril? If so, do they go

away after time? Mine are mostly at night, when I lay down. I do

not think they are bp related, although I have not checked my bp

while in bed! :-) I end up taking aceteminophen almost every night

now, after I go to bed.

Well, that is enough for now! Hopefully I will be able to come back

later and let you all know that my kidneys are perfect, once I get

those results! :-)

By the way, do doctors still say " You are just one of those people

who have microscopic hematuria and we don't know why! " I was told

that 20 years ago and every test I can every remember had the

hematuria, over the years. I didn't worry about it, though, because

I was " told " not to!

Blessings,

Ramona

To edit your settings for the group, go to our Yahoo Group

home page:

http://groups.yahoo.com/group/iga-nephropathy/

To unsubcribe via email,

iga-nephropathy-unsubscribe

Visit our companion website at www.igan.ca. The site is entirely supported by

donations. If you would like to help, go to:

http://www.igan.ca/id62.htm

Thank you

[Guest guest]

Hi Ramona,

Welcome to the group. Sounds like your kidney function is still up

there and doing well if it's been 20 years.

I haven't had headaches from the Lisinopril that I've noticed anyhow.

My b/p was having a tendancy to go up quite a bit right before bed and was

causing me mild headaches. I was started on a second b/p med (Cardizem LA

180mg) on top of the Lisinopril and so far it has my b/p under control all

day and night now. You might want to check your b/p right before bed for

the next week or so and see if it is going up higher than you like it to be

prior to bed and then give your doctor a call and see if they want to do

anything about it.

I hope your 24 hour test shows you in good kidney health!

Amy

[Guest guest]

Ramona,

About how I was diagnosed...I had gross hematuria quite often a couple years

ago. My doctor in New York always dismissed it (and the protein) as a kidney

infection. So I was on antibiotics quite often. When we moved back to

Minnesota I had another episode and thinking I probably just needed more

antibiotics I went to a dr who said she wanted a follow up after the course of

antibiotics. I still had the protein a couple weeks later and also high blood

pressure, which I've always had low blood pressure, so she had me see a

nephrologist and one thing led to another until I finally had a biopsy and was

diagnosed with IgAN.

~Dana

Re: Intro and a few questions

Thank you, Dana, et al, for your welcome. I am curious, how did

they end up detecting your IgAN, Dana? Did you end up with high

serum creatinine eventually? Did your bp go up? What was the final

thing that sent you in for a biopsy?

Again, thanks for the welcome!

Ramona

> Ramona,

> Welcome to the group! I

> have been on Lisinopril a little over a year now. When I first

started taking it I thought it was causing a bunch of problems-like

headaches, etc. However, when I first start on a new medication I

always attribute every little problem I get to the new medication

when in reality, if I think back, I was having all the " side

effects " before I started the medication-they were just in the back

of my mind.

> Another thing, when I was pregnant a couple years ago my doctor

said I had microscopic hematuria, but it was probably just a " fluke

thing " . She told me that 3 times in 9 months! Back then I just

believed her and didn't request any further tests or anything else!

I was told not to worry too and so I didn't!

> Again, welcome to the group! I hope you find it as much help and

comfort as I have.

> ~Dana

>

To edit your settings for the group, go to our Yahoo Group

home page:

http://groups.yahoo.com/group/iga-nephropathy/

To unsubcribe via email,

iga-nephropathy-unsubscribe

Visit our companion website at www.igan.ca. The site is entirely supported by

donations. If you would like to help, go to:

http://www.igan.ca/id62.htm

Thank you

[Guest guest]

Ramona,

About how I was diagnosed...I had gross hematuria quite often a couple years

ago. My doctor in New York always dismissed it (and the protein) as a kidney

infection. So I was on antibiotics quite often. When we moved back to

Minnesota I had another episode and thinking I probably just needed more

antibiotics I went to a dr who said she wanted a follow up after the course of

antibiotics. I still had the protein a couple weeks later and also high blood

pressure, which I've always had low blood pressure, so she had me see a

nephrologist and one thing led to another until I finally had a biopsy and was

diagnosed with IgAN.

~Dana

Re: Intro and a few questions

Thank you, Dana, et al, for your welcome. I am curious, how did

they end up detecting your IgAN, Dana? Did you end up with high

serum creatinine eventually? Did your bp go up? What was the final

thing that sent you in for a biopsy?

Again, thanks for the welcome!

Ramona

> Ramona,

> Welcome to the group! I

> have been on Lisinopril a little over a year now. When I first

started taking it I thought it was causing a bunch of problems-like

headaches, etc. However, when I first start on a new medication I

always attribute every little problem I get to the new medication

when in reality, if I think back, I was having all the " side

effects " before I started the medication-they were just in the back

of my mind.

> Another thing, when I was pregnant a couple years ago my doctor

said I had microscopic hematuria, but it was probably just a " fluke

thing " . She told me that 3 times in 9 months! Back then I just

believed her and didn't request any further tests or anything else!

I was told not to worry too and so I didn't!

> Again, welcome to the group! I hope you find it as much help and

comfort as I have.

> ~Dana

>

To edit your settings for the group, go to our Yahoo Group

home page:

http://groups.yahoo.com/group/iga-nephropathy/

To unsubcribe via email,

iga-nephropathy-unsubscribe

Visit our companion website at www.igan.ca. The site is entirely supported by

donations. If you would like to help, go to:

http://www.igan.ca/id62.htm

Thank you