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Re: exopthalmos

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My fiance' has GD and he is constantly stared and people think he's giving

them nasty looks also.. It drives him nuts...His mom told him tell them " I

have cancer and I'm dying so look as much as you want " He tried that once

in a Dr's office and the other person was so embarressed.

>

>Reply-To: graves_support

>To: graves_support

>Subject: exopthalmos

>Date: Mon, 25 Feb 2002 23:19:20 -0000

>

>Hey Guys,

>

>I just needed to share with someone who would understand, just back

>from the " speciality " opthlamologist and, according to him, I've

>improved a bunch! Maybe that Masters is not out of the question

>after all.

>

>He mentioned the eyelid surgery and the bone stuff. I definately

>will not do the bone stuff. However, since the experience where a

>sort of intoxicated woman in the grocery thought I was giving

>her " nasty " looks I might consider the eyelid surgery. Anybody out

>there with experience?

>Thanks

>Laurel

>

_________________________________________________________________

Chat with friends online, try MSN Messenger: http://messenger.msn.com

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My fiance' has GD and he is constantly stared and people think he's giving

them nasty looks also.. It drives him nuts...His mom told him tell them " I

have cancer and I'm dying so look as much as you want " He tried that once

in a Dr's office and the other person was so embarressed.

>

>Reply-To: graves_support

>To: graves_support

>Subject: exopthalmos

>Date: Mon, 25 Feb 2002 23:19:20 -0000

>

>Hey Guys,

>

>I just needed to share with someone who would understand, just back

>from the " speciality " opthlamologist and, according to him, I've

>improved a bunch! Maybe that Masters is not out of the question

>after all.

>

>He mentioned the eyelid surgery and the bone stuff. I definately

>will not do the bone stuff. However, since the experience where a

>sort of intoxicated woman in the grocery thought I was giving

>her " nasty " looks I might consider the eyelid surgery. Anybody out

>there with experience?

>Thanks

>Laurel

>

_________________________________________________________________

Chat with friends online, try MSN Messenger: http://messenger.msn.com

Link to comment
Share on other sites

My fiance' has GD and he is constantly stared and people think he's giving

them nasty looks also.. It drives him nuts...His mom told him tell them " I

have cancer and I'm dying so look as much as you want " He tried that once

in a Dr's office and the other person was so embarressed.

>

>Reply-To: graves_support

>To: graves_support

>Subject: exopthalmos

>Date: Mon, 25 Feb 2002 23:19:20 -0000

>

>Hey Guys,

>

>I just needed to share with someone who would understand, just back

>from the " speciality " opthlamologist and, according to him, I've

>improved a bunch! Maybe that Masters is not out of the question

>after all.

>

>He mentioned the eyelid surgery and the bone stuff. I definately

>will not do the bone stuff. However, since the experience where a

>sort of intoxicated woman in the grocery thought I was giving

>her " nasty " looks I might consider the eyelid surgery. Anybody out

>there with experience?

>Thanks

>Laurel

>

_________________________________________________________________

Chat with friends online, try MSN Messenger: http://messenger.msn.com

Link to comment
Share on other sites

Cool. That could be fun to try on an elevator. Nah. Too much stress.

Laurel

exopthalmos

>Date: Mon, 25 Feb 2002 23:19:20 -0000

>

>Hey Guys,

>

>I just needed to share with someone who would understand, just back

>from the " speciality " opthlamologist and, according to him, I've

>improved a bunch! Maybe that Masters is not out of the question

>after all.

>

>He mentioned the eyelid surgery and the bone stuff. I definately

>will not do the bone stuff. However, since the experience where a

>sort of intoxicated woman in the grocery thought I was giving

>her " nasty " looks I might consider the eyelid surgery. Anybody out

>there with experience?

>Thanks

>Laurel

>

_________________________________________________________________

Chat with friends online, try MSN Messenger: http://messenger.msn.com

-------------------------------------

The Graves' list is intended for informational purposes only and is not intended

to replace expert medical care.

Please consult your doctor before changing or trying new treatments.

----------------------------------------

DISCLAIMER

Advertisments placed on this yahoo groups list does not have the endorsement of

the listowner. I have no input as to what ads are attached to emails.

--------------------------------------------------------------------------------\

------

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Share on other sites

Cool. That could be fun to try on an elevator. Nah. Too much stress.

Laurel

exopthalmos

>Date: Mon, 25 Feb 2002 23:19:20 -0000

>

>Hey Guys,

>

>I just needed to share with someone who would understand, just back

>from the " speciality " opthlamologist and, according to him, I've

>improved a bunch! Maybe that Masters is not out of the question

>after all.

>

>He mentioned the eyelid surgery and the bone stuff. I definately

>will not do the bone stuff. However, since the experience where a

>sort of intoxicated woman in the grocery thought I was giving

>her " nasty " looks I might consider the eyelid surgery. Anybody out

>there with experience?

>Thanks

>Laurel

>

_________________________________________________________________

Chat with friends online, try MSN Messenger: http://messenger.msn.com

-------------------------------------

The Graves' list is intended for informational purposes only and is not intended

to replace expert medical care.

Please consult your doctor before changing or trying new treatments.

----------------------------------------

DISCLAIMER

Advertisments placed on this yahoo groups list does not have the endorsement of

the listowner. I have no input as to what ads are attached to emails.

--------------------------------------------------------------------------------\

------

Link to comment
Share on other sites

Cool. That could be fun to try on an elevator. Nah. Too much stress.

Laurel

exopthalmos

>Date: Mon, 25 Feb 2002 23:19:20 -0000

>

>Hey Guys,

>

>I just needed to share with someone who would understand, just back

>from the " speciality " opthlamologist and, according to him, I've

>improved a bunch! Maybe that Masters is not out of the question

>after all.

>

>He mentioned the eyelid surgery and the bone stuff. I definately

>will not do the bone stuff. However, since the experience where a

>sort of intoxicated woman in the grocery thought I was giving

>her " nasty " looks I might consider the eyelid surgery. Anybody out

>there with experience?

>Thanks

>Laurel

>

_________________________________________________________________

Chat with friends online, try MSN Messenger: http://messenger.msn.com

-------------------------------------

The Graves' list is intended for informational purposes only and is not intended

to replace expert medical care.

Please consult your doctor before changing or trying new treatments.

----------------------------------------

DISCLAIMER

Advertisments placed on this yahoo groups list does not have the endorsement of

the listowner. I have no input as to what ads are attached to emails.

--------------------------------------------------------------------------------\

------

Link to comment
Share on other sites

My eye problems have never been dramatic, but even so, I spent about a year

prior to diagnosis with everyone at work constantly saying " don't worry so

much! " when I was feeling totally calm, it used to drive me nuts as I would

be sitting down feeling at ease and peaceful and people would read my face

wrong. Some people thought I was on speed all the time. It's annoying to

be misread, but I do sympathise as I know that I rely on people's body and

facial language to interpret what they are really feeling as much as(if not

more than!) the next person.

I found that discrepency between what I was feeling and what my face was

expressing, quite isolating and hard to deal with, especially prior to

finding out what was wrong. Now I know what's happening I can see the

hesitation in people when they are experiencing confusion between what I am

saying and what my face (eyes) might appear to be indicating! Sometimes I

try and explain, most of the time I just squint a bit and that seems to make

my eyes look more normal!

DAWN ROSE

>

>Reply-To: graves_support

>To: graves_support

>Subject: Re: exopthalmos

>Date: Mon, 25 Feb 2002 16:37:38 -0800

>

>

>

>My fiance' has GD and he is constantly stared and people think he's giving

>them nasty looks also.. It drives him nuts...His mom told him tell them " I

>have cancer and I'm dying so look as much as you want " He tried that once

>in a Dr's office and the other person was so embarressed.

>

>

> >

> >Reply-To: graves_support

> >To: graves_support

> >Subject: exopthalmos

> >Date: Mon, 25 Feb 2002 23:19:20 -0000

> >

> >Hey Guys,

> >

> >I just needed to share with someone who would understand, just back

> >from the " speciality " opthlamologist and, according to him, I've

> >improved a bunch! Maybe that Masters is not out of the question

> >after all.

> >

> >He mentioned the eyelid surgery and the bone stuff. I definately

> >will not do the bone stuff. However, since the experience where a

> >sort of intoxicated woman in the grocery thought I was giving

> >her " nasty " looks I might consider the eyelid surgery. Anybody out

> >there with experience?

> >Thanks

> >Laurel

> >

>

>

>_________________________________________________________________

>Chat with friends online, try MSN Messenger: http://messenger.msn.com

>

>

>

>-------------------------------------

>The Graves' list is intended for informational purposes only and is not

>intended to replace expert medical care.

>Please consult your doctor before changing or trying new treatments.

>----------------------------------------

> DISCLAIMER

>

>Advertisments placed on this yahoo groups list does not have the

>endorsement of

>the listowner. I have no input as to what ads are attached to emails.

>-------------------------------------------------------------------------------\

-------

>

>

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Share on other sites

Patti,

I have the furrow too from squinting so much....my eyes are extremely light

sensitive. I finally started wearing a mysterious smile so I don't look

grumpy. Some people call me " Sunshine " because of this, but others probably

think I'm nuts. It works on my family though and that's what's important.

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Good morning!!! Found this group the other day. Between the 2 I seem to get

all the info needed. This is great. Persistence sure has paid off since in

the beginning I couldn't find anything. Thanks for your help.

Shani

>From: k9mom1@...

>Reply-To: graves_support

>To: graves_support

>Subject: Re: exopthalmos

>Date: Mon, 25 Feb 2002 22:06:59 EST

>

>Hi Shani, welcome!!

>

>Doris

>

>

>

>

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Good morning!!! Found this group the other day. Between the 2 I seem to get

all the info needed. This is great. Persistence sure has paid off since in

the beginning I couldn't find anything. Thanks for your help.

Shani

>From: k9mom1@...

>Reply-To: graves_support

>To: graves_support

>Subject: Re: exopthalmos

>Date: Mon, 25 Feb 2002 22:06:59 EST

>

>Hi Shani, welcome!!

>

>Doris

>

>

>

>

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Share on other sites

Good morning!!! Found this group the other day. Between the 2 I seem to get

all the info needed. This is great. Persistence sure has paid off since in

the beginning I couldn't find anything. Thanks for your help.

Shani

>From: k9mom1@...

>Reply-To: graves_support

>To: graves_support

>Subject: Re: exopthalmos

>Date: Mon, 25 Feb 2002 22:06:59 EST

>

>Hi Shani, welcome!!

>

>Doris

>

>

>

>

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Hi Jody....Thanks...Sure nice to see familiar faces. :o)

You guys are all great!!

>

>Reply-To: graves_support

>To: graves_support

>Subject: Re: exopthalmos

>Date: Mon, 25 Feb 2002 21:09:55 -0500

>

>Hi Shani,

>Welcome to the group :)

>Jody

>

>

>

>_________________________________________________________________

>MSN Photos is the easiest way to share and print your photos:

>http://photos.msn.com/support/worldwide.aspx

>

_________________________________________________________________

Join the world’s largest e-mail service with MSN Hotmail.

http://www.hotmail.com

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Hi Jody....Thanks...Sure nice to see familiar faces. :o)

You guys are all great!!

>

>Reply-To: graves_support

>To: graves_support

>Subject: Re: exopthalmos

>Date: Mon, 25 Feb 2002 21:09:55 -0500

>

>Hi Shani,

>Welcome to the group :)

>Jody

>

>

>

>_________________________________________________________________

>MSN Photos is the easiest way to share and print your photos:

>http://photos.msn.com/support/worldwide.aspx

>

_________________________________________________________________

Join the world’s largest e-mail service with MSN Hotmail.

http://www.hotmail.com

Link to comment
Share on other sites

Hi Jody....Thanks...Sure nice to see familiar faces. :o)

You guys are all great!!

>

>Reply-To: graves_support

>To: graves_support

>Subject: Re: exopthalmos

>Date: Mon, 25 Feb 2002 21:09:55 -0500

>

>Hi Shani,

>Welcome to the group :)

>Jody

>

>

>

>_________________________________________________________________

>MSN Photos is the easiest way to share and print your photos:

>http://photos.msn.com/support/worldwide.aspx

>

_________________________________________________________________

Join the world’s largest e-mail service with MSN Hotmail.

http://www.hotmail.com

Link to comment
Share on other sites

Nice was to put it! Sometimes the squinting doesn't help though when you are

already frowning because your brain is not processing those double images very

well.

My advisor used to say she wanted me to call when I was leaving campus so she

could leave an hour later. She didn't want to be on the same highway as me.

Just aim for somewhere between the four lines..............

Thank goodness that's over! Mostly.

Laurel

exopthalmos

> >Date: Mon, 25 Feb 2002 23:19:20 -0000

> >

> >Hey Guys,

> >

> >I just needed to share with someone who would understand, just back

> >from the " speciality " opthlamologist and, according to him, I've

> >improved a bunch! Maybe that Masters is not out of the question

> >after all.

> >

> >He mentioned the eyelid surgery and the bone stuff. I definately

> >will not do the bone stuff. However, since the experience where a

> >sort of intoxicated woman in the grocery thought I was giving

> >her " nasty " looks I might consider the eyelid surgery. Anybody out

> >there with experience?

> >Thanks

> >Laurel

> >

>

>

>_________________________________________________________________

>Chat with friends online, try MSN Messenger: http://messenger.msn.com

>

>

>

>-------------------------------------

>The Graves' list is intended for informational purposes only and is not

>intended to replace expert medical care.

>Please consult your doctor before changing or trying new treatments.

>----------------------------------------

> DISCLAIMER

>

>Advertisments placed on this yahoo groups list does not have the

>endorsement of

>the listowner. I have no input as to what ads are attached to emails.

>-------------------------------------------------------------------------------\

-------

>

>

Link to comment
Share on other sites

Nice was to put it! Sometimes the squinting doesn't help though when you are

already frowning because your brain is not processing those double images very

well.

My advisor used to say she wanted me to call when I was leaving campus so she

could leave an hour later. She didn't want to be on the same highway as me.

Just aim for somewhere between the four lines..............

Thank goodness that's over! Mostly.

Laurel

exopthalmos

> >Date: Mon, 25 Feb 2002 23:19:20 -0000

> >

> >Hey Guys,

> >

> >I just needed to share with someone who would understand, just back

> >from the " speciality " opthlamologist and, according to him, I've

> >improved a bunch! Maybe that Masters is not out of the question

> >after all.

> >

> >He mentioned the eyelid surgery and the bone stuff. I definately

> >will not do the bone stuff. However, since the experience where a

> >sort of intoxicated woman in the grocery thought I was giving

> >her " nasty " looks I might consider the eyelid surgery. Anybody out

> >there with experience?

> >Thanks

> >Laurel

> >

>

>

>_________________________________________________________________

>Chat with friends online, try MSN Messenger: http://messenger.msn.com

>

>

>

>-------------------------------------

>The Graves' list is intended for informational purposes only and is not

>intended to replace expert medical care.

>Please consult your doctor before changing or trying new treatments.

>----------------------------------------

> DISCLAIMER

>

>Advertisments placed on this yahoo groups list does not have the

>endorsement of

>the listowner. I have no input as to what ads are attached to emails.

>-------------------------------------------------------------------------------\

-------

>

>

Link to comment
Share on other sites

Nice was to put it! Sometimes the squinting doesn't help though when you are

already frowning because your brain is not processing those double images very

well.

My advisor used to say she wanted me to call when I was leaving campus so she

could leave an hour later. She didn't want to be on the same highway as me.

Just aim for somewhere between the four lines..............

Thank goodness that's over! Mostly.

Laurel

exopthalmos

> >Date: Mon, 25 Feb 2002 23:19:20 -0000

> >

> >Hey Guys,

> >

> >I just needed to share with someone who would understand, just back

> >from the " speciality " opthlamologist and, according to him, I've

> >improved a bunch! Maybe that Masters is not out of the question

> >after all.

> >

> >He mentioned the eyelid surgery and the bone stuff. I definately

> >will not do the bone stuff. However, since the experience where a

> >sort of intoxicated woman in the grocery thought I was giving

> >her " nasty " looks I might consider the eyelid surgery. Anybody out

> >there with experience?

> >Thanks

> >Laurel

> >

>

>

>_________________________________________________________________

>Chat with friends online, try MSN Messenger: http://messenger.msn.com

>

>

>

>-------------------------------------

>The Graves' list is intended for informational purposes only and is not

>intended to replace expert medical care.

>Please consult your doctor before changing or trying new treatments.

>----------------------------------------

> DISCLAIMER

>

>Advertisments placed on this yahoo groups list does not have the

>endorsement of

>the listowner. I have no input as to what ads are attached to emails.

>-------------------------------------------------------------------------------\

-------

>

>

Link to comment
Share on other sites

> My eye problems have never been dramatic, but even so, I spent about a year

> prior to diagnosis with everyone at work constantly saying " don't worry so

> much! " when I was feeling totally calm, it used to drive me nuts as I would

Oh.. I can totally relate to this! My husband is constantly asking me

what's wrong and why I'm mad at him. I guess I just always have this look

on my face (around my eyes, specifically) that makes him think I'm pissed

off! *sigh* I can be totally happy -- and yet there is still some

feature somewhere on my face sending " pissed off " signals. I think it's

my eyebrows -- they've got this 24/7 " furrowed " look to them.

--patti

*~*~*~*~*

Patti Spicer patti@...

" The silence is as important as the noise. What gets left out is

as important as what gets included "

--Sara Lawrence-Lightfoot, author of " I've Known Rivers "

http://www.cyphergirl.com - My photography, cookbooks, thyroid info, and more!

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Share on other sites

> My eye problems have never been dramatic, but even so, I spent about a year

> prior to diagnosis with everyone at work constantly saying " don't worry so

> much! " when I was feeling totally calm, it used to drive me nuts as I would

Oh.. I can totally relate to this! My husband is constantly asking me

what's wrong and why I'm mad at him. I guess I just always have this look

on my face (around my eyes, specifically) that makes him think I'm pissed

off! *sigh* I can be totally happy -- and yet there is still some

feature somewhere on my face sending " pissed off " signals. I think it's

my eyebrows -- they've got this 24/7 " furrowed " look to them.

--patti

*~*~*~*~*

Patti Spicer patti@...

" The silence is as important as the noise. What gets left out is

as important as what gets included "

--Sara Lawrence-Lightfoot, author of " I've Known Rivers "

http://www.cyphergirl.com - My photography, cookbooks, thyroid info, and more!

Link to comment
Share on other sites

> My eye problems have never been dramatic, but even so, I spent about a year

> prior to diagnosis with everyone at work constantly saying " don't worry so

> much! " when I was feeling totally calm, it used to drive me nuts as I would

Oh.. I can totally relate to this! My husband is constantly asking me

what's wrong and why I'm mad at him. I guess I just always have this look

on my face (around my eyes, specifically) that makes him think I'm pissed

off! *sigh* I can be totally happy -- and yet there is still some

feature somewhere on my face sending " pissed off " signals. I think it's

my eyebrows -- they've got this 24/7 " furrowed " look to them.

--patti

*~*~*~*~*

Patti Spicer patti@...

" The silence is as important as the noise. What gets left out is

as important as what gets included "

--Sara Lawrence-Lightfoot, author of " I've Known Rivers "

http://www.cyphergirl.com - My photography, cookbooks, thyroid info, and more!

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Share on other sites

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