Re: cases in which photoderm doesn't work...

[Guest guest]

Hi Hazel,

Well it took several years, many doctors and countless tests to eliminate

every other possible cause before my neurologists finally came to the

conclusion of the overactive sns. There really doesn't seem to be a

definitive test to prove that this is the case. I have always flushed and

blushed, and apart from that my only other symptoms are often cold hands and

body. I've tried numerous drugs and find that clonidine is the most

effective for some relief, but not enough to control the symptoms. ETS is

an option but always a last resort, and of course has side effects sometimes

severe, to consider.

Take care,

Jen

>I was interested in what you said about the cause being an overactive

>sympathetic nervous system in your case and you also said you see a

>neurologist for this. Is it possible to definitely diagnose this cause?

Is

>it also possible to treat it and, if so, how? Are you talking about taking

>drugs like Clonodine or beta blockers to treat it?

[Guest guest]

Hi Hazel,

Well it took several years, many doctors and countless tests to eliminate

every other possible cause before my neurologists finally came to the

conclusion of the overactive sns. There really doesn't seem to be a

definitive test to prove that this is the case. I have always flushed and

blushed, and apart from that my only other symptoms are often cold hands and

body. I've tried numerous drugs and find that clonidine is the most

effective for some relief, but not enough to control the symptoms. ETS is

an option but always a last resort, and of course has side effects sometimes

severe, to consider.

Take care,

Jen

>I was interested in what you said about the cause being an overactive

>sympathetic nervous system in your case and you also said you see a

>neurologist for this. Is it possible to definitely diagnose this cause?

Is

>it also possible to treat it and, if so, how? Are you talking about taking

>drugs like Clonodine or beta blockers to treat it?

[Guest guest]

Hi Hazel,

Well it took several years, many doctors and countless tests to eliminate

every other possible cause before my neurologists finally came to the

conclusion of the overactive sns. There really doesn't seem to be a

definitive test to prove that this is the case. I have always flushed and

blushed, and apart from that my only other symptoms are often cold hands and

body. I've tried numerous drugs and find that clonidine is the most

effective for some relief, but not enough to control the symptoms. ETS is

an option but always a last resort, and of course has side effects sometimes

severe, to consider.

Take care,

Jen

>I was interested in what you said about the cause being an overactive

>sympathetic nervous system in your case and you also said you see a

>neurologist for this. Is it possible to definitely diagnose this cause?

Is

>it also possible to treat it and, if so, how? Are you talking about taking

>drugs like Clonodine or beta blockers to treat it?

[Guest guest]

Like many others in the group I believe that cea has many

causes--Heredity--Environmental--Faulty immune system--etc. I like the idea

of trying to classify the different kinds of rosacea and seeing if there are

any common linnks that could be used to determine whether certain treatments

are more likely to be effective such as the photo derm or metrojel or

antibiotics.......Maybe we could pool our money and hire someone to gather

information. Maybe Dr. Sy or others would help us come up with some

appropriate questions that we could have researched. I'd be willing to

contribute some money to help us understand this disease better. Then again

maybe some of this info is out there and I just have not heard of it\

Judy M

cases in which photoderm doesn't work...

> Hi all.

>

> It's become apparent to me that for many rosaceans, photoderm can be

> one of the best treatments available, often bringing remission of

> outwardly visible symptoms of the condition to a high degree, and for

> a significant time span. To me, it seems the majority of photoderm

> patients treated for rosacea are at least partially satisfied with

> the results, with many being overjoyed at the improvement they see.

> However, this isn't always the case. There are many accounts from

> patients who have had five, eight, even twelve or more treatments,

> and who have seen little (only 10-20%), and in some cases, absolutely

> no results whatsoever. My question is, for medical and non-medical

> folks alike, why? What is it about these unfortunate patients who,

> despite a hefty investment of time and money, fail to see any

> appreciable results? I realize a significant factor could be the

> photoderm practioners themselves and how they apply the IPL device in

> the treatment. No doubt many simply are too unexperienced,

> incompetent, or just can't seem to get the right settings for the

> patient in question. However, aside from this, there must be other

> reasons, reasons related specifically to the patient and his/her

> condition. This would seem true because many patients for whom

> photoderm doesn't work are treated by multiple practioners in and

> with multiple settings. Furthermore, many photoderm practioners may

> be able to treat with great success, say, 9 out of 10 of their

> rosacea patients, but still have 1 out of 10 that just don't seem to

> respond to the treatment. So, it's very unlikely in my eyes that the

> fault lies exclusively with the photoderm practioners. There must be

> other factors involved with how well a particular patient will

> respond to photoderm. Question is, what are these other factors?

>

> Any thoughts?

>

> BB

>

>

> -----------------------------------------------------------------

> Please read the list highlights thoroughly before posting to the whole

group. See http://rosacea.ii.net/toc.html

>

> When replying, please delete all text at the end of your email that isn't

necessary for your message.

>

> To leave the list send an email to rosacea-support-unsubscribeegroups

>

[Guest guest]

Like many others in the group I believe that cea has many

causes--Heredity--Environmental--Faulty immune system--etc. I like the idea

of trying to classify the different kinds of rosacea and seeing if there are

any common linnks that could be used to determine whether certain treatments

are more likely to be effective such as the photo derm or metrojel or

antibiotics.......Maybe we could pool our money and hire someone to gather

information. Maybe Dr. Sy or others would help us come up with some

appropriate questions that we could have researched. I'd be willing to

contribute some money to help us understand this disease better. Then again

maybe some of this info is out there and I just have not heard of it\

Judy M

cases in which photoderm doesn't work...

> Hi all.

>

> It's become apparent to me that for many rosaceans, photoderm can be

> one of the best treatments available, often bringing remission of

> outwardly visible symptoms of the condition to a high degree, and for

> a significant time span. To me, it seems the majority of photoderm

> patients treated for rosacea are at least partially satisfied with

> the results, with many being overjoyed at the improvement they see.

> However, this isn't always the case. There are many accounts from

> patients who have had five, eight, even twelve or more treatments,

> and who have seen little (only 10-20%), and in some cases, absolutely

> no results whatsoever. My question is, for medical and non-medical

> folks alike, why? What is it about these unfortunate patients who,

> despite a hefty investment of time and money, fail to see any

> appreciable results? I realize a significant factor could be the

> photoderm practioners themselves and how they apply the IPL device in

> the treatment. No doubt many simply are too unexperienced,

> incompetent, or just can't seem to get the right settings for the

> patient in question. However, aside from this, there must be other

> reasons, reasons related specifically to the patient and his/her

> condition. This would seem true because many patients for whom

> photoderm doesn't work are treated by multiple practioners in and

> with multiple settings. Furthermore, many photoderm practioners may

> be able to treat with great success, say, 9 out of 10 of their

> rosacea patients, but still have 1 out of 10 that just don't seem to

> respond to the treatment. So, it's very unlikely in my eyes that the

> fault lies exclusively with the photoderm practioners. There must be

> other factors involved with how well a particular patient will

> respond to photoderm. Question is, what are these other factors?

>

> Any thoughts?

>

> BB

>

>

> -----------------------------------------------------------------

> Please read the list highlights thoroughly before posting to the whole

group. See http://rosacea.ii.net/toc.html

>

> When replying, please delete all text at the end of your email that isn't

necessary for your message.

>

> To leave the list send an email to rosacea-support-unsubscribeegroups

>

[Guest guest]

I'm willing too. Fran

/Judith Mc wrote:

Like many others in the group I believe that cea has many

causes--Heredity--Environmental--Faulty immune system--etc. I like the idea

of trying to classify the different kinds of rosacea and seeing if there are

any common linnks that could be used to determine whether certain treatments

are more likely to be effective such as the photo derm or metrojel or

antibiotics.......Maybe we could pool our money and hire someone to gather

information. Maybe Dr. Sy or others would help us come up with some

appropriate questions that we could have researched. I'd be willing to

contribute some money to help us understand this disease better. Then again

maybe some of this info is out there and I just have not heard of it\

Judy M

cases in which photoderm doesn't work...

> Hi all.

>

> It's become apparent to me that for many rosaceans, photoderm can be

> one of the best treatments available, often bringing remission of

> outwardly visible symptoms of the condition to a high degree, and for

> a significant time span. To me, it seems the majority of photoderm

> patients treated for rosacea are at least partially satisfied with

> the results, with many being overjoyed at the improvement they see.

> However, this isn't always the case. There are many accounts from

> patients who have had five, eight, even twelve or more treatments,

> and who have seen little (only 10-20%), and in some cases, absolutely

> no results whatsoever. My question is, for medical and non-medical

> folks alike, why? What is it about these unfortunate patients who,

> despite a hefty investment of time and money, fail to see any

> appreciable results? I realize a significant factor could be the

> photoderm practioners themselves and how they apply the IPL device in

> the treatment. No doubt many simply are too unexperienced,

> incompetent, or just can't seem to get the right settings for the

> patient in question. However, aside from this, there must be other

> reasons, reasons related specifically to the patient and his/her

> condition. This would seem true because many patients for whom

> photoderm doesn't work are treated by multiple practioners in and

> with multiple settings. Furthermore, many photoderm practioners may

> be able to treat with great success, say, 9 out of 10 of their

> rosacea patients, but still have 1 out of 10 that just don't seem to

> respond to the treatment. So, it's very unlikely in my eyes that the

> fault lies exclusively with the photoderm practioners. There must be

> other factors involved with how well a particular patient will

> respond to photoderm. Question is, what are these other factors?

>

> Any thoughts?

>

> BB

>

>

> -----------------------------------------------------------------

> Please read the list highlights thoroughly before posting to the whole

group. See http://rosacea.ii.net/toc.html

>

> When replying, please delete all text at the end of your email that isn't

necessary for your message.

>

> To leave the list send an email to rosacea-support-unsubscribeegroups

>

-----------------------------------------------------------------

Please read the list highlights thoroughly before posting to the whole group.

See http://rosacea.ii.net/toc.html

When replying, please delete all text at the end of your email that isn't

necessary for your message.

To leave the list send an email to rosacea-support-unsubscribeegroups

---------------------------------

[Guest guest]

I'm willing too. Fran

/Judith Mc wrote:

Like many others in the group I believe that cea has many

causes--Heredity--Environmental--Faulty immune system--etc. I like the idea

of trying to classify the different kinds of rosacea and seeing if there are

any common linnks that could be used to determine whether certain treatments

are more likely to be effective such as the photo derm or metrojel or

antibiotics.......Maybe we could pool our money and hire someone to gather

information. Maybe Dr. Sy or others would help us come up with some

appropriate questions that we could have researched. I'd be willing to

contribute some money to help us understand this disease better. Then again

maybe some of this info is out there and I just have not heard of it\

Judy M

cases in which photoderm doesn't work...

> Hi all.

>

> It's become apparent to me that for many rosaceans, photoderm can be

> one of the best treatments available, often bringing remission of

> outwardly visible symptoms of the condition to a high degree, and for

> a significant time span. To me, it seems the majority of photoderm

> patients treated for rosacea are at least partially satisfied with

> the results, with many being overjoyed at the improvement they see.

> However, this isn't always the case. There are many accounts from

> patients who have had five, eight, even twelve or more treatments,

> and who have seen little (only 10-20%), and in some cases, absolutely

> no results whatsoever. My question is, for medical and non-medical

> folks alike, why? What is it about these unfortunate patients who,

> despite a hefty investment of time and money, fail to see any

> appreciable results? I realize a significant factor could be the

> photoderm practioners themselves and how they apply the IPL device in

> the treatment. No doubt many simply are too unexperienced,

> incompetent, or just can't seem to get the right settings for the

> patient in question. However, aside from this, there must be other

> reasons, reasons related specifically to the patient and his/her

> condition. This would seem true because many patients for whom

> photoderm doesn't work are treated by multiple practioners in and

> with multiple settings. Furthermore, many photoderm practioners may

> be able to treat with great success, say, 9 out of 10 of their

> rosacea patients, but still have 1 out of 10 that just don't seem to

> respond to the treatment. So, it's very unlikely in my eyes that the

> fault lies exclusively with the photoderm practioners. There must be

> other factors involved with how well a particular patient will

> respond to photoderm. Question is, what are these other factors?

>

> Any thoughts?

>

> BB

>

>

> -----------------------------------------------------------------

> Please read the list highlights thoroughly before posting to the whole

group. See http://rosacea.ii.net/toc.html

>

> When replying, please delete all text at the end of your email that isn't

necessary for your message.

>

> To leave the list send an email to rosacea-support-unsubscribeegroups

>

-----------------------------------------------------------------

Please read the list highlights thoroughly before posting to the whole group.

See http://rosacea.ii.net/toc.html

When replying, please delete all text at the end of your email that isn't

necessary for your message.

To leave the list send an email to rosacea-support-unsubscribeegroups

---------------------------------

[Guest guest]

I'm willing too. Fran

/Judith Mc wrote:

Like many others in the group I believe that cea has many

causes--Heredity--Environmental--Faulty immune system--etc. I like the idea

of trying to classify the different kinds of rosacea and seeing if there are

any common linnks that could be used to determine whether certain treatments

are more likely to be effective such as the photo derm or metrojel or

antibiotics.......Maybe we could pool our money and hire someone to gather

information. Maybe Dr. Sy or others would help us come up with some

appropriate questions that we could have researched. I'd be willing to

contribute some money to help us understand this disease better. Then again

maybe some of this info is out there and I just have not heard of it\

Judy M

cases in which photoderm doesn't work...

> Hi all.

>

> It's become apparent to me that for many rosaceans, photoderm can be

> one of the best treatments available, often bringing remission of

> outwardly visible symptoms of the condition to a high degree, and for

> a significant time span. To me, it seems the majority of photoderm

> patients treated for rosacea are at least partially satisfied with

> the results, with many being overjoyed at the improvement they see.

> However, this isn't always the case. There are many accounts from

> patients who have had five, eight, even twelve or more treatments,

> and who have seen little (only 10-20%), and in some cases, absolutely

> no results whatsoever. My question is, for medical and non-medical

> folks alike, why? What is it about these unfortunate patients who,

> despite a hefty investment of time and money, fail to see any

> appreciable results? I realize a significant factor could be the

> photoderm practioners themselves and how they apply the IPL device in

> the treatment. No doubt many simply are too unexperienced,

> incompetent, or just can't seem to get the right settings for the

> patient in question. However, aside from this, there must be other

> reasons, reasons related specifically to the patient and his/her

> condition. This would seem true because many patients for whom

> photoderm doesn't work are treated by multiple practioners in and

> with multiple settings. Furthermore, many photoderm practioners may

> be able to treat with great success, say, 9 out of 10 of their

> rosacea patients, but still have 1 out of 10 that just don't seem to

> respond to the treatment. So, it's very unlikely in my eyes that the

> fault lies exclusively with the photoderm practioners. There must be

> other factors involved with how well a particular patient will

> respond to photoderm. Question is, what are these other factors?

>

> Any thoughts?

>

> BB

>

>

> -----------------------------------------------------------------

> Please read the list highlights thoroughly before posting to the whole

group. See http://rosacea.ii.net/toc.html

>

> When replying, please delete all text at the end of your email that isn't

necessary for your message.

>

> To leave the list send an email to rosacea-support-unsubscribeegroups

>

-----------------------------------------------------------------

Please read the list highlights thoroughly before posting to the whole group.

See http://rosacea.ii.net/toc.html

When replying, please delete all text at the end of your email that isn't

necessary for your message.

To leave the list send an email to rosacea-support-unsubscribeegroups

---------------------------------

[Guest guest]

My PhotoDerm doc believes that some people don't see results because the

energy settings used are simply too low to do the job. I know that he uses

energy settings that are much, much higher than Dr. Bitter uses. My doctor

said that he has had patients come to him that have had a full course of

PhotoDerm (with poor clearing) performed by other doctors. It seems that

lower settings may work for quite a large number of people, but higher

settings may be needed for others. I really think that PhotoDerm should be

able to work for everyone, if individualized settings are used.

Janie K.

Re: cases in which photoderm doesn't work...

>

> >

> > My thought is that it may not work for severe cases.

> >

> Hi FF.

>

> Yes, I believe this too. It still leaves the question as to why this

> is the case. In such cases, are the responsible vessels simply too

> strong to be destroyed by photoderm? Or, having been destroyed, do

> they simply grow back immediately, and, because of the underlying

> condition, very quickly become damaged and faulty once again, leading

> right back to a red face and flushing? Further ideas would be

> appreciated.

>

> BB

>

>

>

>

>

> -----------------------------------------------------------------

> Please read the list highlights thoroughly before posting to the whole

group. See http://rosacea.ii.net/toc.html

>

> When replying, please delete all text at the end of your email that isn't

necessary for your message.

>

> To leave the list send an email to rosacea-support-unsubscribeegroups

>