Guest guest Posted April 3, 2004 Report Share Posted April 3, 2004 , How disappointing that your fistula failed. I am just so so sorry. I can't even imagine how hard it must have been on you to hear that news. I wish you the best on your decision to go with another fistula or PD. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 3, 2004 Report Share Posted April 3, 2004 , How disappointing that your fistula failed. I am just so so sorry. I can't even imagine how hard it must have been on you to hear that news. I wish you the best on your decision to go with another fistula or PD. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 3, 2004 Report Share Posted April 3, 2004 , How disappointing that your fistula failed. I am just so so sorry. I can't even imagine how hard it must have been on you to hear that news. I wish you the best on your decision to go with another fistula or PD. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 3, 2004 Report Share Posted April 3, 2004 I'm very sorry to hear that . Unfortunately, it does happen sometimes - rarely, but sometimes. The veins are a little unpredictable. Mine was supposed to develop in my lower arm, but it developed in my upper arm instead. If you go peritoneal, there's a chance that it might not give you enough dialysis, and you would have to do hemo anyway, with a chest catheter. They are usually right about that, so, if it were me, I would go with their recommendation. Because a fistula is the way to go for long term hemodialysis (rather than a chest catheter), even if you were to go on PD, then be forced to switch to hemo with a chest cath, they would still want to do another fistula surgery anyway. Why don't you ask about not having any general anesthesia? Trust me, the whole thing is easily done with local anesthetic. You don't see anything, because they put a little screen in between your head and the surgery, and you only feel some poking around. There's no pain. They can sedate you with a valium-like tranquilizer you if you want, and that's all much better than being put under. I had general anesthesia twice in my life. The first time, for a cystoscopy, and many years later, for gallbladder surgery. Boy, I would take local anytime if it's offered. But they are right. There are some people who can't get enough dialysis with PD. I'm not sure I'm qualified to be giving you advice, but that's what I would do. Another possibility might be to have both another fistula surgery AND a PD cath. That way, you could start on PD, and if it doesn't work out, you are ready for hemo. However, if your nephrologist is doubtful that PD will be adequate for you, it's unlikely he/she is wrong about that. There's only so much capacity in your peritoneal cavity. Pierre Fistula Failed > Pierre, > > My fistula, that they put on my left wrist, failed. They said they > wanted to put another one in further up on my left arm. I told them > I thought it would be better to try the peritonial operation this > time, because I didn't want to go through the general anesthesia > again and then have it fail a second time. They said they would do > the peritonial operation, but for guys as muscular as me they > generally recommend hemo. What do you think about all this? > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 3, 2004 Report Share Posted April 3, 2004 I'm very sorry to hear that . Unfortunately, it does happen sometimes - rarely, but sometimes. The veins are a little unpredictable. Mine was supposed to develop in my lower arm, but it developed in my upper arm instead. If you go peritoneal, there's a chance that it might not give you enough dialysis, and you would have to do hemo anyway, with a chest catheter. They are usually right about that, so, if it were me, I would go with their recommendation. Because a fistula is the way to go for long term hemodialysis (rather than a chest catheter), even if you were to go on PD, then be forced to switch to hemo with a chest cath, they would still want to do another fistula surgery anyway. Why don't you ask about not having any general anesthesia? Trust me, the whole thing is easily done with local anesthetic. You don't see anything, because they put a little screen in between your head and the surgery, and you only feel some poking around. There's no pain. They can sedate you with a valium-like tranquilizer you if you want, and that's all much better than being put under. I had general anesthesia twice in my life. The first time, for a cystoscopy, and many years later, for gallbladder surgery. Boy, I would take local anytime if it's offered. But they are right. There are some people who can't get enough dialysis with PD. I'm not sure I'm qualified to be giving you advice, but that's what I would do. Another possibility might be to have both another fistula surgery AND a PD cath. That way, you could start on PD, and if it doesn't work out, you are ready for hemo. However, if your nephrologist is doubtful that PD will be adequate for you, it's unlikely he/she is wrong about that. There's only so much capacity in your peritoneal cavity. Pierre Fistula Failed > Pierre, > > My fistula, that they put on my left wrist, failed. They said they > wanted to put another one in further up on my left arm. I told them > I thought it would be better to try the peritonial operation this > time, because I didn't want to go through the general anesthesia > again and then have it fail a second time. They said they would do > the peritonial operation, but for guys as muscular as me they > generally recommend hemo. What do you think about all this? > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 3, 2004 Report Share Posted April 3, 2004 I'm very sorry to hear that . Unfortunately, it does happen sometimes - rarely, but sometimes. The veins are a little unpredictable. Mine was supposed to develop in my lower arm, but it developed in my upper arm instead. If you go peritoneal, there's a chance that it might not give you enough dialysis, and you would have to do hemo anyway, with a chest catheter. They are usually right about that, so, if it were me, I would go with their recommendation. Because a fistula is the way to go for long term hemodialysis (rather than a chest catheter), even if you were to go on PD, then be forced to switch to hemo with a chest cath, they would still want to do another fistula surgery anyway. Why don't you ask about not having any general anesthesia? Trust me, the whole thing is easily done with local anesthetic. You don't see anything, because they put a little screen in between your head and the surgery, and you only feel some poking around. There's no pain. They can sedate you with a valium-like tranquilizer you if you want, and that's all much better than being put under. I had general anesthesia twice in my life. The first time, for a cystoscopy, and many years later, for gallbladder surgery. Boy, I would take local anytime if it's offered. But they are right. There are some people who can't get enough dialysis with PD. I'm not sure I'm qualified to be giving you advice, but that's what I would do. Another possibility might be to have both another fistula surgery AND a PD cath. That way, you could start on PD, and if it doesn't work out, you are ready for hemo. However, if your nephrologist is doubtful that PD will be adequate for you, it's unlikely he/she is wrong about that. There's only so much capacity in your peritoneal cavity. Pierre Fistula Failed > Pierre, > > My fistula, that they put on my left wrist, failed. They said they > wanted to put another one in further up on my left arm. I told them > I thought it would be better to try the peritonial operation this > time, because I didn't want to go through the general anesthesia > again and then have it fail a second time. They said they would do > the peritonial operation, but for guys as muscular as me they > generally recommend hemo. What do you think about all this? > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 3, 2004 Report Share Posted April 3, 2004 I am scheduled for a fistula in my left wrist in a few weeks. I have a heart condition and they want to avoid general anesthesia. They said that they will give me enough local that I wont remember anything. They also said it was a very short out-patient procedure. Sharon Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 3, 2004 Report Share Posted April 3, 2004 I am scheduled for a fistula in my left wrist in a few weeks. I have a heart condition and they want to avoid general anesthesia. They said that they will give me enough local that I wont remember anything. They also said it was a very short out-patient procedure. Sharon Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 3, 2004 Report Share Posted April 3, 2004 I am scheduled for a fistula in my left wrist in a few weeks. I have a heart condition and they want to avoid general anesthesia. They said that they will give me enough local that I wont remember anything. They also said it was a very short out-patient procedure. Sharon Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 3, 2004 Report Share Posted April 3, 2004 Just day surgery. If it's anything like mine two years ago this month, it's about an hour's procedure altogether, under just local anesthetic, then another hour, maybe less in recovery, then home. Good luck. Pierre Re: Fistula Failed > I am scheduled for a fistula in my left wrist in a few weeks. I have a heart > condition and they want to avoid general anesthesia. They said that they > will give me enough local that I wont remember anything. They also said it was a > very short out-patient procedure. > > Sharon > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 3, 2004 Report Share Posted April 3, 2004 Just day surgery. If it's anything like mine two years ago this month, it's about an hour's procedure altogether, under just local anesthetic, then another hour, maybe less in recovery, then home. Good luck. Pierre Re: Fistula Failed > I am scheduled for a fistula in my left wrist in a few weeks. I have a heart > condition and they want to avoid general anesthesia. They said that they > will give me enough local that I wont remember anything. They also said it was a > very short out-patient procedure. > > Sharon > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 3, 2004 Report Share Posted April 3, 2004 Just day surgery. If it's anything like mine two years ago this month, it's about an hour's procedure altogether, under just local anesthetic, then another hour, maybe less in recovery, then home. Good luck. Pierre Re: Fistula Failed > I am scheduled for a fistula in my left wrist in a few weeks. I have a heart > condition and they want to avoid general anesthesia. They said that they > will give me enough local that I wont remember anything. They also said it was a > very short out-patient procedure. > > Sharon > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 3, 2004 Report Share Posted April 3, 2004 Just day surgery. If it's anything like mine two years ago this month, it's about an hour's procedure altogether, under just local anesthetic, then another hour, maybe less in recovery, then home. Good luck. Pierre Re: Fistula Failed > I am scheduled for a fistula in my left wrist in a few weeks. I have a heart > condition and they want to avoid general anesthesia. They said that they > will give me enough local that I wont remember anything. They also said it was a > very short out-patient procedure. > > Sharon > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 3, 2004 Report Share Posted April 3, 2004 Just day surgery. If it's anything like mine two years ago this month, it's about an hour's procedure altogether, under just local anesthetic, then another hour, maybe less in recovery, then home. Good luck. Pierre Re: Fistula Failed > I am scheduled for a fistula in my left wrist in a few weeks. I have a heart > condition and they want to avoid general anesthesia. They said that they > will give me enough local that I wont remember anything. They also said it was a > very short out-patient procedure. > > Sharon > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 4, 2004 Report Share Posted April 4, 2004 Two years this month Pierre! How could so much time fly by?!?! Cy Re: Fistula Failed > > > > I am scheduled for a fistula in my left wrist in a few weeks. I have a > heart > > condition and they want to avoid general anesthesia. They said that they > > will give me enough local that I wont remember anything. They also said > it was a > > very short out-patient procedure. > > > > Sharon > > > > > > > > To edit your settings for the group, go to our Yahoo Group > home page: > http://groups.yahoo.com/group/iga-nephropathy/ > > To unsubcribe via email, > iga-nephropathy-unsubscribe > Visit our companion website at www.igan.ca. The site is entirely supported by donations. If you would like to help, go to: > http://www.igan.ca/id62.htm > > Thank you > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 4, 2004 Report Share Posted April 4, 2004 Two years this month Pierre! How could so much time fly by?!?! Cy Re: Fistula Failed > > > > I am scheduled for a fistula in my left wrist in a few weeks. I have a > heart > > condition and they want to avoid general anesthesia. They said that they > > will give me enough local that I wont remember anything. They also said > it was a > > very short out-patient procedure. > > > > Sharon > > > > > > > > To edit your settings for the group, go to our Yahoo Group > home page: > http://groups.yahoo.com/group/iga-nephropathy/ > > To unsubcribe via email, > iga-nephropathy-unsubscribe > Visit our companion website at www.igan.ca. The site is entirely supported by donations. If you would like to help, go to: > http://www.igan.ca/id62.htm > > Thank you > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 4, 2004 Report Share Posted April 4, 2004 Two years this month Pierre! How could so much time fly by?!?! Cy Re: Fistula Failed > > > > I am scheduled for a fistula in my left wrist in a few weeks. I have a > heart > > condition and they want to avoid general anesthesia. They said that they > > will give me enough local that I wont remember anything. They also said > it was a > > very short out-patient procedure. > > > > Sharon > > > > > > > > To edit your settings for the group, go to our Yahoo Group > home page: > http://groups.yahoo.com/group/iga-nephropathy/ > > To unsubcribe via email, > iga-nephropathy-unsubscribe > Visit our companion website at www.igan.ca. The site is entirely supported by donations. If you would like to help, go to: > http://www.igan.ca/id62.htm > > Thank you > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 5, 2004 Report Share Posted April 5, 2004 I've never heard of a Q-port specifically being used for hemodialysis, but a Perma-Cath is similar, as far as I know, and they do use that. It won't give you the optimal flow you need for efficient hemodialysis though. They use those in patients who, for whatever reason, can't have a working fistula. I see many patients on Perma-Caths every time I go into dialysis, but they all seem to be in the process of getting or developing a fistula. I know this one older man who just can't seem to develop a fistula that works. Pierre Re: Fistula Failed > Pierre, When I was in the hospital in 2002 and had to have several IV's they put in a Q port in my chest. Can that be used for hemo dialysis? > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 5, 2004 Report Share Posted April 5, 2004 I've never heard of a Q-port specifically being used for hemodialysis, but a Perma-Cath is similar, as far as I know, and they do use that. It won't give you the optimal flow you need for efficient hemodialysis though. They use those in patients who, for whatever reason, can't have a working fistula. I see many patients on Perma-Caths every time I go into dialysis, but they all seem to be in the process of getting or developing a fistula. I know this one older man who just can't seem to develop a fistula that works. Pierre Re: Fistula Failed > Pierre, When I was in the hospital in 2002 and had to have several IV's they put in a Q port in my chest. Can that be used for hemo dialysis? > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 5, 2004 Report Share Posted April 5, 2004 Sharon, Good Luck with your procedure. Let us know your experiences, because we're very interested. What are their concerns for you with the heart condition and the dialysis treatments? Keep us posted on how you're feeling, when you'll start dialysis and how you're doing after you start. I'll be sending positive vibes and energy your way! Pierre, I can't believe it has been two years since your procedure! Has it been fast for you or does it seems like it's been longer than 2 years? Connie Re: Fistula Failed Just day surgery. If it's anything like mine two years ago this month, it's about an hour's procedure altogether, under just local anesthetic, then another hour, maybe less in recovery, then home. Good luck. Pierre Re: Fistula Failed > I am scheduled for a fistula in my left wrist in a few weeks. I have a heart > condition and they want to avoid general anesthesia. They said that they > will give me enough local that I wont remember anything. They also said it was a > very short out-patient procedure. > > Sharon > > To edit your settings for the group, go to our Yahoo Group home page: http://groups.yahoo.com/group/iga-nephropathy/ To unsubcribe via email, iga-nephropathy-unsubscribe Visit our companion website at www.igan.ca. The site is entirely supported by donations. If you would like to help, go to: http://www.igan.ca/id62.htm Thank you ---------------------------------------------------------------------------- -- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 5, 2004 Report Share Posted April 5, 2004 Sharon, Good Luck with your procedure. Let us know your experiences, because we're very interested. What are their concerns for you with the heart condition and the dialysis treatments? Keep us posted on how you're feeling, when you'll start dialysis and how you're doing after you start. I'll be sending positive vibes and energy your way! Pierre, I can't believe it has been two years since your procedure! Has it been fast for you or does it seems like it's been longer than 2 years? Connie Re: Fistula Failed Just day surgery. If it's anything like mine two years ago this month, it's about an hour's procedure altogether, under just local anesthetic, then another hour, maybe less in recovery, then home. Good luck. Pierre Re: Fistula Failed > I am scheduled for a fistula in my left wrist in a few weeks. I have a heart > condition and they want to avoid general anesthesia. They said that they > will give me enough local that I wont remember anything. They also said it was a > very short out-patient procedure. > > Sharon > > To edit your settings for the group, go to our Yahoo Group home page: http://groups.yahoo.com/group/iga-nephropathy/ To unsubcribe via email, iga-nephropathy-unsubscribe Visit our companion website at www.igan.ca. The site is entirely supported by donations. If you would like to help, go to: http://www.igan.ca/id62.htm Thank you ---------------------------------------------------------------------------- -- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 5, 2004 Report Share Posted April 5, 2004 Sharon, Good Luck with your procedure. Let us know your experiences, because we're very interested. What are their concerns for you with the heart condition and the dialysis treatments? Keep us posted on how you're feeling, when you'll start dialysis and how you're doing after you start. I'll be sending positive vibes and energy your way! Pierre, I can't believe it has been two years since your procedure! Has it been fast for you or does it seems like it's been longer than 2 years? Connie Re: Fistula Failed Just day surgery. If it's anything like mine two years ago this month, it's about an hour's procedure altogether, under just local anesthetic, then another hour, maybe less in recovery, then home. Good luck. Pierre Re: Fistula Failed > I am scheduled for a fistula in my left wrist in a few weeks. I have a heart > condition and they want to avoid general anesthesia. They said that they > will give me enough local that I wont remember anything. They also said it was a > very short out-patient procedure. > > Sharon > > To edit your settings for the group, go to our Yahoo Group home page: http://groups.yahoo.com/group/iga-nephropathy/ To unsubcribe via email, iga-nephropathy-unsubscribe Visit our companion website at www.igan.ca. The site is entirely supported by donations. If you would like to help, go to: http://www.igan.ca/id62.htm Thank you ---------------------------------------------------------------------------- -- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 5, 2004 Report Share Posted April 5, 2004 I am supposed to have this done soon. I have not even visited the dialysis center because alltis creeps me out. My nephrologist sees me Wednesday and will probably ask me if I ave gone.Question: Why does it have to be put in so early? I willprobably notbe ondialysis for a year. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 5, 2004 Report Share Posted April 5, 2004 I am supposed to have this done soon. I have not even visited the dialysis center because alltis creeps me out. My nephrologist sees me Wednesday and will probably ask me if I ave gone.Question: Why does it have to be put in so early? I willprobably notbe ondialysis for a year. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 5, 2004 Report Share Posted April 5, 2004 For some reason, it seems like it has gone by very fast. Pierre RE: Fistula Failed [snipped] > Pierre, > I can't believe it has been two years since your procedure! Has it been > fast for you or does it seems like it's been longer than 2 years? > > Connie Quote Link to comment Share on other sites More sharing options...
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