Re: new to group - lots of questions ! /

[Guest guest]

Hello again

When you fly back to the states, maybe you can set up an appointment

with a pediatric neuro surgeon. They can evaluate your daughter, and

see how severe she is. That way atleast you know if surgery was even

an option. they really don't even consider surgery unles it is

severe enough. I am sure that your daughter is beautiful, no matter

what, and please do not blame yourself in any way. We all trust our

docs, and sometimes they mislead us. That is not your fault. Plagio

is well known, but for some reason the doctors are ill educated about

the tx options, or just very stubborn thinking it will all just go

away.

Sandy Willow's Mom

Torticollis resolved

Cranio Germany Grad

http://www.geocities.com/Samipa74/Willow_Lanette.html

> >

> > Hello,

> >

> > My daughter, who is now nearly 4 years old, was born with a very

> > distorted head. Her left eye was much bigger than the right, her

> > left temple protrudes while the right is concave (normal?) and

the

> > left side of her forhead is flat (in fact, it seems as if she has

> > little to no brow on her left side). In the hospital shortly

after

> > she was born the doctor was concerned with her head shape and

> ordered

> > brain scans (he asked me if I had had an amniocentesis in order

to

> > rule out downs syndrome). The brain scans showed no sign of

brain

> > damage - and I am happy to say she is a happy and very

intelligent

> > child.

> >

> > At the time of her birth and shortly after I urged the doctor to

> find

> > out why her face/head was so assymetrical. I also noticed that

> when

> > she was held up to a mirror that her assymetry looked even worse

> (why

> > is that?) and this gave me great concern. The doctor ordered x-

> rays

> > to rule out fused plates but after that showed that her plates

were

> > fine he decided she would grow out of it. Over the years her

> problem

> > has in fact diminished from the severe distortion it was at

birth,

> > but not entirely - I would guess that it is around 40-50%

better.

> >

> > The distance between her right corner of her mouth and right eye

is

> > significantly smaller than the distance between her left corner

of

> > her mouth and left eye. Also, her left temple is still popped

out

> > and not concave like the right. Finally, when looking down onto

> the

> > top of her head, the head is not oval and so flat on the left

side

> > that I can see the top of her left eye (but not the right) and

the

> > left side of her nose.

> >

> > My own research brought me to this condition, plagiocephaly, and

it

> > seems to me that she is a classic case. Her birth was very

> difficult

> > and a venteuse (vacuum extractor) was used. She was sideways in

> > utero (and I have what is termed a " tipped uterus " ). Can plagio

> > occur in utero or from a venteuse birth? Her doctor and my

> > gynecologist (who happen to be husband and wife) insist the birth

> did

> > not cause her head shape and they did ask me if this shape exists

> in

> > my family, leading me to believe that it could be genetic. But

no

> > one in my or my husband's family has this problem. Is it too

late,

> > if my daughter does have plagio, for treatment? If not, is

surgery

> > the only option at this point? I do not want her becoming a

> teenager

> > and resenting me for not doing anything - I want to do what is

best

> > for her but surgery seems so extreme for what seems to be an

> > aesthetic problem only. But is that true? As she grows, could

her

> > brain development start to be impaired - I refer back to her very

> > flat forehead (on the left side)? I have always been concerned

> about

> > this problem but her condition did improve over time so I thought

> it

> > would continue to self-correct until completely corrected.

> However,

> > I recently realized, after looking at several photos that the

> > improvement had stopped. What do I do now? We live in Brussels,

> > Belgium but travel regularly to Flroida's west coast and to

Boston

> to

> > visit family. Are there specialists in any of these areas to

whom

> I

> > could take her? Any help, advice or answers to my many questions

> > would be gratefully received.

> >

> > Thank you,

> > C.

>

>

>

>

>

> For more plagio info