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yay

>

> ,

> I am so glad she is better I hope you find good help with the

> behavior.

> Hugs,

> Crystal and Eva (11 and half month old charger)

>

>

>

> >

> > has been doing great and has been able to remain at home.

> We are not using the pulmozyme anymore at this time. She sees her

> pulmonologist on Monday and he will determine if she can stop the IV

> antibiotics. She is no longer needing the oxygen when she is

> sleeping and is pretty much back to her normal self. Her behaviors

> have returned to normal as well. I am happy that she is better, but

> I really enjoyed not having all the behaviors while she was sick.

> lol.

> >

> > My husband and I are thinking about taking her back to the

> behavioral specialist in IA because we are exhausted. Most people

> see her a short time and say that it is typical toddler behavior.

> Well, I'm with her all day and I have two other children. Either

> they were angels and I know that's not the case or her behaviors are

> not typical. I should not have to fight for 20 min to put a diaper

> on her. By the middle of our day, I am exhausted and at a loss for

> what to do. She is becoming more and more aggressive with Marissa

> and I and she is only 3. I feel like we need to do something now

> before she is totally out of control.

> >

> > Besides the behaviors, she is doing very well and being her

> happy self.

> >

> >

> > Mom to 3 yrs. CHARGE

> >

> >

> >

> > ---------------------------------

> > New Yahoo! Messenger with Voice. Call regular phones from your PC

> and save big.

> >

> >

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yay

>

> ,

> I am so glad she is better I hope you find good help with the

> behavior.

> Hugs,

> Crystal and Eva (11 and half month old charger)

>

>

>

> >

> > has been doing great and has been able to remain at home.

> We are not using the pulmozyme anymore at this time. She sees her

> pulmonologist on Monday and he will determine if she can stop the IV

> antibiotics. She is no longer needing the oxygen when she is

> sleeping and is pretty much back to her normal self. Her behaviors

> have returned to normal as well. I am happy that she is better, but

> I really enjoyed not having all the behaviors while she was sick.

> lol.

> >

> > My husband and I are thinking about taking her back to the

> behavioral specialist in IA because we are exhausted. Most people

> see her a short time and say that it is typical toddler behavior.

> Well, I'm with her all day and I have two other children. Either

> they were angels and I know that's not the case or her behaviors are

> not typical. I should not have to fight for 20 min to put a diaper

> on her. By the middle of our day, I am exhausted and at a loss for

> what to do. She is becoming more and more aggressive with Marissa

> and I and she is only 3. I feel like we need to do something now

> before she is totally out of control.

> >

> > Besides the behaviors, she is doing very well and being her

> happy self.

> >

> >

> > Mom to 3 yrs. CHARGE

> >

> >

> >

> > ---------------------------------

> > New Yahoo! Messenger with Voice. Call regular phones from your PC

> and save big.

> >

> >

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  • 2 months later...
Guest guest

Terri,

I would be willing to bet that the stent is the reason for your improvement. I have never known a true stricture to reopen on its own. I have had stents improve my situation many times, and have never regretted it -- well, not once it was removed. :-)

I'm glad to hear you are feeling so much better and that you took the time to give us the update!

(MO)PSC & UC '84, chronic pancreatitis '97, listed for tx 06/05for details see www.caringbridge.org/visit/melaniejs

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Terri,

I would be willing to bet that the stent is the reason for your improvement. I have never known a true stricture to reopen on its own. I have had stents improve my situation many times, and have never regretted it -- well, not once it was removed. :-)

I'm glad to hear you are feeling so much better and that you took the time to give us the update!

(MO)PSC & UC '84, chronic pancreatitis '97, listed for tx 06/05for details see www.caringbridge.org/visit/melaniejs

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Terri,

I would be willing to bet that the stent is the reason for your improvement. I have never known a true stricture to reopen on its own. I have had stents improve my situation many times, and have never regretted it -- well, not once it was removed. :-)

I'm glad to hear you are feeling so much better and that you took the time to give us the update!

(MO)PSC & UC '84, chronic pancreatitis '97, listed for tx 06/05for details see www.caringbridge.org/visit/melaniejs

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Terri,

I don't have any answers for you, but I wanted to say hey back to you and let

you know that I am glad to hear from you. I also am glad that you are feeling

better and do hope that you find some answers. Please keep in touch!

LINDA

(Mom of Suzanne, 17; IBD 1/04; PSC 3/04)

-------------- Original message ----------------------

> Hey all

> Hope everyone is doing great.

> It has been a hectic month for me

> love Terri(17)

> South Africa

> Diagnosed 2002

>

Send instant messages to your online friends http://uk.messenger.yahoo.com

Hey all Hope everyone is doing great. It has been a hectic month for me and just thought would give a bit of an update.About a month ago I started having continual pain in the usual place(upper right) and after about 2 weeks with it I was starting to not cope with matric and the health. I knew I had to get this pain away. So after speaking to my Dr he said we can try a stent cause that helped it last year. After putting it in, I was fine between meals beside for occasional cramping but after I ate anything I would be in pain. After having the stent in for 2 weeks I had lost 3 kilos cause I kinda stopped eating due to it being sore.So yesterday had stent out and not only is it not sore when I eat but I also don't have any continual pain. So feeling great. I just wanted to ask a question do you think that the stent stretched the bile duct and that is why

the continual pain is gone, or do you think it is would have gone by itself without the stent? Sorry bout the long email, just so happy feeling beter and wanted to give you guys and update. HOPE EVERY1 IS DOING WELL love Terri(17) South Africa Diagnosed 2002Send instant messages to your online friends http://uk.messenger.yahoo.com

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Terri,

I don't have any answers for you, but I wanted to say hey back to you and let

you know that I am glad to hear from you. I also am glad that you are feeling

better and do hope that you find some answers. Please keep in touch!

LINDA

(Mom of Suzanne, 17; IBD 1/04; PSC 3/04)

-------------- Original message ----------------------

> Hey all

> Hope everyone is doing great.

> It has been a hectic month for me

> love Terri(17)

> South Africa

> Diagnosed 2002

>

Send instant messages to your online friends http://uk.messenger.yahoo.com

Hey all Hope everyone is doing great. It has been a hectic month for me and just thought would give a bit of an update.About a month ago I started having continual pain in the usual place(upper right) and after about 2 weeks with it I was starting to not cope with matric and the health. I knew I had to get this pain away. So after speaking to my Dr he said we can try a stent cause that helped it last year. After putting it in, I was fine between meals beside for occasional cramping but after I ate anything I would be in pain. After having the stent in for 2 weeks I had lost 3 kilos cause I kinda stopped eating due to it being sore.So yesterday had stent out and not only is it not sore when I eat but I also don't have any continual pain. So feeling great. I just wanted to ask a question do you think that the stent stretched the bile duct and that is why

the continual pain is gone, or do you think it is would have gone by itself without the stent? Sorry bout the long email, just so happy feeling beter and wanted to give you guys and update. HOPE EVERY1 IS DOING WELL love Terri(17) South Africa Diagnosed 2002Send instant messages to your online friends http://uk.messenger.yahoo.com

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Guest guest

Terri,

I don't have any answers for you, but I wanted to say hey back to you and let

you know that I am glad to hear from you. I also am glad that you are feeling

better and do hope that you find some answers. Please keep in touch!

LINDA

(Mom of Suzanne, 17; IBD 1/04; PSC 3/04)

-------------- Original message ----------------------

> Hey all

> Hope everyone is doing great.

> It has been a hectic month for me

> love Terri(17)

> South Africa

> Diagnosed 2002

>

Send instant messages to your online friends http://uk.messenger.yahoo.com

Hey all Hope everyone is doing great. It has been a hectic month for me and just thought would give a bit of an update.About a month ago I started having continual pain in the usual place(upper right) and after about 2 weeks with it I was starting to not cope with matric and the health. I knew I had to get this pain away. So after speaking to my Dr he said we can try a stent cause that helped it last year. After putting it in, I was fine between meals beside for occasional cramping but after I ate anything I would be in pain. After having the stent in for 2 weeks I had lost 3 kilos cause I kinda stopped eating due to it being sore.So yesterday had stent out and not only is it not sore when I eat but I also don't have any continual pain. So feeling great. I just wanted to ask a question do you think that the stent stretched the bile duct and that is why

the continual pain is gone, or do you think it is would have gone by itself without the stent? Sorry bout the long email, just so happy feeling beter and wanted to give you guys and update. HOPE EVERY1 IS DOING WELL love Terri(17) South Africa Diagnosed 2002Send instant messages to your online friends http://uk.messenger.yahoo.com

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  • 2 years later...
Guest guest

MY sweet Joyce,

You are such a wonderful woman, do you even realize how wonderful you are? Generous, sweet, kindhearted, giving, beautiful, thoughtful, compassionate for just a few. I pray that God Himself reaches down and gives you peace and relief.

Love,

Vicky81856Gas prices getting you down? Search AOL Autos for fuel-efficient used cars.

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Guest guest

MY sweet Joyce,

You are such a wonderful woman, do you even realize how wonderful you are? Generous, sweet, kindhearted, giving, beautiful, thoughtful, compassionate for just a few. I pray that God Himself reaches down and gives you peace and relief.

Love,

Vicky81856Gas prices getting you down? Search AOL Autos for fuel-efficient used cars.

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Guest guest

MY sweet Joyce,

You are such a wonderful woman, do you even realize how wonderful you are? Generous, sweet, kindhearted, giving, beautiful, thoughtful, compassionate for just a few. I pray that God Himself reaches down and gives you peace and relief.

Love,

Vicky81856Gas prices getting you down? Search AOL Autos for fuel-efficient used cars.

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Joyce

Oh you have such a right to be angry at it all. I think thats got to be

the toughest part when you're semi-adjusted to dealing with the PF and

even somewhat the PH and then other things hit. I think sometimes that I

sort of have an idea what to expect from the disease itself but not all

the peripheral stuff. It seems so unfair that you've had so many things

to deal with. We're here thinking of you and always feel free to vent

and share. I'm in much better condition but I can tell you if I'd been

hit with the infection and the rash and the back and the knees and the

blood taking and doctors, I'd be wanting to scream loud enough to wake

up. Hoping some of it clears up fast.

>

>

> Just wanted you guys to know that I haven't forgotten you. I have just

> been so sick. This afternoon is the first time that I have felt even

> semi-normal in a long time. I am fighting off some horrible infection.

> It is in my lungs, but also in my intestines. I have had no desire to

> eat. Today, I got hungry and ate some food.

>

> I am taking so many drugs and powerful ones. I am sure they have

> contributed to my ill health. I pray that I continue to improve. I

> have lost all ability to be tolerant with sickness and especially

pain.

> I just can't handle any more.

>

> I still have cultures out. These docs have drained gallons of blood.

> Now, they are all off for a long holiday weekend.

>

> When you think things can not get worse, they do. A few days ago my

> back " went out " . I am so weak but did the exercises anyway. Then I

> began having horrendous knee pain. I had Lortab here and that is the

> only reason that I have not committed Hary-Cary. My Lupus Rash has

> been getting better with treatment, but today we saw new ones coming.

> Aaargh!

>

> This whole last round of illness has just wiped me out. My spirit is

> weak. My sense of humor is lost. I hate being sick. I hate it!!

>

> Keep me in your prayers. I am down, but not out!

>

> Hugs, Joyce D.

>

> Pulmonary Fibrosis 1997 Bronchiectasis 2004 Pulmonary Hypertension

> 2008

> Mixed Connective Tissue Disease (Lupus, RA, Sjogren's, etc) Rejected

> for Transplant 2006

> .....I will not forget you. Behold, I have engraved you on the palm of

> my hands. Isaiah 49: 15-16

>

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I remain prayful for you dear Joyce. You are such a soldier. Infections are really a strength zapper. I'm glad you could finally eat something.

You have handled so much for so long.

Do you know a reason why new rash is coming up? OMG I hope your body is not reacting to something else!

DAMNIT! is all I know to say.

I pray for you every day.

MamaSher, age 69. IPF 3-06, OR./ NasturtiumsDon't fret about tomorrow, God is already there!

Update

Just wanted you guys to know that I haven't forgotten you. I have just been so sick. This afternoon is the first time that I have felt even semi-normal in a long time. I am fighting off some horrible infection. It is in my lungs, but also in my intestines. I have had no desire to eat. Today, I got hungry and ate some food.

I am taking so many drugs and powerful ones. I am sure they have contributed to my ill health. I pray that I continue to improve. I have lost all ability to be tolerant with sickness and especially pain. I just can't handle any more.

I still have cultures out. These docs have drained gallons of blood. Now, they are all off for a long holiday weekend.

When you think things can not get worse, they do. A few days ago my back "went out". I am so weak but did the exercises anyway. Then I began having horrendous knee pain. I had Lortab here and that is the only reason that I have not committed Hary-Cary. My Lupus Rash has been getting better with treatment, but today we saw new ones coming. Aaargh!

This whole last round of illness has just wiped me out. My spirit is weak. My sense of humor is lost. I hate being sick. I hate it!!

Keep me in your prayers. I am down, but not out!

Hugs, Joyce D.Pulmonary Fibrosis 1997 Bronchiectasis 2004 Pulmonary Hypertension 2008 Mixed Connective Tissue Disease (Lupus, RA, Sjogren's, etc) Rejected for Transplant 2006 .....I will not forget you. Behold, I have engraved you on the palm of my hands. Isaiah 49: 15-16

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I remain prayful for you dear Joyce. You are such a soldier. Infections are really a strength zapper. I'm glad you could finally eat something.

You have handled so much for so long.

Do you know a reason why new rash is coming up? OMG I hope your body is not reacting to something else!

DAMNIT! is all I know to say.

I pray for you every day.

MamaSher, age 69. IPF 3-06, OR./ NasturtiumsDon't fret about tomorrow, God is already there!

Update

Just wanted you guys to know that I haven't forgotten you. I have just been so sick. This afternoon is the first time that I have felt even semi-normal in a long time. I am fighting off some horrible infection. It is in my lungs, but also in my intestines. I have had no desire to eat. Today, I got hungry and ate some food.

I am taking so many drugs and powerful ones. I am sure they have contributed to my ill health. I pray that I continue to improve. I have lost all ability to be tolerant with sickness and especially pain. I just can't handle any more.

I still have cultures out. These docs have drained gallons of blood. Now, they are all off for a long holiday weekend.

When you think things can not get worse, they do. A few days ago my back "went out". I am so weak but did the exercises anyway. Then I began having horrendous knee pain. I had Lortab here and that is the only reason that I have not committed Hary-Cary. My Lupus Rash has been getting better with treatment, but today we saw new ones coming. Aaargh!

This whole last round of illness has just wiped me out. My spirit is weak. My sense of humor is lost. I hate being sick. I hate it!!

Keep me in your prayers. I am down, but not out!

Hugs, Joyce D.Pulmonary Fibrosis 1997 Bronchiectasis 2004 Pulmonary Hypertension 2008 Mixed Connective Tissue Disease (Lupus, RA, Sjogren's, etc) Rejected for Transplant 2006 .....I will not forget you. Behold, I have engraved you on the palm of my hands. Isaiah 49: 15-16

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Dearest Joyce,

The thing is, that you DO pick up the towel, over & OVER again...you & Vicky, & Gwynne, Jane & Peggy, Beth, Zena & all the others who've had SUCH a struggle to stay onboard..Tina is another that comes quickly to mind... Kerry, Kathie. Your lives are throwing out HUGE challenges & yet here you all are sharing your journeys with us.

We DO hold you up as our Guides on this precarious Path.

Thank you,

in Oz > >> > MY sweet Joyce,> >> > You are such a wonderful woman, do you even realize how wonderful you> are?> > Generous, sweet, kindhearted, giving, beautiful, thoughtful,> compassionate for> > just a few. I pray that God Himself reaches down and gives you peace> and> > relief.> >> > Love,> >> > Vicky81856> >> >> >> > **************Gas prices getting you down? Search AOL Autos for> > fuel-efficient used cars.> (http://autos.aol.com/used?ncid=aolaut00050000000007)> >>

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Oh, Joyce, I am so sorry you feel so bad!! Please know I am thinking of you always and you are in my thoughts and prayers. You are so more advanced than me and you are one of the bravest people I know!! Hang in there and you will get through this. I am here if you need a shoulder!! CaroASTHMA 1976,OSTEOARTHRITIS 2002, COPD 02/06, IPF 08/07, UIP 01/08, RHEUMATOID ARTHRITIS 03/08Mississippi

Subject: Re: UpdateTo: Breathe-Support Date: Friday, July 4, 2008, 8:23 AM

Joyce, what a terrible time for you. I only wish I could help you with something more powrful than just words. That power is invested in someone greatrer than all of us. I will beseech in your behalf that you be given some relief.

Jack

Update

Just wanted you guys to know that I haven't forgotten you. I have just been so sick. This afternoon is the first time that I have felt even semi-normal in a long time. I am fighting off some horrible infection. It is in my lungs, but also in my intestines. I have had no desire to eat. Today, I got hungry and ate some food.

I am taking so many drugs and powerful ones. I am sure they have contributed to my ill health. I pray that I continue to improve. I have lost all ability to be tolerant with sickness and especially pain. I just can't handle any more.

I still have cultures out. These docs have drained gallons of blood. Now, they are all off for a long holiday weekend.

When you think things can not get worse, they do. A few days ago my back "went out". I am so weak but did the exercises anyway. Then I began having horrendous knee pain. I had Lortab here and that is the only reason that I have not committed Hary-Cary. My Lupus Rash has been getting better with treatment, but today we saw new ones coming. Aaargh!

This whole last round of illness has just wiped me out. My spirit is weak. My sense of humor is lost. I hate being sick. I hate it!!

Keep me in your prayers. I am down, but not out!

Hugs, Joyce D.Pulmonary Fibrosis 1997 Bronchiectasis 2004 Pulmonary Hypertension 2008 Mixed Connective Tissue Disease (Lupus, RA, Sjogren's, etc) Rejected for Transplant 2006 .....I will not forget you. Behold, I have engraved you on the palm of my hands. Isaiah 49: 15-16

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Oh, Joyce, I am so sorry you feel so bad!! Please know I am thinking of you always and you are in my thoughts and prayers. You are so more advanced than me and you are one of the bravest people I know!! Hang in there and you will get through this. I am here if you need a shoulder!! CaroASTHMA 1976,OSTEOARTHRITIS 2002, COPD 02/06, IPF 08/07, UIP 01/08, RHEUMATOID ARTHRITIS 03/08Mississippi

Subject: Re: UpdateTo: Breathe-Support Date: Friday, July 4, 2008, 8:23 AM

Joyce, what a terrible time for you. I only wish I could help you with something more powrful than just words. That power is invested in someone greatrer than all of us. I will beseech in your behalf that you be given some relief.

Jack

Update

Just wanted you guys to know that I haven't forgotten you. I have just been so sick. This afternoon is the first time that I have felt even semi-normal in a long time. I am fighting off some horrible infection. It is in my lungs, but also in my intestines. I have had no desire to eat. Today, I got hungry and ate some food.

I am taking so many drugs and powerful ones. I am sure they have contributed to my ill health. I pray that I continue to improve. I have lost all ability to be tolerant with sickness and especially pain. I just can't handle any more.

I still have cultures out. These docs have drained gallons of blood. Now, they are all off for a long holiday weekend.

When you think things can not get worse, they do. A few days ago my back "went out". I am so weak but did the exercises anyway. Then I began having horrendous knee pain. I had Lortab here and that is the only reason that I have not committed Hary-Cary. My Lupus Rash has been getting better with treatment, but today we saw new ones coming. Aaargh!

This whole last round of illness has just wiped me out. My spirit is weak. My sense of humor is lost. I hate being sick. I hate it!!

Keep me in your prayers. I am down, but not out!

Hugs, Joyce D.Pulmonary Fibrosis 1997 Bronchiectasis 2004 Pulmonary Hypertension 2008 Mixed Connective Tissue Disease (Lupus, RA, Sjogren's, etc) Rejected for Transplant 2006 .....I will not forget you. Behold, I have engraved you on the palm of my hands. Isaiah 49: 15-16

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  • 1 year later...

Well a lot has been happening on the "Mike" front. First, it seems the accountant who was supposed to deposit the $ into MY account deposited into HIS and absconded, is currently being "sought" which does not help me in the least (Oh don't worry, he can't get anything from my account, doesn't have the ability to do so and there is a *0* balance in that account anyway...if I thought he could I'd just close it, I don't use it anyway...). Today Mike got out of the hospital, finally, we talked (IM'd), he is, thanks to his accountant, short of funds and desperately trying to come up with the means to fly back home. He wants to get home next week. He knows, of course, that I am broke, so he isn't asking me to "help" knowing full well I can't. He said, though, that if he can't come up with the $ for the flight, he'll have no choice but to stay there and continue working, SO if that is what he has to do, then that is what he has to do. Meantime, he gave me his address and showed me the house (on Google maps), if that really IS his house, well, it is yummy! And in a very VERY nice neighborhood. He was tired and still hurting pretty bad, feeling very weak, I said well of course, you've been in hospital for almost a week, that'll take it out of you. But at least he is well enough to be released, and hopefully will be able to come home sooner rather then later. He is very upset about all of this and kept saying that he has never been in this position before. I SO understand that! ~*~Hugs~*~ ~*~Akiba~*~

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When he planned on the money going to you, he must have known what his balance in his checkbook was. Its wierd with all the expensive presents he was sending that he wou;dn't have enough money left to bring him home. How about his employer? I would think they would pay for the employees to go to and from jobs. Just thinking.

Hugs

nne

Breast Cancer Patients Soul Mates for Lifehttp://breastcancerpatientssoulmatesforlife.bravehost.com/ Anxiety Depression and Breast Cancerhttp://health.groups.yahoo.com/group/AnxietyDepressionandBreastCancerAngel Feather Loomerwww.angelfeatherloomer.blogspot.comThe Cancer Clubwww.cancerclub.com

-----Original Message-----From: akyba@...Sent: Tue, 24 Nov 2009 16:00:14 -0500 (Eastern Standard Time)To: mserslife , wayofthewingedheart Subject: Update

Well a lot has been happening on the "Mike" front. First, it seems the accountant who was supposed to deposit the $ into MY account deposited into HIS and absconded, is currently being "sought" which does not help me in the least (Oh don't worry, he can't get anything from my account, doesn't have the ability to do so and there is a *0* balance in that account anyway...if I thought he could I'd just close it, I don't use it anyway...). Today Mike got out of the hospital, finally, we talked (IM'd), he is, thanks to his accountant, short of funds and desperately trying to come up with the means to fly back home. He wants to get home next week. He knows, of course, that I am broke, so he isn't asking me to "help" knowing full well I can't. He said, though, that if he can't come up with the $ for the flight, he'll have no choice but to stay there and continue working, SO if that is what he has to do, then that is what he has to do. Meantime, he gave me his address and showed me the house (on Google maps), if that really IS his house, well, it is yummy! And in a very VERY nice neighborhood. He was tired and still hurting pretty bad, feeling very weak, I said well of course, you've been in hospital for almost a week, that'll take it out of you. But at least he is well enough to be released, and hopefully will be able to come home sooner rather then later. He is very upset about all of this and kept saying that he has never been in this position before. I SO understand that!

~*~Hugs~*~

~*~Akiba~*~

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Watch dolphins, sharks & orcas on your desktop! Check it out at www.inbox.com/marineaquarium

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  • 4 weeks later...

Maybe this will be the right step, Donna - hopefully the right " calm down "

med will break the pain cycle.

Keeping him in prayers.

in WY

" You get a wonderful view from the point of no return... "    

http://www.flickr.com/photos/liadains_fancies

http://practical-blackwork.blogspot.com    

http://practicalblackwork.com

update

 

I got a call from the clinic this morning. Mara is going to make a psych

referral. The new pain that Nick is experiencing is an electric shock type.

He said that if it were happening in his legs, it would not bother him. But,

it is happening in his chest and that scares him. He becomes anxious. I

think Nick just needs something to help him calm down, but these issues have

been going on so long that he's become extremely emotional. He just wants

the pain to quit. He said if the pain were to quit, he would feel so much

better. Right now, he's lost all confidence in the medical profession and he

thinks that he will have to deal with this forever with no hope for

recovery. I've tried to be encouraging to help him over these rough spots.

I just don't want Nick to be labeled as a " nut case " . All he needs is

something to help him calm down.

Donna in WA

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Maybe this will be the right step, Donna - hopefully the right " calm down "

med will break the pain cycle.

Keeping him in prayers.

in WY

" You get a wonderful view from the point of no return... "    

http://www.flickr.com/photos/liadains_fancies

http://practical-blackwork.blogspot.com    

http://practicalblackwork.com

update

 

I got a call from the clinic this morning. Mara is going to make a psych

referral. The new pain that Nick is experiencing is an electric shock type.

He said that if it were happening in his legs, it would not bother him. But,

it is happening in his chest and that scares him. He becomes anxious. I

think Nick just needs something to help him calm down, but these issues have

been going on so long that he's become extremely emotional. He just wants

the pain to quit. He said if the pain were to quit, he would feel so much

better. Right now, he's lost all confidence in the medical profession and he

thinks that he will have to deal with this forever with no hope for

recovery. I've tried to be encouraging to help him over these rough spots.

I just don't want Nick to be labeled as a " nut case " . All he needs is

something to help him calm down.

Donna in WA

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Maybe this will be the right step, Donna - hopefully the right " calm down "

med will break the pain cycle.

Keeping him in prayers.

in WY

" You get a wonderful view from the point of no return... "    

http://www.flickr.com/photos/liadains_fancies

http://practical-blackwork.blogspot.com    

http://practicalblackwork.com

update

 

I got a call from the clinic this morning. Mara is going to make a psych

referral. The new pain that Nick is experiencing is an electric shock type.

He said that if it were happening in his legs, it would not bother him. But,

it is happening in his chest and that scares him. He becomes anxious. I

think Nick just needs something to help him calm down, but these issues have

been going on so long that he's become extremely emotional. He just wants

the pain to quit. He said if the pain were to quit, he would feel so much

better. Right now, he's lost all confidence in the medical profession and he

thinks that he will have to deal with this forever with no hope for

recovery. I've tried to be encouraging to help him over these rough spots.

I just don't want Nick to be labeled as a " nut case " . All he needs is

something to help him calm down.

Donna in WA

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This is a tough one, Donna. Like you said, you don't want him labeled unfairly but you also want to get to the bottom of his problems. Is Mara your pc? hugs Sharonjoin me on Facebook:Sharon Mars wobbletowalk@...This email is a natural hand made product. The slight variations in spelling and grammar enhance its individual character and beauty and in no way are to be considered flaws or defects. To: mserslife Sent: Mon, December 21, 2009 11:40:47 AMSubject: update

I got a call from the clinic this morning. Mara is going to make a psych referral. The new pain that Nick is experiencing is an electric shock type. He said that if it were happening in his legs, it would not bother him. But, it is happening in his chest and that scares him. He becomes anxious. I think Nick just needs something to help him calm down, but these issues have been going on so long that he's become extremely emotional. He just wants the pain to quit. He said if the pain were to quit, he would feel so much better. Right now, he's lost all confidence in the medical profession and he thinks that he will have to deal with this forever with no hope for recovery. I've tried to be encouraging to help him over these rough spots. I just don't want Nick to be labeled as a "nut case". All he needs is something to help him calm down.Donna in WA

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This is a tough one, Donna. Like you said, you don't want him labeled unfairly but you also want to get to the bottom of his problems. Is Mara your pc? hugs Sharonjoin me on Facebook:Sharon Mars wobbletowalk@...This email is a natural hand made product. The slight variations in spelling and grammar enhance its individual character and beauty and in no way are to be considered flaws or defects. To: mserslife Sent: Mon, December 21, 2009 11:40:47 AMSubject: update

I got a call from the clinic this morning. Mara is going to make a psych referral. The new pain that Nick is experiencing is an electric shock type. He said that if it were happening in his legs, it would not bother him. But, it is happening in his chest and that scares him. He becomes anxious. I think Nick just needs something to help him calm down, but these issues have been going on so long that he's become extremely emotional. He just wants the pain to quit. He said if the pain were to quit, he would feel so much better. Right now, he's lost all confidence in the medical profession and he thinks that he will have to deal with this forever with no hope for recovery. I've tried to be encouraging to help him over these rough spots. I just don't want Nick to be labeled as a "nut case". All he needs is something to help him calm down.Donna in WA

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This is a tough one, Donna. Like you said, you don't want him labeled unfairly but you also want to get to the bottom of his problems. Is Mara your pc? hugs Sharonjoin me on Facebook:Sharon Mars wobbletowalk@...This email is a natural hand made product. The slight variations in spelling and grammar enhance its individual character and beauty and in no way are to be considered flaws or defects. To: mserslife Sent: Mon, December 21, 2009 11:40:47 AMSubject: update

I got a call from the clinic this morning. Mara is going to make a psych referral. The new pain that Nick is experiencing is an electric shock type. He said that if it were happening in his legs, it would not bother him. But, it is happening in his chest and that scares him. He becomes anxious. I think Nick just needs something to help him calm down, but these issues have been going on so long that he's become extremely emotional. He just wants the pain to quit. He said if the pain were to quit, he would feel so much better. Right now, he's lost all confidence in the medical profession and he thinks that he will have to deal with this forever with no hope for recovery. I've tried to be encouraging to help him over these rough spots. I just don't want Nick to be labeled as a "nut case". All he needs is something to help him calm down.Donna in WA

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