Re: Older plagio getting assessed at CT - help needed...

[Guest guest]

He looks pretty mild to me too, definitely not a candidate for

surgery. He's adorable! Many babies who are banded even still end

up with asymmetry similar to that. Thanks for sharing the pics.

, mom to Hannah, DOCgrad

Cape Cod, Ma

http://hannahsnoggin.typepad.com

>

> xzvhfh2 <cjd10@c...> wrote:

> I HIGHLY doubt we would ever do surgery. They would have to tell

me he's very severe or that there is some other life threatening

thing going on.

>

> Mostly I want to get the assessment at CT done so I know where he

is at for my own peace of mind as well as knowing how to consider

his options as he gets older.

>

> Take a peek at JED in the Olderplagio folder. I just posted them.

> Thanks for your input.

> Re: Older plagio getting assessed at CT - help

needed...

>

>

> Hi Charalet. Good luck with your research. I believe that they do

> not band children after 18-24 mos. because the shape of the head

is

> pretty set at that time. After that it, the head grows in size due

to

> layering of harder bone. I'm not an expert and can't really

explain

> it well but I'm sure that your pediatrician or a neurologist could

> explain it. Perhaps you can find some info from a legitimate web

site.

>

> I wouldn't mind seeing your son and would give you my honest

opinion.

> I will check the OlderPlag grp. Surgery seems very drastic and

> perhaps unnecessary. Is he healthy and developing well despite

his

> headshape? Do you think it will be noticeable to others (kids,

> teasing?) I will tek a peek and write you back....

>

> Sue

> Colin F. 20 mos.

> STARband grad for brachy 9/04

> Buffalo, NY

>

>

> > Hey All,

> > Well, I am finally taking the plunge.

> >

> > Back ground: I first noticed the plagio at 6 weeks, but the peds

> > fluffed us off. Last Fall, my nephew was diagnosed with Torti &

> > Plagio - that's the first I knew the " flat spot " had a medical

> > name... As I researched further I learned that I missed out on

a

> lot

> > of options and am still working through the whole thing.

> >

> > I have given myself until 9/1/05 to dig into it and kinda

> > be " consumed " by it. So I finally was able to schedule an

> > appointment with Cranial Technologies in Chicago. I'll be

meeting

> > with Kay McGuire about my 3yo's head shape.

> >

> > So, between now and then - I need to get prepared...

> > Anyone else take an older child with plagio to CT to get

assessed?

> > Tell me about it.

> >

> > What questions should I ask?

> > What can I expect?

> > Anything anyone hear wants to know that I can post after our

> > appointment?

> >

> > I am scheduled for 7/21/05 - yes, it's months away, but I

scheduled

> > it to fit with my trip back to the grandparents home since there

> > isn't a CT near us in Oregon. I did post this in the olderplag

> group.

> >

> > Look forward to your reply. Thanks.

> > Charalet

> > Mom to athan, almost 3yo - unresolved Plagio

> > Mom to , 5mo

> > Auntie to Eli, 9mo - Torti, plagio, Starband 3/05

>

>

>

>

> For more plagio info