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's doctors visit

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went to see her pulmonologist yesterday and we had another chest x-ray

done. She still has some atelectasis, but it is much better than last Thursday.

That is the good news. The bad news is that she went one night without needing

any O2 and then last night needed it again. If she starts to get worse without

the pulmozyme, then we are going to have to put her back in the hospital and she

will have to stay there until she no longer needs the pulmozyme. She had only

missed 3 doses when we went for the x-ray. Lets just hope she continues to

improve. We have now decided that anytime she needs the pulmozyme, we are going

to keep her in the hospital until we are sure she no longer needs it.

Her teacher came out and started working with her yesterday. That went really

well and she was signing new words last night from the one hour session she had.

Her pulmonologist said that he will not release her to return to school until

she gets her central line out, so she is out for a couple more weeks.

Mom to 3 yrs CHARGE

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