Guest guest Posted March 25, 2004 Report Share Posted March 25, 2004 What level of kidney function are you at? Do you have to be on a low anything diet? You might feel weak when you have more advanced kidney insufficiency, but there's really no reason for IgAN itself to make you feel weak. Could be blood pressure medication though. What time of day do you take the medication, if any, and which one? Could be other things too, I guess. Pierre Why am I so weak? > Okay, is weakness part of IGAN? I was feeling GREAT, then the past > two days, the mornings are horrible. I wake up and feel like its > all I can do to climb up the stairs or get off the couch. However, > as the days goes on I feel good. Just wondering if this is IGAN or > medicine related. Anyone else feel this way? > > Jill > > P.S. - You guys/gals have no idea what you've done for me with this > support group. You are the only people I have to talk to about this > and you always put my mind at ease. I am so thankful to have found > you!!!! > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 25, 2004 Report Share Posted March 25, 2004 What level of kidney function are you at? Do you have to be on a low anything diet? You might feel weak when you have more advanced kidney insufficiency, but there's really no reason for IgAN itself to make you feel weak. Could be blood pressure medication though. What time of day do you take the medication, if any, and which one? Could be other things too, I guess. Pierre Why am I so weak? > Okay, is weakness part of IGAN? I was feeling GREAT, then the past > two days, the mornings are horrible. I wake up and feel like its > all I can do to climb up the stairs or get off the couch. However, > as the days goes on I feel good. Just wondering if this is IGAN or > medicine related. Anyone else feel this way? > > Jill > > P.S. - You guys/gals have no idea what you've done for me with this > support group. You are the only people I have to talk to about this > and you always put my mind at ease. I am so thankful to have found > you!!!! > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 25, 2004 Report Share Posted March 25, 2004 What level of kidney function are you at? Do you have to be on a low anything diet? You might feel weak when you have more advanced kidney insufficiency, but there's really no reason for IgAN itself to make you feel weak. Could be blood pressure medication though. What time of day do you take the medication, if any, and which one? Could be other things too, I guess. Pierre Why am I so weak? > Okay, is weakness part of IGAN? I was feeling GREAT, then the past > two days, the mornings are horrible. I wake up and feel like its > all I can do to climb up the stairs or get off the couch. However, > as the days goes on I feel good. Just wondering if this is IGAN or > medicine related. Anyone else feel this way? > > Jill > > P.S. - You guys/gals have no idea what you've done for me with this > support group. You are the only people I have to talk to about this > and you always put my mind at ease. I am so thankful to have found > you!!!! > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 25, 2004 Report Share Posted March 25, 2004 Jill, Have you asked your neph about possibly being anemic? I know this usually happens when you get closer to renal failure--but what exactly is your level of functioning? I was always anemic, even without my kidney functioning being low. I think for me it was just genetics. > What level of kidney function are you at? Do you have to be on a low > anything diet? You might feel weak when you have more advanced kidney > insufficiency, but there's really no reason for IgAN itself to make you feel > weak. Could be blood pressure medication though. What time of day do you > take the medication, if any, and which one? Could be other things too, I > guess. > Pierre > > Why am I so weak? > > > > Okay, is weakness part of IGAN? I was feeling GREAT, then the past > > two days, the mornings are horrible. I wake up and feel like its > > all I can do to climb up the stairs or get off the couch. However, > > as the days goes on I feel good. Just wondering if this is IGAN or > > medicine related. Anyone else feel this way? > > > > Jill > > > > P.S. - You guys/gals have no idea what you've done for me with this > > support group. You are the only people I have to talk to about this > > and you always put my mind at ease. I am so thankful to have found > > you!!!! > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 25, 2004 Report Share Posted March 25, 2004 Jill, Have you asked your neph about possibly being anemic? I know this usually happens when you get closer to renal failure--but what exactly is your level of functioning? I was always anemic, even without my kidney functioning being low. I think for me it was just genetics. > What level of kidney function are you at? Do you have to be on a low > anything diet? You might feel weak when you have more advanced kidney > insufficiency, but there's really no reason for IgAN itself to make you feel > weak. Could be blood pressure medication though. What time of day do you > take the medication, if any, and which one? Could be other things too, I > guess. > Pierre > > Why am I so weak? > > > > Okay, is weakness part of IGAN? I was feeling GREAT, then the past > > two days, the mornings are horrible. I wake up and feel like its > > all I can do to climb up the stairs or get off the couch. However, > > as the days goes on I feel good. Just wondering if this is IGAN or > > medicine related. Anyone else feel this way? > > > > Jill > > > > P.S. - You guys/gals have no idea what you've done for me with this > > support group. You are the only people I have to talk to about this > > and you always put my mind at ease. I am so thankful to have found > > you!!!! > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 25, 2004 Report Share Posted March 25, 2004 Jill, Have you asked your neph about possibly being anemic? I know this usually happens when you get closer to renal failure--but what exactly is your level of functioning? I was always anemic, even without my kidney functioning being low. I think for me it was just genetics. > What level of kidney function are you at? Do you have to be on a low > anything diet? You might feel weak when you have more advanced kidney > insufficiency, but there's really no reason for IgAN itself to make you feel > weak. Could be blood pressure medication though. What time of day do you > take the medication, if any, and which one? Could be other things too, I > guess. > Pierre > > Why am I so weak? > > > > Okay, is weakness part of IGAN? I was feeling GREAT, then the past > > two days, the mornings are horrible. I wake up and feel like its > > all I can do to climb up the stairs or get off the couch. However, > > as the days goes on I feel good. Just wondering if this is IGAN or > > medicine related. Anyone else feel this way? > > > > Jill > > > > P.S. - You guys/gals have no idea what you've done for me with this > > support group. You are the only people I have to talk to about this > > and you always put my mind at ease. I am so thankful to have found > > you!!!! > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 25, 2004 Report Share Posted March 25, 2004 Jill, Is it possible you are in the middle of a flare up or have a low grade virus? Weakness is not a usual symptom of Igan. Fatigue is, but not weakness. I hope you feel better and more energetic soon. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 25, 2004 Report Share Posted March 25, 2004 Jill the IgAN and/or the drug combinations we are on tend to make me feel tired more than weak. However the prednisone seemed to make me feel very weak when I first started on it. I had a lot of muscle fatigue and shaking at the start but it got better over time as my body adjusted to the drug. It seems you really need to keep up with some sort of mild exercise while on prednisone or that weakness feeling hits you hard. (at least for me it has been like this) I notice a big difference when I do just a little bit of stretching with resistance bands daily along with my walk on my treadmill. If I don't keep up with it my hands shake when I pick up heavy items and my legs get shaky walking up stairs. The weakness feeling has reduced quite a bit as my dose has gone down too. It's something you do want to mention to your neph next time you go in....add it to your list of questions.....just in case it is being caused by anemia or something else. Seems like everytime I have minor problems I ask my neph about them, he looks over my labwork, checks me out, and then says " Yep it's most likely just the prednisone. " ) Nasty little drug it is but it does help some of us quite a bit! Amy Why am I so weak? > Okay, is weakness part of IGAN? I was feeling GREAT, then the past > two days, the mornings are horrible. I wake up and feel like its > all I can do to climb up the stairs or get off the couch. However, > as the days goes on I feel good. Just wondering if this is IGAN or > medicine related. Anyone else feel this way? > > Jill > > P.S. - You guys/gals have no idea what you've done for me with this > support group. You are the only people I have to talk to about this > and you always put my mind at ease. I am so thankful to have found > you!!!! > > > > > To edit your settings for the group, go to our Yahoo Group > home page: > http://groups.yahoo.com/group/iga-nephropathy/ > > To unsubcribe via email, > iga-nephropathy-unsubscribe > Visit our companion website at www.igan.ca. The site is entirely supported by donations. If you would like to help, go to: > http://www.igan.ca/id62.htm > > Thank you > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 25, 2004 Report Share Posted March 25, 2004 Dena, At 30, your are still low. I am sorry the Epo isn't helping to raise you higher than that. Have they tried switching you to a different product to see it that would help? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 25, 2004 Report Share Posted March 25, 2004 Dena, At 30, your are still low. I am sorry the Epo isn't helping to raise you higher than that. Have they tried switching you to a different product to see it that would help? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 25, 2004 Report Share Posted March 25, 2004 Dena, At 30, your are still low. I am sorry the Epo isn't helping to raise you higher than that. Have they tried switching you to a different product to see it that would help? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 26, 2004 Report Share Posted March 26, 2004 Better take those iron pills. If at some point you need epo, it won't work if you first have to build up your iron stores. Pierre Why am I so weak? > My neph did say I am severly anemic, in fact I am supposed to be > taking 3 325mg iron pills a day, I just haven't started them yet. > Oops. I guess I didn't realize anemia could do these things to > you. Not to share too much information, but its also my time of the > month, maybe that on top of the anemia is making things worse. > > Thanks! > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 26, 2004 Report Share Posted March 26, 2004 Better take those iron pills. If at some point you need epo, it won't work if you first have to build up your iron stores. Pierre Why am I so weak? > My neph did say I am severly anemic, in fact I am supposed to be > taking 3 325mg iron pills a day, I just haven't started them yet. > Oops. I guess I didn't realize anemia could do these things to > you. Not to share too much information, but its also my time of the > month, maybe that on top of the anemia is making things worse. > > Thanks! > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 26, 2004 Report Share Posted March 26, 2004 Better take those iron pills. If at some point you need epo, it won't work if you first have to build up your iron stores. Pierre Why am I so weak? > My neph did say I am severly anemic, in fact I am supposed to be > taking 3 325mg iron pills a day, I just haven't started them yet. > Oops. I guess I didn't realize anemia could do these things to > you. Not to share too much information, but its also my time of the > month, maybe that on top of the anemia is making things worse. > > Thanks! > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 26, 2004 Report Share Posted March 26, 2004 I was severely anemic as well. I remember my legs burning when I would go up the stairs, and my arms burning when I would put on clothes. You definitely need to be taking those iron pills, they will help! Especially since your functioning and creatinine seem to be normal. Good luck. > My neph did say I am severly anemic, in fact I am supposed to be > taking 3 325mg iron pills a day, I just haven't started them yet. > Oops. I guess I didn't realize anemia could do these things to > you. Not to share too much information, but its also my time of the > month, maybe that on top of the anemia is making things worse. > > Thanks! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 26, 2004 Report Share Posted March 26, 2004 I was severely anemic as well. I remember my legs burning when I would go up the stairs, and my arms burning when I would put on clothes. You definitely need to be taking those iron pills, they will help! Especially since your functioning and creatinine seem to be normal. Good luck. > My neph did say I am severly anemic, in fact I am supposed to be > taking 3 325mg iron pills a day, I just haven't started them yet. > Oops. I guess I didn't realize anemia could do these things to > you. Not to share too much information, but its also my time of the > month, maybe that on top of the anemia is making things worse. > > Thanks! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 26, 2004 Report Share Posted March 26, 2004 I was severely anemic as well. I remember my legs burning when I would go up the stairs, and my arms burning when I would put on clothes. You definitely need to be taking those iron pills, they will help! Especially since your functioning and creatinine seem to be normal. Good luck. > My neph did say I am severly anemic, in fact I am supposed to be > taking 3 325mg iron pills a day, I just haven't started them yet. > Oops. I guess I didn't realize anemia could do these things to > you. Not to share too much information, but its also my time of the > month, maybe that on top of the anemia is making things worse. > > Thanks! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 26, 2004 Report Share Posted March 26, 2004 I can't say I felt really weak before I started on epo. It was more like tiring easily and especially, get short of breath quickly on just very mild exercise. I guess not everyone feels exactly the same way though. Pierre Re: Why am I so weak? > I was severely anemic as well. I remember my legs burning when I > would go up the stairs, and my arms burning when I would put on > clothes. You definitely need to be taking those iron pills, they > will help! Especially since your functioning and creatinine seem to > be normal. Good luck. > > > > > > My neph did say I am severly anemic, in fact I am supposed to be > > taking 3 325mg iron pills a day, I just haven't started them yet. > > Oops. I guess I didn't realize anemia could do these things to > > you. Not to share too much information, but its also my time of > the > > month, maybe that on top of the anemia is making things worse. > > > > Thanks! > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 26, 2004 Report Share Posted March 26, 2004 I can't say I felt really weak before I started on epo. It was more like tiring easily and especially, get short of breath quickly on just very mild exercise. I guess not everyone feels exactly the same way though. Pierre Re: Why am I so weak? > I was severely anemic as well. I remember my legs burning when I > would go up the stairs, and my arms burning when I would put on > clothes. You definitely need to be taking those iron pills, they > will help! Especially since your functioning and creatinine seem to > be normal. Good luck. > > > > > > My neph did say I am severly anemic, in fact I am supposed to be > > taking 3 325mg iron pills a day, I just haven't started them yet. > > Oops. I guess I didn't realize anemia could do these things to > > you. Not to share too much information, but its also my time of > the > > month, maybe that on top of the anemia is making things worse. > > > > Thanks! > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 26, 2004 Report Share Posted March 26, 2004 I can't say I felt really weak before I started on epo. It was more like tiring easily and especially, get short of breath quickly on just very mild exercise. I guess not everyone feels exactly the same way though. Pierre Re: Why am I so weak? > I was severely anemic as well. I remember my legs burning when I > would go up the stairs, and my arms burning when I would put on > clothes. You definitely need to be taking those iron pills, they > will help! Especially since your functioning and creatinine seem to > be normal. Good luck. > > > > > > My neph did say I am severly anemic, in fact I am supposed to be > > taking 3 325mg iron pills a day, I just haven't started them yet. > > Oops. I guess I didn't realize anemia could do these things to > > you. Not to share too much information, but its also my time of > the > > month, maybe that on top of the anemia is making things worse. > > > > Thanks! > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 27, 2004 Report Share Posted March 27, 2004 Dena, I don't know how you function at 22, or even at 25-27. I feel so wiped out when I drop to 30. I have been accused of being stubborn a time or two in my life too, and like you, I try to use that as an asset in dealing with IgAN :-) I am glad you have that reserve to draw on. I think you are an exception in not responding to any of the Epo products. I really wish there would be one that would help you. I guess the only light at the end of the tunnel is if you do get a new kidney, it will make the hormone and help get your levels up there...not that I am wishing you get to end stage, but if that happens, I guess that will be one of the blessings that will come from it. I do hate to think of you needing to go through a hysterectomy to help the anemia, but I understand how important it is to get your levels up too. I wish you all the best! In a message dated 3/26/2004 9:09:10 PM Pacific Standard Time, southern_lady66@... writes: > , > > My neph has put me on other epo. Nothing has seemed to > help. When female issues hit me, my levels drop to > 25-27. Lowest I have been is 22. I am seeing an gyn > doctor to see if I can have a hysterectomy. Neph > thinks if you take that away. My levels should at > least stay stable at 30. I have gotten use to it being > 30 it is when it drops to 25-27 that kills me. > I guess my stubborness has helped me to deal with this > anemia I wont let it get me down. > > Dena > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 27, 2004 Report Share Posted March 27, 2004 Dena, I don't know how you function at 22, or even at 25-27. I feel so wiped out when I drop to 30. I have been accused of being stubborn a time or two in my life too, and like you, I try to use that as an asset in dealing with IgAN :-) I am glad you have that reserve to draw on. I think you are an exception in not responding to any of the Epo products. I really wish there would be one that would help you. I guess the only light at the end of the tunnel is if you do get a new kidney, it will make the hormone and help get your levels up there...not that I am wishing you get to end stage, but if that happens, I guess that will be one of the blessings that will come from it. I do hate to think of you needing to go through a hysterectomy to help the anemia, but I understand how important it is to get your levels up too. I wish you all the best! In a message dated 3/26/2004 9:09:10 PM Pacific Standard Time, southern_lady66@... writes: > , > > My neph has put me on other epo. Nothing has seemed to > help. When female issues hit me, my levels drop to > 25-27. Lowest I have been is 22. I am seeing an gyn > doctor to see if I can have a hysterectomy. Neph > thinks if you take that away. My levels should at > least stay stable at 30. I have gotten use to it being > 30 it is when it drops to 25-27 that kills me. > I guess my stubborness has helped me to deal with this > anemia I wont let it get me down. > > Dena > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 27, 2004 Report Share Posted March 27, 2004 Dena, I don't know how you function at 22, or even at 25-27. I feel so wiped out when I drop to 30. I have been accused of being stubborn a time or two in my life too, and like you, I try to use that as an asset in dealing with IgAN :-) I am glad you have that reserve to draw on. I think you are an exception in not responding to any of the Epo products. I really wish there would be one that would help you. I guess the only light at the end of the tunnel is if you do get a new kidney, it will make the hormone and help get your levels up there...not that I am wishing you get to end stage, but if that happens, I guess that will be one of the blessings that will come from it. I do hate to think of you needing to go through a hysterectomy to help the anemia, but I understand how important it is to get your levels up too. I wish you all the best! In a message dated 3/26/2004 9:09:10 PM Pacific Standard Time, southern_lady66@... writes: > , > > My neph has put me on other epo. Nothing has seemed to > help. When female issues hit me, my levels drop to > 25-27. Lowest I have been is 22. I am seeing an gyn > doctor to see if I can have a hysterectomy. Neph > thinks if you take that away. My levels should at > least stay stable at 30. I have gotten use to it being > 30 it is when it drops to 25-27 that kills me. > I guess my stubborness has helped me to deal with this > anemia I wont let it get me down. > > Dena > Quote Link to comment Share on other sites More sharing options...
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